Orchiectomy for Chronic Testicular Pain?

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bbb79

Lancaster, NY

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#21
May 6, 2010
 
Yeah, yesterday I was to a new urologist and my prostate issue seems to have cleared up miraculously (back to normal size, no pain during examination) however I'm still having issues with lingering pain and inflamation in the testicles and epeididymitis. The uro recommended I try a pain block shot in the spermatic cord to see if that helps, to my understanding if that works out then I would most likely see success with a denervation of the spermatic cord.

One really bad thing I have heard tho even from the uro yesterday is that even if i had a testicle removed i still could have pain afterwards even if its gone, so not only would i have had a nut removed but i'd still have the same stupid issue. As of right now they want me on an anti-inflammatory regiment to break the inflammation down and to try the cord block for relief.
William wrote:
<quoted text>
Mild nuisance.
I am sure if I had the whole cord etc removed I would be ok, my case was more complicated perhaps as I had already had 2 previous surgeries (an exploratory and an orchiopexy)
After getting over the body image issues I am good. Pain is pretty much gone and never goes above a level where OTC pain meds won't control it.
Still not advocating orchiectomy as the only solution! That denervation seems to work just as well. It just happens to be less common and a lot more expensive.
William

Miyazaki, Japan

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#22
May 7, 2010
 
Urologists are trained to only remove testes for cancer or extreme trauma. Women get total hysterectomies at the drop of a hat....

Like I said I am not advocating here. Given the choice I would have gone with the denervation but I did not have the choice, removal was my only option and even the nerve injection was not an option. I think in the US with your informed consent system of medicine that you have a lot more choices and safeguards.

The nerve block is diagnostic and not an actual treatment. Hitting all 3 nerves shooting blind is a bit of a craps shoot too I think. Have a look on the net for the details of the procedure.

Surgeons have to cover their asses, if you have a bilateral orchiectomy and still have pain who are you going to blame/ sue??? That is their point. The reality is that other treatments might work better. I suggest checking them all out including diet (caffeine intake) and stress level. I occasionally take a tranquilizer for a different issue but it has a side effect of eliminating any pain. I think that in my case muscle relaxants might have worked (I was on them for a few years with a back injury and in that time I had no pain...) My biggest issue was that I wanted to be drug free and pain free thus surgery was my only option in my area.
bbb79 wrote:
Yeah, yesterday I was to a new urologist and my prostate issue seems to have cleared up miraculously (back to normal size, no pain during examination) however I'm still having issues with lingering pain and inflamation in the testicles and epeididymitis. The uro recommended I try a pain block shot in the spermatic cord to see if that helps, to my understanding if that works out then I would most likely see success with a denervation of the spermatic cord.
One really bad thing I have heard tho even from the uro yesterday is that even if i had a testicle removed i still could have pain afterwards even if its gone, so not only would i have had a nut removed but i'd still have the same stupid issue. As of right now they want me on an anti-inflammatory regiment to break the inflammation down and to try the cord block for relief.
<quoted text>
Nick

Richmond, Australia

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#23
Sep 30, 2010
 
I had a testicle wrecked as complication of minor scrotal surgery. Your testicles provide your manhood via testosterone. Don't let a scalpel near them. My advice is 1% chance of complications is too risky.
William

Miyazaki, Japan

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#24
Sep 30, 2010
 
Nick wrote:
I had a testicle wrecked as complication of minor scrotal surgery. Your testicles provide your manhood via testosterone. Don't let a scalpel near them. My advice is 1% chance of complications is too risky.
So true, I am looking at another orchiectomy. The pain has steadily increased over the last 18 months. Last chance is some new pain med but no one knows when it will be available around here.

Lucky I am married with child and wife is unable to have intercourse and had a radical hysterectomy this year. Still I am only 32. sucks but that is what HRT is for
thomas

Portsmouth, VA

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#25
Nov 3, 2010
 
I had a vasectomy done back in Feb of this year. Swelled up on left side, after two months of being swollen and in pain the doctor decided I should have my hematoma drained. After the proceure he told my wife he should not have went in that early, yet noted that when he had me opened that I had epyditimitus. He was not able to do anything because I was already under. They stitched me back up and sent me on my way. developed an infection, due to what I believe was bad stitching. was not healing.. four months later still pain very bad... After consults had a epydidymectomy now two months later still in pain... WHY!!!! Had chord block done two day ago no difference at all... Doc says next step is orchyectomy do i let this happen.... Should say I am military onn flight status can not fly under current conditions, however if i lose my testicle and still end up in pain then what the F%@^ is next!!!!!!
William

