Prescription skin cancer cream Aldara...

Prescription skin cancer cream Aldara has horrific side effects, say users

There are 2172 comments on the NewsTarget.com story from Aug 8, 2006, titled Prescription skin cancer cream Aldara has horrific side effects, say users. In it, NewsTarget.com reports that:

Elaine Hollingsworth put Aldara on her nose thinking that it was the "benign salve" that her dermatologist made it out to be; instead, it was the beginning of her nightmare.

Join the discussion below, or Read more at NewsTarget.com.

FAV

Elmwood Park, NJ

#1396 Feb 6, 2011
Hi Lisa,
I'm curious to know what symptoms have settled down for you, and roughly how long it took before they did settle down. What symptoms do you have right now? Which ones did you have that you no longer have?

Thanks!
FAV

Elmwood Park, NJ

#1397 Feb 6, 2011
Lisa,
I'm also curious to know why you think you have brain damage...what kind of symptoms do you have that would indicate brain damage?
lisa

Selkirk, NY

#1398 Feb 6, 2011
Fav, the symptoms that have settled down in the sharp stabbing pains and the muscle twitching..like the burning cold sensation lingers on....tinnitus is still going strong...my insomnia has improved some....but I also got so anxious when this all started...which didn't help me at all, I'm trying to relax a be at peace...cause being stressed and worried made it worse. I say brain damage because I've seem to have a lot of emotional issues....if you look into cytokine activity they are discovering this is out of balance in people with depression....maybe I just got depressed having to deal with all this, running from doctor to doctor and feeling very alone in all this. I'm no scientist...I just know how I use to feel and how I feel now....my. personality has changed.....so I say brain damage...that my opinion..anyways I will always remain hopeful things will improve......I hope that helps.
FAV

Elmwood Park, NJ

#1399 Feb 6, 2011
Thanks, Lisa. As for the burning cold sensation, does this feel like it's on the outside of your skin or internal? Also, how long does it last when you get it? Do you still have the dizziness? Do you get the burning cold sensation in your head at all? Any numbness anywhere?
How long did it take before the twitches and stabbing pains went away? Did you have thos all the time? I get twitches a lot but only very once in a while get sharp pains...and it's usually only in hands and feet and lasts only a few seconds...
lisa

Dunkirk, NY

#1400 Feb 6, 2011
Fav, the burning cold sensation feels more internal, but just below the surface. I get dizziness occasinally, nothing like in the begining.The burning/cold sensation is mostly on my torso and alot on my arms...it's very random and sort of moves around. Initially it was on my face, but that went away. I get an occasional twitch or stab, they were probably the worst the first year. I pretty much constantly have the burning pain, but if I keep busy I sort of block it out. The symptoms are very strange and elusive, hard to describe. I find a couple glasses of wine eases the burning, but of course using this way of coping has problems in itself.
FAV

Elmwood Park, NJ

#1401 Feb 6, 2011
Thanks, Lisa. My symptoms are different...I get a cooling, almost menthol-like sensation in my head, throat and sometimes legs...but it feels completely inside my body. I don't have burning pain, although I do have a occasional twitching and a stab, once in a while...but nothing I can't live with.

The worst of my symptoms are the dry mouth and throat, trouble swallowing, dizziness and off-balance feeling, feeling my pulse beat really hard in my head and neck all the time, trouble thinking, and weakness and numbness throughout body. I really don't have pain. I'm still trying to figure out if it's all from lyme or aldara though. Both seem to have similar symptoms. I've only been on the IV antibiotic for a week, and I have to be on it for 5 more weeks. I'm praying to god it works and alleviates all my symptoms.

I also have a white tongue, thick saliva and weird taste in my mouth all the time, which isn't yeast, because it's been tested. It's really weird.

Have you ever heard anyone have the tongue thing?
lisa

Albany, NY

#1402 Feb 6, 2011
No tongue thing,,,I surely hope its lyme. This whole thing is awful. I wish you the best..keep me posted,

Since: Sep 10

Overland Park, KS

#1403 Feb 6, 2011
Lisa,

I am very much with you on all of your comments about not being able to get answers from a test, or find a doctor that will believe it could be Aldara (though I did finally find one, a dermatologist.) But I'm interested in your diagnosis of Neuropathy. I had the exact same sensation, mostly torso. After much research I concluded it was nerve damage and wondered how long I'd have it. I started taking ubiquinol (CoQ10) daily, and I believe that helped some. I also had good luck with magnesium, and I did discover through all of my bloodwork that my vitamin D levels were low, so I now take it too. I highly recommend the ubiquinol.

