Prolene Mesh = Auto-Immune Diseases
Hope

East Northport, NY

#43 Jan 27, 2013
Laura wrote:
Someone please help. I had a mesh sling put in I think in 2005/06 after a hystorectomy. I have had so much lower abdomenal pain (like a monthly period cramps), it is gradually getting worse. I am not sure if this is a symptom that anyone else is experiencing. I just want to know if this is a symptom.
I am so sorry to hear you are suffering like you are. You really need to see a doctor. I saw a Urogynecologist ,
Check out the website''s www.NOTVT.com and www.MeshMedicalDeviceNewsDesk.com . These folks may know of a doctor near you that they can recommend .
There is also another Topix site Johnson & Johnson Gynecare Lawsuit, as it has been around a lot longer than me. Just make sure you are careful to double check that whom ever you get advice or recommendations from does not have anterior motives.
Hope this helps and you get the care you need.
Hope
desperate in alabama

Anniston, AL

#44 Feb 8, 2013
I also had a #2 prolene mesh used as bladder support in 1996 .. diagnosed with Lupus .. hospital says they no longer have records .. no doctor or lawyer will help me prove this .. sucidal thoughts are overwhelming .. alabama doctors and lawyers SUCK!

Since: Mar 11

Mentone, Australia

#45 Feb 8, 2013
Thankful I haven't had mesh. This sounds horrible. We think we are so smart us humans. We course so much harm. I will pray for you all and spread your stories.
Hope

Massapequa, NY

#46 Feb 9, 2013
desperate in alabama wrote:
I also had a #2 prolene mesh used as bladder support in 1996 .. diagnosed with Lupus .. hospital says they no longer have records .. no doctor or lawyer will help me prove this .. sucidal thoughts are overwhelming .. alabama doctors and lawyers SUCK!
So sorry. I am hoping I can help get justice for us all.
Hopefully this site catches on as I believe there is strength in numbers!
Take care of yourself.
Thanks for writing.
Hope

Massapequa, NY

#47 Feb 9, 2013
saidI wrote:
Thankful I haven't had mesh. This sounds horrible. We think we are so smart us humans. We course so much harm. I will pray for you all and spread your stories.
Hopefully the this site can get the word out to others suffering in silence as a result of being exposed to toxins present in the decomposing Mesh. It's like a silent killer, half the women out there are not even being diagnosed properly.
I feel it is my duty to expose and bring the connection between the mesh and autoimmune diseases before they start using it for surgeries in children.
Cindy Davis

Phoenix, AZ

#49 Feb 23, 2013
Your description is very much similar to the other women who suffered complications due to these devices. You are not alone on this since affected women number in thousands. To get a good idea about what your are experiencing, you may search Vaginal mesh through google for more related information.
Lernie34

Carrier Mills, IL

#50 Mar 1, 2013
Hi, Hope (and all others)!

I'm glad I found this group. I had a uterine hysterectomy, sling, and reconstruction of my vaginal muscles in Dec 2009. At the time, I had a fabulous job that I worked very hard to get, a Master's degree (and hoping to pursue my phd soon) and worked out at the gym 4-6 times a week hard cardio and weight training. By two weeks after my surgery, I had pneumonia and mono...and then never really got better.

Fortunately, my PA knew me when I was in good shape, so when things got bad, she knew I wasn't faking and that there really was a problem. Also, she was willing to keep Vicodin coming because the pain was excruciating.

After seeing a rude infectious med doc, she sent me to a rheumy/neurologist who she said likes "zebras". He ultimately dignosed me with Lupus, Fibro, restless legs, Reynaud's, and now severe depression.

I had to resign from my dream job because I couldn't complete a sentence and was completely unreliable. I never knew when I would be at work. I have been completely destroyed both physically and mentally. My young children only know "tired and hurty" mom, not the one my older kids knew, that was always going to a parade, beach, or fair. Now our life revolves around how I feel. My poor husband doesn't know what to do.

I'm exhausted and think I need to get my sling out. The correlation between my illness and the implant are enough to make me a believer at this point. I live in southern Illinois. Is anyone aware if s good doc in my region of the country?

You are welcome to IM me thru Facebook-my name is Layla Murphy and my pic is a Lupus slogan. Thank you for any info, ideas, assistance, anyone can provide.
Hope

