recurring shingles
Leslie Pinion

Gainesville, GA

#102 Feb 14, 2011
Renee wrote:
<quoted text>
You said your first outbreak was 9 yrs ago. How old is your first child? I had a c-section and my shingles started 3 yrs later, but I never was right after my surgery,(pain in my side). I had a colonoscopy shortly before my first outbreak, and like you, I too thought a spider had bitten me on my rear. I'm sorry you're struggling with this, but I have to tell you, I feel so much better knowing I'm not alone with the monthly occurances. I too think it's hormone related. Have you ever wondered if it was some new type of staff infection? I've wondered a lot of things, obviously!
my first child is now 4. Even though I am convinced the trigger is hormones-both pregnancies I was shingle free the entire time. I too think that it is something that mimics shingles, but not really shingles. They have done a culture on mine before and it showed up as being shingles. But, I believe the culture probably just confirms it is the virus strand-but there are 8 different herpes viruses, known (we may find out one day we are the 9th).
Renee

United States

#103 Feb 16, 2011
Leslie Pinion wrote:
<quoted text>
my first child is now 4. Even though I am convinced the trigger is hormones-both pregnancies I was shingle free the entire time. I too think that it is something that mimics shingles, but not really shingles. They have done a culture on mine before and it showed up as being shingles. But, I believe the culture probably just confirms it is the virus strand-but there are 8 different herpes viruses, known (we may find out one day we are the 9th).
I think you might be right about that on both accounts. I too, think it's triggered by hormones and a new strand of something. Are you able to take antibiotics? I never had a problem and now they make me sick. I know as we age we develope allergies to things. I don't know, I've thought sooooo many things! I wondered if it could be a new type of internal staff infection. I stopped taking my valtrex and I stopped eating sugar Sunday, so I'll let you know if cutting sugar out of my diet helps. I know caffiene is a stimulant and in the back of my mind, I know I should stop completely. I've cut back to one cup of coffee in the a.m., I glass of unsweetened tea at lunch, and sometimes one glass of tea at night. Keep in touch with me if you find something that works and I'll do the same.
mid40slady

United States

#104 Mar 3, 2011
Yes! Mine coincide with my menstrual cycle and they always show up in the same spot. This month the spot is right below last month's spot.
taterbug wrote:
I have had them at least 20 times for the past 7 yrs- started when I was stressed (planning my wedding), later it seemed to coincide w/ menstrual cycle, now I have had them twice in 8 weeks and neither menstrual nor stress seem to be playing a factor. Mine are on my backside, close to tailbone/left hip. Same place every time. The only test ever run was a culture to confirm for sure it was shingles-after about 8 times of getting them.
Gilly80

Reno, NV

#105 Mar 3, 2011
I had shingles for the first time last month and the achiness, depression and fatigue lasted for about a month! I ONLY HAD A SMALL OUTBREAK OF "COLD SORE' TYPES ON THE ROOF OF MY MOUTH. At first, thinking it was a canker sore, I just gargled with hot salt water...no good. Then gargled with peroxide. Same result. Since I have a problem with ear infections, and most of the sores were on the left side, I thought I had an ear infection with a virus of some kind. Doc said Shingles!!! Never heard of them. By this time I was swabbing the roof of my mouth with iodine. I take lisine daily as part of my supplement regimine, but (after the doctor didn't prescribe any medication) except Vicodin for pain) I started taking 5-6 lisines a day. Then for about a week the virus would move from one sde of myu mouth to the other. Finally, I developed a fever blister on my upper lip. Know what the beginning of these feel like, so I applied zovirax copiously. This along with the Lisine seemed to be absorbed into my mouth tissue, further expediting healing of the sores in my mouth. I'm 69 and have had the simplex herpes B as long as I can remember (cold sores due to too much sun, stress, depression, etc.) but had never heard of herpes. Anyway, this is what helped me the most: Lisine & Zovirax. Still have a lot of upper back pain/soreness.
sas

