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Breast Cancer

Side Affects AFTER CHEMO

Not to me, because I'm alive and I didn't have to be.  (Jan 12, 2013 | post #282)

Breast Cancer

Testimony set to begin in pregnancy drug case

I feel for the women, but I'm assuming they had genetic studies on their family done. Coincidence happens, and that's why the courts should demand rigorous research. I am not aware of any research supporting their claim, and I've paid close attention to the research. I'm not defending DES, but I'm not aware of it causing *breast* cancer.  (Jan 10, 2013 | post #3)

Breast Cancer

NHS drug to help fight bone cancer

While it's nice to see a positive post -- go to your doctor for advice on treatment, not some unknown person on the internet.  (Dec 25, 2012 | post #20)

Breast Cancer

NHS drug to help fight bone cancer

Screen name should have been shill, not "shell." Just another lawyer trying to get as much money as possible from other people's misery.  (Dec 25, 2012 | post #19)

Breast Cancer

NHS drug to help fight bone cancer

You have a far stronger agenda than the people you criticize. Narcotics are PAIN KILLERS and many of our soldiers have been horribly maimed and injured in that war. OF COURSE The number has gone up -- the number of devastated, dismembered bodies still alive by some miracle has gone up. How disgusting your post was. Let's just let them be blown up for their country -- and then deny them relief for the resulting pain. Now THAT'S a plan.  (Dec 25, 2012 | post #18)

Breast Cancer

NHS drug to help fight bone cancer

How odious and disgusting that is.  (Dec 25, 2012 | post #17)

Breast Cancer

NHS drug to help fight bone cancer

We don't know, because it's a new drug. So what do we have here? A link to a LAW FIRM looking for clients. Wanting to make money off of YOUR DEVASTATING ILLNESS. Bunch of vampires. The greater the risk of the illness, the greater the risk a person with that illness will take. For a lawyer to come sniffing around hoping to profit from that is just disgusting.  (Dec 25, 2012 | post #16)

Breast Cancer

Kind hairdresser helping women through one of the most tr...

I know losing your hair can be traumatic. I have been through this. But I urge women to not over-focus on a temporary loss of hair. There are two reasons for that. First, it's just a side effect. It's not the "big battle." Second, it can go on for a long time. If you have to take AI's afterwards, you will find that those drugs significantly depress the return of your hair. So it could go on well past the chemo. I don't LIKE it, but it happened to me. The new AI's were new enough that it wasn't listed as a significant side effect, but it's very real. To be upset about something that may well last a long time is counter-productive . I applaud the hair dresser involved. I also bought two of the wig I chose, and it's a good thing I did, because I accidentally ruined the first one over a BBQ grill and I was able to replace it with the "back up" without dramatically changing my look and drawing a lot of attention to my situation. I not only shaved my head -- I started wearing the wig before I started chemo. I didn't want my friends buzzing about it when my hair started falling out. When it did start falling out, I had my head shaved. That won't be right for everyone. I throw it out there for who might find it to be a good idea.  (Dec 25, 2012 | post #1)

Breast Cancer

NHS drug to help fight bone cancer

I agree that it's a human rights issue. Parents have no right to deny their children life-saving treatment. The child should be taken away if necessary. If the child stands no chance of surviving, that's a different matter, but when proven treatments exist it is medical child abuse to deny the child that proven treatment.  (Dec 24, 2012 | post #15)

Breast Cancer

Taxotere - side effects - permanent hair loss !

Wow. That was just really ugly.  (Dec 23, 2012 | post #377)

Breast Cancer

Taxotere - side effects - permanent hair loss !

I'm sorry, but at this point the hair thing is old news. It really IS time to get over it. I had side effects, serious ones, from another non-chemo treatment that wasn't in the literature ... yet. But I knew that treatments for cancer could have serious side effects, and I knew that anger would not take me to any good place. My hair is thin. My eyelashes are very thing. But I'm alive and have good reason to expect to die of something other than breast cancer. If I hadn't been told this could happen, that would be the only thing that would have changed. I'd still be alive. When I had taxotere, it WAS believed that permanent hair loss was rare. So nothing much would have changed for me. I just see no point in staying angry about it. Maybe it's a glass half full vs. empty thing.  (Dec 20, 2012 | post #373)

Breast Cancer

Taxotere - side effects - permanent hair loss !