Tokyo, Japan

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#26
Nov 3, 2010
 
thomas wrote:
I had a vasectomy done back in Feb of this year. Swelled up on left side, after two months of being swollen and in pain the doctor decided I should have my hematoma drained. After the proceure he told my wife he should not have went in that early, yet noted that when he had me opened that I had epyditimitus. He was not able to do anything because I was already under. They stitched me back up and sent me on my way. developed an infection, due to what I believe was bad stitching. was not healing.. four months later still pain very bad... After consults had a epydidymectomy now two months later still in pain... WHY!!!! Had chord block done two day ago no difference at all... Doc says next step is orchyectomy do i let this happen.... Should say I am military onn flight status can not fly under current conditions, however if i lose my testicle and still end up in pain then what the F%@^ is next!!!!!!
If you have had a cord block and are still in pain then it is usually something else, the cord block is the diagnostic test to determine if an orchiectomy would solve your pain issue. Cord blocks are however very much hit and miss, the target area is small and there are usually 3 nerves that are trying to be hit, here in Japan they will not even try it, I was advised to have a shot direct into the spine around the coccyx. I declined that as the step after was back surgery to implant electrodes in the spinal canal. I accepted the orchiectomy 1 month ago and am on HRT.

Do as much research and diagnostic testing as possible first. Surgery is not something I recommend as it is incredibly traumatic. I had a total of 5 surgeries over 12 years to deal with my pain issues. Eventually I had both testes removed. It is not a good option and it is not acceptable to all that many men, for me and some others it has given pain relief.

Try the yahoo orchialgia group.
nicolas

Limasol, Cyprus

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#27
Nov 4, 2010
 
HI guys, I am 37 and been sufering with chronic testicular pain in both sides for the last 7 years. This was caused after a varicocele and a cystoscopy. I got infected with E.Coli, which i blame the doctor who performed this, and i curse him day and night. Over these years i have done , antiflammatory medications, homeopathy, herbs, antibiotics , ancupuncture,antidepresant medications, cord blocks,sitz baths (hot water baths),vitamins.None of them work. Cord blocks did help but as long as the medication had an effect. My pain is constant and reflects towards the hips and legs.Three months ago i was in Gainsville Florida and proceed in doing neurolisis of the spermatic cord on the left side which is worse. unforgunatly no pain releve at all.I have travel from Cyprus to the US, took 4 planes to get there.Yea thats what desperation sounds like.My dr there said to me if this doesnt work we go for orchiectomy with an 80% of been pain free.This would be devastating for me.I am not married no kids and i dont bother really , i just want to have a normal life again.I did try neurotin no improvement. Oxycodene pure morfine works, but i had all the side effects written on the medicine i wanted to die when i took it. I am going to start taking Cymbalta as a doctor here advise me to do so.I dont beleve in God anymore,because i have been praying all this years for an inlightment of what shall i do next. I am saying this to u and i know u will understand the desperation that am going through. I thought i was alone suferring from this.Sometimes i think that duying will end this torture. Be strong if u have any streangth left and try all the possible options.
William

Tokyo, Japan

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#28
Nov 4, 2010
 
nicolas wrote:
HI guys, I am 37 and been sufering with chronic testicular pain in both sides for the last 7 years. This was caused after a varicocele and a cystoscopy. I got infected with E.Coli, which i blame the doctor who performed this, and i curse him day and night. Over these years i have done , antiflammatory medications, homeopathy, herbs, antibiotics , ancupuncture,antidepresant medications, cord blocks,sitz baths (hot water baths),vitamins.None of them work. Cord blocks did help but as long as the medication had an effect. My pain is constant and reflects towards the hips and legs.Three months ago i was in Gainsville Florida and proceed in doing neurolisis of the spermatic cord on the left side which is worse. unforgunatly no pain releve at all.I have travel from Cyprus to the US, took 4 planes to get there.Yea thats what desperation sounds like.My dr there said to me if this doesnt work we go for orchiectomy with an 80% of been pain free.This would be devastating for me.I am not married no kids and i dont bother really , i just want to have a normal life again.I did try neurotin no improvement. Oxycodene pure morfine works, but i had all the side effects written on the medicine i wanted to die when i took it. I am going to start taking Cymbalta as a doctor here advise me to do so.I dont beleve in God anymore,because i have been praying all this years for an inlightment of what shall i do next. I am saying this to u and i know u will understand the desperation that am going through. I thought i was alone suferring from this.Sometimes i think that duying will end this torture. Be strong if u have any streangth left and try all the possible options.
I know the feeling, lyrica 150mg per day helped me with the pain. The side effects were severe in my case, one of the major reasons for me going direct to orchiectomy. I am now glad I did not bother going all the way to Florida for treatment, he seems good at post vasectomy pain but for other more complicated cases not so good. Still his success rate is only 83%.

