Chronic Testicular Pain
harry

Jersey City, NJ

#148 Oct 13, 2012
Jeant wrote:
This urologist in Winter Haven, FL has patients coming for this surgery from all over the world for. We live in Phila area and no one in either Phila or NYC is doing this procedure. I had done a lot of investigation on the topic before encouraging my son to go. The success rate Dr. "P" was getting was worth the trip even if his pain level could be decreased by at least 50%. In bilateral cases the surgery is done only on the side that is worse than the other, the two are never done together. My son was told the total results would not be determined until six months out. So far three months out he feels his pain relief is more than 90% improved. It was covered by my insurance too! I hope this helps.


i am planning to go through this surgery.How much out of pocket charges you pay for this after your insurance covered?
harry

Jersey City, NJ

#149 Oct 13, 2012
I wish I was a DR wrote:
I was having excruciating pain in both of my boys for over 7 months and had no idea what the hell was going on down there. Little did I know that the pre-workout supplement I had been abusing was due to my testicles aching like a mofo. I had been abusing caffeine for quite some time and had no earthly idea that it would all boil down to this nonsense. I can't even drink coffee anymore but after dropping coffee and 2 months of cipro I feel back to normal and I'm banging pussy like never before!to hell with coffee, take care of your boys!
i have the same symptoms as you have.i went to the urologist and he prescribed me Cipro 500 mg.I drink coffee 3 times a day.after stop
taking coffee and taking Cipro your pain completely gone?
I need help

Hattiesburg, MS

#150 Oct 27, 2012
William wrote:
There are few doctors doing the microsurgical denervation, it is a new treatment and while there are a few good cases, any damage to the blood vessels and you are back to orchiectomy. I have spend over a year online trying to get actual men who have had the surgery to comment, I have not had a lot of luck. I think too that cutting the nerves will not always work and still it is only 3 nerves they cut. THe diagnostic tool is the nerve block, that is really hit and miss (literally). The guys who have had nerve blocks have extremely mixed reviews. The guys that went the full orchiectomy route (I had the right one taken 3 years ago) have a 95% pain reduction rate with over 60% complete pain relief. So there is more to it, diet, stress, etc. Just no good studies.
<quoted text>
Hello William, my name is also William, I am a 20 year old male living in the U.S. who is a sufferer from this ailment. It is right sided and unilateral for me. have you found out anything about the effectiveness of nerve blocks? I am waiting to see a neurologist and curious about if I should have this done. Please reply.
dave

Bethlehem, PA

#151 Nov 11, 2012
Started with sudden pain on right side and nausea. My doc thought torsion and sent me to ER. ER checked for hernia and ultrasound for torsion, found a varicocele on both sides. I had an embolization done on left but they could not do the right. About 3 months later i had varicocelectomy on the right. Within 2 days my testicle started to swell, uro put me on 2 antibiotics but swelling continued. Had another ultrasound which found no blood flow. Had an exploratory surgery to see about blood flow. Uro felt the ridiculous swelling was "maybe epidydimitis." Now 3 months after surgery my testicle has gone from normal to 4 times its size after the surgery, to now half its original size. I have a second opinion appointment set for 2 weeks. Very uncomfortable pain today and went back to my percocet for the first time in 2 months. Hoping testicle is not dead, anyone know what the next step would be? Would it have to be removed? Plus my left side which had the embolization done is starting to act up lately too. Hoping I dont have to go through another surgery. Any thoughts?
shane

Glasgow, UK

#152 Nov 21, 2012
I am so glad i found this forum. I have been suffering with sore testicles for about 7 years on and off. The first time it happened i got told it was epidimitis so was put on all different antibiotics and pain meds but nothing changed. Went to urology department at hospital and they did all sorts of tests including shoving a camera up inside but all tests came up negative. I was house bound for nearly a year and a half so had to give up work as postman. Then it just stopped for a couple of years then would flare up for a few weeks and just disapear again. This went on till jan this year and now its back. I also had kidney stones at start of month which didnt help the pain in testicles. I had scans done and they found a varacocile but said that wasnt causing the pain. I am now on pain meds, anti flammatories, nerve blockers and anti depressants. If i sit down im ok but as soon as i start to move the pain gets worse. I am currently waiting to go to the orthapedic department to see if its osteitis pubis thats causing the pain in the hopes they can find away to help.i have read on some sites that likes of pilates is good for this but if you cant move how can u exercise. Have any of u found a good way to cope with this? Im getting bored staying in most of the time and want to work but cant find a job i would be able to do. Any ideas?
Dave

United States

#153 Nov 28, 2012
After second opinion, it looks like I will be having an orchiectomy in January. Anyone been through this yet? Any ideas of what to expect as far as recovery time?
Billy

