Fibromyalgia Discussion

Fibromyalgia Discussion

Posted in the Topix Forum

Level 9

Since: Sep 11

Weeki Wachee, Florida

#1 Jul 27, 2013
There seems to be an increase in the number of women who are stating that they have Fibromyalgia. Web MD lists the symptoms:

Chronic muscle pain, muscle spasms, or tightness
Moderate or severe fatigue and decreased energy
Insomnia or waking up feeling just as tired as when you went to sleep
Stiffness upon waking or after staying in one position for too long
Difficulty remembering, concentrating, and performing simple mental tasks ("fibro fog")
Abdominal pain, bloating, nausea, and constipation alternating with diarrhea (irritable bowel syndrome)
Tension or migraine headaches
Jaw and facial tenderness
Sensitivity to one or more of the following: odors, noise, bright lights, medications, certain foods, and cold
Feeling anxious or depressed
Numbness or tingling in the face, arms, hands, legs, or feet
Increase in urinary urgency or frequency (irritable bladder)
Reduced tolerance for exercise and muscle pain after exercise
A feeling of swelling (without actual swelling) in the hands and feet

As usual, a few number of the persons claiming they have these symptoms, are drug seekers and since the symptoms are largely subjective, there is no way to discount these symptoms as malingering.

Those with real symptoms should first have their physician rule out any type of autoimmune disease like Lupus or Rheumatoid arthritis. More recent studies have shown that Fibromyalgia patients suffer from a certain sleep disorder called alpha-delta anomaly. Normal sleep patterns include five stages of sleep, ending with stage 5, when we commonly dream. Alpha-Delta disorder occurs when people rarely reach stage 5, spending a large percentage of time in stage 2. This stage is when people commonly say when interrupted, I wasn't asleep yet. Stage three is the beginning of REM sleep. The anomaly causes intrusion of alpha sleep into delta sleep, never allowing the person to get restorative sleep.

Also, many Fibromyalgia patients are found to have mild to moderate sleep apnea, in combination with the sleep disorder. Some Neurologists now seem to feel that the lack of restorative sleep is the cause of the hyperactivity in the nerve endings, resulting in increased pain. Many have started their patients on C-PAP machines with patients eventually getting more restorative sleep and disappearance of the symptoms, altogether within a six month period.

Since, most patients with Fibromyalgia suffer from one or both of the sleep disorders, it is becoming easier to determine who actually needs treatment and what kind.

Level 9

Since: Sep 11

Weeki Wachee, Florida

#2 Jul 27, 2013
Sorry that this was so wordy. Has anyone been treated for his sleep anomaly? What treatments have worked for you?

Level 1

Since: Apr 11

Location hidden

#3 Jul 28, 2013
Spooky Mulder wrote:
There seems to be an increase in the number of women who are stating that they have Fibromyalgia. Web MD lists the symptoms:
Chronic muscle pain, muscle spasms, or tightness
Moderate or severe fatigue and decreased energy
Insomnia or waking up feeling just as tired as when you went to sleep
Stiffness upon waking or after staying in one position for too long
Difficulty remembering, concentrating, and performing simple mental tasks ("fibro fog")
Abdominal pain, bloating, nausea, and constipation alternating with diarrhea (irritable bowel syndrome)
Tension or migraine headaches
Jaw and facial tenderness
Sensitivity to one or more of the following: odors, noise, bright lights, medications, certain foods, and cold
Feeling anxious or depressed
Numbness or tingling in the face, arms, hands, legs, or feet
Increase in urinary urgency or frequency (irritable bladder)
Reduced tolerance for exercise and muscle pain after exercise
A feeling of swelling (without actual swelling) in the hands and feet
As usual, a few number of the persons claiming they have these symptoms, are drug seekers and since the symptoms are largely subjective, there is no way to discount these symptoms as malingering.
Those with real symptoms should first have their physician rule out any type of autoimmune disease like Lupus or Rheumatoid arthritis. More recent studies have shown that Fibromyalgia patients suffer from a certain sleep disorder called alpha-delta anomaly. Normal sleep patterns include five stages of sleep, ending with stage 5, when we commonly dream. Alpha-Delta disorder occurs when people rarely reach stage 5, spending a large percentage of time in stage 2. This stage is when people commonly say when interrupted, I wasn't asleep yet. Stage three is the beginning of REM sleep. The anomaly causes intrusion of alpha sleep into delta sleep, never allowing the person to get restorative sleep.
Also, many Fibromyalgia patients are found to have mild to moderate sleep apnea, in combination with the sleep disorder. Some Neurologists now seem to feel that the lack of restorative sleep is the cause of the hyperactivity in the nerve endings, resulting in increased pain. Many have started their patients on C-PAP machines with patients eventually getting more restorative sleep and disappearance of the symptoms, altogether within a six month period.
Since, most patients with Fibromyalgia suffer from one or both of the sleep disorders, it is becoming easier to determine who actually needs treatment and what kind.
I didn't "claim " to have it. I was diagnosed by a rheumatologist
several years ago.One has to undergo physical tests and answer many questions to get a correct diagnosis.It's very painful condition but not disabling. I am in pain and sleep little( no I don't have sleep apena).It is not the end of the world if you have this. You can still function and work. Walking is very good for fibro. Whirlpools and hot tubs help. Trying to keep stress at bay is important. Keeping your mind occupied and not dwelling on the pain helps.There are medications for it. Not pain pills but meds for nerve pain.They do have some side effects. To not dwell on the pain,I think of those who have lost limbs.their sight,are in wheelchairs for the rest of their lives,have uncurable diseases such as cancer .I am grateful for what health I do have.