Orchiectomy is not the only choice, there are other treatments but it seems your have tried them all. That you are unmarried is an added issue. When I was younger doctors tried to do surgeries that would maintain fertility for me. my wife an I were extremely lucky to conceive one child, he is now almost 5. I had my orchiectomies over 3 years though, I waited until I was at the extreme end of the pain meds before accepting surgery. The fact that I had been pain free on the right side for 3 years made me confident that removing the left was my last realistic option. The fact that my wife had a hysterectomy earlier this year made the choice far easier.

Quality of life is key though, on the lyrica or the opiates I was unable to function at all. For me the pain destroyed my energy as well. Striking a balance is important.
Adam

Germany

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#31
Apr 12, 2011
 
I know this is a late post to thread but I had a orchiectomy done last year after chronic pain in my right testicle, the problem is now that my pain is gotten worse and won't go away. It's a burning sensation in my incisional area which like others gets worse when I sit down or doing anything really. Anybody else had the same problems
William

Tokyo, Japan

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#32
Apr 12, 2011
 
Adam wrote:
I know this is a late post to thread but I had a orchiectomy done last year after chronic pain in my right testicle, the problem is now that my pain is gotten worse and won't go away. It's a burning sensation in my incisional area which like others gets worse when I sit down or doing anything really. Anybody else had the same problems
Scrotal or inguinal?
Yeah, I have had all of the options. The scrotum takes the longest to heal. I think it is about a yearish until all the swelling was down and it was back to normal
Inguinal heals faster I think, also getting all the cords out is better.

You are saying that the original pain did not stop? Or that you have a new pain?
Adam

Apo, AE

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#33
Apr 12, 2011
 
William wrote:
<quoted text>
Scrotal or inguinal?
Yeah, I have had all of the options. The scrotum takes the longest to heal. I think it is about a yearish until all the swelling was down and it was back to normal
Inguinal heals faster I think, also getting all the cords out is better.
You are saying that the original pain did not stop? Or that you have a new pain?
It was inguinal, I went to the doctors today and they said I had two cysts growing on the cord, the problem is that I have a bad burning sensation that radiates to the remaining testicle. The doc said it could be In my best interest to have the other on removed so the infections will stop. I just don't want to go through the HRT for the rest of my life. Also the cord blocks don't work, I can't take most of the meds because of the side effects. I just want the pain to go away!
William

Tokyo, Japan

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#34
Apr 13, 2011
 
Adam wrote:
<quoted text>
It was inguinal, I went to the doctors today and they said I had two cysts growing on the cord, the problem is that I have a bad burning sensation that radiates to the remaining testicle. The doc said it could be In my best interest to have the other on removed so the infections will stop. I just don't want to go through the HRT for the rest of my life. Also the cord blocks don't work, I can't take most of the meds because of the side effects. I just want the pain to go away!
Yeah I know your point. Removal of the testicle inguinally usually cures the issues. HRT is not all that bad. I am 23 and have been on it for 7 months now since I had to have the left removed as well. I had the cyst issue as well on the right I think that is what caused the nerve damage issues.

It is a really personally choice to remove the testicles or not. The meds are rough, the nerve blocks are hit and miss. Denervation has a 83% cure rate.
Best of luck
Rick

Singapore, Singapore

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#35
May 31, 2011
 
Dear all, I have similiar pain on my left side for 11 years with 2 varicole surgeries done and the pain continued to bother me.

After years of experimentation without going for further surgery (as my doc adviced), I came to conclude that it was due chronic inflammation, sensitive nerves and muscle tension. The way im handling it is to wear loose underwear/pants with soft/thin material and seating on hard surface chair to avoid 'rubbing'/agitating the area.

