I really think it is at Epidemic if n...
Tired

Hamilton, Canada

#21 Mar 20, 2013
WeAllItch wrote:
Misery, I totally agree on all accounts!
I say ***k that, report it to the health department, complain to the hospital/doctor office director. Get your friends that have probably been infected to do the same.
Report it to the news etc etc.
One big reason that people do not report this problem to the news is because of their fear of losing their job. With the difficulty of the economic situation going on these days, and the problem of finding a good job to support families, people remain hush hush about this epidemic. If I were to lose my job because I went to the news and complained, I would not be able to support my family. It is not that easy. There may be people out there who will talk to the media, but those are few. Once you are on the news, you will be stigmatized.
WeAllItch

Portland, OR

#22 Mar 22, 2013
Tired,

I totally agree with the fear of losing a job, it's happened to me. That is really why I suggest reporting it to your health department; anonymously.

Call them up, make a new email account and send them your concerns. You could also report to the news anonymously.

We shouldn't be ashamed of plague of parasites, we're trying to cure ourselves and need to also get everyone else around us that doesn't know they have it cured.

--I'm personally through being majorly depressed over this; I've had it for over five years(or been cured and reinfected by people that refused to believe they had it when I told them).
I've put my love life on hold, disconnected from society and even had major suicidal depression because of friggen microscopic bugs!

We ALL need to bond together to make sure everyone gets treated!
WeAllItch

Portland, OR

#23 Mar 27, 2013
Status update on talking to my local Health Department.

I've now talked on the phone to the Health Officer (I guess the dude in charge of stuff like this and have also emailed him quite a few times.

He is actually refusing to believe that there could be either A) Misdiagnosed people out there that doctors have told have something else or B) That there are people that just have never gone to see a doctor.

I think I'm slowly bringing him around though.

I've actually pointed him to this forum as well as to just doing a google news search for "scabies" .

--Again people, I can't say this enough; PLEASE please notify your local health officials!

Since: Dec 12

Willow Springs, MO

#24 Mar 28, 2013
WeAllItch wrote:
Status update on talking to my local Health Department.
I've now talked on the phone to the Health Officer (I guess the dude in charge of stuff like this and have also emailed him quite a few times.
He is actually refusing to believe that there could be either A) Misdiagnosed people out there that doctors have told have something else or B) That there are people that just have never gone to see a doctor.
I think I'm slowly bringing him around though.
I've actually pointed him to this forum as well as to just doing a google news search for "scabies" .
--Again people, I can't say this enough; PLEASE please notify your local health officials!
Keep on him, don't give up. I'm glad to see someone trying to contact health officials about this. I've been dealing with this for five months now. I called the local health unit here in our town about how I could be getting this back. I talked to a nurse. I told her how this started with me.Five years ago, I got it from a cat that we had that had mange. We don't have animals any more but I keep getting it back again. She couldn't tell me much. She just said I should see a derm and have skin scrapings done to see if it was a mite. These people don't know ANYTHING about mites, and there's a lot of people suffering because of it.
WeAllItch

Portland, OR

#25 Mar 28, 2013
ItchyKay wrote:
<quoted text>
Keep on him, don't give up. I'm glad to see someone trying to contact health officials about this. I've been dealing with this for five months now. I called the local health unit here in our town about how I could be getting this back. I talked to a nurse. I told her how this started with me.Five years ago, I got it from a cat that we had that had mange. We don't have animals any more but I keep getting it back again. She couldn't tell me much. She just said I should see a derm and have skin scrapings done to see if it was a mite. These people don't know ANYTHING about mites, and there's a lot of people suffering because of it.
Itchy,

You said 5months and then 5years, which one is it?(Either is horrible! I've been dealing with it for more along the the lines of 5+ years, probably been cured a few times and just gotten it again from people around me).

And you're right, they don't know anything about mites. The Health Officer I'm talking to is still fighting me. He has said he will keep an eye on it but, that doesn't do much good when doctors don't know what they are looking for and end up misdiagnosing people.

Going to a derm to get a skin scraping is a good idea.(All though, remember that skin scrapings are not a good judge of whether you have a mite. I've had a doctor tell me this to my face!)

As for the nurse at the local health unit, I'd go to the derm and get diagnosed then call the nurse back and be like, "I want to report this to you" provide names of everyone you could have potentially given it to and ask them to contact everyone on your behalf without giving your name out to them.

--this is what I'm doing now. My local county health officer refuses to contact the population at large so I just asked him to notify people that I'm pretty sure I gave mites to.

--I'm doing this because I've tried telling people myself before and they didn't believe me. Hopefully they would believe something from the county.
WeAllItch

Portland, OR

#26 Apr 9, 2013
*screams*

WTF?!??!?!?

