Vagus Nerve Disorder Causes Symptoms ...

Vagus Nerve Disorder Causes Symptoms Treatments

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Explorz

Las Vegas, NV

#1 Feb 24, 2012
Hello all vagus nerve sufferers,

I just recently developed my vagus nerve condition a few months ago even though I now believe it started over a year ago with IBS symptoms. This disorder is absolutely crazy with so many symptoms that do not show up in testing by physicians except when certain symptoms get really bad that it's hard to get the diagnosis.

My journey with vagus nerve disorder started one nite when I was at my computer and bent over to move a shoe out of the middle of the floor. I passed out and woke up in a sweat thinking I was having a heart attack. I woke up in kind of a dream state wondering why I was laying down on the ground.

As the weeks passed more symptoms started to appear. Weird sensations in certain parts of my body, more passing out episodes, shortness of breath and fast heart rates.

I went to the doctor and he said all my vitals and internal numbers were healthy but yet I felt like my body wasn't working right. I took some nerve calming drugs and that helped for a couple of weeks then they didn't work and arrhythmia bouts set in. I would get arrhythmia for 8 to 12 hours and was up all nite wondering why my heart was kicking my behind like this when it was running smoothly several weeks ago.

My heart finally stopped it's arrhythmic pattern and went into Bradycardia between 42 to 52 BPM. I was at the time in the process of working my way through doctor appointments when a neurologist noticed my low heart rate, sent me back to my primary the same day and my primary sent me to the emergency room the same day and I was admitted for testing. The next day I went through all the tests and the day after that I sent to surgery and had a pacemaker put into me.

The pacemaker helped alot and my heart rate stays up and even though I still have dizzy spells the dizzy spells don't come to a head so to speak and I haven't passed out. I still have various other symptoms to deal with and have come to the conclusion my vagus nerve is pinched or twisted somewhere. I am currently in the process of getting appointments to see a gastro doctor to explore the possibility of a hiatal hernia which would produce all the symptioms I'm having.

At the time of this post I have only been out of my pacemaker surgery for 6 days and still have the original bandages on.

This vagus nerve disorder is real as can be and needs to be addressed more by physicians.

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Terlin

Ann Arbor, MI

#2 May 9, 2013
Can the vagus nerve cause constipation problems loss of equilibrem and numbness along with head presure and spacy feeling

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renny

Georgetown, Guyana

#4 Jun 22, 2013
Do you feel as though your ears and your eyes have a problem and you always holdin dem. Sometimes you find yourself rubbing ur head jus to try and calm yourself down? Do you get pullin sensation in the head sometime? And as for the rest of the body, you feel as though you weak and also feel it movin like someone walkin inside of you?? Is this all of us here or is it me alone..talk to me people!
Frustrated

Broken Arrow, OK

#5 Jul 9, 2013
I have suffered from vagus nerve disorder almost my entire life. When I was a child I would have seizures almost every time I was I'll and my parents were told it was general seizures. In my twenties it came back with a vengeance. Was not diagnosed until about 27. When I was 35 I admitted myself to the ER believing I was having a heart attack. A Dr. Happened to be there who suffered from this same disorder and it was so great to be able to talk to aw ducal professional who not only knew what he was talking about but understood. He helped me to understand the panic associated with the attacks and helped me to learn how to stave off some full blown seizures by controlling the panic that comes before. My seizures are fewer but will never be gone. The symptoms plague me daily and is perhaps one of the most frustrating thing anyone would ever have to live with.
Kim

Milwaukee, WI

#6 Jul 10, 2013
OMG I am thankful to have found this site. I have been having multiple issue with many things for years. It all started a few years ago when all of a sudden i started with IBS. Then I was having heart palpitations from there i started having episodes of syncope. I have seen many specialists. I am at the point where anytime i stand for a few minutes and even sometimes when im sitting i feel syncapal. Over the years and with all the docs i have seen i have been told that i have gerd, ibs, proximal tachicardia, migraines, and i am b-12 , b-6 and d-3 defficient. Many of the specialists think it is autonomic. I have been off of work since April and cant see going back the site of me having these episodes is traumatic for my co-workers. They all prettyn much start the same way. So here are my symptoms I get hot and start to sweat, I flush all the way to my chest, i get nauseated, i start feeling like im going to pass out, my heart feels like it is pounding, my bowel and bladder start to get overactive, and the only relief is to laydown flat and get to an ice cold area. I have been told i should go to mayo but my primary doc seems to want to fight with me every step of the way. Recently had an abdominal ct with dye and it showed possible chrones disease and they just keep throwing new meds at me. I am very frustrated because nothing seems to help. If anyone has any information or knows of a great doc please let me know. [email protected] I have had a cervical surgury as well because we thought the problems with my spine and chord were the cuase of all of this but i guess not. Non of the specialists seem to wanna help me anymore they treat me like i am lying or crazy or something.

