Post Thoracic Spinal Fusion Pain
Todd Robins

United States

#84 Apr 20, 2014
Doing Well wrote:
I was fused T2-T12 9 months ago. I feel like a jerk replying, because it sounds like you are all having issues, but I also want to reply so that others reading this can hear something positive. Before I had my surgery, I only found terrifying stories online about how bad things were post-op, but honestly, it's been much better than expected. I still have to be careful and am not to lift more than 10lbs for the time being (since it hasn't been a year yet), but I don't have any pain. I was off of pain medication after 5 weeks, pregnant after 8 weeks, and taking tap dancing classes after 12 weeks. At this point I am 7 months pregnant, using an elliptical or treadmill 2-3 times per week, taking tap class 2 times per week, and taking a modern dance class 1 day a week. Again, I'm being careful and following the advice of my doctor, but things are much better now than they were prior to surgery. My pain is better. My posture is better. Life is better. A few changes had to happen and I'm not fully recovered yet as far as my activity level and flexibility, but I had (and am having) a very positive experience. I think getting off the meds, laying down when needed, and trying to be as active as possible have helped me recover so well.
I'm also having my t2-t12 fused May 30. They are going through my right side rib cage. Is that what they did with yours? I'm just wondering because I've had two other back surgeries and the recovery was tough. I had an anterior/posterior l5-s1 fusion in June of last year and a l5-s1 laminectomy/discectomy in Feb of last year. I'm glad they are not going through my back but wondering if they did yours through your rib cage too?
unknown

Sand Springs, OK

#85 Apr 21, 2014
I would like to know who everyone has used for their back surgeries? I had a horrible experience and am looking to find another surgeon
Kallie

UK

#86 Apr 26, 2014
Doing Well wrote:
I was fused T2-T12 9 months ago. I feel like a jerk replying, because it sounds like you are all having issues, but I also want to reply so that others reading this can hear something positive. Before I had my surgery, I only found terrifying stories online about how bad things were post-op, but honestly, it's been much better than expected. I still have to be careful and am not to lift more than 10lbs for the time being (since it hasn't been a year yet), but I don't have any pain. I was off of pain medication after 5 weeks, pregnant after 8 weeks, and taking tap dancing classes after 12 weeks. At this point I am 7 months pregnant, using an elliptical or treadmill 2-3 times per week, taking tap class 2 times per week, and taking a modern dance class 1 day a week. Again, I'm being careful and following the advice of my doctor, but things are much better now than they were prior to surgery. My pain is better. My posture is better. Life is better. A few changes had to happen and I'm not fully recovered yet as far as my activity level and flexibility, but I had (and am having) a very positive experience. I think getting off the meds, laying down when needed, and trying to be as active as possible have helped me recover so well.
I had my thorasic spine fused march 10th. And 5 weejes later I develope a pain on the right side of my upper back around my shoulder blade that sends tingling sensations down my right hand. So scared. Am back on pain meds again. Any advice from anyone.
Maurice

Stockport, UK

#88 Jun 10, 2014
I have metatstatic prostate cancer. Diagnosed in April 2012. Mets in ribs, pelvis and spine. I needed emergency surgery in Feb 2014 due to impending spinal cord compression at T10. I had posterior fixation by Expedium system T9 to T11 and 50% of the problem tumour removed. I was pain free almost immediately after surgery, back home in 3 days. Radiotherapy for 5 days to tidy up. It is now 19th June 2014 and I do have some mild pain but not particularly in the operated area. I am very active and intend living as long as possible by keeping my doctors up to date, keeping fit and being 100% positive. I am seeing my spinal doctor for an update in about 2 weeks so perhaps he will explain the pain. I am not taking pain killers.
Jeremy

Port Orange, FL

#90 Jul 24, 2014
T8-T11 after an accident shattered some vertebrae. It's been 2 years now. Extremely successful! No pain, no lasting limitations, no nerve damage. I must be lucky but I have no complaints! My Neurosurgeon; Dr. Kuhn Daytona Beach Florida
Mark

