Answer to Annette Funicello's MS?

Posted in the Annette Funicello Forum

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Claudia Burke

Lincolnton, NC

#1 Jun 20, 2008
Annette needs to look into the Hallelujah Acres Diet and Lifestyle article by Judith Livingstone. "Multiple Sclerosis Gone After 17 Years of Suffering". She is Debra Irwin married to Bill Erwin, the only blind man to ever walk the entire 2,169 mile Appalachian Trail. Her husband introduced her to the hallelujah acres diet and lifestyle and almost immediately she started to get well! Bill Erwin can be reached at contactus@billirwin.com I am praying that Annette gets this message.
Niecey

United States

#2 Jul 19, 2008
Be careful not to tell others what to do. My mother died from MS 7 years ago. She tried everything to get better from snake venom to natural honey, diets and various remedies. Nothing improved her condition. I know you are trying to be helpful but I suspect Annette has tried everything under the sun. Nothing works for everyone. Your concern is much appreciated.
WildBoar

United States

#3 Jul 27, 2008
I hold Annette's book dear, having MS for 21 years. It is a descending condition disease for all at different rates.People with MS live longer now, but there is NO cure. There may be one let out from the hands of the FDA(a blocker, not a cure) in less than five years.It would stop it in it's track but not repair damage already done.
It is not nice being trapped in one's own body. Just blessings for Annette and those who really know or understand.
P.S. Grew up in suburbs on the first run Mickey Mouse Club.
Gayle Herron

Victoria, TX

#4 Aug 1, 2008
THANK YOU for your comments.... I have MS and for 10 years it had no baring on me except occasionally I would walk like a little ol' lady until I took an infrequently needed (although increasingly needed the past couple years) Amantadine (that in the past always worked well). As I am now apparently going into a worsening stage, walking more of a challenge at times, pain nearly all the time (especially when I try to lay down to sleep or sit for too long), I fear the future. I am starting to consider oddball options that don't seem that strange when your in fear and pain. Thank you for helping me not just JUMP into something out of that fear and pain but to stay rational, and possibly, to accept my destiny.
Niecey wrote:
Be careful not to tell others what to do. My mother died from MS 7 years ago. She tried everything to get better from snake venom to natural honey, diets and various remedies. Nothing improved her condition. I know you are trying to be helpful but I suspect Annette has tried everything under the sun. Nothing works for everyone. Your concern is much appreciated.
Arlene

Dover, NH

#5 Aug 1, 2008
I also have MS, and I am a fan of Annette, and wsih her my very best.
She is in my prayers.
I would like to know if you can buy a DVD of the book Annette wrote and it was a movie in 1995...Dream is a wish your heart makes: My story ?
Thank you
Tim Asbury

Lyburn, WV

#6 Aug 6, 2008
Rumors are that she passed away. I hope not but please advise
diana

Damascus, MD

#7 Aug 8, 2008
I am 47 now. I was diagnosed with a Relapsing-Remitting form of MS 14 years ago. In 2004 I turned Progressive, was no longer able to walk/drive my car/stand long hours on the job, and had to take disability retirement. Until 2004 I had (unsuccessfully) tried Interferon for 7 years, then, for another 5 years, live bees stings with no improvement. Acupuncture had no effect as well. In March 2007 I had my first Umbilical Cord Stem Cell treatment in Tijuana, Mexico (the FDA has not approved clinical studies with UCSC in the USA so far), then a second round of treatment in October 2007. The disease stopped progressing, and I had lots of functional improvements that are still holding. I know I'll have to go back for another "boost" in the following 3 months as Umbilical Cord Stem Cells improve not cure the disease (at least for now) and, around 8 months after stem cell treatment, some decline starts showing up. But, I have never hit the rock bottom of functional distress I had reached before starting the first round of Umbilical Cord Stem Cells (which are pluripotent). I thank God that my mother seized the reins when she saw me undecisive, 18 months ago, to start stem cells.
Rita

Kansas City, MO

#8 Aug 8, 2008
I just wonder what success people have had using LOW DOSE NALTREXONE, and PROCARIN? My daughter is on this treatment now, for about a month, with no signs of improvement, but still there is hope. Our next step, is Hormonal/Vitamin/Mineral/Toxin testing, to rule-out trouble there. Also, LYME'S testing....the proper way, under strong magnification, should be on the list of things-to-do. Thanks for any feedback. Her primary problem is balance when walking, and the threat of decline.
Caroline

Norristown, PA

#9 Aug 9, 2008
Claudia Burke wrote:
Annette needs to look into the Hallelujah Acres Diet and Lifestyle article by Judith Livingstone. "Multiple Sclerosis Gone After 17 Years of Suffering". She is Debra Irwin married to Bill Erwin, the only blind man to ever walk the entire 2,169 mile Appalachian Trail. Her husband introduced her to the hallelujah acres diet and lifestyle and almost immediately she started to get well! Bill Erwin can be reached at contactus@billirwin.com I am praying that Annette gets this message.
That is rediculous. Any that was so called "cured" after trying ojne of these snake oil treatments either had mild RRMS (relapsing-remitting) or did not have it at all. Primary progressive MS is unrelenting and does not respond to any treatments at all. You should know your facts about MS before posting something like this.
Amy

