Has the family reached out to any pediatric cancer foundations in the Toronto area? Sometimes talking to other parents can help. I know when I spoke to parents in some what similar situations as us...it actually helped. Even got some good referrals.<quoted text>
I just called my bro to get the proper name of the condition Phillip has.
It's juvenile angiofibroma.
Most med websites say it can be operated on etc....but Phillip's case is more serious and just not stopping. It's getting near his brain stem, will put pressure on his brain stem etc...
As you would know, everyone in the family and friends are very worried. My bro told me that Phillips father does alot of crying privately. Things don't look too good. A miracle needs to happen for sure.
I mentioned this to my bro when he visited last summer, talked to him when we went for a walk alone. Hospitals like Toronto Sick Kids have really good care, state of the art care etc...but let's face it that the US does have some beyond excellent cancer and childrens facilities. I suggested that maybe the family should do a fund raiser here(I think Cdn med care might cover some of the cost in extreme cases) and get him to the US. But my bro says, "trust me, Toronto Sick Kids has the best pediatric docs and cancer docs in Canada...and they said it cannot be operated on anymore, just radiation, chemo etc..." But my opinion is why not get a 2nd opinion in the US? Different medical centers, cancer places etc sometimes offer options you might not know about.
There's a few in the area. https://www.facebook.com/ChildhoodCancerCanad...
We've drove my son out to Boston Children's and Philadelphia Children's Hospitals several times. I would drive a million miles if it were to help my son. While he was in those hospitals we were put up the Ronald McDonald house. 5 bucks a night.
My thoughts and prayers will go out to him and the family. Stay strong little man!