article: Doctors Report Super Scabies...

article: Doctors Report Super Scabies More Difficult to Treat...

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stressed out

Placerville, CA

#1 Jan 24, 2012
The head of dermatology at Johns Hopkins admits that scabies (and other parasites) have mutated and are harder to treat:

http://www.licesquad.com/index.php/88-doctors...
Anonymous

Houston, TX

#2 Jan 24, 2012
thank god atleast one doctor is understanding now and doing research, hopefully they will come up with a super medicine for these super scabies. i cant take this anymore. great article! thanks for the post!:)
Anonymous

Houston, TX

#3 Jan 24, 2012
going to the derm today! probably will be a waste of time but we will see.... ill keep you updated when i get back!
stressed out

Placerville, CA

#4 Jan 24, 2012
Let us know how your derm visit goes. I am seeing one on Friday.
Anonymous

Houston, TX

#5 Jan 25, 2012
ok well the visit actually went better than i thought. This doctor is the best i have ever met out of all doctors i have been to, he spent atleast 30 min. with me and wanted to know everything took the time to look at my pictures etc. he said my bites or whatever dont look like the typical scabies Burrows or what not and i said that we all started out at first with the symtoms waist thighs etc but after a while they just went everywhere. he said he as seen hundreds of cases of scabies and some are tougher to treat than others but he has got all those people healed, he put me on eurax and is going to look for a 6% sulfer treatment. he took blood work and me and my family go back monday. i have to get 2 biopsies done. just to rule out anything else. so we will see. i just dont understand how to use the eurax it says on the bottle apply 3 times daily? sound right to you? i dont think this guy will stop helping me and my family til we are healed.
Anonymous

Houston, TX

#6 Jan 25, 2012
let me know how ur visit goes to!
FRED

Denver, CO

#7 Jan 25, 2012
It's encouraging to hear he put you on sulfur,but I'm surprised he has to look for it since he's been down this road. A lot of people on this forum have used sulfur and some have been cured by it. My understanding is that precipitated sulfur works better(because the particles are smaller)than sublimed but I've also read that there is no difference. Most people on here use at least 10% and some recommend the "de la cruz" brand which is 10% sulfur in a propylene glycol base, I tried that and couldn't handle it for longer than 3 days.
I think the sulfur works good if you can get it to penetrate your skin instead of just sitting on top like a thicker lotion might do. I'm currently using a mixture of 2oz CCS foot creme with 2 oz of
oregano/clove/thyme oil and 2 oz of Humco sublimed sulfur so my mix is 33% sulfur but it hasn't caused me any skin problems yet and I'm on my 4th day, it has cause me to itch in a lot of places which is typical of killing whats underneath.

Also not too many people in the forum have done the Eurax and some say it doesn't work. However there is a post by "cured for life" later in the imidolcloprid thread where some expert doctors from the UCLA medical center prescribed Eurax mixed with 5% salicilyc acid. It's a post that outlines a regimen not often discussed here but worth reading.Maybe even print it and show it to your doctor.
Anonymous

Houston, TX

#8 Jan 25, 2012
FRED wrote:
It's encouraging to hear he put you on sulfur,but I'm surprised he has to look for it since he's been down this road. A lot of people on this forum have used sulfur and some have been cured by it. My understanding is that precipitated sulfur works better(because the particles are smaller)than sublimed but I've also read that there is no difference. Most people on here use at least 10% and some recommend the "de la cruz" brand which is 10% sulfur in a propylene glycol base, I tried that and couldn't handle it for longer than 3 days.
I think the sulfur works good if you can get it to penetrate your skin instead of just sitting on top like a thicker lotion might do. I'm currently using a mixture of 2oz CCS foot creme with 2 oz of
oregano/clove/thyme oil and 2 oz of Humco sublimed sulfur so my mix is 33% sulfur but it hasn't caused me any skin problems yet and I'm on my 4th day, it has cause me to itch in a lot of places which is typical of killing whats underneath.
Also not too many people in the forum have done the Eurax and some say it doesn't work. However there is a post by "cured for life" later in the imidolcloprid thread where some expert doctors from the UCLA medical center prescribed Eurax mixed with 5% salicilyc acid. It's a post that outlines a regimen not often discussed here but worth reading.Maybe even print it and show it to your doctor.
thanks Fred! yeah he hasnt given me sulfer yet he says hes going to look for some? so i go back monday for 2 biopsies i think he is thinking its something else with the scabies. but i dont know. what the hell else could it be?! i think its just scabies and honestly they dont care where they "burrow" just being in my skin is enough for them. i will tell him about that study though. he did agree that they were alot tougher to treat nowadays but he seemed very confident in getting me cured. i will keep yall updated.
stressed out

Placerville, CA

#9 Jan 25, 2012
I'm glad your appointment when ok today.