Ireland

#154 Jan 15, 2013
I am currently having severe pain in my sac and both hips. Been on tabs and had ultrasound and nothing found. Sexual activity include masturbation or arousal causing pain. Is there anything to help?
Billy

Ireland

#155 Jan 17, 2013
Dave wrote:
After second opinion, it looks like I will be having an orchiectomy in January. Anyone been through this yet? Any ideas of what to expect as far as recovery time?
wat is an orchiectomy and did u have it done yet
Blake King

Portsmouth, VA

#158 Apr 23, 2013
I have had the same problem as you all but its on the right side. i have had the injections they didnt work. i went through with a spermatic cord stripping and a varicocelectomy with no success the pain actually seems worse than before the surgery. it is constantly a 3-4 on a pain scale of 10 but when it gets hit or during sexual activities its a 8-9 on a scale of 10 so running and lifting are out of the questoin its been going on for around 21 months i have tried all sorts of pills with no relief as well as physical therapy if anyone has had anything different of any other ideas for me to try please post it on here my doctor and i are both stumped on this issue.
Looking for Relief

Venice, CA

#159 May 27, 2013
relief wrote:
Hello everyone,
I am writing about my husbands experience. He had a vasectomy almost 2 years ago. Five weeks later he was in the hospital with epididmytis. He has had chronic testicle pain ever since. We went to a couple urologists & a couple pain specialist. The 1st urologist wanted to remove his testicle so we sought a 2nd opinion. After several unsuccessful procedures, our urologist wanted to send him to the Mayo Clinic. They faxed the records & the Mayo Clinic said they couldn't do anything. In March, I was on here searching for answers like everyone else on here. I saw Dr. Parekattil's posts & contacted him. Within 15 minutes from emailing him, he emailed back with information. We flew to Florida in May. He had his operation 5 weeks ago.
By the time we went to Florida my husband was on very high doses of pain medications & still rated his pain at 6 -7 daily. He now rates his pain at 2 - 3 & is still improving. He has already started coming off of his pain meds & is doing great. I don't know all of your situations, but I can tell you that making the decision to contact Dr Parekattil was the best decision we made. It doesn't hurt to send an email or call him to see if he can help your situation. If you want to know more about our experience.
Dr. P said it would take 1 - 2 months to know the full effects of the surgery. I will post an update later. I will check back here, if anyone has questions for us. I hope you all find the relief you are looking for. I know we were desperately searching also.
I'm curious if the procedure was successful for your husband. I'm having similar issues and I'm considering seeking help from Dr. P.
what do you think

Riverton, NJ

#160 May 29, 2013
hi, I also started having right testicle pain do to an infection almost 2 years ago.The pain comes and goes when bad im put on antibotics which included the z pak, none of these really helped.I now have pain in many joints in my body.Mostly my right leg hip and calf.Recenntly spread to left side.Ive been to urologist and neuroligist.I also started getting some tingling which i believe is nerve damage.I think many people here have the same thing i do.I believe we have some type of infection which doesnt show up on most blood test.Ive been tested for everything by blood test and nothing shows up.I also had my testicle ultrasounded-nothing.I dont think the antibotics help since its not a usual viral or bacteria infection.I just started getting head aches and sometimes feel feverish/but have normal temp when taken.I think this infection gets into your brain and causes many nerves system problems which mimic parkinson/arthritis .P lease know im not a doctor and base this on research and common sense ,do to all this starting after the infection i had which may or may not of bin sexually transmitted.I really want to go to an infectious disease doctor but dont have the money,if you can afford it i think this is the doctor you need to see hopefully theres something that can be done god bless-lets all try to keep each other informed!
Joe

Kuwait, Kuwait

#161 Jun 2, 2013
Lorna wrote:
Hi, I'm just doing some research on behalf of my boyfriend and just came across this information which sounds very promissing in terms of treating chronic testicular pain.
Here is a small piece from the following webpage-
http://www.malereproduction.com/24_chrontestp...
A new surgical technique has been developed to help men with chronic testicular pain that have not responded to conservative medical treatments. This procedure known as Microsurgical denervation of the spermatic cord.
I then did a google search on Microsurgical denervation of the spermatic cord and this search came up with a lot of links.
Hope this helps
Was the surgery a success ?