Additional to these, when the pain comes, I take arcoxia every 2-4 days. Arcoxia is a truly god-send for me, I urge you guys to give it a try.
Occasionally when i take muscle relaxant for other problems, it helped a little too.
I had considered Orchiectomy even til this day as i want a drug free and permanent cure, but am not sure if it will help.
Nick

Cardiff, UK

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#37
Nov 16, 2011
 
I have had pain in my left testicle and inner thighs for 2 years now. I am 27 and have had 2 operations. The first was to tie up a varicocele at the top in my groin and remove an epididymal cyst, all inguinal. The pain seemed to be going away but then returned a couple of months later. A scan revealed another much larger cyst right next to where the previous cyst had been removed. 7 months later and I have been in a lot of pain due to what seems like nerve damage with pain in my testicle and running down to my inner thighs and back of the legs and bum. I am just about hanging onto my job but sitting at a desk for long periods is very uncomfortable. I have been on ibuprofen for 7 months and lyrica for almost 2 months up to the top dosage now. In the last 2 months I have had quite significant epididimytis with 2 x 2 weeks worth of anti biotics calming it a little. The epididimytis is still pretty bad and the nerve pain remains. I am seeing a renound pain specialists dr Baranowski in Harley street soon and have been told by my 2nd urologist that orchiectomy might be an option. He says that it will almost definitely take away the pain but I have read some stories similar to mine saying that it hasn't. I am doing acupuncture soon and am trying Bowen. I find that tight briefs help to keep things up and packed in as much as possible but can't do any sport even swimming which used to be my only thing to fall back on for exercise.

Does anyone have any suggestions to help me be able to live my life again and not spend every evening lying on the sofa?

Options as far as I can see are:
Continue the lyrica
Nerve block
Nerve stripping
Epidimyctomy
Orchiectomy

All I know is that something has to be done!

Can anybody help?
William

Tokyo, Japan

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#38
Nov 16, 2011
 
Wow,

Ok, Many surgeries. I had the same thing with the cyst removed. The pain is a problem.
Lyrica? Working at all? I was totally high all the time on it. I hated the feeling (I have to concetrate for work/ life) I was on 75mgs three times per day, plus sleeping pills and I would wake up in pain in the night.

Thigh pain as well though. Sounds like it could be higher up in the back. Pudendal nerve block may not work. Inguinal orchiectomy only has a 93% "cure" rate so yea 7% of those guys get no relief and can be stuck on HRT for life.

Do you have kids and do you want them? Banking sperm is a good idea. I didn't and not of course can't.

Try pelvic massage and muscle release first I think.
Nick wrote:
I have had pain in my left testicle and inner thighs for 2 years now. I am 27 and have had 2 operations. The first was to tie up a varicocele at the top in my groin and remove an epididymal cyst, all inguinal. The pain seemed to be going away but then returned a couple of months later. A scan revealed another much larger cyst right next to where the previous cyst had been removed. 7 months later and I have been in a lot of pain due to what seems like nerve damage with pain in my testicle and running down to my inner thighs and back of the legs and bum. I am just about hanging onto my job but sitting at a desk for long periods is very uncomfortable. I have been on ibuprofen for 7 months and lyrica for almost 2 months up to the top dosage now. In the last 2 months I have had quite significant epididimytis with 2 x 2 weeks worth of anti biotics calming it a little. The epididimytis is still pretty bad and the nerve pain remains. I am seeing a renound pain specialists dr Baranowski in Harley street soon and have been told by my 2nd urologist that orchiectomy might be an option. He says that it will almost definitely take away the pain but I have read some stories similar to mine saying that it hasn't. I am doing acupuncture soon and am trying Bowen. I find that tight briefs help to keep things up and packed in as much as possible but can't do any sport even swimming which used to be my only thing to fall back on for exercise.
Does anyone have any suggestions to help me be able to live my life again and not spend every evening lying on the sofa?
Options as far as I can see are:
Continue the lyrica
Nerve block
Nerve stripping
Epidimyctomy
Orchiectomy
All I know is that something has to be done!
Can anybody help?
ron

Greer, SC

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#39
May 16, 2012
 
chu224 wrote:
John,do not have the orchiectomy. YOur pain will increase tenfold. See a top notch pain management physician. He should suggest neurontin,Lyrical combined with a good antidepressant such as Cymbalta. I lost my career which involved sitting in planes and sitting in general. Find a way to stand at work if at all possible. Pressure from sitting will worsen the nerve pain. You have a damaged nerve, surgery will only make it worse, I am now on permanent disability after the orchiectomy.
i feel i am going thru same issue-but afraid to tell doctors
Jon

Oakland, CA

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#40
Jul 17, 2012
 
I see I am very late to the discussion. I've had left testicle pain for a long time, despite an epididectomy, orchiectomy, genitofemoral nerve and perineal branch of the pudendal nerve cut.

