Prescription skin cancer cream Aldara...

Prescription skin cancer cream Aldara has horrific side effects, say users

There are 2147 comments on the NewsTarget.com story from Aug 8, 2006, titled Prescription skin cancer cream Aldara has horrific side effects, say users. In it, NewsTarget.com reports that:

Elaine Hollingsworth put Aldara on her nose thinking that it was the "benign salve" that her dermatologist made it out to be; instead, it was the beginning of her nightmare.

Join the discussion below, or Read more at NewsTarget.com.

Michele

Brakpan, South Africa

#2062 Sep 11, 2013
lisa wrote:
Ryan, By the way this website, at least how I found it is called *aldara and horrific side effects* start a forum with your wonderful news! Our purpose is to possibly save some person (like Me) who truly didn't understand the risks of this drug....if people choose, like you, to do it anyways, then the best of health to you.
TO RYAN by the way I used ALDRAMA the right way. A pinhead every second week and I still reacted and am still not better. So don't talk shit, you know nothing
Ryan

Merrimack, NH

#2063 Sep 11, 2013
Aldara1 wrote:
Ryan is nothing more than a simple drug pusher from big pharma. Let him have his say and he will move on like all the others. This just proves that the market is ultra soft for this and other products containing imiquimod. He has confirmed what is already known. Why do you think 3M sold their pharma division in 2006? At 5-billion below market. They offloaded what they knew to be a declining market for a very dangerous drug they had invented and hood-winked all of society into paying them $billions in profits before getting rid of the liability that is headed their way. How about that Ryan, reading your mail, right?
Haha, paranoid much?

I'm actually a stock broker and investment advisor. I can certainly rebalance your portfolio but know nothing about "big pharma". Not saying this drug isn't potentially dangerous, it is. Just pointing out that a few posters on here seem to have a bit of "skin" in the game. Plus the verbiage, poor grammar and cursing leads me to think less of your opinions. I've done hours of research on basal cell and treatments and most aldara threads have your avatar pop-up spamming your site. I noticed your username as soon as I jumped on this forum and read through the posts. As a result your reply to my post was immediately obsolete.

Figured my post would be attacked by the 3 or 4 repeat posters. It's also pretty hilarious that you think I have some sort of agenda. I appreciate the true concern from any of you that have it. Probably won't get a straight answer as I figured but thought I'd give it a go. My father always told me you miss every shot you don't take. Good luck and happy health.
Mandi

Toongabbie, Australia

#2064 Sep 12, 2013
Hi Everyone,
Hope all are ok?
I am still coasting along and struggling with yet another infection. Seems to be a constant this year.
Spring is here in sydney, so I am hoping I will have a reprieve from them soon, and also find a rehab hospital that will give me some inpatient physical support. The outpatient rehab has been really difficult. but as it is with all of us, the medical world isn't very compassionate at times, and doesn't help us the way they should. So the fight continues. Hope you are all faring a little better?
Appreciate the loyalty of the team here. You have such stamina. People who are well, with nothing better to do, have no understanding of how bad this is.

Is anyone able to help Tracey in Canada yet? She is still in terrible trouble. Can't find a Dr who will help her and is in screaming pain. Really….. screaming pain and no support at all. If anyone is in Canada and has found good medical support can you put it on here or contact me on my email and I will send it on to Tracey.:[email protected] .
Thanks. She really needs help. I have an amazing Dr here in Sydney, Richard Schloeffel, who has kept me alive for the last 12 years…..without him I would definately have not made it.
And I have my husband who has been with me every step of the way.All night asking me if I am ok, with every groan and moan…it goes on all night…the poor man!! But you all know what that is like!!

