Posted in the Dermatology Forum
#21 May 26, 2007
OMG! I am not alone!!! My husband wants me to get psycholoigical help. For 1 mo now I have been fighting off one thing or another. I also believe I have some sort of bug/parasite under my skin on my arms, hands (between fingers), feet, maybe legs. It looks red like sunburn (dont go in sun it makes it worse), doesn't itcch much except when it feels like something is crawling on me, I feel biting pain, see white specks resembling tiny parasitic looking lint, and it worsens at night or in the dark. Seems to be less when not at home but this could be a coincidence. Here's my story:
The day after treating my kids with Vermox for pinworm, I noticed my arms and hands looked sunburned (I have not been in the sun)and little white whisker like things were sticking out.I immediately thought pinworms were on my skin on my arms since i laundered everything w/o gloves. The docs say not possible. Well that night I take Vermox for pinworm just in case. My redness got worse but also felt a burning sensation that was mildly uncomfortable for a few hours. The next week I take vermox again b/c I kept finding white lint like specks in my bed in the morning. This time within minutes my skin on arms and hands got bright red and felt like acid was being poured on my hands. Docs treated me with Medrol thinking it was a vascular allergic reaction to vermox (hence, the redness and white prickly's were before taking vermox).I put on Aloe, hydrocortisone, Eucerin, nothing sothed it for 4 hours. I of course believed then I have some type of parasite in my skin on my arms and hands since it flared up after taking the parasite killer Vermox. No relief yet though i was told the redness should subside by now.The next day I was still red on my arms, neck, chest, and hands (esp on knuckles and creases of fingers). White specks of skin flakes looking similar to pinworm between fingers, knuckles, and often on arms right after a crawling or itchy feeling. I had a weird briuse appear on my foot but dont remember hurting it. The nect day it was almost completely gone. Ironically my hubby has this too now but in two spots on the same foot. He tells me it is nothing and I am crazy. I am always cleanign w/bleach now, wash my hands, kids hands constantly, and now eating w/surgical gloves so I dont reinfect myself with this. Cant see a dermatologist till August (theres only two here). Dr. still thinks its allergies but I take allergy meds too no relief. Sometimes I notice my arms lose all color when I walk outside and all u see is my freckles. I have constant bone pain in my arms, legs, feet, and ankles that is getting so bad it hurts to stand sometimes. I am noticing more itchy, crawly feeling lately and some nights I dont notice anything. Not sure what it is but would love to chat with any or all of you about anything we can share to help each other. I am seconds from going to the ER but I have been there so much lately and is ranking up a high bill my hubby is dead set against it and thinks I am causing these symtpoms. If it were true, how does he explain my hands sometimes wrinkling up like I have been swimming, flaking betwee fingers, and red to white colored skin right before his eyes? I may be supermom but I am not that much of a superwoman!!! Lets chat.
firstname.lastname@example.org. I also have IM on publci daily. I live in East coast in US.
#22 May 26, 2007
Oh Sorry about the long post. Just needed to vent where ppl will listen and know this is very real to me. I drew circles around a couple red marks that I feel tingling. I wanna see if they move by tomorrow morning.
#23 May 28, 2007
For the last couple of days I have been driven insane with sleeplessness. Day in and day out there's this itching.
A pharmacist suggested I have scabies so I'll try the treatment. However, I suspect it's some kind of biting mite, because there's all these little miniscule black dots on tissues when I wipe the surface of my skin.
I would be pissed if a doctor told me I am delusional. This is not a mental problem. It is physical, and definitely correlated with night times.
Showering helps for a little while, but it's getting worse, and people around me are showing symptoms. What madness.
#24 May 29, 2007
I know what you mean.I havebt been able to sleep tonight either. I keep feeling like my arm hair is moving all the time. When I turn on the light, I see a couple black things and white things on my skin. My husband no longer listens or gets up to check anymore. No matter how upset I am about it. TO make things worse, I do not think I have gotten rid of the pinworm thing and this is making me livid b/c I am doing my best to get them gone. No one in my house believes me and thinks I am losing it now. I really am not. I wish my docs would listen and take me seriously and try something. Anything just not send me home with "no such thing as parasites in your skin". Ok if mites can get under our skin, why not parasites? I no longer feel safe to sleep, sit, anything as long as I feel a little tickle across my arms and legs. I tried going in to the sun yesterday, it burn really bad. I had to sit inside the concession stand while my family swan in the lake. Very sad now.