Straight from my local county health officer:

"The health department is unable to reach out to folks you may have infected for scabies. I checked in to this and it is not within their legal authority. I have not disregarded this. I am reading your emails. I hope you are reading mine. "

Not with in their legal authority? WTF!?!?! You've got to be kidding me!

So this is my response to him:

""not within their legal authority"? I'm floored!

They can reach out to people that have potentially been infected with gonorrhea, syphilis , HIV, Herpes, TB, Smallpox and TONS of other illnesses but they can't reach out to people that have potentially been infected by scabies?

That makes totally no sense to me.

I'd like to talk to the head of the county health department. What are the official ways I should go about getting in contact with her?(FYI: I'll steam roll my way to her desk if I have to.)

--And yes, I am reading your emails which is why I was so frustrated that you totally ignored my question about notifying people the first time. I have a very good memory and also typically scroll back through all emails in a chain before answering the next email. "

---

I have a feeling I should get out my hardhat because I'm sure I'm in for a bumpy ride as I run over people at the county health department.
Vicar of Dibley

Croydon, UK

#27 Apr 9, 2013
I totally agree with you. I have no real idea of how I got mine - there certainly has not been prolonged skin-to-skin contact with anyone. The only place I can think of was a health spa where I had a massage (in undies) and got on the same table with the same unchanged coverings as someone had left a few minutes before. I saw a doctor who told me I had dermatitis - perhaps I should have offered to give her a hug and see if that changed the diagnosis. It is driving me nuts and the washing machine will not hold out much longer either. My husband does not seem to be infested (though I noticed a couple of little spots on him yesterday and insisted he treat them with tea-tree oil). I wish people would not assume that you do not have good hygiene as I have always showered everyday and have never worn clothes more than once. And I wish the medical profession would get up to date with the reality of these awful things and just how infectious they are - certainly in the UK. The awful stigma attached to them does not help as people do make erroneous assumptions. It would be great if there was a vaccine available but I don't suppose the drug companies are interested.
WeAllItch

Portland, OR

#28 Apr 11, 2013
Vicar,
*(Warning this is a long msg but I tried to format it into paragraphs)

--I think you are right about where you got it from. Also, you might want to look into the laws around health spas/massage where you live. I know most of the US says that sheets have to be changed between each client. I'm not sure the the UK's are though.

--As for medical profession getting up to date on with the reality of scabies; sadly, I'm finding out that there is some major block is keeping anyone from looking into it.

--I've been communicating with the local Health Officer in the County Health Department and been bashing heads with him. He has outright ignored many of my questions and keeps repeating the same things. I just kept at him and he finally answered some of them. We ended up getting to the point where he had called local hospitals, homeless shelters etc to ask if there were more outbreaks then normal. The report back was "No, there are not"
--I kept telling him over and over again that I thought there were a ton of people that get misdiagnosed and he just kept talking in circles saying he couldn't do any more outreach without proof. I then pointed him to this site and several news articles about outbreaks in offices/schools etc around the US and he totally ignored that.
--I also asked him to do some research around there being more diagnoses of stuff like "general dermatitis" and he ignored that.
--He kept on pressing me to get treatment; which, I totally understand and want to. However, I kept pressing back with that I know people around me have it and they don't believe me when I tell them. He of course ignored that and again told me to get treated, told me about the research he has already done and ignored most of my email.
-I finally gave up on asking him to do more research and asked him it was possible to have the Health Department contact people that I'm sure I've infected and he ignored my question. Instead, he again repeated that I should get treated and repeated what he had already done research wise.
--So, I emailed him back and dropped all pleasantries and told him to stop ignoring most of my email and asked him again.(It was a 10word email).
*****Drum roll
His response was, "It is illegal for the health department to notify people".
---I responded with (in short), "WTF!?!??! That makes no sense!!!!!! What about all the other less contagious stuff that you CAN notify?!?!" and asked to be put in contact with the head of the local health department
****He emailed me back saying to contact 1 person that had stonewalled me before him and someone else that I need to research.
WeAllItch

Portland, OR

#29 Apr 11, 2013
Er duh at self, I'm not used to this site and forgot you can actually use Enter to spaces. Sorry.
umathr

New Market, MD

#30 Apr 12, 2013
If you are at work, aloe gel is something you can apply without much trouble, I think you will find aloe helpful. Also sulfur soap applied using a soft bristle bath brush works wonders. Aloe and sulfur soap is curing my scabies.
VSS

Hollywood, FL

#31 Apr 12, 2013
umathr wrote:
If you are at work, aloe gel is something you can apply without much trouble, I think you will find aloe helpful. Also sulfur soap applied using a soft bristle bath brush works wonders. Aloe and sulfur soap is curing my scabies.
Hi Umathr, wad up with you? Long time no bug you. Have you ever tried ivermectin? I'm just saying....