Now I have left sciatica with the left side of my left foot and heel having gone permanently numb.

I am going to see an osteopath soon to be tested for Piriformis Syndrome and Ischial Canal Syndrome.

The only thing that has helped was a pudendal nerve block. It is possible that the piriformis muscle and Ischial Canal were what really were affected by the nerve block since they are in the area where I had the block.

I also had a inguinal approach vascectomy many years ago. My genitofemoral nerve was tangled in scar tissue from the vascectomy, but cutting that nerve did not help my pain.

I am now totally disabled with the pain and really got a lot out of reading this thread. If any of you are still around and have any advice, I'd appreciate it.
terry

Fond Du Lac, WI

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#41
Nov 12, 2012
 
I have been having testical pain in my right testical for more than 40 years and have just been putting up with it .Noe that I am 60 and have grand kids I would love to just opt in to having casteration lot of head aches doing that doctors and all was thinking of iceing just above testical and cutting small hole just big enough to pull cords out and tie a piece o fish line realy tight and cutting off blood frow and everything else.Need to do something.
Jason

Stowe, VT

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#42
Nov 13, 2012
 

Judged:

1

To all of you experiencing testicular pain and going through multiple surgeries, I feel for you. NO FUN! I have been through it all.

I first posted almost 4 years ago here. Back in April of 2009 before my first surgery.

When I first saw my Urologist about severe testicular pain I told him that I would consider having them both removed because I was so frustrated by the 10 years of pain. He told me flat out, "I can tell you right now I am NOT going to just remove your testicles". I was devastated.

Not only was I experiencing extreme pain, but I was also having intense hot flashes every hour 24/7. Then it dawned on my Urologist to check my testosterone levels. It was almost zero (at 37 years old) due to my testicles being injured years before. They were not producing testosterone any more. That is when my Doctor finally conceded to remove my left testicle first and see how things went.

Surgery #1 was an inguinal orchiectomy on the left side and complete removal of all the spermatic cord and tissue. After recovering, I was amazed by the complete absence of pain. However I was still experiencing the pain on my right side.

Surgery #2 4 months later my doctor agreed to do the right side. For some reason he decided to do this procedure through the scrotum and just remove the testicle itself, stating it would be less recovery time by going this route. BAD IDEA!! After recovering from the surgery itself I realized the pain was still there (on the right side) and in fact worse than it was before. I had what I can describe as a "stump" of raw nerves in my scrotum where the testicle was cut off. A constant ache and sensitivity to the touch.

Surgery #3 My Urologist agreed to go in inguinally on the right side and remove all of the spermatic cord and tissue. After recovering, FINALLY no more pain or discomfort. I can't tell you all what a relief that was.

Surgery #4 I had large saline testicular implants put in. I did not like having an empty scrotum between my legs and wanted to feel normal (anatomically). Surgery went well with no complications.

Now I give myself weekly testosterone injections. My scars are barely noticeable, I have zero pain, visually I look normal and the volume of my ejaculate is normal. Just like men who have a vasectomy, it is just minus the little guys swimming around.

Do I miss having real testicles? Nope. Unless you want to father children they really have no value other than to produce sperm and testosterone. My testosterone level now is that of a teenager. And the biggest part is I am completely pain free!

I would highly recommend not ever having a vasectomy. You are only inviting the chance of complications. And also, if you ever are to have an orchiectomy, go the inguinal route and have all of the connective cords and tissue removed. That is were all of the nerves are.

If any of you have question for me, feel free to ask.

leonard

Dublin, Ireland

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#43
Jan 13, 2013
 
I have the same problem for almost 3 years, pain in the testicle and spermatic cord after a varicocele and a hernia surgery on the left side. I m taking gabapentin for daytime and amitriptyline for nighttime but they don't help me at all with the pain.I m considering having a orchiectomy but the doctor said the pain might get worse. I don't now what to do.Is anyone can help me.

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