“Insert useless statement here.”

Level 5

Since: Feb 08

Location hidden

#2699 Jan 24, 2014
Naturally Wired wrote:
<quoted text>
I just called my bro to get the proper name of the condition Phillip has.
It's juvenile angiofibroma.
Most med websites say it can be operated on etc....but Phillip's case is more serious and just not stopping. It's getting near his brain stem, will put pressure on his brain stem etc...
As you would know, everyone in the family and friends are very worried. My bro told me that Phillips father does alot of crying privately. Things don't look too good. A miracle needs to happen for sure.
I mentioned this to my bro when he visited last summer, talked to him when we went for a walk alone. Hospitals like Toronto Sick Kids have really good care, state of the art care etc...but let's face it that the US does have some beyond excellent cancer and childrens facilities. I suggested that maybe the family should do a fund raiser here(I think Cdn med care might cover some of the cost in extreme cases) and get him to the US. But my bro says, "trust me, Toronto Sick Kids has the best pediatric docs and cancer docs in Canada...and they said it cannot be operated on anymore, just radiation, chemo etc..." But my opinion is why not get a 2nd opinion in the US? Different medical centers, cancer places etc sometimes offer options you might not know about.
Has the family reached out to any pediatric cancer foundations in the Toronto area? Sometimes talking to other parents can help. I know when I spoke to parents in some what similar situations as us...it actually helped. Even got some good referrals.

There's a few in the area. https://www.facebook.com/ChildhoodCancerCanad...

We've drove my son out to Boston Children's and Philadelphia Children's Hospitals several times. I would drive a million miles if it were to help my son. While he was in those hospitals we were put up the Ronald McDonald house. 5 bucks a night.

My thoughts and prayers will go out to him and the family. Stay strong little man!

“Insert useless statement here.”

Level 5

Since: Feb 08

Location hidden

#2700 Jan 24, 2014
-Persephone- wrote:
<quoted text>I remember you telling me about this.
:(
I just realized that your Canadian. LOL! Duh me! Where have I been? If it wasn't for your avatar....I wouldn't have thunk it.

But, I'm sorry my #1 slot of "Fave Canadian" ( Naturally Wired )has already been filled. Is #2 OK?

“<3”

Level 9

Since: Jun 10

Black Rock City, NV

#2701 Jan 24, 2014
Chris - PSL wrote:
<quoted text>I just realized that your Canadian. LOL! Duh me! Where have I been? If it wasn't for your avatar....I wouldn't have thunk it.
But, I'm sorry my #1 slot of "Fave Canadian" ( Naturally Wired )has already been filled. Is #2 OK?
I'm A DUAL. And he's my number one favorite too.

Since: Jul 09

Location hidden

#2702 Jan 24, 2014
-Persephone- wrote:
<quoted text>I remember you telling me about this.
:(
What else have I said. Sometimes I have been under the influence of happy liquid..lol.

All jokes aside, I hope something turns out good for him.

Since: Jul 09

Location hidden

#2703 Jan 24, 2014
Chris - PSL wrote:
<quoted text>Has the family reached out to any pediatric cancer foundations in the Toronto area? Sometimes talking to other parents can help. I know when I spoke to parents in some what similar situations as us...it actually helped. Even got some good referrals.
There's a few in the area. https://www.facebook.com/ChildhoodCancerCanad...
We've drove my son out to Boston Children's and Philadelphia Children's Hospitals several times. I would drive a million miles if it were to help my son. While he was in those hospitals we were put up the Ronald McDonald house. 5 bucks a night.
My thoughts and prayers will go out to him and the family. Stay strong little man!
I'm not sure what they have and haven't done, but they must be looking at all options and info etc.

I also don't know every detail of his condition. My bro did tell me that because it's so near his brain stem and other vital areas, Toronto Sick Kids says the op could be fatal for him and radiation was the next opt. I think he also told me that even if it was not near his brain stem, the operation and more ops(apparently the condition can come back, spread?...not sure, I haven't done enough reading on it) could leave him facially disfigured.

Thanks for your support, thanks to you too Perse.

“Insert useless statement here.”

Level 5

Since: Feb 08

Location hidden

#2704 Jan 24, 2014
-Persephone- wrote:
<quoted text>
I'm A DUAL. And he's my number one favorite too.
I've known my "Fave Canadian" since 2008. He's a good guy! ;) I'm happy to share with you.