Chula Vista, CA

#92 Aug 5, 2014
I had T7-T8 fused 7 weeks ago due to a nerve being compressed. Lot of pain thru ribcage. Tried every non-surgery option over 4-5 years before deciding on surgery. Pain was relieved for the first 3-4 weeks but gradually, pain started to return. Now at 7 weeks, the pain is the strongest it's been since pre-surgery. Anyone have similar issues?
Heidi

Hoedspruit, South Africa

#93 Aug 13, 2014
Hi Jim,

I had T3 - T7 fused 9 years ago after a MVA. Still in ALOT of pain today!! Hopefully your outcome is better than mine...
cda

Martinsburg, WV

#94 Aug 13, 2014
Dana wrote:
<quoted text> You have made me feel so much better, thank you! I have cried all day thinking I may have to live with this pain again. I was in a REALLY bad car accident 20 years ago, then I was a paramedic for level 1 trauma center for 7 years, then an ER nurse for 6 years. Plus, my father and sister has terrible spine issues too so a lot of factors contributed to mine. I tried nerve root blocks, epidurals, you name it nothing helped I Iived in constant pain. Had SO many Dr tell me I would just have to learn to "live with the pain". I found Dr john Heller at Emory University Spinal clinic in Atlanta, Ga who specializes in thoracic problems. He sent me for myelogram, and immediately said I needed surgery. The disc had calcified completely and was attaching to ligaments. Surgery was EXTREMELY painful but I'm almost 6 weeks post op. Dr Heller said it would take a year to heal completely. TONS of restrictions for at least 9 months. But for 5 weeks I had no back/leg pain. I was so proud, and Saturday night it came back SO bad. But I will tell you Dr Heller did my sister's surgery and she can't even tell she ever had surgery, she has no pain, lost NO range of motion (cervical). An my incision scare is almost invisible. I'm just so scared because I hurt just like I did before surgery. I see Dr Heller at 12:20 tomorrow. I thank you so much for your reply, and I wish you the best of luck with your thoracic problems. Please keep in touch so we can compare notes. Thanks again for your reply.
Hi Dana -
Wanted to touch base with you and see how you feel since your fusion ... it's been over a year ... was it a success? Emory's Spine Center is very well regarded. Are you legs functioning normally, any back pain? Was there evidence your fusion took?

Hope all is well and you get this post.

Thanks-

cdba
LaVellle

Portsmouth, VA

#95 Sep 19, 2014
Hello everyone. I had a spinal fusion in June/14 in T-9 and T-10. For 4 yrs i went undiagnosed and was told it was just muscular. After 3 different physical therapist and several doctors it was discovered I had 2 torn discs. Today makes 4 months exactly out of surgery and I feel horrible and the surgery acts as if I should be running marathons because "The hardware looks great." I STILL get the same back spasms, deep pain, pain in my ribs, and I've lost range of motion. Additionally I now have low back and hip pain and can't sleep. Today I have my 3rd follow up and I'm dreading it because he makes me feel as though I'm lying about my symptoms. The same thing I went through the past 4 yrs when they couldn't figure out what was wrong. I'm a UPS driver and there's no way I could go back to work tomorrow but he talks to me as if I should be driving that no power steering, hard seated, rough stick shifted truck TOMORROW. Mind u its not considered an on the job injury so I'm getting NOTHING for sitting home in pain. So no reason for me to fake it. Thx for letting me vent.
Shaunth

Chicago, IL

#98 Oct 23, 2014
Ya I went in from getting hit by drunk driver first told me worst break was compressed and fractured t5 and fracture t5 all way through t12 they send me home after 5 days in hospital saying they need room with a back brace. On the second trip back to the er because of how much pain I was in they finally did a cat scan why hadn't they already who hell knows turns out t2 all way to t12 broke t5 is worse t4and t6 are pushed offset to left and one to right which could have paralyzed me and my spine is crooked and bent forward. They tried say it might have happened if I didn't always wear my brace. Bs so I had to have 10 screws and two rods put in three above t5 and two below it and the pain meds they are giving me don't do anything for pain and its hell to get them to raise em. But I was really wondering I'm 23 and what will I not be able to do anymore because of this type of injury
Hurting