Arlington, VA

#106 Mar 7, 2011
Just finishing up another case of shingles - over 15 times now in the last 6 years. This is the first time i've ever heard of this happening to anyone else. My doctors have never seen it before. I take acyclovir during active shingles and cymbalta for the PHN. I was on neurontin for several years, but reached a breaking point & my doctor sent me to a neurologist, who switched me to the cymbalta. I also find lidoderm patches help some with pain. Last year i started with a eastern medicine doctor for acupuncture and herbs. i was coming up on one year without an outbreak - but got so busy at work I fell off my acupuncture routine and got sick again. i often think people at work wonder if this is really happening...

i plan to read more on here & while i greatly sympathize with everyone here, i am glad i found this tonight. it does make me feel better that there are others out there.
BethS

Port Huron, MI

#107 Mar 7, 2011
Glad to have found this discussion. Suffered since my early 20's and am now almost 50. Recently, and with no unusual stress, I have had frequent outbreaks with a bonus symptom of facial numbness.

I am not overweight. Am seemingly healthy....excersize, no tobacco, drugs etc. So why is this happening? I am sick and tired, literally, and going to be proactive!

My G.P. sent me to a neurologist who ran blood work. I am being sent to an infec disease doc as I had very high showings of herpes I and II as well as high EBV and mono of all things. Also a MRI of my pituitary was ordered.

I hope they can figure out what's what. Will be glad to post my medical journey if they can help me or any of you.
Leslie Pinion

Gainesville, GA

#108 Mar 8, 2011
BethS wrote:
Glad to have found this discussion. Suffered since my early 20's and am now almost 50. Recently, and with no unusual stress, I have had frequent outbreaks with a bonus symptom of facial numbness.
I am not overweight. Am seemingly healthy....excersize, no tobacco, drugs etc. So why is this happening? I am sick and tired, literally, and going to be proactive!
My G.P. sent me to a neurologist who ran blood work. I am being sent to an infec disease doc as I had very high showings of herpes I and II as well as high EBV and mono of all things. Also a MRI of my pituitary was ordered.
I hope they can figure out what's what. Will be glad to post my medical journey if they can help me or any of you.
very interesting-please post your results when you find out. I haven't heard anyone who was sent to an infec. disease doctor yet.
BethS

Port Huron, MI

#109 Mar 8, 2011
Leslie Pinion wrote:
<quoted text>
very interesting-please post your results when you find out. I haven't heard anyone who was sent to an infec. disease doctor yet.
Will do. Appt is tomorrow.
Peggy

Sterling Heights, MI

#110 Mar 20, 2011
I had shingles when I was 52. It was so odd, the shingles came and my period ended in mid flow and never returned. I've been in menopause ever since. I, too, think there is a hormonal connection.

My initial outbreak was not severe, but very uncomfortable. I never knew you could have so many types of pain all at once! I had it mostly on my right side from the hip down with a little on my left.

Ever since, I've had recurrances of the pain - mostly on the bottoms of my feet and thought it was PHN until one day I noticed that I was also getting small blisters, too. After reading all these posts, I'm beginning to think that I don't have PHN, but instead, I'm actually getting mild cases of recurring shingles.

My diet is pretty good, although I suffer from nighttime and late afternoon junk food cravings. My general health is very good. I'm going to clean up my diet and resume my B vitamins. I'm under alot of stress right now that I can't do anything about, but I can take better care of myself.Good luck to all of you.
MarieGray

Londonderry, NH

#111 Mar 21, 2011
I'm 35, I've been having recurring, blisterless shingles for a few years now, just about every 6 months, but i started a new bout this morning, and my last one was only 3 months ago. I NEVER have blisters, and while I typically have it on my torso, this time (and a few others times it seems to form a band around my buttock and thigh, this time it's a full circle...top of my left leg. There are also stabbing pains now and then that bring me to my knees. I have tried anti virals, vitamin b12 shots every 24 hours for 72 hours...and now I use st johns wort oil to calm the skin burning and that's about it. Whenever they set in, I feel so tired and achy and flu-ish...I just want to sleep for days and days. I don't feel like I have any abnormal amount of stress right now so I'm unsure why it's breaking out now.
[email protected]
Marie
Ronna