Keep your spirits up. Things could be worse…we could be mean and ignorant???? And mean spirited??? And all of the above???? So you see…we are lucky!!
Love to all of you who are suffering and it wont last forever….nothing will last forever, as everything is forever changing.
Mandi
Rex

Erie, PA

#2065 Sep 12, 2013
Ryan...I have been watching this site for a very long time. I had the unfortunate experience of using Aldara multiple times. Exactly as the doctor said. In my main career, I was Critical Care ICU Specialist and understand medicine to drugs. If I had the information that you have access to I would have not used aldara. I have had a very long and not so fun 50's. I have been able to get a lot of what was screwed up from the use of this drug back but not all. My only saving grace was I did not develop open sores when using this. I understand that you want to stop some disfigurement, but in some situations you may not be able. Aldara had a unique idea but it did not do what they thought. Now ask yourself are you basing your decision on using Aldara on correct information? Let me ask you a question...if this drug was so good and did what it said would it not be in more use and Dr's would be talking it up? I first used Aldara in 2005 and have changed from the Dr that prescribed it. The new Dr and his partner's do not use Aldara and I have heard that my former Dr does not use it anymore. In medicine sometimes silence is deafening.
Mandi

Toongabbie, Australia

#2066 Sep 13, 2013
Rex, silence may be deafening here as well. I suspect the fun has been had.
We have seen it all before on this site. They get on, abuse the people who try to keep warning others of the misery of using Aldara, and then ridicule these same Aldara victims, who continously try to stop others from ending up living the same miserable lives that we all do, because of using Aldara.
These people are best ignored. Whatever they are doing it isn't honorouble and will lead to people living in hell
Don't waste time worrying. Just keep telling people what has happened to you after using Aldara, so we can protect as many people as possible from living in misery and worse. This is the est use of whateverenergy we have.
Love and hugs mandi
Mickey

Mammoth Lakes, CA

#2067 Sep 22, 2013
I have used Imiquimod over 2 years on all the accumulated AKs on my face, chest, arms and hands. I treated small areas one at a time and got complete clearance of all lesions. I react strongly, so use the cream only until I get open lesions and then I wait for complete healing and repeat. I am going to all this trouble to avoid squamous cell carcinoma, which I have experienced. I have AK on my lower lip. Imiquomod is painful, I hate the open sores. However the alternative is removal of my lip and reconstruction. I will take the open sores over that horrendous surgery any time.
I am a pharmacist and use medications to reduce pain, reduce itching. I deal with depression by reminding myself of the alternatives.
I am a redheaded freckled person at high risk of all types of skin cancer. I have to prevent this and think Imiquimod is best for me.
I am sorry for those who have been poorly advised and strongly advise using a good board certified dermatologist to help you.
Mickey

Mammoth Lakes, CA

#2068 Sep 22, 2013
Ryan wrote:
<quoted text>
You literally lost all credibility with this statement. Your posts come off as having more of an agenda than simply "helping others".
When a forum is clogged with posts for hundreds of pages from the same 4-5 posters one starts to take their advice with a grain of salt. I was never asking for your opinion, simply asking for advice w/ regard to sourcing a reputable Dr who can oversee treatment with Aldara. Please feel free to spam this forum, but stop quoting my posts.
Once more I'll extend appreciation for anyone that can shed some light on my request
I suggest you go to a medical school dermatology department. This blog is filled with anecdotal stories of questionable accuracy. Let the professionals do their job. I am west coast, live in a rural area and go to UCSF, UCLA, or USC for my medical problems, as I do not have specialists in my small remote town.
Mickey

Mammoth Lakes, CA

#2069 Sep 22, 2013
Ryan wrote:
I'm looking to use Aldara to treat a small basal cell carcinoma on my nose. I know the risks of this drug and have read just about every post in this thread. The alternative is potentially disfiguring mohs surgery on my outer nostril
Does ANYONE know of a dr in the new england/boston area, or even the east coast that would be open to prescribing it to me for a non superficial basal cell?
If you can help please email me at [email protected] or reply to this thread. If anyone can lend a hand your help would be beyond appreciated
Go to the Derm dept at Harvard.
Michele