Look at this: they've found Herceptin-sensitiv e stem cells in supposedly triple-negative tumor tissue: http://www.medilex icon.com/medicalne ws.php?newsid=2541 41 In other cases they have found hormone-sensitive stem cells in supposedly triple-negative tumor tissue. I say again PLEASE DO NOT MAKE MEDICAL DECISIONS BASED ON WHAT YOU FIND ONLINE. Our oncologists have actually known about this research long before it was published. They have their own, advanced pipeline and know about the likely results of groundbreaking research before it gets down to the rest of us. Not once but twice the fact that my oncologist had that information, I got treatment before most people -- including his highly trained oncology nurses -- knew. He gets this stuff on CD's and listens to it on his drive to work. He is constantly gathering new information. This means that MORE of us will receive MORE information. That means MORE side effects. This is how it is. And, we are NOT going to change all the oncologists out there. Some of them will still withhold information about side effects in the hope that we won't experience them and will have the needed treatment. That means WE must ask. We MUST insist on ALL the information -- including what prompted this thread -- that it is a FACT that hair does not always grow back, and does not always grow back completely. The side effects can be devastating, but we are going to have to pull up our big girl panties and weigh the risk vs the benefits. That's just how it is. The research I just linked up there is actually GOOD news for women with triple negative cancer. It means there may be more treatment options. Maybe the death rate for that very common form of breast cancer will actually go down. But some people have very significant side effects from Herceptin or the other treatment, Tykirb. I received Herceptin and I did not. However, I did from AI's -- side effects that were really tough to deal with. But I know other women who did not react that way. We can't know ahead of time, and right now all we can do is play the odds -- BUT YOU DO THAT BEST BY INSISTING ON ALL THE INFORMATION. If your doctor doesn't trust you with that -- get a second opinion.  (Dec 20, 2012 | post #371)

Breast Cancer

Taxotere - side effects - permanent hair loss !

Actually it's circulating CELLS, not tumors, and it increases the liklihood of a spread but is not a guarantee. Just because the cell is in the bloodstream does not mean it will find a home. In addition, looking at circulating cells ignores the more common mode of spread, which is lymph nodes. while there are increased risks of other cancers from chemotherapy, those risks are low. And the 70% and 69% survival rates were for those with RECURRENT cancer, not someone like me who had non-recurrent. For someone like me, localized and non-recurring, the survival rate for hormone-positive cancer was a stunning (to me) 94%. Mine was also herceptin-sensitiv e, so that complicates it some. We know Herceptin increases survival rates, but they don't yet have the long-term statistics on survival for that. So mine isn't simple, and nothing is as simple as you explained it. And, by the way, I personally knew a wonderful woman who survived the breast cancer only to develop lymphoma, possibly (but not guaranteed, as you surely know) from the chemotherapy. It's an EDUCATED gamble I took. We don't know everything there is to know yet about any of the breast cancers ("breast cancer" is a type of disease, not a disease itself), so we do the best we can. And, for those who don't know, research studies will ALWAYS end with a call for more research. There is a *rational* and *important* reason for this. If anyone wants me to explain I will, but I will wait for a (polite) invitation to do so first. It's actually important knowledge that IMO all who have to make decisions based on research should know.  (Dec 16, 2012 | post #368)

Breast Cancer

Taxotere - side effects - permanent hair loss !

CLEARLY chemotherapy works. According to this, I have a 94% chance of survival. That's really good odds for such a devastating illness -- worth, frankly, thinner hair and eyelashes. http://www.bioscie ncetechnology.com/ news/2012/12/chemo therapy-after-comp lete-surgical-remo val-local-or-regio nal-breast-cancer- recurrence-increas ed-survival-rates  (Dec 15, 2012 | post #366)