United States

#112 Mar 21, 2011
Has anyone tried something called 'Redmond Clay'? I guess you soak in 1/2 cup of it in the tub. You also take 1 tsp in a glass of water 3 times a day. My husband is going to pick me up some this aftermoon. I will let you know if it helps.
MarieGray

Londonderry, NH

#113 Mar 22, 2011
I am not religious by ANY stretch of the imagination, but GOD HELP ME.....the band I posted about yesterday around the top of my left leg has subsided to a dull warmth....and NOW I can feel the usual band on the right side of my back starting in. I"m so tired today I can barely function. I'm frustrated to near tears, I'm at work so I'll remain composed but this is getting SO old. WHat if it's not shingles that's wrong with me?
Marie
BethS

Port Huron, MI

#114 Mar 22, 2011
Just spent a week in the hospital. Drs decided this is no ordinary shingles. Did a spinal tap and awaiting results from a lab in CA.
arleenmoo

Woodhaven, NY

#115 Apr 1, 2011
I had my first shingles attack after my hip surgery 12 years ago, and 3 weeks ago had another outbreak. I also dont have blistery spots, just small red dots, itchy, but extremely painful in my chest and back area.
After reading several comments, I am wondering if there really is a relationship to folks who suffer from Reflux? Also I find myself not being hungry and strangely constipated? Does anyone share these sys toms? Thank you all for sharing and bring comfort to a painful situation. Wish everyone a speedy recovery...
update

UK

#116 Apr 1, 2011
Mads wrote:
Hello there, I have been reading with interest all your comments about shingles and I would like to share my story.
My first outbreak of shingles was when I was 14 and it started with a rash on my right shoulder. This cleared up really quickly and I soon forgot about it and got on with daily life.
I then had an outbreak when I was 23 and started having shingles every single month. The outbreak ranges from my bum to the back of my legs. I have also now started to have it on the instead of my leg.
The outbreak occurs around the same time as my period. I was given zovarax cream and that ease the pain slightly. I suffered on for more than 10 years of constant pain and itching. Eventually the doctor prescribed Acyclovir tablets which I take daily. I started taking these tablets about 2 years ago. The first year was great and I only had around 4-5 outbreaks in that year. The second year was better because I doubled up on my tablets (without telling my doctor) and I only had 2 outbreaks in that year.
Now this year I went to see a a doctor about another health issue and he asked if I ever thought about taking the contraceptive pill to help with shingles. I havent taking the pill since I was 23 and that is when the shingles reoccurred. I have been taken the pill now for over 3 months and stopped taking the Acyclovir tablets, sadly I had 1 outbreak but I have been really run down lately. I am going keep on and see how it goes. Anything is worth a try, even if I stay on the pill and take Acyclovir once/twice week it should all help.
Hope this helps people in the future.
Thanks
Zoe
well heres an update. My shingles is back and worse than ever. I have had three outbreaks in the last week. As soon as 1 cleared up i get another outbreak. It has now decided that it doesnt like my bum and legs and is attackin other areas. The pill did work 4 a month but as soon as i have the 7 day break that is when it attacks. So now ive decide to take my shingles tablets on my 7 day break. Fingers crossed this will help.
Ronna

United States

#117 Apr 4, 2011
BethS wrote:
Just spent a week in the hospital. Drs decided this is no ordinary shingles. Did a spinal tap and awaiting results from a lab in CA.
We are all holding our breath on your spinal tap...please keep us updated and know that others out there feel your pain. I am on my 13th set and hurt in all 13 places. But we just hope that the sun will come out some day and we will be able to enjoy it. Ronna
tammysalterego