Level 9

Since: Sep 11

Weeki Wachee, Florida

#4 Jul 28, 2013
I wasn't referring to people who have been diagnosed. I was referring to those who use it as an excuse and I've met many. I beloned to a support group for a very short time and found many who told their Doctors that they thought they had it and found it easy to get things like Percocet or Fentayl. one bragged that she was on methadone. this has been about five years and thankfully, those pill mills are mostly gone.

I get Botox in my shoulders for the muscle spasms and even that only helps slightly. I've been treated like a drug seeker when I initially talked with physicians and am on no narcotics nor do I plan to be. I finally found a physician who was actually studying his patients and the effects of Quinol( a water soluble CoQ-10). I've been taking it three times a day and the trigger points no longer hurt as much. I didn't think I had sleep apnea either. I don't snore, so I thought I didn't. But people with the sleep anomaly don't always have the apnea.

The sleep study indicated that I had mild sleep apnea and the alpha-delta anomaly. I have elected to try the C-pap because I know how exhausting the pain can be. I swim daily for a low impact form of exercise because of a knee replacement after an accident.

Level 1

Since: Apr 11

Location hidden

#5 Jul 28, 2013
Spooky Mulder wrote:
I wasn't referring to people who have been diagnosed. I was referring to those who use it as an excuse and I've met many. I beloned to a support group for a very short time and found many who told their Doctors that they thought they had it and found it easy to get things like Percocet or Fentayl. one bragged that she was on methadone. this has been about five years and thankfully, those pill mills are mostly gone.
I get Botox in my shoulders for the muscle spasms and even that only helps slightly. I've been treated like a drug seeker when I initially talked with physicians and am on no narcotics nor do I plan to be. I finally found a physician who was actually studying his patients and the effects of Quinol( a water soluble CoQ-10). I've been taking it three times a day and the trigger points no longer hurt as much. I didn't think I had sleep apnea either. I don't snore, so I thought I didn't. But people with the sleep anomaly don't always have the apnea.
The sleep study indicated that I had mild sleep apnea and the alpha-delta anomaly. I have elected to try the C-pap because I know how exhausting the pain can be. I swim daily for a low impact form of exercise because of a knee replacement after an accident.
Some people will use any excuse to obtain pain pills.It's good to hear you,like myself,don't want to go that route.I will ask my Dr about the Quinol.The best of luck to you.No one understands this condition unless they too suffer from it.

Level 9

Since: Sep 11

Weeki Wachee, Florida

#6 Jul 28, 2013
I luv Weezie wrote:
<quoted text>
Some people will use any excuse to obtain pain pills.It's good to hear you,like myself,don't want to go that route.I will ask my Dr about the Quinol.The best of luck to you.No one understands this condition unless they too suffer from it.
The Quinol is a little expensive because it absorbs better than the regular CO-Q10.

http://www.fibromyalgia-treatment.com/coq10-f...

http://www.fmcpaware.org/r-v/sleep-disorders

Here's a couple links you might be interested in. I'd really be interested in what your Dr. thinks. And, you are right, no one understands what we go through. I get tired of the eyerolls from people who think this isn't a real disorder. I ask them why did the FDA approve three medications for a make-believe disorder.
wintergirl

Spring, TX

#7 Sep 12, 2013
I know quite a few women who say they suffer from it. It does seem to surface conveniently when there is something they don't want to do. Some give in to it and stay in bed. Others use a swimming pool to get exercise so that it isn't so painful.

After seeing the shape some people are in at ages they are too young to be in that shape, I guess I went overboard trying to be healthy.

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