Wading River, NY

#51 Mar 4, 2013
Lernie34 wrote:
Hi, Hope (and all others)!
I'm glad I found this group. I had a uterine hysterectomy, sling, and reconstruction of my vaginal muscles in Dec 2009. At the time, I had a fabulous job that I worked very hard to get, a Master's degree (and hoping to pursue my phd soon) and worked out at the gym 4-6 times a week hard cardio and weight training. By two weeks after my surgery, I had pneumonia and mono...and then never really got better.
Fortunately, my PA knew me when I was in good shape, so when things got bad, she knew I wasn't faking and that there really was a problem. Also, she was willing to keep Vicodin coming because the pain was excruciating.
After seeing a rude infectious med doc, she sent me to a rheumy/neurologist who she said likes "zebras". He ultimately dignosed me with Lupus, Fibro, restless legs, Reynaud's, and now severe depression.
I had to resign from my dream job because I couldn't complete a sentence and was completely unreliable. I never knew when I would be at work. I have been completely destroyed both physically and mentally. My young children only know "tired and hurty" mom, not the one my older kids knew, that was always going to a parade, beach, or fair. Now our life revolves around how I feel. My poor husband doesn't know what to do.
I'm exhausted and think I need to get my sling out. The correlation between my illness and the implant are enough to make me a believer at this point. I live in southern Illinois. Is anyone aware if s good doc in my region of the country?
You are welcome to IM me thru Facebook-my name is Layla Murphy and my pic is a Lupus slogan. Thank you for any info, ideas, assistance, anyone can provide.
Layla,
I bet you had no idea your name was so dang popular on facebook but I had no luck finding you.
Please email me at [email protected] so we can chat. There is hope for you (no pun intended)
Elizabeth Luna

Matawan, NJ

#52 Mar 8, 2013
Complications arising from the use of vaginal mesh have become numerous and it is very possible that your situation is another of those adverse effects. Mesh shrinkage was only acknowledged a few years after the notice of the FDA. There are a lot of support groups and even doctors who are willing to help you and other women suffering the same adverse effect. You may learn of these groups by searching in google on subjects about vaginal mesh complications or vaginal mesh lawsuits.
meshnomorenomore

Wilmington, NC

#53 Mar 11, 2013
Has anyone suffered with symptoms of Lupus after the mesh was removed?

When my gynecare tvt mesh was in I had unexplained fevers and sickness. After several surgeries all of my mesh is out and I have deep foot and shoulder pain. No matter what med I am on it hurts sleeping to turn my shoulders and I sometimes feel like I am 89 years old in walking.
Abby

Austin, TX

#54 Mar 24, 2013
I had a prolene mesh put into my abdomen for a hernia resulting from surgery. That was 14 years ago and since then I have suffered from debilitating fatigue and declining health. My pancreas and kidneys have declined and . I was diagnosed with Lupus in November 2011. My health continues to decline and I only was informed yesterday that I should consider the proline mesh as a factor.

Thank you for this resource of support and information. I didn't know where to start!
Abby

Austin, TX

#55 Mar 24, 2013
Lernie34 wrote:
Hi, Hope (and all others)!
I'm glad I found this group. I had a uterine hysterectomy, sling, and reconstruction of my vaginal muscles in Dec 2009. At the time, I had a fabulous job that I worked very hard to get, a Master's degree (and hoping to pursue my phd soon) and worked out at the gym 4-6 times a week hard cardio and weight training. By two weeks after my surgery, I had pneumonia and mono...and then never really got better.
Fortunately, my PA knew me when I was in good shape, so when things got bad, she knew I wasn't faking and that there really was a problem. Also, she was willing to keep Vicodin coming because the pain was excruciating.
After seeing a rude infectious med doc, she sent me to a rheumy/neurologist who she said likes "zebras". He ultimately dignosed me with Lupus, Fibro, restless legs, Reynaud's, and now severe depression.
I had to resign from my dream job because I couldn't complete a sentence and was completely unreliable. I never knew when I would be at work. I have been completely destroyed both physically and mentally. My young children only know "tired and hurty" mom, not the one my older kids knew, that was always going to a parade, beach, or fair. Now our life revolves around how I feel. My poor husband doesn't know what to do.
I'm exhausted and think I need to get my sling out. The correlation between my illness and the implant are enough to make me a believer at this point. I live in southern Illinois. Is anyone aware if s good doc in my region of the country?
You are welcome to IM me thru Facebook-my name is Layla Murphy and my pic is a Lupus slogan. Thank you for any info, ideas, assistance, anyone can provide.
Dear Lernie,

I had the same thing happen to me with the fatigue and confusion. I couldn't work or be relied upon anymore and went around in circles trying to complete tasks. I was diagnosed with Reynauds, diabetes, a blood anemia, and then Lupus. My wbc's have been running between 2.6 and 3.0 for as long as I've had this mesh in my abdomen. Last year I was so sick, I was critical. My heart goes out to you that your health compromises your engagement with your young family. I'lll think good thoughts and send them your way.
socci

Plattsburg, MO

#56 Mar 24, 2013
Angela Meeks

San Jose, CA

#57 Apr 5, 2013
There are evidences now gathered by well-meaning people that will show that these mesh devices may have something to do with auto immune diseases. Hopefully these findings may convince agencies like the FDA that these devices can cause other complications not indicated in their reports. This will definitely help a lot of women who suffered as a result of using these devices. You may want to know about the other complications by referring to http://www.vaginalmeshlawsuitcenter.us/
Hopeless