Metairie, LA

#10 Aug 9, 2008
I am a 35 year old woman who has just been diagnosed with Secondary Progressive MS, after only 4 years of having Relapsing Remitting diagnosis. I get tired of everyone with these "cures", who have no knowledge of this illness, or the permnant damage it does!
To Annette, you are an inspiration, your strength, and smile helps those of us fighting this disease push to continue. Thank you! You and your family are in my thoughts and prayers!
Diana from Maryland

Damascus, MD

#11 Aug 12, 2008
Nobody in this forum seems to react to my input about the improvements I got wit my Secondary Progressive MS through Umbilical Cord Stem Cells I got treated with in Mexico. The doctor who sent me there is American. I was just wondering if Annette ever did stem cells. I praise the Lord I did them in March 2007, and then in October the same year.
WildBoar

United States

#12 Aug 12, 2008
Diana from Maryland wrote:
Nobody in this forum seems to react to my input about the improvements I got wit my Secondary Progressive MS through Umbilical Cord Stem Cells I got treated with in Mexico. The doctor who sent me there is American. I was just wondering if Annette ever did stem cells. I praise the Lord I did them in March 2007, and then in October the same year.
Can you tell us more about this treatment-how the stem cells are harvested, how it is delivered to you and is it under physicians or hospital environment? What tests are needed during treatment, what conditions must it be given under, any physicians proofs of improvement you might have, short and long term followup of treatments? Published results of persons like you who have had this same treatment anywhere? Would sure appreciate it.
WildBoar

United States

#13 Aug 12, 2008
Caroline wrote:
<quoted text>
That is ridiculous. Any that was so called "cured" after trying ojne of these snake oil treatments either had mild RRMS (relapsing-remitting) or did not have it at all. Primary progressive MS is unrelenting and does not respond to any treatments at all. You should know your facts about MS before posting something like this.
You're right.The euphoric effect of 'trying the new' predominates only temporarily after all these 'sells' of 'treatments' that clean the persons pocketbook and do no more long term, nor permanent.
The school of thought that some learn from childhood on that all people with a disease must have something wrong or lacking in their diet, etc. is like the school blaming everything on a person being a sinner.So backwards. I am allergic to bee stings and have MS. So bee stings prove NOTHING.
Having MS, the sheer force of the pain and temporary(although some become permanent and deep later on some)whip outs of the cognitive function are so bad one is often driven to odd thoughts and desperation not even KNOWN to them(in acting upon it)to do things like try 'snakeoils'. This is where STRONG family and other community support is yet lacking for these patients. Furthermore, palliative pain care is YET severly lacking in the US in hospital, clinical, home settings. This garbage, and that is what it is, about anyone 'being on pain killers' must be an addict is unfounded.
The blocker(some would call it a 'cure', which it is not) for MS IS in the hands of clinical(not publicized-I found out through another researcher whom I can't devuldge)trials which are very rough on the participants. IF the economy has not affected the budget for these trials, PERHAPS the 'blocker'(stops MS in it's tracks it will, but not reverse damage already done)the public with MS will be able to obtain the 'medicine' for it in less than 4 or 5 years. It is way past due.
Those that purport 'snakeoil's should be the focus of the government to silence for good, the sellers. False hope helps to hurry along destruction of individuals. Non-educated public is the fault of our educational institutions, the media, the government, and in many cases family not wanting to have responsible participation in their own's dilemna.
Claudia

Candler, NC

#14 Aug 14, 2008
I am only reporting what I read in Judith Livingstones article in the Hallellujah Diet and Life Style issue #50 May/June. If you want to call her a liar then you contact her at ejliv@yahoo.com. Also, contactus@billirwin.com

I also have a cousin with ms and he has been getting bee stings for over 20 years and he is still walking, driving and talking just like he didn't have ms. And yes, he was diagnosed with MS. What works for one may not work for another but don't knock what you never tried yourself or know anything about.

“LOCAL REPORTER DISCOVERS.....”

Since: Jul 08

What? My birth town?

#15 Aug 17, 2008
Quote

That is ridiculous. Any that was so called "cured" after trying one of these snake oil treatments either had mild RRMS (relapsing-remitting) or did not have it at all. Primary progressive MS is unrelenting and does not respond to any treatments at all. You should know your facts about MS before posting something like this

unquote.

Agreed 100 percent. I am 60 years young and I have had MS since my senior year of high school. After a few years it went into remission until I was 40. Unfortunately I lived in in California at the time and MS is not seen as much as it is in the northern states (Where I lived most of my life )

When I was 51 my body became so useless and when I was diagnosed the doctors were surprised I had made it as long as I did without a doctor saying something was wrong.

I told them most thought I was crazy since because I looked so good--blah. Haven't we heard that before. You see, if I went on that diet when I was 22 everyone would have thought I had been cured.

MS acts so much differently in every person who has it and here in Ohio, it seems like you can't hardly turn around without running into another MS'er.