#26 Jun 6, 2007
Eugene: you dont know what your talking about ,your ignorant
her [lani's] problems if you read it properly started BEFORE she used bleach, she is right if she says this is what she feels is the problem ,you wouldnt know ,your not the one going though it!
#27 Jun 8, 2007
I have had years of reconstructive facal surgery and knee surgeries along with monthly injections of Hylagan and Supartz because I have no cartillage and this monthly interartciular joint injection keeps me moving , in pain, but moving.(The injuried were from a near fatal car acident.)
The point is that after my doctor changed from avian Hylagan to an inorganic synthetic Euflexxa, well, my life has never been the same. For two straight months I had herpes. Then after Acyclovir slowed that down and I did some research on Euflexxa and SAW that possible side effects something else happened: I developed red mosquito-looking
bumps everywhere. Again from the GP to the dermatologist.
Another non-covered HMO prescribed medication( I pay over a thousand dollars PER month for my HMO)
I have just finished a Permethrin creme 5% prescribed by my dermotologist and last evening I felt as if I was a living colony of crawling subtle movements everywhere. It is as if every hair follicle had little climbers. I am trying to not lose my sense of humor but am now headed to an allergist and immunologist. Because of the "extensive invasion" of bumps
and maddening itchey rashes everywhere no one is telling me it is in my head.
My heart goes out to those of you I have read who have symtoms but nothing visible to the naked eye. You can't see electricity either but just go ahead and stick your finger in a socket. Honestly, are we not yet out of the dark ages.
By the way for a brief time the itching was subdued as I guess the "mites' were being paralyzed.
Something is going on in this Universe of ours and for those of you who do not have visible rashes, hang in there and know that you are not alone.
I will continue to post what I find out with blood tests and research.
I believe if we all share information and communication we
can help each other.
Please respond if you have the energy.
By the way I do love animals but this takes sanctuary to a new level.
#28 Jun 8, 2007
By the way as an addendum, I doo't smoke anything or drink and eat organically; a lot of people experiencing these problems are of healthy dispositions so the harsh critical comments are really not helpful.
How about some kindness. It takes courage to reach out there positively and still relay the suffering that is occuring.
Since: Jun 07
#29 Jun 8, 2007
I wonder if it isn't due to all the clothes and linen's that we use on our beds. There is a very small insect that is almost invisisble,called no seeum's and they do bite. Cattle get them. But here in Louisiana there is a very tiny insect that bites during the summer I guess their no seeums. Now other things like thyroid problems,can cause a lot of different things. Slow thinking, itching, lack of coordination, very tired, on and on. I was diagnosed with a super hyperactive node and the rest of my thyroid acts like it is sleeping. Look up on a thyroid site and maybe it might help a few of you. Oatmeal wrapped up in a cheescloths and put in the bathwater, might help the itching or an anti histamine if you can take one. But ask your doctor to check for thyroid problems, it may be that.
#30 Jun 18, 2007
ok, first of all.. my daughter was diagnosed wiht pinworms.. I grossed out.. then i too began a cleaning frenzy out of this world. The more i researched the worst it got.. This is 7 days since treatment.. and I still think the whole world has got "cooties" i wont touch a door knob, or allow my kids in the kitchen.. its compulsive.. but this is a "HAHA MENTAL ISSUE" I will have to work through.. im trying to laugh.. but OMG>>>> WORMS??? ok anyways... in the past i found a stray dog, that was really abused.. i brought this little thing home. and gave it a bath and loved it oh so much.. unfortunately within 3 days.. i was itching so bad, i couldnt stand it.. thought fleas?? or something... NOOOOOOOOOOO the damn dog game me scabies... vet.. said never had she seen a case like this.. told me to wear gloves and bathe dog daily.. too late.. i tried all the meds for scabies.. didnt work.. they kept feasting on me like i was the candy man.. so against drs orders... I jumped in a hot tub... i took a scrub brush and dog shampoo the kind that kills ticks.. cant remember the long name.. scrubbed from head to toe.. i washed everything I owned in hot water.. bleached all of the counter tops and scrubbed the carpets.. 24 hours later.. the itching stopped completely.. and my house was clean..clean clean..... and did i mention my hair was thick and shiny.... i did have an uncontrolable urge to sniff butts but.. LMAO!!!!!!!!!! just kidding.. but it worked.. and sometimes being compulsive will set your mind at ease enough to relax... LOL!!! best wishes to all.... ps.. with as much research as i have done.. i really dont think pinworms can live on your skin like that.. especially if you bathe....
