Delayed Puberty due to Prolactinoma a...

Delayed Puberty due to Prolactinoma and Low testosterone

Posted in the Endocrinology Forum


Paisley, UK

#1 Nov 20, 2009
I have jus trecently been diagnosed with a Prolactinoma after years of not feeling quite right.

Im 24 and have little to no body hair, some armpit hair thats arrived in last 2 years, and no facial hair ive never shaved.

My Endo believes there is a good chance ive had this since i was a teen, i havent had the chance to get in contact with him as ive got 5 months to wait to see how i take to the cabergoline.

Ever since i was a kid i thought i was A-sexual i was never that into sex and when all the other kids were interested in girls, i just wasnt that fussed.

I sometimes get asked for identification as they belive im 16-18.

Is it possible that once my Tumor is shrunken that my Testosterone will rise and i may develop more in the penis area and in other areas that i havent developed yet, or have i missed my chance even with any treatment ?

Köln, Germany

#2 Dec 4, 2009
Did your Endo measure your Testosterone levels? If not, there is no reason why you shouldn't be on a therapeutic level of Testosterone. Other hormones, like Thyroid and Growth Hormone should be measured, as well.

I had delayed puberty, and then, on and off again pubertal development. Smaller than normal testicles and penis. When I first went to university, I was held naked up against a wall, for other guys to come and gawk at my small body and genitals. I was 18 then.

You're lucky. My prolactinoma wasn't discovered until I was 61. All those confusing years, wondering what was wrong with me and the attendant humiliation.

Call your Endo guy immediately and insist on a full hormonal workup. You may be able to "catch up" with your normal growth, while there is still time.


#3 May 11, 2010
Hi, searching through the internet I cam across your posting from back in 2009.

I had my prolactinoma diagnosed when I was 17 and was monitored on bromocryptine after surgery before my doctor decided to switch me on to cabergoline as well, now that I'm 21. I still have some more tests that have to be done but much of what you wrote earlier applies to me:

i. Though I like girls, I'm also not that fussed.
ii. I'm constantly asked for identification.
iii. Little body hair; never shaved.

Can you post how to took to the cabergoline? My testosterone levels is really low and it appears that the tumour affected me just after I started puberty, so I never really completed it. I am also wondering what changes may come for me.
Mike Ledford

Charlottesville, VA

#4 Sep 13, 2011
Don't know if this would help, Jim, but there are ways to increase testosterone naturally. Especially for men whose testosterone levels have declined over the years. Here's another article with 9 tips to raise testosterone.

Maybe it would help you as well.

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