Since: Jun 13

Harrisonburg, VA

#162 Jun 8, 2013
Hi,
I too am scheduled for this robotic MDSC procedure with Dr "P". But I am getting conflicting information on what the entire procedure will cost. I am wondering what the total charge will be all inclusive. Can you help with that? I can provide my email if you would rather communicate privately.
Thanks very much.
Looking for Relief wrote:
<quoted text>
I'm curious if the procedure was successful for your husband. I'm having similar issues and I'm considering seeking help from Dr. P.
Looking for Relief

Venice, CA

#163 Jun 9, 2013
delirioustim wrote:
Hi,
I too am scheduled for this robotic MDSC procedure with Dr "P". But I am getting conflicting information on what the entire procedure will cost. I am wondering what the total charge will be all inclusive. Can you help with that? I can provide my email if you would rather communicate privately.
Thanks very much.
<quoted text>
I have not received any cost estimates yet. I will share that information with you whenever I receive it.
Joe

Kuwait, Kuwait

#164 Jun 14, 2013
Anyone know the cost of the mdsc procedure? And has anyone had success with it?
Jerry

Forked River, NJ

#165 Jul 16, 2013
The cost without insurance is $9000 for the MDSC with Dr. P.
I found a doctor in Long Island, NY that will do it for less. Dr. Sheynkin with Stony Brook Hospital. I have an appt. in 3 weeks. Wish me luck I have been suffering for 4 years with insane pain.
delirioustim wrote:
Hi,
I too am scheduled for this robotic MDSC procedure with Dr "P". But I am getting conflicting information on what the entire procedure will cost. I am wondering what the total charge will be all inclusive. Can you help with that? I can provide my email if you would rather communicate privately.
Thanks very much.
<quoted text>
Sammy

Santa Barbara, CA

#166 Sep 2, 2013
Mike wrote:
I had pretty bad testicle pain in my right side that radiated down to my leg at times. This was constant for about a year, then SLOWLY started to subside and become intermittent until now I barely have any pain at all anymore. Maybe a little every once in a while but I am cured for the most part. Saw my GP once about it, he thought it was fine. Exercise seemed to help cure it if that's even possible. Onset of it was Summer 2007. Had the chronic constant pain from June 2007 to May of 2008. that's when it started getting much better. By early 2009 I was fine. Scary stuff.
Hey Mike,
What kind of exercises to relief the pain? And have you had any urination and weak ejaculation problem?
Thanks mike :)
Albert

Barcelona, Spain

#167 Sep 21, 2013
Tom wrote:
Hello Fellow Sufferers,
I posted a couple of years ago but thought I'd revisit this subject. In '05 I had my tailbone removed due to the fact that it fell off. What triggered the tailbone to deteriorate is anyone's guess. Afterwards I experienced my first testicular pain (about 60 days later). Treated with antibiotics and gone. In '07 I had a vasectomy and pain started again and didn't let up. The urologist was shrugging his shoulders like a crime witness in Tijuana, "I saw nothing." I wish I had never had the vasectomy. In late 2007 I had terrible lower left side and lower left hip pain that accompanied the testicular pain. CT, MRI & X-rays showed nothing but a slightly slipped S4 that I knew about. I have had chronic left side teste pain since. In early '10 I had a repeat of the lower left side abdominal infection which they thought was diverticulitis. CT tests showed no diverticulitis although I have a colonoscopy next week to confirm.
Here's how it feels. Left teste feels like it's on a short leash and pulling something. Feels as if it had a cyst on it, heavy like (yes, have had regular urine tests, physicals, prostate exams etc. All clear). Left side pain is dull left side that radiates lower left near pelvis and then to the back and a bit up. I have regular "hot spots" (what I call them) that are little pain spots in my mid-lower back/abdominal region. They come and go and almost seem to pulse pain.
I also have generalized back pain that radiates down my leg, particularly the right leg. Sometimes my right leg feels "ballooned" (again, my name) which is as if a balloon was slightly inflating inside the left side of my upper right leg.
It could be nerve pain related to the coccydectomy. It could be related to the slightly slipped S4. It could be related to some low back arthritis as well. I could be all or something else.
I don't take meds as this doesn't get to the source. I wear supported underwear, keep my weight as low as possible, stretch, watch what I eat, exercise and have a supportive mattress. The best bet for me is the supportive underwear coupled by not wearing tight pants.
Good luck to all.
Hi! i have too a coccigectomy , and i have experienced testicular pain since.I would like to share my experience with you.My e-mail:albertobarretorodriguez @gmail.com
Albert

Barcelona, Spain

#168 Sep 22, 2013
Albert wrote:
<quoted text>
Hi! i have too a coccigectomy , and i have experienced testicular pain since.I would like to share my experience with you.My e-mail:albertobarretorodriguez @gmail.com
Is : [email protected] com ( without the space between the "@" and gmail)
anderson

Glen Cove, NY

#169 Sep 27, 2013
don't get a denervation with Levine in Chicago. No class, I lost my testicle and he had no clue, no post op instructions, has no clue on chronic pain or bedside manner, I would not waste your time and it is not the right procedure. read headache in a pelvis Anderson wise protocol is the way to go

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