#31 Jul 11, 2007
i went to my local pharmist, she said mites dont like sunlight so i put my bedding sheets and covers out i never had a more crawl free week in the last year. look we go to get rid of all our furniture,carpet,bedding,and most of our clothes burn them there just breeding.and go lay out in the sun nude.com e back in tottaly sterilize your house with bleachand get free yes you can but you got to burn almost everything.or you can itch and bitch. fred.at email@example.com id like mord suggestions
#32 Jul 29, 2007
This is horrible! Just in the last 2 or 3 weeks my neighbor and I have been itching like crazy. Her bumps are much larger than mine, but mine almost look like tiny little chicken pox ... they're not all over my body but more on my feet, lower legs, a few on my hands and in between my fingers.
WHAT IS THIS? I hate to go to the doctor for just 1 more thing to say is wrong with me...but this is really driving me crazy. I took some liquid benadryl thinking it may be an allergy but that certainly didn't do the trick...in fact I even got several more as the day went by. Please email me at firstname.lastname@example.org... Is it something in the air...water...ground??? hmmm...got me!
#33 Aug 3, 2007
IVE BEEN SUFFERING FROM THE SAME THING NOW, DOCTORS ARE NOT TELLING ME SH@# ABOUT IT. THE MAIN THING WITH ME IS PEOPLE THAT I SEE OR WALK BY STARTS SCRATCHING THEIR HEAD OR WIPING THEIR MOUTH OR LOOKING DOWN AT THEIR LEGS. THIS HAS BEEN GOING ON FOR 3MO NOW. I WANT TO NOW IS ANYONE GOING THROUGH THIS RELIGIOUS IN SOME KIND OF WAY IT SEEMS ITS A PLAGUE OR SOMETHING I HAD BEEN READING THE BIBLE PRIOR TO THIS DISTURBINCE.I ALSO FEEL AND SEE THE BUGS IN THE MORNING ON MY PILLOW LITTLE WHITE EGG LOOKING THINGS OR WHIT FLAKY LOOKING THINGS I DONT KNOW WHAT THEY ARE. MY DOCTOR IS READY TO PUT ME INTO THE MENTAL HOSPITAL SO I CAN'T GO BACK TO THE DOCTOR ALL ICAN SAY IS THAT ITS IN OUR HAIR I PUT SURRAN WRAP OVER MY HAIR AND MY NOSE GOT CLEAR AND NO ONE EVEN NOTICED ME (SCRATCHING THEIR HEAD OR LOOKING AT THEIR LEGS) WHILE THE WRAP WAS ON MY HEAD.ANOTHER THING I DRIVE TRUCKS AND AND I WALKED ALL THE WAY TO THE BACK OF MY TRAILER AND IT FELT LIKE SOMETHING WAS BOUNCING OFF THE WALLS ONTO MY FACE I KEPT ON WIPPING MY FAFE AND SEEING THESE LITTLE CLEAR $ WHITE THINGS ON MY FACE THIS IS CRAZY FOR REAL THE PEOPLE AT MY JOB IS GETTING FED UP WITH THE PEST SENSATIONS IM GIVING OFF. ANYONE I MEAN ANYONE HAVE ANY SOLUTION PLEASE LET ME KNOW UNTIL THEN JESUS BACK TO CHURCH FOR ME.OOH YEAH VINIGER AND ALCHOL WORK PURE OVER YOUR HEAD. www.GaNeo4@aol.com PLEASE HELP ME
“Insulin; Metformin, Vitabase, ”
Since: Jun 07
South Wales, UK
#34 Aug 27, 2007
I just found an interesting point. If you think your skin may be infested with something or there is a residue of some kind, try patting strips of sticky tape on the skin where you can see or feel the infestation. Peel them off and stick them on to a clean sheet of paper or card to see what is evident.
Not sure if it will help but it might be useful. I have seen other information on this, especially mentioned is the threads or cotton wool stuff coming out of the skin. There has to be a reason for this. Perhaps what is removed by the tape could be looked at under a microscope.