Johannesburg, South Africa

#2070 Sep 22, 2013
Mickey wrote:
<quoted text>
Go to the Derm dept at Harvard.
This is for MICKEY. Are you stupid why don't you give Tracey one of our particularly very sick sufferers a call. She is so bad she might not make it. The pain is so excruciating and all consuming that not even a morphine drip will take the pain away and nobody has a clue how to treat this toxic chemical as we all know. PLEASE GUYS let's all pray for Tracey she is suffering so much I am afraid to think what might happen to her. Is there anybody out there that is having any joy at all, please email me at michelekach@ yahoo.com and send me a phone number so I can get in contact with you. Does anybody out there know who sells cannibus oil in Canada. This is serious guys a matter of life and death. Thanx a mill everybody Tracey and I would really appreciate any help you can offer. Prayers and love for all of you that are suffering due to this disgusting toxin. Xxx
Michele

Johannesburg, South Africa

#2071 Sep 22, 2013
Sorry Mickey message for RYAN. Sorry am feeling very emotional after speaking to Tracey yesterday. ALDARA is a F??? Nightmare which some of us are living 24/7. Once absorbed into your body it's in forever because it is systemic. You can detox till you are blue in the face it's not going anywhere it just becomes part of your previously happy immune system. Sorry guys I am so angry, not that it helps. But to have hundreds of doors slammed in your face because nobody knows what to do with it really does my head in. Tracey does not know where to turn next and she does not have funds available to maybe go to the John Hopkins clinic or mayo where they may be willing to try different things.

Since: Nov 10

Location hidden

#2072 Sep 22, 2013
Unlike any of you on this or any other forum, I have met 3M scientist face to face and asked them the hard technical questions about this drug, imiquimod. If anyone has the straight story on this drug it is me. None of you, pharmacists or not could ever imagine what this drug is capable of nor what it is doing to its users better than 3M scientist. Believe 3M scientist when they say they do not know why some people respond to this drug very violently while others, like Ryan and Mickey escape the harm. 3M blocked my having any access to Mayo, John Hopkins, and the Jewish Hospital in Denver all because 3M has pending contracts with each to run clinical trials. So if you think you are going to get help at these and possibly others you are very sadly mistaken. Try it though just to see what you are dealing with is far worse than your medical condition. It is pure and simple high stakes politics and you cannot win.
lisa

Dunkirk, NY

#2073 Oct 1, 2013
What ever happened to the class action lawsuit?
Michele

Cape Town, South Africa

#2074 Oct 1, 2013
Aldara1 wrote:
Unlike any of you on this or any other forum, I have met 3M scientist face to face and asked them the hard technical questions about this drug, imiquimod. If anyone has the straight story on this drug it is me. None of you, pharmacists or not could ever imagine what this drug is capable of nor what it is doing to its users better than 3M scientist. Believe 3M scientist when they say they do not know why some people respond to this drug very violently while others, like Ryan and Mickey escape the harm. 3M blocked my having any access to Mayo, John Hopkins, and the Jewish Hospital in Denver all because 3M has pending contracts with each to run clinical trials. So if you think you are going to get help at these and possibly others you are very sadly mistaken. Try it though just to see what you are dealing with is far worse than your medical condition. It is pure and simple high stakes politics and you cannot win.
I know Tracey will probably not get help at all of the above, maybe if she doesnt mentiion the A word. Aldara 1 Tracey is desperately in need of some help. In 9 months she has got zero from the medical fraternity. Why don't these scientist have some info on how to reverse some of the effects. She just needs somebody to experiment with pain meds, they are not even doing that. Opiates don't work for nerve pain eg morphine does not work at all. This is just all too terrible and sad
Will