I didn't use very much Aldara - less than 2 packets over 12 weeks, five nights a week, but it was on my face, near my eye. The worst of my symptoms, including the neuropathy, lasted about 6 months. I also had GI issues and extreme fatigue. Scans showed lymphadenopathy and many enlarged organs. Little by little, life has improved. I know that is not the case for many Aldara victims. But I wanted to point out that, at least for me, the worst of the pain and discomfort did eventually go away.

I am going to reach out to local media in my area and see if I can raise any interest. Also, in JUNE I finally an appointment with a well-respected senior Immunologist who is both practicing and teaching at a college hospital. Curious about what he'll have to say.

Since: Jan 10

Atchison, KS

#1404 Feb 6, 2011
Mel_KC wrote:
Lisa,
I am very much with you on all of your comments about not being able to get answers from a test, or find a doctor that will believe it could be Aldara (though I did finally find one, a dermatologist.) But I'm interested in your diagnosis of Neuropathy. I had the exact same sensation, mostly torso. After much research I concluded it was nerve damage and wondered how long I'd have it. I started taking ubiquinol (CoQ10) daily, and I believe that helped some. I also had good luck with magnesium, and I did discover through all of my bloodwork that my vitamin D levels were low, so I now take it too. I highly recommend the ubiquinol.
I didn't use very much Aldara - less than 2 packets over 12 weeks, five nights a week, but it was on my face, near my eye. The worst of my symptoms, including the neuropathy, lasted about 6 months. I also had GI issues and extreme fatigue. Scans showed lymphadenopathy and many enlarged organs. Little by little, life has improved. I know that is not the case for many Aldara victims. But I wanted to point out that, at least for me, the worst of the pain and discomfort did eventually go away.
I am going to reach out to local media in my area and see if I can raise any interest. Also, in JUNE I finally an appointment with a well-respected senior Immunologist who is both practicing and teaching at a college hospital. Curious about what he'll have to say.
Hi Mel, I am near your area, and am very interested in being involved My symptoms continue. This month marked my 2 year anniversary, with few answers from western doctors. I still have the nerve pain, fatigue, cold/burning feeling, tingling, memory problems, swallowing, and digestive problems. Oddly enough, I also have low vit D and B12. I have taken vit supplements, but my levels had not come up any. I spent 6 months in physical therapy in 2010, the aqua therapy did calm the constant burning in my skin, and helped some with my muscle, joint, and bone pain, but a few weeks after discontinuing therapy, my pain/burning nerve issues returned. I was prescribed B12 shots, because absorbtion from food has become an issue.
Also, I am interested in the Immunologist that you are seeing. You can email me privately if you want.
sylvia

Since: Jan 10

Atchison, KS

#1405 Feb 6, 2011
FAV wrote:
Thanks, Lisa. My symptoms are different...I get a cooling, almost menthol-like sensation in my head, throat and sometimes legs...but it feels completely inside my body. I don't have burning pain, although I do have a occasional twitching and a stab, once in a while...but nothing I can't live with.
The worst of my symptoms are the dry mouth and throat, trouble swallowing, dizziness and off-balance feeling, feeling my pulse beat really hard in my head and neck all the time, trouble thinking, and weakness and numbness throughout body. I really don't have pain. I'm still trying to figure out if it's all from lyme or aldara though. Both seem to have similar symptoms. I've only been on the IV antibiotic for a week, and I have to be on it for 5 more weeks. I'm praying to god it works and alleviates all my symptoms.
I also have a white tongue, thick saliva and weird taste in my mouth all the time, which isn't yeast, because it's been tested. It's really weird.
Have you ever heard anyone have the tongue thing?
FAV, your post sounds like a copy of my posts over the past few years. I was prescribed aldara intravaginally for VAIN3. I have every symptom that you have posted. EVERY one of them, PLUS nerve pain. I am two years post aldara, and sad to report that although some of the symptoms are better, and some come and go, most have stuck with me. If u ever want to compare notes, treatments, whatever, youcan email me at sylvial678@gmail.com

Since: Jan 10

Atchison, KS

#1406 Feb 6, 2011
I find my Faith in God, family, good friends, along with some alternative medicine therapies to be the most helpful. I was initially sent down the prescription road trying to find relief, but for me quite honestly I'm paranoid about drugs and they had a host of side effects....Hi Lisa, Im interested in hearing about your alternative medicine therapies, could you talk more about that? You can email if you want. Thanks,
Sylvia