San Diego, CA

#118 Apr 5, 2011
Renee wrote:
<quoted text>
Hi, my blood test showed Herpes 1,2 and shingles. I tested negative for lupus, RA, and HIV. The doc said it's hard to know if the lesion is HSV2 or shingles. She believes it's shingles b/c it is contained to the left side of my body. I was mistaken about the lymphatic tests. She was mainly checking for immune system diseases. My liver and kidneys were also good. I have been married to the same man for 10 years and haven't been unfaithful. It's strange b/c I've never had an outbreak on my genitals or my face. The outbreaks on my left buttock started about 5 years ago. I'm beginning to wonder about my husbands fidelity. This is such a mystery!!! I wonder if this is something new that mimicks herpes. Like I said before, I've been racking my brain, so I'm going to ask if you or anyone else has a fluttering feeling in their stomach sometimes, like a baby moving/kicking?
I have a similar case to yours. My doc also tested and found positive for simplex 1 and 2. I have never had a cold sore and been with the same man for 20 years. We both have been faithful and the doc says it can lay dormant for years. Also says maybe he is a carrier that is asymptomatic. Who knows? This is driving me insane knowing that I now have genetal herpes but I have never had an outbreak in my genetal area. This rash appears on my hip. My doc refuses to believe that it is shingles. Says you can only get shingles once and very rarely twice. I even got a second opinion who says the same thing.
I have noticed a fluttering but it is usually more in my chest area, but it is new...just since the shingle thing has started. wonder what that is?
tammysalterego

San Diego, CA

#119 Apr 5, 2011
Renee wrote:
<quoted text> I think you might be right about that on both accounts. I too, think it's triggered by hormones and a new strand of something. Are you able to take antibiotics? I never had a problem and now they make me sick. I know as we age we develope allergies to things. I don't know, I've thought sooooo many things! I wondered if it could be a new type of internal staff infection. I stopped taking my valtrex and I stopped eating sugar Sunday, so I'll let you know if cutting sugar out of my diet helps. I know caffiene is a stimulant and in the back of my mind, I know I should stop completely. I've cut back to one cup of coffee in the a.m., I glass of unsweetened tea at lunch, and sometimes one glass of tea at night. Keep in touch with me if you find something that works and I'll do the same.
My doctors think it is hormaonal too and fortunately for me I have been on the depo shot for about 1 1/2 years. I take the shot at a schedule so as to eliminate my periods...I am a vulva cancer patient and had to eliminate periods to get thru radiationa dn surgeries. I think you lasdies should look into eliminating your periods if the period triggers outbreaks. Do the research for yourself and then ask your doctor. My docs say there is no reason that my body needs to have periods at this time in my life (I am 45).
Ronna

United States

#120 Apr 5, 2011
Hi, find the period timing interesting with all of you. I am 55 but had my last ovary and uterus taken out when I was 28 so I have been on estrogen for 27 years. I take it every day so my hormones should be even all the time. I do wonder about the connection between shingles and deep infection or just surgery. With our last child we had to do a c-section which turned into a nightmare of 15 surgeries in 7 years due to infection. Anyone else had a bad infection?
tammysalterego wrote:
<quoted text>
My doctors think it is hormaonal too and fortunately for me I have been on the depo shot for about 1 1/2 years. I take the shot at a schedule so as to eliminate my periods...I am a vulva cancer patient and had to eliminate periods to get thru radiationa dn surgeries. I think you lasdies should look into eliminating your periods if the period triggers outbreaks. Do the research for yourself and then ask your doctor. My docs say there is no reason that my body needs to have periods at this time in my life (I am 45).
arleenmoo

Woodhaven, NY

#121 Apr 5, 2011
Went to Dr again today, and he thinks I sh try Lyrica for nerve pain. He said he was concerned about permanent nerve pain? Anyone have an opinion or comment, would love to hear. Thank everyone.

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