I am very active as an MS Ambassador and talk with others nearly everyday. We are lucky to have so many good neurologists and clinics just for patients with MS in NE Ohio. Kent State does a lot of research and I have been in several studies.

We gather for swimming, exercising, arts and trips all the time. Last January I joined the local YMCA and started swimming and exercising on my own. I now get around pretty good without my power chair--but no cure mind you.

Two weeks ago I had a relapse and went back into the hospital for a week of steroids but I am back on my feet and even went golfing on Saturday. We have the only golf course in the nation set up for disabled people.

Yoga and exercise is the best thing you can do for MS ( along with your shot of choice ) and the yoga book is available through the MS society. Yes exercising is hard--but ya got to do it.

If you can't find the yoga book through your MS chapter let me know and I will try and check back to the forum from time to time.
Linda S

Plattsburgh, NY

#16 Aug 18, 2008
I have so much admiration for Annette. I am 46 and was told about 8 years ago that I have MS. I am doing well. I would like to gently offer the opportunity of visiting my website where I am a distributor of Shaklee products ( www.shaklee.net/wholehealth )
I feel very strongly about these wonderfully pure and natural products...especially in this era of very odd immune system responses. Even though our diets are supposed to be complete in nutritional requirements, I find that with the physical, environmental and mental stresses placed on us in this hectic American lifestyle,along with the increased processed food choices and produce that is shipped from other parts of the continent to our stores, we are not necessarily getting the best of nutrition. More and more scientific research shows evidence of this. Anyway, I wish the very best to Annette and to all who are taking each day at a time with their MS.
Deb

Portsmouth, OH

#17 Mar 17, 2009
In March 2007 I had my first Umbilical Cord Stem Cell treatment in Tijuana, Mexico (the FDA has not approved clinical studies with UCSC in the USA so far), then a second round of treatment in October 2007. The disease stopped progressing, and I had lots of functional improvements that are still holding. I know I'll have to go back for another "boost" in the following 3 months as Umbilical Cord Stem Cells improve not cure the disease (at least for now) and, around 8 months after stem cell treatment, some decline starts showing up. But, I have never hit the rock bottom of functional distress I had reached before starting the first round of Umbilical Cord Stem Cells (which are pluripotent).
Hi Diana, could we have an update on your experience with stem cell treatments? My sister is considering treatment in Panama.
John A Farris PEI Canada

Stratford, Canada

#18 Mar 31, 2009
We are in the same boat. My history of MS is as follows: diagnosed in 1982 with relapse/remitting MS, since 2000 I have degenerated steadily with no assistance from any medicines, except to overcome the pain with an intermuscular pain reliever. I am at present incapable of walking, but I still have use of my arms and my big mouth. So, all I want to say is be careful, there are many people out there who say "this worked for a friend of mine & you should try......". From one MS victim to another, be careful, God bless you, & good luck...... Your fellow {prisoner}.
My younger brother who was diagnosed with MS in 1979??(not sure of year, but close), had chronic progressive MS. There was nothing in the medical world to help him. He lost his battle with MS in 2001. So, I not only know what its like to have MS, but I know what its like to lose someone to the disease. I saw my brother go from a vibrant, healthy young man to a totally incapacitated person. My fear is that I am heading down that same road. I absolutely refuse to lose hope!!!!! There is always a chance that medical science will make a breakthrough that will rescue us all, & I refuse to believe anything else but that. The most important thing to remember, never miss a chance to laugh, because I know that is one medicine that does work.
Patricia

Baltimore, MD

#19 May 19, 2009
I was diagnosed with MS 19 years ago after many years of not knowing what the heck was going on. This was before the drugs came out and I have chased so many "cures" as well as getting on the immune modifying drugs. The MS has progressed albeit slowly through the years. The best I have come up with is to maintain a healthy, positive attitude and focus on what you can do rather than what you can't. I run a support group which shifts focus away from myself yet still in tune. Exercise is crucial and provides a real positive affect on one physically & mentally. This disease is not for wimps and requires a genuine commitment to taking charge of your own well being in order to be the best you can be. A remarkable aid to stress reduction is marijuana! It has added a real positive to my life with MS.
Rani

AOL

#20 Jun 2, 2009
Rita asked "I just wonder what success people have had using LOW DOSE NALTREXONE, and PROCARIN"

I tried Procarin with no benefit. I haven't tried LDN but a friend of mine has and it has been the only thing that helped her. Her MS is relapsing/remitting with the main symptoms of gait, fatigue, and incontinence. LDN improved everything.
There is a chiropractor who has been having exceptional results with MSers, Dr. Dan Yachter. I've been seeing him since December and so far, the extreme spasticity I had in my legs is about 80% better. He is in Orlando but has associates he trained all over the country. My MS is secondary progressive, so this is not a remission that could've happened on its own.
I don's suffer from fatigue as long as I eat zero sugars and starches in any form. That means no potatoes, rice, grains, cereals, flour, pasta, bread, and corn. I also avoid artificial and processed foods, most especially artificial sweeteners.

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