Since: Jan 10

Atchison, KS

#1407 Feb 6, 2011
uummm, Lisa, that is a quote from your post, lol, im not sure what i did that kept it from showing up in quotations, but , anyway, my previous post was for you.
Sylvia
mandi

Australia

#1408 Feb 7, 2011
I have been in sri Lanka for 4months last year having treatment at Barberyn Reef Ayervedic Resort. I am heading back there in a few weeks time and am hoping to stay in sri lanka for the rest of the year and next year.
When I left Sydney in March last year I was really unwell. I have relised that I am happy for the first time in years. I have been suffering from Aldara 'poisoning'for 9 years.I am still in pain and suffer from terrible difficulty eating...I endure terrible pain in the pancreatic region. Nausea, body pain,strange ice cold sensations down my back,extreme hip pain,sore throats, feeling like I am constantly fighting the flu. But I am better than I was this time last year.
The Ayervedic treatment has definately helped me. I am not as well as I was when I left sri lanka last august..but I have still gained some life back.
For those that haven't used Aldara Cream...DON'T.
For those that have and are now debilitated and living with these diabolical symptoms..havea look at the Barberyn Reef Ayervedic Resort site. There are Ayervedic dr's onsight 24hrs a day...and the care is given 24hrs a day. there are also allopathic emergency care dr's on call 24hrs a day. They helped me with my IV fluids and pain relief.
I have not said anything definate until now because I wanted to see what happened with a little time. I am not cured. But I am better.
To even feel well enough to laugh and smile...is a great blessing. I may have even cracked a few jokes!!
I am still taking pain relief and corticosteroids which help me a lot. It is worth thinking about. If anyone wants more information you can email me as well.
I don't know what the cure is...but this is helping me. The Dr's are dedicated to helping me. Wonderful people.
It is tough being away from my family, friends and my fantastic dr....but there isn't a lot of choice I have discovered. It is almost 10 yrs for me since I first became ill after using aldara cream.
Wouldn't it be nice if 3m would man up and support us? They could learn a lot from the integrity of these wonderful people at Barberyn Reef.
I have a very coated tongue..this is due to chronic dehydration. My dr helps me by giving constant IV infusions of fluids. My tongue is always coated however. The cold sensationis horrible...like someone is pouring cold water down my back. There are so many strange sensations after using aldara....too many to list!!
Contact me if you want more info.
mandi

Australia

#1409 Feb 7, 2011
I have the 'muscle twitching'. It is a bit more dramatic than a twitch...Looks a little like I am fitting...but I am not. My arms and legs will 'jump' off the bed/lounge.
The bee sting sensations started for me about 8 months ago. Keep in mind that I used this poison 9/10 years ago now.
I am still having new symptom events occurring. the other thing that I have noticed over the years is that symptoms tend to cycle.
I will experience something and then it will subside and return again after a period of time. When I am really symptomatic is when everything comes at once and becomes extremely intense.This will keep me in bed for weeks.
TGA here in Australia is fully aware of the problems post Aldara but don't seem to report these on their site. Interesting.What more can one say
lisa

Dunkirk, NY

#1410 Feb 7, 2011
Hi Mel, I do take CoQ10, along with some other Vitamins and nutrients. I got the Dx. of Neuropathy after seeing a Neurologist in Cleveland Clinic, after hearing my symptoms they ran a tons of labs, but also performed a punch skin biopsy. It measures the nerve fibers in you skin. Mine showed that my nerves were dying, so they try to find a cause, which there are many, nothing showed up so they labeled me idiopathic, of course I know it was Aldara induced. In fact it was when they gave me information that chemo therapy can cause it the light bulb went off in my head and that how I found this site, which only confirmed what I already knew. I found another fellow user from Ohio who had the exact same Dx. after using Aldara.
As for the alternative treatments, I go see a Naturpathic doctor who does accupuncture on me, I also traveled to Cleveland last week to an innovative health clinic, they did some more lab work , and have me on A liver detox for a week, then I start some new supplements. Part of it I'm sure is that I feel like I am doing something to improve my health, it may not reverse the Aldara damage, but I want to support my body and try to maintain the health I do have. I go back to the clinic in a couple weeks to see what the doctor has found, if anything , in my lab work. Sometimes I do get really tired of dealing with all the symptoms, and retelling my story to a new doctor, but I guess it's that survival instinct in all of us. Mostly I try to live life, ignore the discomfort and just carry on...I use to dream of waking up and feeling better now I', trying to accept it and do the best I can. I appreciate everyones input, there are some wonderful people who write on this site. Mandi, I'm glad you are finding relief. I've heard of that kind of treatment...it may be worth looking into.
no name