Paris, TN

#58 Apr 14, 2013
Hope, Im very thankful to have found you. I have been a victim of mesh since 2004. I am sure Prolene is a womanizing individual who has injured someone and paid the price whether financially or at least his ego. I have been blacklisted from the medical community because they knew before I did what the results of the mesh would be. I now suffer from ALL the symptoms of Lupus but cannot even get a dr. to see me and properly diagnose and treat a cold much less something as horrific as mesh induced lupus. Prolene, I suggest you have the mesh implanted under the skin in your forearm for 8 months, just 8 months, and come back here with the results of your experiment. Then you will have credibility.
Cher

Minerva, OH

#60 May 2, 2013
After my sparc mesh..I was sick swollen,tired and itchy. The Drt kept doing the same blood draws. Finally a Dr listened and did a ANA blood draw..I have diffuse sclerderma. I am having my mesh removed 7/10...I am hoping,,,my numbers disapear..or at least get better. I had one erosion fixed and suffered with back pain...and no relations with my husband he is afraid of hurting me again. My newest "surgeon" said I had 4 areas of concer...that he could fix and trim up mesh I said no I want it all out asap. He wants me to prove him wrong about auto immune issues going away...Someone wanted me to contact you..some how I came across this when trying to find out if the immune issues go away once mesh is removed.8622 I always had swollen glands..asthma..bronchitis.plu risy..but the last "cold" kicked me big time. That is when the ANA was done. My Imuran is not working
Hope

Massapequa, NY

#61 May 3, 2013
Hopeless wrote:
Hope, Im very thankful to have found you. I have been a victim of mesh since 2004. I am sure Prolene is a womanizing individual who has injured someone and paid the price whether financially or at least his ego. I have been blacklisted from the medical community because they knew before I did what the results of the mesh would be. I now suffer from ALL the symptoms of Lupus but cannot even get a dr. to see me and properly diagnose and treat a cold much less something as horrific as mesh induced lupus. Prolene, I suggest you have the mesh implanted under the skin in your forearm for 8 months, just 8 months, and come back here with the results of your experiment. Then you will have credibility.
Thanks for the suggestion but no thanks. My days of being a guinea pig are behind me. If I was dying I would not allow them to put the mesh in my body again. I have an idea why doesn't the pharmacutical companies release the biocompatibility tests that they already possess. This stuff is toxic and I don't need to put it my forearm to prove it either. Plus like I said I wouldn't I thank God everyday for the fighting chance I have been given as a result of having the mesh taken out. Sorry not me.
patty thompson

United States

#62 May 30, 2013
I'm so glad I found this site my doctor tried to act like he had never heard of any of these symptoms existing from the mesh when I was telling him what I had been through in 2 1/2 years and he's not being honest with me about the mesh but I have looked so much up about the mesh so I know that its what has mafe me sick they still jave not diagnosed me with n e thing but I will get them to check me for lupus . I was once a healthy lady had the surgery and have been deathly sick since a week aftetwards lost 80 pds stay fatigued sleep all the time abdominal pain pelvic pain headaches and I nevet got headaches befote brigjt ligjt hurts my eyes its a never ending list but I know its the mesh my doctor says that's impossible the one that done the surgery. I'm so malnourished its not funny .did u say a dr in chattanooga tn could take the mesh out . If u could give me more info on that I would appreciate and thanks for the site I too know I'm not crazy now .
Cher

Minerva, OH

#64 Jun 6, 2013
after mesh removal will immune symptom go back to normal...I dev diffuse sclerdama after mesh...my removal 7/10/1013 with a Dr who was trained by Dr Raz but at Cleve Clinic Cleve oh
Sick of it

Aptos, CA

#65 Jun 12, 2013
I had hernia mesh implanted in 2006 . I had ongoing pain at the site of my hysterectomy scar, and they diagnosed the hernia. I have been in constant agonizing pain ever since. In addition to the pain ruining my life I've also had severe fatigue, drowsiness, trouble breathing, shaking, loss of balance and joint and bone pain and stiffness, fever and on and on. I can't work, I can't take care of my grand kids, I can't walk without a walker, I spent my younger kids terrible teens incapacitated with pain and only functioned enough to go to work and then crawl into bed. I can't even talk about what happened to my marriage without breaking down
. I've been test for rheumatoid arthritis, with some markers. Lots of inflamation markers, low lymphocytes, Negative Ana, negative for ms or als. I did test positive for hhv6 which most people have as infants, but can reactivate and cause problems. The medicine they put me on for that caused even more problems. Before the initial surgery I went to the dr maybe once every four or five years for something like a sprained ankle or strep throat. I was never super active, but was healthy am
Able to care for my family and work. Since then I've had to try a zillion different pain meds and follow up surgeries and shots and so on. And the last year or two I've been to the drs constantly, and of course they act like its all in my head and they've never ever heard of all thes problems from surgery. There has been other severe stress going on that I think has contributed, but if I wasn't already so worn down and I'll I think I would be in better shape..
Fortunately I have an appointment with dr. Raz this summer. I can't wait to get this mesh out. Even if it makes my life just marginally better it might keep me from just giving up completely, maybe.

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