I am a little worried though, like Fred said, about the sulfer. I mean, all of us here are figuring out how to get it, so someone who supposedly treats with it all the time doesn't know where to get it?

As for Eurax, I think it works for some people, but in the literature it has a low efficacy rate around 70% or so. I think it helps with itching. You put it on and can't take a shower for 3 days or something like that. I couldn't handle that.

Try the Eurax though, it might work for you. My insurance won't cover it, and the out of pocket cost was $135 per tube, so I said "no thanks" to that.

I am happy your getting a biopsy though.

For the most part, I think this guy is trying to placate you for a while because he's not sure what's going on. But we'll see.
Anonymous

Houston, TX

#10 Jan 25, 2012
i know i was thinking the same thing when he said he had to order some sulfer, he asked if i had ever tried it and i said no i cant find any around, he said well we will do 6%. um ok! and the eurax your right i read about the low efficacy rate on it. but im being hopeful. im going to do it friday since im off on the weekends that way i dont have to stink at work. if this is another treatment to try even though i cant shower i dont care i want these things gone! i picked up the eurax last night costed me $50 crazy! my ins paid $48.00. i wonder what the biopsy will show? does it acutally show a mite? and will they take the biopsy from a bite? i know hes looking into more things though because he thinks these bites and what not dont fit into a typical scabies pattern but it shouldnt matter after 6 damn months of this crap.
stressed out

Placerville, CA

#11 Jan 25, 2012
What do your bites look like?

Mine vary. Lately I've been getting clusters or round shaped lesions that looks like the skin was just slightly scraped from the area, they call it an erosion, in med terms.

I also get the paper cuts and sliver burrows.

They should biopsy a bite. No telling what it will show. Probably not a mite, since they travel. Maybe mite feces, or dead mite debris. Actually with the scrapings and biopsy, it's like looking for a needle in a haystack. But I think it's a good thing to do though.
FRED

Denver, CO

#12 Jan 25, 2012
On the Imidocloprid thread "cured for life " wrote
"Okay guys, here's the treatment I received from UCLA Medical Center after fighting Scabies I got from a vacation to the Amazon Rain Forest last year. Like many of you I saw several doctors and tried all kinds of home remedies and gimmicks that didn't work. My infestation was primarily on my scalp with secondary sites on the soles of my feet, legs, back and chest. Finally I went to UCLA Medical Center and was examined by three specialists. The following treatment regime kicked ass!

Oral Albendazole 800 mg twice daily with meals for three days, topical Crotamiton with Salicylic Acid 5% twice daily for 7 days, topical Benzyl Benzoate 25% with Disulfiram every day for 7 days.

I am completely cured after suffering for one year. As a side note, the Stromectol/ivermectin and Permethrin helped me to manage the infestation but it did not cure. I also tried Advantix after reading posters from this forum but still no cure.

So, if you have been suffering with this horrible condition go see your doctor and demand he prescribe the above referenced treatment regime. Good luck."
FRED

Denver, CO

#13 Jan 25, 2012
I got my scabies from my dog who got it from investigating a foxes den. It took me a few months to realize she had it and kept reinfesting me. By that time the mites on me became immune to Ivermectin and permethrin. I've had this since last May , I gave my dog up in November after two months of trying to cure us both simultaneously. I thought it would be easy after that but they don't seem to want to let go. Right now i'm doing the sulfur, oil mix and 3x doses of ivermectin every 4th day. I will do the cured for life protocall as soon as all my stuff arrives. I might leave the house for that depending on how well the sulfur has beat them down by then.
Casey do you find little black specks at all?
casey

Houston, TX

#14 Jan 25, 2012
mine vary to, lately it has been small pin pricks or small bumps that itch for a few minutes. last thursday was a pin prick bite right by my belly button that turned into a size of a pencil eraser scab after so much itching and picking at it. i had rashes on both sides of my shoulders a few months ago that one took the pigment off my skin. besides that its now small itchy bumps with no visible hole or a small pin prick looking bite with visible small amount of blood. i do have scars on my legs now and arms because they would scab up and be bigger looking bites, but now not so much of that anymore. what i would like to know is what are the small small bumps that pop up randomly and itch for a little bit then go away a few hours later? i have had a ton of those lately! are those burrows?
FRED

Denver, CO

#15 Jan 25, 2012
When i get new bites they pop up for a while then go away. often times i see my bite come in 3's like they're testing the water. When i was getting good results from ivermectin before they became immune to it then after i did it i would have exit wounds where the debris would come out, so i had to look real close to figure out if it was a new bite. If something tiny was sticking out of the hole it was an exit wound.
Casey