East Orange, NJ

#1411 Feb 7, 2011
There are a lot of thoughtful people on this network sharing their experience, so it continues to be baffling that people continue to use this drug I agree there are certain supplements that are needed for most post aldara damage. Getting blood tests for vitamins levels is a wise idea. The damage that occurs within the skin is likely the cause of Vitamin D deficiencies, by causing the body to be unable to synthesize D through the exposure of sun on the skin. CoQ10 is highly beneficial for both the heart and the brain damage it causes, and for anyone that may be on a statin drug it is crucial, because statins block the ability of the body to produce it’s own CoQ10. CoQ10 is a fat-soluble compound, thus you should always take it with a fat (healthy fat that is). It’s used by the mitochondria (“power plants”) of cells to produce energy. CoQ10 is found in highest concentration in cells of organs that require large amounts of energy, such as the heart. Ubiquinol is a more bio available form of CoQ10, it has a heightened absorption rate, which yields higher concentrations of CoQ10 in the blood. Reveratrol is another highly beneficial supplement. Not only does it support the heart and brain, it is a natural chelator of excess lead and copper in the body. A good quality fish oil is also highly beneficial. A good quality vitamin C is helpful, taken at night before bed (buffered is best). The vitamin C that is able to make it into the blood stream creates glutathione, the body’s main antioxidant that cleans out toxins. Quercetin is also beneficial, both for the cardiovascular benefits, as well as it helps to lower histamines levels in the body. Milk thistle is very beneficial in supporting the liver. Vitamin B12 is likely to be low on anyone having digestive issues post aldara, and this usually is dealt with by injections, because the damage in the digestive track prevents proper absorption of supplemental B12. I do not want to be misunderstood as recommending what anyone should take, talking with you doctor is the best thing to do, I just want to suggest some options for each person to research on their own.
Though it seems to vary from person to person, I personally believe that anyone who uses aldara receives damage, it just may be on a level that is low enough it is not realized in some (particular in those who had low functioning immune systems prior to it's use).
The damage that occurs damages the cells membrane and damage to the cell membrane causes a breakdown in the ability of the proteins with in the cells responsible for cellular communication. This breakdown in cellular communication sets the stage for all kinds of dysfunction and autoimmune diseases.
I am thankful to report I have recovered from the dysfunction aldara caused, though now I am dealing with detoxing 5 years of accumulation of toxic matter I could not eliminate due to what aldara was doing, on top of the natural levels of toxic accumulation that occur as we age. So the older one is, the more there is to “clean out”. My choice went beyond alternative medicine, venturing into energy “medicine”, which I’ve come to realize is just to foreign for most to accept as having beneficial potential. I am grateful to God for leading me to what I needed, and pray that each of you find your way back to full health.
mandi

Australia

#1412 Feb 7, 2011
Thanks for all that 'no name'...you must be feeling a bit better to just write all of this!!
I have done all that you have suggested.
I did all this in the very beginning but was too sick to notice any difference in my general ill health.
I continued with all these supplements plus chinese herbs acupuncture. qigong, reflexology and energy rebalancing treatments, hydrotherapy ect. I was at it at least 3/5 times a week for the first year of this illness. Unfortunately the money ran out and I had to make health treatment choices based on what I could have covered by our health system and just continue with one or two treatments.
It ended up being acupuncture and qigong which also included some chinese herbs and I required the IV fluids 3/5 x weekly.I know that they were working, but the symptoms were so intense that It wasn't obvious at that time.
Unfortunately 4-5 years ago everything had to go,(due to financial stress) except the IV fluids which my wonderful dr Richard Schloeffel, helped me to continue. I am certain that all the effort in the very beginning is what has kept me able to keep going for the last decade. I have treatment as I find some money...but Aldara has sent us to the wall financially...the reality for all of us. And also for anyone with a chronic illness. You throw everything at the illness in the hope that you will knock it on the head...and at some point you have to stop as there just isn't anymore money to throw at it.
The turning point for me was about 6 years ago when my teacher in India, Mansoor told me that I had to 'accept the illness'. I tried to do this for about 6 months...I rang him and said that I was unable to accept the illness. He asked me..' can you accept that you can't accept the illness?' For me this was the truth..I could never accept it...but with this came a real peace and this has also helped me to smile today. I am still in terrible pain. I had one hours sleep last night because I was just too sore...this is frequant. And of course...lack of sleep makes the pain seem more intense.
If I can tell all of the victims of Aldara the one thing that has helped me..it is Mansoor's teaching of acceptance. If you want to know more pls email me...but this has helped. Don't confuse acceptance with giving up...they are not the same. Accpetance will help you to just cope with all of this a bit better.
Appreciate everyones support and effort in passing information around. If we can find one thing that helps us..no matter how small...it can make life that little bit easier.
Take care and stay in the game...never give up.
FAV