You've been working on this sulphur cure for over three years now... lol...

I like your aloe vera gel, though. Really good for your skin.

(P.S. I like the way you put Umathr's posts in between all the other troll posts, to make it seem like you have an old timer on here.)
VSS

Hollywood, FL

#32 Apr 12, 2013
WeAllItch wrote:
Vicar,
*(Warning this is a long msg but I tried to format it into paragraphs)
--I think you are right about where you got it from. Also, you might want to look into the laws around health spas/massage where you live. I know most of the US says that sheets have to be changed between each client. I'm not sure the the UK's are though.
--As for medical profession getting up to date on with the reality of scabies; sadly, I'm finding out that there is some major block is keeping anyone from looking into it.
--I've been communicating with the local Health Officer in the County Health Department and been bashing heads with him. He has outright ignored many of my questions and keeps repeating the same things. I just kept at him and he finally answered some of them. We ended up getting to the point where he had called local hospitals, homeless shelters etc to ask if there were more outbreaks then normal. The report back was "No, there are not"
--I kept telling him over and over again that I thought there were a ton of people that get misdiagnosed and he just kept talking in circles saying he couldn't do any more outreach without proof. I then pointed him to this site and several news articles about outbreaks in offices/schools etc around the US and he totally ignored that.
--I also asked him to do some research around there being more diagnoses of stuff like "general dermatitis" and he ignored that.
--He kept on pressing me to get treatment; which, I totally understand and want to. However, I kept pressing back with that I know people around me have it and they don't believe me when I tell them. He of course ignored that and again told me to get treated, told me about the research he has already done and ignored most of my email.
-I finally gave up on asking him to do more research and asked him it was possible to have the Health Department contact people that I'm sure I've infected and he ignored my question. Instead, he again repeated that I should get treated and repeated what he had already done research wise.
--So, I emailed him back and dropped all pleasantries and told him to stop ignoring most of my email and asked him again.(It was a 10word email).
*****Drum roll
His response was, "It is illegal for the health department to notify people".
---I responded with (in short), "WTF!?!??! That makes no sense!!!!!! What about all the other less contagious stuff that you CAN notify?!?!" and asked to be put in contact with the head of the local health department
****He emailed me back saying to contact 1 person that had stonewalled me before him and someone else that I need to research.
Your rant on your "contacts" with the Health Department seem a bit obsessive and borderline crazy. It's obvious that you are banging your head against a stone wall at the "Health Department."
WeAllItch

Portland, OR

#33 Apr 18, 2013
VSS,

---You're right in that I'm banging my head against a stone wall by talking to my local health department. However, it took me three emails to get from an assistant to the local health officer and then I exchanged a total of maybe five emails with him. He just tossed be back to the assistant that directed me to him and my response was in short; "I'm done with you people. I will find a way around you to the department director and release my email conversations with all of you to the media and general public at large"

--I consider what I have done with them as being persistent. I also consider it being civil and it has also given them an opportunity to help fix what is obviously a major issue. Sadly, since they decided to stonewall me, I'm now going to have to use them as base to work from while I seek other avenues to get some action taken for the health of myself and the general public at large.

--Stay tuned for a blog page that contains all of said emails.(I need to teach myself some about bogging and figure out a good way to present the emails).
healed

United States

#34 Apr 28, 2013
No one cares! If they don't have it they look up the outdated info on web md n think UR wrong. Naturally. But sadly, money talks. If derms cared more about their patient's health and a tiny bit less about their lifestyles, they would complain to the pharmacuetical companies and inform them that many strains are now resistent to permeth n iver. If the prescriptions slowed down the pharmacuetical companies would have an incentive to research and find new and effective treatments. So I blame the doctors. They aren't listening bc they don't care. They should know THAT many people can't be delusional...but we and our children are suffering immensly. God help us. Only You can.
WeAllItch

Portland, OR

#35 Oct 22, 2013
It's been a long time since I've posted on here. I totally ran into a dead end with my local county health department when the health officer threw me back to his assistant.

I then shoved the whole issue of scabies back into the deep dark place in my brain where it got to fuck up my life again. Dealing with this shit has actually driven me to the point where I wrapped a rope around my neck while laying on the floor.. and tugged on it till blood wasn't getting to my brain.

I finally broke out of the dark spot last week and emailed some counselors for emotion help while I try to reach out to more people. I sadly haven't heard back from them. I've also emailed Dan Savage because he has so many contacts with people in the news and health fields and I thought something like this would be right up his alley. I also haven't heard back from him.

