First Prev
of 2
Next Last
Leena

Moline, IL

#21 Aug 26, 2011
Hi everyone, my mom has polymositis.
She has had it for over 10 years.

She takes a lot of medicine, one of them is methotrexate.

Does anyone have any other alternative medicines, the methrotrexate is damaging her liver.

IF anyone has any information, or would like to chat with us, please email me.

sweet.girl.1987@live.com

My mom has dealt with this disease for many years, and now all the medicine she is taking is causing her liver problems. Please lets all join together and help each other out to find a way to treat this disease in a healthier way.
Mary

Decatur, GA

#22 Aug 29, 2011
Pattie wrote:
I have polymyositis and I am strongly thinking of getting stem cells with Regencell. Does anyone know anyone who has polymyositis and stem cell treatment and what were their results?
I have polymyositis and I am just hearing about stem cell treament for polymyositis. I also am interested in the treatment as we both know all of the other medicines they have out for treatment have very bad side effects you could die from.
Mary

Decatur, GA

#23 Aug 29, 2011
Leena wrote:
Hi everyone, my mom has polymositis.
She has had it for over 10 years.
She takes a lot of medicine, one of them is methotrexate.
Does anyone have any other alternative medicines, the methrotrexate is damaging her liver.
IF anyone has any information, or would like to chat with us, please email me.
sweet.girl.1987@live.com
My mom has dealt with this disease for many years, and now all the medicine she is taking is causing her liver problems. Please lets all join together and help each other out to find a way to treat
this disease in a healthier way.
I have polymyositis also I will e-mail you I would like very much to talk to you
Mary

Decatur, GA

#24 Aug 29, 2011
Mary wrote:
<quoted text>
I have polymyositis and I am just hearing about stem cell treament for polymyositis. I also am interested in the treatment as we both know all of the other medicines they have out for treatment have very bad side effects you could die from.
Please e-mail me at marybrewer@clear.net
Lianne

Winnipeg, Canada

#25 Dec 4, 2011
Hi
I was diagnosed with Polymyositis when I was 32. I am 49 and completely cured. I did minocycline 100 mg 3 times a week for several years as well you MUST go totally gluten free. The website that was amazing for me was www.rheumatic.org My story is on there. I am willing to help anyone who would like to get better.
Lynn

Albany, NY

#26 Feb 29, 2012
Can I talk to anyone about this please ?
I was just diagnosed and I am a mess (mentally), and physically.

I had an adverse drug reaction to the antibiotic Levaquin and this started the polymyostitis.

My e-mail is Lynn_Muscarello@yahoo.com

ThankYou
Tommy John

Seattle, WA

#27 Oct 4, 2012
Andres wrote:
I just talked to one of the doctors in regencell.com today because my Mom has polymyositis as well, He said that their treatment has really good response with polymyositis...and that's great news for me, my mom and for you.
I'm going to do more research on it, and read all the info he sent me.
let me know if you want he's email address or my phone number and I can talk to you about everything he told me.
Gob bless you Pattie, feel better.
Andres
. I had this deseas for 5 yrs I need help plz give me the number god bled my email sandystone509@yahoo.com
G-Griner-Clermon t- Fl

Lady Lake, FL

#28 Dec 15, 2012
Andres
My sister has polymyositis and had a lung bio done yesterday. Everything was good with the bio, however the doctor said she
has 2 - 3 years. This shocked me. Please send me the info he sent you and his email address. My email is ggriner1@aol.com. I will give you more of my info when you write. Thank you so much!!!
Andres wrote:
I just talked to one of the doctors in regencell.com today because my Mom has polymyositis as well, He said that their treatment has really good response with polymyositis...and that's great news for me, my mom and for you.
I'm going to do more research on it, and read all the info he sent me.
let me know if you want he's email address or my phone number and I can talk to you about everything he told me.
Gob bless you Pattie, feel better.
Andres
chad

Hattiesburg, MS

#30 Jan 12, 2013
He got phmeumonia December 25 and let me know any ideas asap.

Thanks chad
Sorry for the mispelling
Loretta Russo

Adelaide, Australia

#31 Feb 8, 2013
M husband has been diagnosed with polymyositis. He has been on prednisalone 25mg daily. But this hasnt done anything at all.
Considering stem cell therapy. Is there anyone who has tried this and has had some success. Considering we live n Adelaide Australia I would like to consider all avenue for my husband.
yue

Zhuhai, China

#32 Mar 6, 2013
Loretta Russo wrote:
M husband has been diagnosed with polymyositis. He has been on prednisalone 25mg daily. But this hasnt done anything at all.
Considering stem cell therapy. Is there anyone who has tried this and has had some success. Considering we live n Adelaide Australia I would like to consider all avenue for my husband.
do you want to receive stem cell treatment in china,You can save a lot of money,and have a good effect.
sheila

Ocean Springs, MS

#33 Oct 28, 2013
Loretta Russo wrote:
M husband has been diagnosed with polymyositis. He has been on prednisalone 25mg daily. But this hasnt done anything at all.
Considering stem cell therapy. Is there anyone who has tried this and has had some success. Considering we live n Adelaide Australia I would like to consider all avenue for my husband.
loretta, am wondering if your husband had the stem cell treatment and how it went. I've had this disease for over 7 yrs. and nothing seems to be working. I have been considering adipose stem cells but am trying to see if there is anyone thats had this done and what the results were.
sheila

Ocean Springs, MS

#36 Feb 1, 2014
I've been considering adipose stem cell therapy and I'm searching for anyone that has had this done and the results. I've had polymyositis for over 7 yrs. and have tried several others treatments with no success. I just keep getting weaker and continue to lose muscle.

Tell me when this thread is updated:

Subscribe Now Add to my Tracker
First Prev
of 2
Next Last

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Stem Cell Research Discussions

Title Updated Last By Comments
News "Science vs. Religion: What Scientists Really T... (Jan '12) 4 hr Dogen 18,495
Dr Feinerman Miami stemcell stemcellregenmed.com (Feb '12) Apr 12 lowcost 37
News Stem Cell Researchers Make Healthy Cells from S... Mar 27 almightykindjay 1
Penis enlargement using stem cells (May '10) Mar '15 eddie chimi 27
fetal stem cell treatment (Feb '06) Mar '15 survivor 2,748
strictly on adipose stem cells Feb '15 Jeff 1
News Chinaa s Controversial Stem Cell Treatment Help... (Mar '09) Feb '15 Jeffericcontreras 37
More from around the web