Troy, MI

#99 Oct 23, 2014
gerri wrote:
y had my thorasic spine fused from a very large infected epidural cyst in 2/10. because of infection i was very ill and recoup was very difficult. it was very difficult because the month before i had my left foot amputated due to infection that started in my spine. but let me tell you that it is possible to do. i am currently on no pain meds by my choice. according to docs i would need them forever. ym always in some pain but use other methods to control it. be persistent and positive. it works. dont give up. its all in your attitude. it does get easier but you have to want it, after taking pain meds for 20 years it feels amazing to be on nothing. please try it. you can do it!
What other methods did you use to relieve pain or make it more tolerable?
jdavis6446

Eden Prairie, MN

#100 Nov 19, 2014
Heidi wrote:
Hi Jim,
I had T3 - T7 fused 9 years ago after a MVA. Still in ALOT of pain today!! Hopefully your outcome is better than mine...
Heidi
Where do you have the most pain?
My ribs bother me as much as the back.
Does the pain shift around?
Thank you.
Jim
jdavis6446

Eden Prairie, MN

#101 Nov 19, 2014
Chris wrote:
<quoted text> So great to read this! I just had T2--T9 done 6days ago and thought its done a rough week so far I am getting much better by the day and looked forward to getting off pain pills after 4 years. Though rehab I'm sure will be a challenge. I need my life back! My concern at this point was regaining flexibility as my back now feels like a cement block. But all an all I can tell im healing as when I cough or such it is much better day. Great positive post!
Chris
How are you doing?
I had T3 to T8 fused in May 2013. I am in pain all the time but other than that things are good.
After 12 weeks I started working out carefully with my trainer. I have had this same trainer for many years.
I started playing golf after a 20 year layoff from golf. Current handicap is 6.
I wonder if my pain is normal and if it will always be there.
'All the best.
Jim
RDJ

Hollis Center, ME

#104 Jan 12, 2015
Greetings. Motorcycle accident in May last year- crushed femur so I have a foot-long plate and 13 screws in the left leg. Also shattered T6 - T10 so have 12 pedicle screws with rods, etc. In the spine. After 6 months the femur is a nonunion so day-after-tomorrow I go back in for a re-do with bone grafts from the right femur. On top of this the pain from the thoracotomy is severe and constant. Recent CT scan showed the back hardware is solid, spine is nicely fused and the neuro surgeon said he has no idea why it hurts so much and said that if after the leg heals I would like the back hardware removed, he will do it. I am definitely going have it taken out . . Hopefully by Summer I will be walking without a cane and opiod free. Thanks for listening. RJ
kayla

Swadlincote, UK

#105 Mar 3, 2015
Hi guys, 2 years this november i fractured my t12. My legs ache the back of my neck aches all the time so does the bottom of my back. It aches round my fracture and feel muscles pull.
Ive now come down my my arms aching andmy right shoulder blade aching too. Will this ever go away?
I have a cleaning job that my doctors say anit good for my back
strongjohn

Windermere, FL

#107 Jul 8, 2015
Hi Had thoracic fusion with hardware in nov was done from back be in world or hurt but felt better had t6-t11 fused withrod screws also had neck fused in oct did c2-c5 have plate was done from front thank god for ice cream just had disograph all lumbar discs are bad 10 out of 10 pain pressurized .dr wanted to fuse them he said try the pain pump I did 4 weeks out had huge hematoma that had to have sugery to repair now have bad nerve pain in right side to foot pain pump has good and bad things so far mostly pain for me
claireee