United States

#16 Jan 25, 2012
Nope never see anything and I even bought a microscope! Nothing and I feel crawling in my female area it's crazy!!! I'm going nuts! We got from a friend who sat on our bed and had sores all over his arms he always said he didn't know what it was and he bled on our sheets so I yanked them off the bed and washed them. Weeks later we have scabies ! Jerk. And he said he started itching when his uncle brought home a nasty looking dog that would sleep by his window. He still admits it's gone and he never had it but we know otherwise. He said he took pinacillian and it went away. We have had this since september. And I have two kids. And my husband.
FRED

Denver, CO

#17 Jan 25, 2012
People should have the personal integrity to not infect other people with this scourge, he's an idiot. I lost my job and have had no income for the last 7 months because I didn't want to infect anyone. Sounds like you have the sarcoptic scabiei canis mite also, like me. I wrote a long email to the CDC and included as bunch of links for scientific studies saying that canine mange can infest people although the majority of info on the internet says no. They responded a month later with a bunch of cut and paste stuff from the Barney Rubble era. I'm thinking I should write the secratary of health now, Kathleen Sebilius and let her know what an inept response I received.

I just read on the "sulphur" thread someone is recommending an ointment for horses called NuStock
it's 73% sulpher, he says it cured him in a day.
How can you get sulfur to be an ointment at 73%.

I've spent so much money, thousands in money and millions in sanity, on this problem,I bought 2 tubes, a small price for freedom.

FRED

Denver, CO

#18 Jan 25, 2012
Also,
there's a poster on here "Catzillaa" that advocates taking a hot sea salt bath for an hour or more, I did a couple, If your taking showers then you wouldn't know. That would really pull a lot of stuff out of your skin. It would help you to realize what's in your skin when the tub drains..........
Anonymous

Houston, TX

#19 Jan 26, 2012
yes that guy was an idiot. im just so scared now i had no idea how hard this was to treat and im scared for my 1 year old boy and 3 year old boy. 73%? wow thats alot, wouldnt that hurt a human? i do take more showers than baths, i have taken a few baths and even got my magnifying glass out in the shower but still didnt see any black specks. my husband did about a month ago but other than that nothing. now call me crazy but tell me what you think this is. last night i was standing and felt the crawling down there so as usual i took clear packing tape and ripped it off the part and as usual nothing! then i felt something on my backside took the tape and ripped it off. put it under my microscope and saw somthing that looked kinda smashed and was translucent yellow under the light of it also was round in shape but looked smashed so wasnt clear as to what it was. do you think that could have been a mite? wasnt fibers and i had no clothes on!
FRED

Denver, CO

#20 Jan 26, 2012
I took a lot of baths when this started, soaking in everything you could imagine, people say soak in bleach or borax or arm and hammer, I did all that and a lot more, i even soaked in skunk odor remover because it has a lot of enzymes. In the end none of that worked . What it does is dry up your skin and torture it and that's the perfect environment for the mites. There is a thread on here "Progress", he was a really smart clinician , and he talks about sebum, your skin has sebacious glands and the oil in your skin is the sebum. The sebum is the conveyance for whatever your treating with. If you take Ivermectin then bathe a lot it doesn't work because you're washing it out of your skin. It's best not to bathe for a few days before you treat with anything. I know it sounds gross but I've gone a month without bathing while I was treating with some high powered permethrin, turned out they really didn't care about permethrin.

Your hand palms and feet soles don't have sebacious glands so they can be harder to treat.Your fingertips get infected from scratching an itchy spot.

The salt bath is a really good treatment for post scabies but I would only use it occasionally while your active, just if you can't handle the itching anymore.

I don't know about what your seeing under your microscope, my mites are little black specks and tiny cylinders, i think the tiny cylinders are the larva. i thought i was cured so many times but then the eggs hatch and it starts all over. That's why I'm treating for 1 month with high percent sulfur and 3x ivermectin and then doing the "cured for life" protocall.

One thing I believe is that if you have a active infestation then your environment has infectious mites in it, but if you are treating everyone in the house with something that works the mites will die off in your environment. There are people who go nuts just cleaning everything when the mites are crawling all over them.

I do sleep on a plastic air mattress in the kitchen, if you sleep in a bed you'll never get rid of them even with a mattress cover. I don't sit on any of my furniture except a wood chair.
I keep a certain amount of clothes in rotation and after washing (you have to turn your hot water heater all the way up)I keep my clothes in the freezer.

Yes this lifestyle sucks a** so bad I can't wait to be normal again. That's why I think if you want to get past this you have to treat intensively for a while.

Maybe get some oregano oil and massage it into the webs in between your fingers, extra strength Bengay works too because it is 10% menthol and that kills them so try rubbing that between the webs of your fingers or on some place you suspect.
You don't want to use bengay all over your body though it has a cumilative toxicity.

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