Brussels, Belgium

#2077 Oct 20, 2013
All I can say is that I probably read about 15 sites with comments about Aldara. Needless to say, I was terrified. I had 4 genital warts around my anus - two fairly large ones about the size of my thumbnail and two smaller ones. I went to two different doctors and both said that I would need surgery to have them removed. One of the doctors, a Colorectal Surgeon, prescribed Aldara but indicated that he thought it would not work, because my warts were too large and kind of deep. I am now going into my fourth week of taking Aldara and ALL of my warts are almost gone. I had NONE of the symptoms aside from slight itching and the skin feeling slightly sensitive around the same area. Nevertheless, I noticed changes in the size of the warts after two weeks of using Aldara three times a week and now going into the fourth week, two of the three have gone and the other two are almost gone. The reason I'm writing this post is because when I was researching Aldara, I saw almost no positive feedback and I was therefore terrified to take it. I want people to know that while perhaps all of these negative side effects could happen, I had NONE of them that were of serious consequence and the drug worked for me within weeks. As I do not have insurance, I would have had to pay for the operation myself. While Aldara is expensive, it certainly beats having to pay thousands of dollars out of pocket that I don't have for surgery.
Michele

Johannesburg, South Africa

#2078 Oct 20, 2013
Will wrote:
All I can say is that I probably read about 15 sites with comments about Aldara. Needless to say, I was terrified. I had 4 genital warts around my anus - two fairly large ones about the size of my thumbnail and two smaller ones. I went to two different doctors and both said that I would need surgery to have them removed. One of the doctors, a Colorectal Surgeon, prescribed Aldara but indicated that he thought it would not work, because my warts were too large and kind of deep. I am now going into my fourth week of taking Aldara and ALL of my warts are almost gone. I had NONE of the symptoms aside from slight itching and the skin feeling slightly sensitive around the same area. Nevertheless, I noticed changes in the size of the warts after two weeks of using Aldara three times a week and now going into the fourth week, two of the three have gone and the other two are almost gone. The reason I'm writing this post is because when I was researching Aldara, I saw almost no positive feedback and I was therefore terrified to take it. I want people to know that while perhaps all of these negative side effects could happen, I had NONE of them that were of serious consequence and the drug worked for me within weeks. As I do not have insurance, I would have had to pay for the operation myself. While Aldara is expensive, it certainly beats having to pay thousands of dollars out of pocket that I don't have for surgery.
Well Will fantastic news for you. And yes it does sort out what it's suppose to. But are you willing to take the risk. And are you not going to react later that is the question. Sorry guys not everybody reacts, but if you do take it from me it's not worth the risk. This stuff is disgusting. All the people on this site are not talking shit including me. Most of us have been through hell and others are still going through it. Take it from me a fucked immune system is not worth risking it for. I would rather have the op. We are not saying it does not sort out the spots and warts it does this very well, but the price could be too high
Lynne

Darlinghurst, Australia

#2079 Oct 20, 2013
I have been using Aldara to treat less serious BCC's on my back. I also had a larger BCC scraped at the same time. After 1 week my back was covered in blacks scabs. The scabs were not restricted to the small areas that I used the cream on. In fact they seemed to grow. If that was not sufficient I also had constant headaches, blocked nose, dry skin all over the place (particularly on my face). I stopped the treatment after 3 weeks and was told to take a 3 week break by my specialist. I have not used the cream for 2 weeks. Whilst my back has cleared up my skin elsewhere has become mottled and my face is marked and very dry. I still have a blocked nose. I am unsure whether I will resume the treatment after this week. I really need to weigh up whether having my back scraped 3 times is better that the side effects of Aldara.
Michele