So sorry that you are all experiencing this problem, it must be awful. I found this as I am being bitten by something I can't see. The same thing happens each year for a week or two and I do not know what is doing it which is extremely frustrating. The bites are getting into creases - behind my knees, inside my elbows, around my waist and the top of my legs and are driving me mad! Looks like fleas or mozzies but I can't see anything. We have no animals but there was a dog here until a while before we moved here and we have had mice in the house and have managed to get rid of them, but whether they have left us some visitors I haven't a clue.
Don't know about you but I like to see what I am dealing with!
#35 Aug 27, 2007
I have been dealing with this for 1.5 yrs your all not crazy I don't think MDs know what it is and wont admit it until there overwhelmed with cases they like to think everything has been catalogued when there are tons of things that need research.
This how to make it all more livable
1, keep a very clean house and car get a vacuum with a bag so you can just throw it away the ones with just filters don't get t out of the house
2, avoid humidity
3, stop using topical poisons on your body it helps when there on but doesn't get rid of it and repeated use s a danger to you
4, use diatomatious earth from the organic pesticide section (not the kind for pool filters) under furniture behind radiators etc...
5, keep nails and cuticles trimmed and clean
6, use a combination of food grade mineral oil, anise oil, lemon oil, tee tree oil, rosemary oil on skin and hair (I don't have much so no one notices) this can be gotten at heath food stores
7, use liquid soap in the shower ,I use Palmolive ultra, clean wash clothes every time and fresh towels I use a hand towel to dry to keep the laundry down dry vigorously and luke warm water nothing to hot this does dry out your skin but the oil makes up for it
8, wash all clothes with hot water and color safe bleach whites with bleach.
9, change bedding regularly.
10, take long baths with a couple of pots of strong black tea added I put about 8 tea bags in a big pot and add three pots to a bath this can stain your tub but comes off with bleach and offers instant relief
11, keep all cloth not in use in zip locks $$$ but they make the big ones shoes too
12, dehumidify your home I also have a small steam cleaner this helps but you have to get the articles very dry after, if your in a warm climate park your car in the sun when you can dark colored cars can get over 140 degrees this kills them
I have also had relief by adding colloidal silver to the oil preparation but that has side effects, so do it at your own risk. I have also used bug repellent with 99% deet but that is dangerous. The anti mite and lice sprays don’t’ seem to make a difference it could be mites or protozoa or bacteria or fungus colonies you can some times find little lines that move or come of with tape or black specks if you rinse the area with alcohol. The tea baths really help its all a lot of work but pesticides don t kill it and the alternative to the work is going insane try the twelve steps it wont get rid of it but it will help it’s not in your head my cat is itchy when I am so its not anxiety.
#36 Sep 18, 2007
sorry for the length of this and the next posts, but it is important info.
One item that all must begin to understand is that a "significant proportion of the population have already been exposed to this agent. Of these, only a small percentage are showing symptoms." These people are the ones, such as myself, that suffer from this disorder. The rest are being diagnosed with other ailments. There is a direct connection with this agent causing morgellons with other Nosocomial infections such as CA-MRSA and the spike in the number of cases of Alzheimer's disease and ALS. Most who have morgellons are likely to have some type of cancerous process happening as well.
This agent is transmitted by water, air, and insect vectors. It most resembles protothecosis, as well as Trypanosomiasis. In other words, this bug is very hard to kill. It is an environmentally resistant, man made agent that is persistant, acute, as well as latent with quorum sensing capabilities.
People experience the sensations as if bug are crawling on them but can not see anything when looking for the cause. These sensations are actually an excitation of the nerves in the skin caused by the quorum sensing organisms. It is all very complicated.
For a further breakdown of what is really causing this illness, please visit these sites. The work performed and images presented, were done in a staff lab of a highly rated hospital and it's associated university in Europe.
It would appear that this is a military issue which, because of existing agreements with various governments, likely prohibit the direct disclosure of this information from these institutions. I have been told that this is the reason for the way this information is being disseminated. visit these sites.
#37 Sep 18, 2007
**** Unidentified Dermatosis Syndrome
May 2006/ USA epidemic/
NEW SURVEILLANCE DATABASE
“UNIDENTIFIED DERMATOSIS SYNDROME”
Abstract: There have been reports to state and local public health agencies from residents
throughout Georgia of thread-like skin parasites in their skin, and a related set of symptoms.