I just now emailed one of the several local news papers in my city.. cross your fingers and hope they actually take me seriously.
FRED

Denver, CO

#36 Oct 23, 2013
WeAllItch wrote:
It's been a long time since I've posted on here. I totally ran into a dead end with my local county health department when the health officer threw me back to his assistant.
I then shoved the whole issue of scabies back into the deep dark place in my brain where it got to fuck up my life again. Dealing with this shit has actually driven me to the point where I wrapped a rope around my neck while laying on the floor.. and tugged on it till blood wasn't getting to my brain.
I finally broke out of the dark spot last week and emailed some counselors for emotion help while I try to reach out to more people. I sadly haven't heard back from them. I've also emailed Dan Savage because he has so many contacts with people in the news and health fields and I thought something like this would be right up his alley. I also haven't heard back from him.
I just now emailed one of the several local news papers in my city.. cross your fingers and hope they actually take me seriously.
You may have a scabies infection or you may have something that gives the same symptoms. What happens to a lot of people is that the bacterial infections that mite infections pass to people also have very similar symptoms to scabies. A generic label for the infections that mites pass to people could be called "lyme disease" . You can find a lot of info here. There is an infection called bartonella that mites, lice, fleas and cats pass that will give scabies symptoms too.

http://www.topix.com/forum/health/scabies/TP8...
WeAllItch

Portland, OR

#37 Oct 23, 2013
Heya Fred,

Thanks for the info but, I'm about 99% sure it's scabies due to the fact that I've given it to a few people(confirmed by them). I also started itching soon after being in a place that I'm 100% is infested with them.
anon

Harrison, TN

#38 Oct 27, 2013
WeAllItch wrote:
Heya Fred,
Thanks for the info but, I'm about 99% sure it's scabies due to the fact that I've given it to a few people(confirmed by them). I also started itching soon after being in a place that I'm 100% is infested with them.
Hi weallitch. My health dept refused treatment. Said it was not scabies. Next day Borrowed money went to dr in box in another state. One look at my bumps and He diagnosed scabies. I worked in home health care. Im sure ive spread this to many elderly and sick people without knowing. I marched back into to health dept and said " you let me go back to possibly infect sick old people blah blah" i had the drs papers...Please is there some way we can communicate privately? Your situation sounds so similar to mine.
WeAllItch

Portland, OR

#39 Oct 29, 2013
Heya Anon, ugh! I'm sorry to hear that the health dept refused treatment; it doesn't surprise me though.

All of the people you care for need to be notified that they could have been exposed.(This is both to make sure you don't get it again and to make sure they get checked out and treated).
--I see two ways of doing this:

1) Notifying your boss so they can notify everyone you work with.---This runs the risk of you losing a job(illegally) and having to deal with a lawsuit for the wrongful firing.)

2) Sending in an anonymous email(from email addy that is not your normal account) to your boss saying that you are an employee(hopefully you are not the only one) and notify them that way so the company can just notify all patients.
--Btw, theres a damn good chance other employees of your company have scabies as well and have spread it to other clients.

As for my personal contact info: trash mail catcher at gmail (not my standard email addy but, I don't want that on here)
anon wrote:
<quoted text>
Hi weallitch. My health dept refused treatment. Said it was not scabies. Next day Borrowed money went to dr in box in another state. One look at my bumps and He diagnosed scabies. I worked in home health care. Im sure ive spread this to many elderly and sick people without knowing. I marched back into to health dept and said " you let me go back to possibly infect sick old people blah blah" i had the drs papers...Please is there some way we can communicate privately? Your situation sounds so similar to mine.
WeAllItch

Portland, OR

#40 Oct 29, 2013
UGH! The local paper hasn't responded to me so I just sent them this email:

-----
Seriously no response?

Did anyone even bother do to a google news search on scabies when they got my email?

How about looking at http://www.topix.com/forum/health/scabies which is a forum where thousands of people are suffering and looking for help?

I know politics gets the most readers and hence the most ad revenue but come on! Public health is even MORE important!

----------
WeAllItch wrote:
It's been a long time since I've posted on here. I totally ran into a dead end with my local county health department when the health officer threw me back to his assistant.
I then shoved the whole issue of scabies back into the deep dark place in my brain where it got to fuck up my life again. Dealing with this shit has actually driven me to the point where I wrapped a rope around my neck while laying on the floor.. and tugged on it till blood wasn't getting to my brain.
I finally broke out of the dark spot last week and emailed some counselors for emotion help while I try to reach out to more people. I sadly haven't heard back from them. I've also emailed Dan Savage because he has so many contacts with people in the news and health fields and I thought something like this would be right up his alley. I also haven't heard back from him.
I just now emailed one of the several local news papers in my city.. cross your fingers and hope they actually take me seriously.

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