Am I reinfected?
moo569

Sarasota, FL

#1 Oct 1, 2012
I first got scabies symptoms about a month and a half ago. Severe itching mostly on my legs, a couple of stray bites elsewhere on my body. I did the first permethrin treatment on sept 2; washed EVERYTHING, vacuumed, and put everything that couldn't be washed into plastic baggies for a week. About a week later I started noticing bumps again, so I did treatment #2 and re-cleaned everything. 10 days after that I did a third treatment after finding more bumps. Its been 10 days since the third treatment and I have started getting new bumps and itching on my feet.

Could it be scabies? I am worried about doing a fourth permethrin treatment because my skin is already so damaged from the past 3 times. Is it possible to get reinfection symptoms as late as 10 days after a treatment? Or is it post scabies symptoms? I would like to hear other people's advice before destroying my skin with another round of permethrin

Since: Oct 12

Sarasota, FL

#2 Oct 1, 2012
another note: neither of my 2 roommates have been infested after all this time, despite close contact with them

Since: Aug 12

Philadelphia, PA

#4 Oct 2, 2012
Hi moo.

This scabies crap is really confusing and infuriating.

Since your roommates were not affected, I'm guessing that if somehow you still had scabies, it would be from treatment failure. But treating 3 times, for the average variety of mites, sounds like that should have been enough, unless you've returned to the place/person where you got them. Do you know how/where you got infected?

Anyway, technically, yes, bumps could show up 10 days after treatment. That would be eggs hatching and hatchlings running around. A doctor would say it is highly unlikely that you would be still be infected, but most doctors suck when it comes to scabies. Still, if I were you, I would sleep on it, and if you are no worse in the morning, don't treat again. The next day, same thing. Sleep on it, if you're no worse, or perhaps better, don't retreat.

I treated 3 times with perm too, plus took an oral medication twice, and have had some scares since the last time I treated (September 7th). But so far, nothing has escalated. Just last night I wanted to do another round of perm because, after only having 4 or 5 bumps on my butt left-- they popped up a couple weeks ago and made me think I was reinfected, but they have not spread and they do not even itch-- my thighs broke out. I suspected that it was just chafing from the tight jeans I had been walking around in all day, now that my skin is so much more sensitive/damaged from the immune reaction to the mites and the meds. So I slept on it. And today, my legs look fine. The red spots are gone. So I'm glad I didn't put that poison on myself again.

The research will say that we can continue getting bumps for a month after treatment. Makes it very hard to tell when it's just a post-treatment reaction and when we are reinfected. But if you're not itching everywhere, up at night, you did all the cleaning and bagging, and your roommates are fine, you are probably fine too-- as in, life kinda sucks because this happened, but you are probably not still infected.

Since: Oct 12

Sarasota, FL

#5 Oct 2, 2012
thanks for the reassurance; it makes me feel better I'm not the only one who has had to put up with this. The bumps have gotten worse so I'm going to a doctor first thing tomorrow to get a definitive diagnosis; if I'm reinfected I'm hoping one last round of perm or pills will do the trick.

Since: Aug 12

Philadelphia, PA

#6 Oct 2, 2012
Hi moo, good luck at the doctor tomorrow. I hope it is just a reaction to the permethrin and the mites dying off. That can really wreak havoc on our skin and make us think we're still infected when we're not.

Has your itching gotten worse all over, or you just have more bumps?

In my brief experience with this,(had symptoms about 2 weeks before I was diagnosed on August 13th), now that the doctors have said I'm "cured" (no more live mites, eggs, from a dermatologist Sept 5th and a GP Sept 6th), the biggest difference I've noticed is that I'm not crazy itchy all night or during showers, even if I still have some bumps. When I definitely had live mites, nighttime and showers were the worst.

Good luck tomorrow!

Since: Oct 12

Sarasota, FL

#7 Oct 2, 2012
The itching is worse all over, I have rashes and what appear to be new burrows which makes me pretty sure its a reinfestation, and the itching is getting progressively worse; I just took a shower and it definitely provoked the bites.

I just really hope one last treatment will cure it, its really starting to affect my emotional health too.

Since: Aug 12

Philadelphia, PA

#8 Oct 2, 2012
Aww, I'm sorry.:( I don't know why some of us are unlucky and it takes more than 1 or 2 treatments to get rid of it.

When I took an oral medication, Ivermectin, the brand name I believe is Stromectol, and then did another perm, I think that finally killed everything. Maybe you could ask your doctor for the oral medication to use along with another cream. I mean, the creams used once, perfectly correctly, have I think a 92% cure rate, and the pill, in the 80s. Some unlucky people have to be in that group of medication failure. But 3 times in a row? Are you sure you no longer have contact with the person/place where you contracted scabies? Or do you not know where you got it?