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Alice

Albany, NY

#7 Jul 15, 2013
You should look in to the possibility of having postural orthostatic tachycardia syndrome (POTS) The Mayo Clinic in Minn has a unit that deals with it.
Kim

Milwaukee, WI

#8 Jul 15, 2013
I have been checked for POTS with no positive results. The little autonomic tests i have had done did confirm vagus nerve involvement. There have been a few times my heart rate has plummeted for no reason but other times my resting rate is 126. Now the docs are telling me i need to learn how to live with these symptoms.???? I cant believe there is nothing more to do.
Khop

Wichita Falls, TX

#9 Jul 28, 2013
You might try a simple blood test to check for cardiolipin antibodies. I had all your symptoms plus more...brain fog, tired all the time, depression....my neuro finally did the test. I have APS antiphospholipin syndrome. Go to www.apsfa.org and look over the symptoms. Best of luck.
Kim

Orange, CA

#10 Aug 18, 2013
I know exactly what you're going through Google Maria Whalen, Intentional Network,. Her program is doing incredible things. All my issues are long gone!!
My name is Joseph. Tell her I saw you on here.:)
Blessings to you,
Joseph
Jean

Spring Hill, FL

#11 Aug 21, 2013
Had a accidental blow to the middle back 9 years ago. I immediately felt light headed and felt terrible burning pain from my back around to the front under my right breast. I started to have bowel function and urinary incontinence. I also felt very fuzzy headed. Sometimes my heartbeat is very fast. I can no longer exercise or walk fast because it causes pressure build up in my chest. I have terrible digestion problems as well. I have been to many, many doctors and have been prescribed everything from narcotics to anti depressants. I've been told that I'm just"sad". I'm sad alright. It's been 9 years of hell and nobody can find it. I have figured out that it's some sort of vegus nerve involvement but then there's nothing they can do for it. Has anyone found that weight gain makes it worse too? I have never felt so alone in my life with this problem
kim

Milwaukee, WI

#12 Aug 23, 2013
Thanks for the info. I have undergone some more testing. The neuro that i see has now said that something has my autonomic system fired up and very sensitive. There is as of now no new plans for treatment. He is now saying that i have cervical cord syndrome from the problems i had in my neck before i had cervical surgury and the surgeon doesnt agree. Ugh. Right now im doing another round of physical therapy and even she is afraid to work with me because of how sensitive my system is. Confused lost frustrated. Still having all of the issues.
Terlin

Wayne, MI

#13 Aug 23, 2013
Has anyone herd of the hiatal hernia pushing on the vagus nerve ? And there's some thearapest that can manipulate the hernia down?

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durtworks

United States

#15 Aug 29, 2013
I also have epilepsy. I have had 5 brain operations and 1 to have my skull replaced because it was infected from the hospital not sealing my skin up correctly. I was upset with still having massave seizures, so finally I talked to another doctor about the VNS. It was installed last year, and I still have times when I have seizures, I am forgetful, stand in one place for awhile, staring into space, and cant say a complete word, or if I do it is jumbled up and people stare at me. I was told by my dr. that this would cure my seizures and it hasn't. I feel embarrased when I talk to my dr, because she act's like I am lying to her. Also, my VNS comes on every 1-1/2 minutes and makes me choke. I cant stand it. Any ideas on what next? I need help.
DLM

Anaheim, CA

#16 Aug 29, 2013
I have epilepsy and had VNS surgery in 2008. My epileptologist told me that it may take a year to 2 yrs. before a person could see changes in the type of seizures and the amount of seizures one would be having so I would need to be patient. This was very difficult for me as I know it is for you but your body just has to adapt.
With regard to your doctor you definitely need to speak to your doctor and don't be afraid to. Doctors for the most part do not have epilepsy themselves so they do not actually know the feeling we get when we have seizures so you must be honest and not afraid to let them know what you are feeling.
If your doctor is making you feel the way you describe then I strongly suggest you see a different doctor immediately because that is ridiculous! You need to have a bond between you and your doctor; a friendship. Also, make sure your doctor is an epileptologist. Good luck.
durtworks wrote:
I also have epilepsy. I have had 5 brain operations and 1 to have my skull replaced because it was infected from the hospital not sealing my skin up correctly. I was upset with still having massave seizures, so finally I talked to another doctor about the VNS. It was installed last year, and I still have times when I have seizures, I am forgetful, stand in one place for awhile, staring into space, and cant say a complete word, or if I do it is jumbled up and people stare at me. I was told by my dr. that this would cure my seizures and it hasn't. I feel embarrased when I talk to my dr, because she act's like I am lying to her. Also, my VNS comes on every 1-1/2 minutes and makes me choke. I cant stand it. Any ideas on what next? I need help.
Sher