Johannesburg, South Africa

#2080 Oct 21, 2013
Lynne wrote:
I have been using Aldara to treat less serious BCC's on my back. I also had a larger BCC scraped at the same time. After 1 week my back was covered in blacks scabs. The scabs were not restricted to the small areas that I used the cream on. In fact they seemed to grow. If that was not sufficient I also had constant headaches, blocked nose, dry skin all over the place (particularly on my face). I stopped the treatment after 3 weeks and was told to take a 3 week break by my specialist. I have not used the cream for 2 weeks. Whilst my back has cleared up my skin elsewhere has become mottled and my face is marked and very dry. I still have a blocked nose. I am unsure whether I will resume the treatment after this week. I really need to weigh up whether having my back scraped 3 times is better that the side effects of Aldara.
Hey Lynne, don't ever start it again. You have already started reacting and even though your symptoms are not as bad as some, all you need is to push it little further and you will go over the edge, not worth the risk. Just go and have them burnt off it's not so bad. The dry skin is terrible on the face, specially under the eyes and trust me nothing really works. You are going to have to do oils from the inside and out. I have been trying for months to get rid of it just makes your skin look old. Found Vit E oil at night the best. Have tried every oil and cream I can think of nothing helps. The vit E seems to soak in nicely. The headaches are also disturbing, Tracey has such bad head pain and everywhere else she can't function. Ten months of it so bad the pain doesn't go it's getting worse by the day. She has not slept in 10 months either. So just don't do it again is my advise to you. Remember your body is already having an inflammatory response which might not go away in a hurry if at all.
Lynne

Darlinghurst, Australia

#2081 Oct 21, 2013
Michele wrote:
<quoted text>
Hey Lynne, don't ever start it again. You have already started reacting and even though your symptoms are not as bad as some, all you need is to push it little further and you will go over the edge, not worth the risk. Just go and have them burnt off it's not so bad. The dry skin is terrible on the face, specially under the eyes and trust me nothing really works. You are going to have to do oils from the inside and out. I have been trying for months to get rid of it just makes your skin look old. Found Vit E oil at night the best. Have tried every oil and cream I can think of nothing helps. The vit E seems to soak in nicely. The headaches are also disturbing, Tracey has such bad head pain and everywhere else she can't function. Ten months of it so bad the pain doesn't go it's getting worse by the day. She has not slept in 10 months either. So just don't do it again is my advise to you. Remember your body is already having an inflammatory response which might not go away in a hurry if at all.
Thanks Michelle
I have to say that I am thinking of not restarting the treatment. I generally have a low tolerance for drugs and if the reaction is worse than the last time it won't be pretty. Considering my specialist has been diagnosing my back as psoriasis for years and has only just tested it for cancerous cells I think I may have to find a new specialist. I hope that my current symptoms don't hang around. A 51 year old doesn't need help to get dry skin! I also have trouble sleeping but I have been putting that down to menopause. I hope that your friend Tracy finds some relief.
Mandi

Bonnyrigg, Australia

#2082 Oct 21, 2013
We all hope that Tracey finds some help. If she doesnt fond some soon, I feel the same as Michelle , she won't make it. I know the pain that she is in, and it is intolerable.
My thought is that the Dr's she has seen have no idea of the level of pain that Tracey is in and did give her anywhere near enough pain relief to touch the pain that she has. Ketamine may have been a better pain relief choice than Narcotics.
The hope is that we might be able to raise some money to get Tracey here to me, where I can twist my Drs arms to help her. They have helped me over the last 12 years and kept me alive, they just might be able to give Tracey some hope.
Does ANYONE have some ideas that will help us????
PLEASE
Mandi

Bonnyrigg, Australia

#2083 Oct 21, 2013
oops…few typos! Sorry!! Pls read as "if she doesn't find some soon….she won't make it. I truly have wanted to give up so many times over 12 years….sat there willing myself to go on….all the reasons in the world to keep going….a beautiful husband and family, who all cared for me and cherished me…but the dark anger of pain was just too much and I couldn't cope another minuet with it….but somehow, I did keep going, because I also had a great Dr.
The other crazy Typo from above was….." the Drs Tracey has seen have no idea of the level of pain that Tracey is in and did NOT give her enough pain relief…."

I only know this because my own GP knows the level of pain I live with because he is in tune with me. He has seen me pass out due to the pain, even tho I have a pain patch on, and other regular pain meds. But they just aren't enough at times. Other dr's can't believe that I live with 9/10 of pain and can talk to them. They will argue with me and tell me that I don't understand the pain scale.
Being a registered nurse, I do understand the pain scale…they don't understand the pain I live with until they see me drop over the edge!

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