And you are not alone with it affecting your mental health. I was seeing a psychiatrist for depression and anxiety before this happened, and now their team is very concerned and wants me to do a day treatment program! I know I will be back to be normal (for me), when I can be 100% sure that i am cured-- I can deal with some itching and rashes, I just need to know that there is no longer stuff living under my skin and that I am no longer contagious.

Well, I hope that if your doctor agrees that you are experiencing reinfestation, this last treatment knocks these ahole mites out of the park!!

Let us know what s/he says.

Since: Oct 12

Sarasota, FL

#9 Oct 4, 2012
The doctor confirmed that it was in fact a reinfestation. I was prescribed lindane and an antihistamine for the itching. I just applied the lindane and am cleaning everything. I managed to convince the office of residence life at my school to change my mattress tomorrow and deep clean the carpeting, I'm hoping this works!!

Since: Aug 12

Philadelphia, PA

#10 Oct 6, 2012
moo569 wrote:
The doctor confirmed that it was in fact a reinfestation. I was prescribed lindane and an antihistamine for the itching. I just applied the lindane and am cleaning everything. I managed to convince the office of residence life at my school to change my mattress tomorrow and deep clean the carpeting, I'm hoping this works!!
Aww, I'm so sorry :( Good move on requesting the new mattress and deep cleaning though. I really hope this last treatment did the trick for you! Let us know how you progress.
Fight them hard

Palatine, IL

#11 Oct 7, 2012
Scabies can also live on your scalp or head. So you need to treat it as well.

http://www.topix.com/forum/health/scabies/TK9...

Since: Aug 12

Philadelphia, PA

#12 Oct 11, 2012
Moo, how are you feeling now?

Oh, and I did not treat my scalp with any of the prescriptions, other than with perm around my hairline and my chin and behind my ears the last 2 times I used it. On my head/hair I just used apple cider vinegar a couple times, tar shampoo a couple times, and tea tree shampoo often, none of which I think were mite killers so I think it was a waste of time. I think they just irritated my scalp and did more harm than good, in my case.

Not treating face and scalp unless you have rashes there is some of the only advice I'm glad I took from the doctors. If I had rashes on my head, not just itching, I would have used the perm on it. I was tempted to anyway, but my skin was already so sensitive pre-scabies so I'm glad I did not.

Since: Oct 12

Sarasota, FL

#13 Oct 13, 2012
9 days after treatment I'm doing okay, about 2 bumps have showed up but they disappeared quickly and were nowhere near as itchy as if they had been actual scabies bites. I've had really bad itchiness and skin sensitivity all over without bumps or signs of bites, I'm guessing thats just the effects of the lindane cream. I'm going to wait a couple days to go to the doctor for a follow up to make sure the infestation is gone for sure but so far so good!

Since: Aug 12

Philadelphia, PA

#14 Oct 13, 2012
moo569 wrote:
9 days after treatment I'm doing okay, about 2 bumps have showed up but they disappeared quickly and were nowhere near as itchy as if they had been actual scabies bites. I've had really bad itchiness and skin sensitivity all over without bumps or signs of bites, I'm guessing thats just the effects of the lindane cream. I'm going to wait a couple days to go to the doctor for a follow up to make sure the infestation is gone for sure but so far so good!
Glad to hear most of the bumps are gone, and it does sound like post-treatment itchiness. I itched all over the place after the mites were gone, even places where I never ever had a rash. Sounds like you beat this, I'm happy for you!
micoo

New Denver, Canada

#15 Jan 30, 2014
We have been fighting scabies for 3.5 months now. What has helped us the most is hot baths twice a day. Am bath with 1.5 cups bleach, 1 cup peroxide, 1 cup borax and pm bath 1.5. cups bleach, 1 cup peroxide and 2 cups Epsom Salts. Soak at least 1/2 hour, longer is better. Use a bath brush and brush your body all over several times.
We believe the brushing removes the new mites that have come to the surface after hatching. After a week or so the itching starts to subside. Contine baths with treatment of P 5% creamn and did some spot treating on new breakouts each day or when a new rash started. We did 3 weeks of baths and and treatments 7 days apart because they just kept continuing on .At 3 weeks all itching has stopped we now are continuing with baths just once a day with no bleach, just peroxide and Epsom Salts, still brushing and soaking. Itching is gone, all rashes are gone. We will do an oral dose (7 days after using P 5% cream) of Ivermectin even though signs are gone. I believe we were being reinfected by laundry. Can't do enough with cleaning and vacumning. Spray and wipe to disinfect after each load in and out. Use gloves for laundry, different for wash and dryer. I had them in my hair and on my face. I used the P 5% cream on my head and some on spots on my face. We change sheets and matress pad everyday along with our clothes. Don't re-wear anything. It is lots of laundry. Pillows and blanket go in the freezer for 12 hrs. Also coats, hats boots, Spray and wipe anything you have touched. Good luck, hang in there, fight the good fight!
Midwestsufferer

Florissant, MO

#16 Jan 30, 2014
You can use the microwave for scarfs, hats and gloves, as long as it doesn't have any metal on it.

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