In response, the Unidentified Dermatosis Syndrome (UDS) Surveillance Database was
developed and is maintained by the Chemical Hazards Program, Environmental Health Section,
Georgia Division of Public Health. It is intended to build and maintain self-reported symptom
The Chemical Hazards Program defines “Unidentified Dermatosis Syndrome” as reports of tiny
bugs that look like black specks, or thread-like parasites in the skin; or of "something" biting,
stinging, or crawling in the skin, and an accompanying set of symptoms including itching, visible
sores, and fatigue.
The Chemical Hazards Program will examine whether:
1. parasites may be causing the symptoms, and
2. individuals may share hypersensitivity to toxins produced by certain fungi/molds present
in soil causing specific neurotoxic effects.
CURRENT ACTIVITIES: PHASE I
Surveillance Database and Initial Survey
Beginning March 1, 2006 we will administer a survey to collect data from individuals reporting
specific symptoms of UDS. Chemical Hazards Program staff is contacting Georgia residents
following referral from various state, district, and local public health agencies, health care
providers, other professionals, and individuals for voluntary participation in the survey.
Beginning September 1, 2006 Chemical Hazards Program staff will analyze the results of the
survey and decide which health education activities, networking strategies, referral resources,
environmental sampling, or medical interventions will best meet the needs of the survey
participants. Reports generated will contain grouped information only, and will not contain any
personal identifiers such as name or address.
The results of the data analyses are expected to be available to the public in late fall 2006. The
UDS surveillance database will remain in place and continue to gather information about cases in
#38 Sep 18, 2007
The UDS survey requests basic demographic information: age, gender, race/ethnicity and
education level. Questions about their home environment and daily activities, including length of
residency, soil conditions, outdoor hobbies, employment history, and allergy history are
included. Respondents will be asked in detail about their symptoms, doctor visits, current
medications, health status of other family members and pets, and attempted and/or successful
treatments and symptom relief.
Data Management and Entry
CHP staff will collect, manage, enter, and analyze all data from completed surveys. Survey data
will be entered into an Access database and cross checked for validity, reliability, and accuracy
by random verification of entered data and other accepted methods.
Access 2000 database software will be used for data analyses. Survey questions will be analyzed
and compared using analytic techniques appropriate for community survey design. Univariate
analyses will generate descriptive statistics to characterize data from the survey. Bivariate and
multivariate analyses will assess whether trends and relationships exist among survey responses.
ArcView 9.0 software will be used to map/illustrate any trends and relationships.
If trends and relationships are found to exist and are determined to potentially be a result of
parasites and/or exposure to specific fungi present in soil, medical intervention and/or soil
sampling recommendations will provided to appropriate agencies. For more information, to refer
individuals, or to be considered for participation in the survey, please contact:
Jane M. Perry, Director
Chemical Hazards Program
Georgia Division of Public Health
unidentified dermatosis syndrome
Jane M. Perry, Director
Chemical Hazards Program
Georgia Division of Public Health
#39 Sep 18, 2007
Personal communications with the CDC
Lastly, I would like to share my personal communications with the CDC concerning this problem.
Visit http://crossinglines.net/communications_with_... to read these letters.
#40 Sep 19, 2007
Calm down first of all. When was the last time you threw out your bedding? Old bedding and pillows can become infested with miscroscopic mites. You may have an infestation.
Throw out the bedding, vaccuum your bed or replace it if you can afford to. Get new pillows. Wash your clothes in as high a tepmerature as the fabric will allow and shower in a shamppo made for head lice. This should eradicate the mites. Most of all, stop being paranoid that people are itching around you. People itch all the time, it's just that you are more aware of it.
#41 Sep 21, 2007
I have the same thing. My friend and my mother also have it. We talk about it all the time. A girl at work has this skin invading parasite in her hair and combs her hair over every one. Many people in my company got it. Heres what we found out. It is Myiasis. It is a small white fly. Barely visible that lays eggs in your skin. The sun burned like patches are eggs. If you use Nair and or soak with H2o2 they will swarm you. They hate Queen Helen lotion. If you put a little lotion on a white kleenex and wait until something is crawling on you, then wipe you can see it. The grube stage can actually migrate and damage your lymp system. The favorite spots are the lymp nodes in your scalp and back.
Alpha Lipoic Acid
To kill them in your body. Insect bomb your house and car. Spread a box of Borax over your carpets then vacume to kill any eggs that have fallen on carpet. Now bathe with a weak solution of beach in your bath. Use Irish Spring soap for a few weaks. They are hard to get rid of but you can.
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