Elmwood Park, NJ

#1413 Feb 7, 2011
Sylvia L wrote:
<quoted text> FAV, your post sounds like a copy of my posts over the past few years. I was prescribed aldara intravaginally for VAIN3. I have every symptom that you have posted. EVERY one of them, PLUS nerve pain. I am two years post aldara, and sad to report that although some of the symptoms are better, and some come and go, most have stuck with me. If u ever want to compare notes, treatments, whatever, youcan email me at sylvial678@gmail.com
/

Hi Sylvia,
What does your trouble swallowing feel like? Also, do you have any numbness in your face? Sometimes I feel like I'm losing control over my head...do you have that as well?
Aldara1

Mineola, TX

#1414 Feb 7, 2011
I feel that everything discussed here is worthwhile but I took a totally different approach in my affairs by exploring the technical attributes of Aldara/imiquimod and learned as much as is available about the drug mechanism, on the molecular level, so I could share with others a better understanding of what the drug is capable of doing to the user. I report only that information which is based 100% on the literature of researchers and make sure to strictly quote those who have dealt with Aldara/imiquimod on the molecular level without having been influenced by the propoganda spewing from the boardrooms of the Big Pharma's. It is my opinion, based upon many thousands of technical data and documents that I have researched for many years now, Aldara/imiquimod drug mechanism alters so many different aspects of the human physiology that it makes total recovery almost a 1 in a billion chance. That does not mean that what you all are saying in trying to make as much of a come back as possible through any means you may find is less than useful, I just feel that you are up against so much more damage than you may understand exists. Residual brain damage, for instance, is almost impossible to deal with in the form and levels Aldara/imiquimod leave behind in some injured users. Repairing the GI damage is just as difficult as is the brain damage caused by the drug. These are two very, highly technical areas of damage and is caused primarily by the fundamental alterations of basic physiological control mechanisms of the body. They are not easily understood or reversed by the medical community and the damage is not repairable due to the massive transitions that take place in these systems. It is this uncertain, unquantifiable degree of system transitions that represent the injuries and the medical community simply does not have the ability or the science to address such a wide range of alteration. Do I think you should keep trying to achieve the best results for a recovery as possible? Hell yes I do. But please don't set your sights for a full recovery, I just don't think that is realistic and it might cause you a lot more grief in the long run when that goal is not met. Try and be satisfied with any and all minute improvements realized by your use of alternative treatments because you really don't have any options available to you in conventional medicine.
Richard

Erie, PA

#1415 Feb 8, 2011
After reading Aldara1's post people should be taking that into their GP or whoever is managing your care, along with some info from his website. Then you can manage your own care with a person who will have to give this stuff a look. It has been awhile since I have posted because I have been working thru all the crap that was thrown at me. I do believe that how the stuff gets into your blood stream plays an effect on what happens to the person who is using it. To update my stuff and maybe give some hope. I am off the prednisone and the pmr looks to be gone. My vision has settled down and is the best it has been in 5 years. I have the feeling back in my hands and my body temp to me is back to the way it used to be. I am also putting on weight (a little more then I like...lol). The pains that I used to deal with are gone and my BP is holding steady. I still have some odd ball paresis and restless leg but not like before. To let people know I used the crap for over 150 days spread out over 5 years for AK. I didn't develop open sores while using it but would have delayed reaction 2 to 4 weeks after done using the crap. It has been two years since I last used it and am feeling almost back to normal. The big thing that has changed is my heart rate has calmed down and the ringing in my ears is gone most of the time. I still read your posts and send some along to the Neruo I use. He is starting to believe me. For people who are reading this and thinking of using it...simply DON'T. If you do and stuff happens to you, you only have one person to blame and that would be YOU! I appear right now to be very very lucky...do you want to take that chance?

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