Since: Jul 09

Location hidden

#2705 Jan 24, 2014
If only I had someone in real life tell me I'm their fave

LOL

“Incorrupta fides, nudaque veri”

Level 9

Since: May 07

Vincit qui se vincit

#2706 Jan 24, 2014
USA_1 wrote:
<quoted text>It's a hell of a thing when a flush goes wrong! LOL
lol

“Incorrupta fides, nudaque veri”

Level 9

Since: May 07

Vincit qui se vincit

#2707 Jan 24, 2014
Chris - PSL wrote:
<quoted text>Wow...it sure does sound painful. Glad your son is better. Is he experiencing any arthritis pain or anything in that knee now?
Yesterday my son went back to the surgeon to have the 16 staples taken out. It didn't hurt him at all. He's a brave little soul. The surgeon recommended that in about a year or so that my son's 5 screws and plate used to repair the hip should be taken out to avoid arthritis from setting in, in the future.
Has anyone ever heard of taking them out?
I'm just nervous because my son's surgery went well but it was the recovery that was hell. Anytime my son goes under anesthesia, he aspirates vomit and his lungs collapse from aspirated pneumonia.
Trying to weigh out the pros and cons. I personally think my son is too young to have to experience arthritis. BUT....do I chance it because of his lungs???? I say no. But I don't want to see him in pain in the long run. I'm in a catch 22 right now.
No, so far so good, he says his knee is fine, but I think over time it will bothers him some?

“<3”

Level 9

Since: Jun 10

Black Rock City, NV

#2708 Jan 24, 2014
Naturally Wired wrote:
<quoted text>
What else have I said. Sometimes I have been under the influence of happy liquid..lol.
All jokes aside, I hope something turns out good for him.
Nothing you didn't say in the open forum just there.

I hope it turns out well also. Time seems to be of the essence in final outcome, so I hope they get their acts together and do something for the child!

“<3”

Level 9

Since: Jun 10

Black Rock City, NV

#2709 Jan 24, 2014
Chris - PSL wrote:
<quoted text>I've known my "Fave Canadian" since 2008. He's a good guy! ;) I'm happy to share with you.
Well, I think I've had the pleasure of his company here for 1.5 years, and I thank you for sharing.

“Incorrupta fides, nudaque veri”

Level 9

Since: May 07

Vincit qui se vincit

#2710 Jan 24, 2014
-Persephone- wrote:
<quoted text>Nothing you didn't say in the open forum just there.
I hope it turns out well also. Time seems to be of the essence in final outcome, so I hope they get their acts together and do something for the child!
Ought oh, what'd he do this time? lol

“Incorrupta fides, nudaque veri”

Level 9

Since: May 07

Vincit qui se vincit

#2711 Jan 24, 2014
Naturally Wired wrote:
If only I had someone in real life tell me I'm their fave
LOL
You can! A paid escort will tell you anything you want while being paid for 15 min!

“<3”

Level 9

Since: Jun 10

Black Rock City, NV

#2712 Jan 24, 2014
Ricky F wrote:
<quoted text>Ought oh, what'd he do this time? lol
Nothing, read up further. He's talking about something sad.

Since: Jul 09

Location hidden

#2713 Jan 24, 2014
Ricky F wrote:
<quoted text>You can! A paid escort will tell you anything you want while being paid for 15 min!
15 minutes? I need more than that!...lol

“Insert useless statement here.”

Level 5

Since: Feb 08

Location hidden

#2714 Jan 27, 2014
Ricky F wrote:
<quoted text>You can! A paid escort will tell you anything you want while being paid for 15 min!
LMAO! Thanks so much, I just choked on my morning coffee. ;)

“Insert useless statement here.”

Level 5

Since: Feb 08

Location hidden

#2715 Jan 27, 2014
Check out this interesting experiment done in space. I thought it was pretty cool.

http://apod.nasa.gov/apod/ap130424.html

“<3”

Level 9

Since: Jun 10

Black Rock City, NV

#2716 Jan 27, 2014
Naturally Wired wrote:
<quoted text>
I just called my bro to get the proper name of the condition Phillip has.
It's juvenile angiofibroma.
Most med websites say it can be operated on etc....but Phillip's case is more serious and just not stopping. It's getting near his brain stem, will put pressure on his brain stem etc...
As you would know, everyone in the family and friends are very worried. My bro told me that Phillips father does alot of crying privately. Things don't look too good. A miracle needs to happen for sure.
I mentioned this to my bro when he visited last summer, talked to him when we went for a walk alone. Hospitals like Toronto Sick Kids have really good care, state of the art care etc...but let's face it that the US does have some beyond excellent cancer and childrens facilities. I suggested that maybe the family should do a fund raiser here(I think Cdn med care might cover some of the cost in extreme cases) and get him to the US. But my bro says, "trust me, Toronto Sick Kids has the best pediatric docs and cancer docs in Canada...and they said it cannot be operated on anymore, just radiation, chemo etc..." But my opinion is why not get a 2nd opinion in the US? Different medical centers, cancer places etc sometimes offer options you might not know about.
Please tell him to consider the United States. There are many hospitals that have programs... Believe me I know about this.

“Incorrupta fides, nudaque veri”

Level 9

Since: May 07

Vincit qui se vincit

#2717 Jan 27, 2014
Hey, is it just me or did Topix disable the judgeits?

“Insert useless statement here.”

Level 5

Since: Feb 08

Location hidden

#2718 Jan 27, 2014
Ricky F wrote:
Hey, is it just me or did Topix disable the judgeits?
I thought the same thing. But I noticed once I click the "judge it" thingie...I had to scroll up to the top of the page.(that's where I found the box)

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