Rognes, France

#108 Oct 12, 2015
Hey, after reading almost all the comments I felt like sharing my experience ! I had a scooter accident and they had to fused my vertebras from L2 to T12 and right now im still living with a rod locking 5 vertebras together. Im waiting for the last surgery probably next year. Im very sportive, used to surf and skate a lot. Of course since the accident I havent been back to it but im not giving up. I went skating once about 3 weeks after I had the fusion and even if it was stupid and dangerous it felt so good to see that I was actually able to skate almost better than before ! had very little pain after 30min skating, I think I was so happy to do it that pain didnt matter, I was just feeling great. Even though I cant do all the sport Id like to Im back to work (chef pastry) and im not having too much troubles, for now im just not allowed to lift any charge but that will change with time. I had already two surgeries and Ive taken pain killers for couple of days after the surgery and then never again. I think you gotta believe your body can do it and it will. Ive met people who had the same surgery that were in pain from the time they get out of bed to the time they go back to it so I guess everyone is very different, and of course having a strong musculature will help your bones to suffer less. so keep active and stay positive. Good luck to you all
Mary B

Baltimore, MD

#110 Oct 13, 2015
i had spinal fusion 4 mths ago T10-T12 , i m still n a lot of pain, the doctor told me i still need lower back surgery n neck surgery, the doctor also told me that i can never return to my job as a machine oper of 18yr again, i feel sad most times because on a scale of 1-10 my back pain is always a 7-9 , in i have no weekly income coming n so bills are stressing me out, i apply for ssi the first week of June n i m still waiting for them, i m 39yrs old n feel like this is taking over my life, i wanna go back to work i hate being home all the time, it hurts to stand at the stove n cook, when i m eating diner with my kids i have to hurry up because my back starts hurting to bad from sitting, when i walk after a few blocks it hurts, i can't sit on the side of my bed long cause there is no back support, when i try to roll over at night it feels like i have a center block n my back, i know they replace some of my bone ,cut the nerves n muscles, added 6 screws n 2 rods but i really thought the pain would b gone by now.When well i heel ?
mcabee1014

Kissimmee, FL

#111 Oct 22, 2015
Can someone help me diagnosis where my pain is coming from and what to do about it. I was in an accident 2 years ago where I was ejected from my work van. I landed on my feet (somehow) in which I received a compression fracture to my L2 and L3. They got fused and I have 2 rods in my back Along with that 9 broken ribs on right side and 4 on the left, collapsed lung , and a fractured skull. Believe it or not I am perfectly fine except for a huge scar on my forehead and my back pain. Some days are better then others and I'm sure that owning abd operating my painting business does not help.no pain meds at all but the pain is pretty bad. I can't lay flat can't put my hands over my head and at the end of everyday I'm slighly hunched over. What can I do how can I do it. I need something
Thank you Eric
mcabee1014

Saint Cloud, FL

#112 Oct 22, 2015
mcabee1014 wrote:
Can someone help me diagnosis where my pain is coming from and what to do about it. I was in an accident 2 years ago where I was ejected from my work van. I landed on my feet (somehow) in which I received a compression fracture to my L2 and L3. They got fused and I have 2 rods in my back Along with that 9 broken ribs on right side and 4 on the left, collapsed lung , and a fractured skull. Believe it or not I am perfectly fine except for a huge scar on my forehead and my back pain. Some days are better then others and I'm sure that owning abd operating my painting business does not help.no pain meds at all but the pain is pretty bad. I can't lay flat can't put my hands over my head and at the end of everyday I'm slighly hunched over. What can I do how can I do it. I need something
Thank you Eric
Also the pain is in my lower back but more towards my side's not my spine and it feels very week. As well as pinched nerves in my shoulder blades

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Spinal Cord Injuries Discussions

Title Updated Last By Comments
Lumbar curve respone Mar 20 dpham 1
I show how you still can be a gamer - C6/C7 Dec '16 Conyboy 1
News New noninvasive treatment enables paralyzed men... (Aug '15) May '16 gabrian 2
viagra not properly working - doc says no physi... (Apr '16) Apr '16 Knowles 1
News Implantable device translates thought into acti... (Feb '16) Feb '16 Pokay 2
Bed (Jan '16) Jan '16 maineguy 1
News New pain mechanisms revealed for neurotoxin in ... (Dec '15) Dec '15 craig stevens 1
More from around the web