Delta, PA

#17 Sep 5, 2013
Try going to a chiropractor and seeing if your head is off alignment. As crazy as it sounds, I suffered for almost three years before one quick one minute adjustment fixed it all.
C S Mor

United States

#18 Sep 5, 2013
Terlin wrote:
Has anyone herd of the hiatal hernia pushing on the vagus nerve ? And there's some thearapest that can manipulate the hernia down?
I found an article that says hiatal hernia and fagus nerve imbalance are connected.
durtworks

Fairfield, CA

#19 Sep 10, 2013
Thank you for the information you have given me. I made an appointment with my original dr. and found out that my VNS was set up incorrectly. He re-adjusted my settings, and told me I should have an operation again to cure my epilepsy. I didnt know what to tell him, so he gave me 1month to let him know. I asked him if I need to get the testing and stay in the hospital for a week (like the other times) and he said they dont do that anymore. He read me the information of every time I had an operation and everytime I was treated. Now I'm scared even worse. What do I do?
C S Mor

United States

#20 Sep 12, 2013
durtworks wrote:
Thank you for the information you have given me. I made an appointment with my original dr. and found out that my VNS was set up incorrectly. He re-adjusted my settings, and told me I should have an operation again to cure my epilepsy. I didnt know what to tell him, so he gave me 1month to let him know. I asked him if I need to get the testing and stay in the hospital for a week (like the other times) and he said they dont do that anymore. He read me the information of every time I had an operation and everytime I was treated. Now I'm scared even worse. What do I do?
I'm sorry I don't know anything about VNS, but I'm thinking they aren't keeping people in hospitals as much because of the cost. Wishing you the best.
Melanie

Malvern, PA

#23 Sep 27, 2013
OMG your symptoms sound just like mine, it starts with low, rhythmic abdominal pain, and I start to feel hot. Then I feel nauseated and start sweating like crazy- I mean my whole body dripping. Then my bowels start to get over active. Eventually, I start to become cold, and then I'm freezing, shivering and can't get warm. I occasionally pass out randomly. Most of these episodes begin in the middle of the night. The doctors have told me I have a vagal response for seemingly no reason. Fortunately, it doesn't happen as often as it used to. It happened a lot when I was going through a divorce and before that, when I was so unhappy in my first marriage.
Kim wrote:
OMG I am thankful to have found this site. I have been having multiple issue with many things for years. It all started a few years ago when all of a sudden i started with IBS. Then I was having heart palpitations from there i started having episodes of syncope. I have seen many specialists. I am at the point where anytime i stand for a few minutes and even sometimes when im sitting i feel syncapal. Over the years and with all the docs i have seen i have been told that i have gerd, ibs, proximal tachicardia, migraines, and i am b-12 , b-6 and d-3 defficient. Many of the specialists think it is autonomic. I have been off of work since April and cant see going back the site of me having these episodes is traumatic for my co-workers. They all prettyn much start the same way. So here are my symptoms I get hot and start to sweat, I flush all the way to my chest, i get nauseated, i start feeling like im going to pass out, my heart feels like it is pounding, my bowel and bladder start to get overactive, and the only relief is to laydown flat and get to an ice cold area. I have been told i should go to mayo but my primary doc seems to want to fight with me every step of the way. Recently had an abdominal ct with dye and it showed possible chrones disease and they just keep throwing new meds at me. I am very frustrated because nothing seems to help. If anyone has any information or knows of a great doc please let me know. [email protected] I have had a cervical surgury as well because we thought the problems with my spine and chord were the cuase of all of this but i guess not. Non of the specialists seem to wanna help me anymore they treat me like i am lying or crazy or something.
Kim of Milwaukee Wi

Kansasville, WI

#24 Sep 27, 2013
Well I hope that all of the conversations we have on this site are informative to all and helpful. I know they have been for me. I had a TST test done is it came back abnormal and this time they had me do the 24her urine catch at the start of an episode. My levels went 7 fold higher which they explained as mini multiple autonimic crisis throughout everyday with a major one at least onece a day. Also had urodynamics done and found the bladder nerves are not function right either so i have a bladder pacemaker. My new ct shows more spurring and nerve compression as well. UGh but at least I have somewhat of an answer and I feel validated. The tests they have done show a preganglionic process as the etiology and gangliopathy. Melanie please consult an autonomic specialist in your area if you can. They are not easy to find I started with the internet. Alot of my issues were happening for years and nobody put them all together until i started collapsing. Keep in touch. Stress is a symptom of autonomic issues and fortunately I found out they can help manage the symptoms. My younger sister is having issues now as well all after she went through the same as you with divorce. If you wanna chat more e-amil me [email protected]

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