I really think it is at Epidemic if not Pandemic levels

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WeAllItch

Portland, OR

#1 Feb 27, 2013
Hey Folks,
My reasoning that Scabies has hit Epidemic/Pandemic levels is this: Scabies is NOT an STD, it is extremely easy to contract. You can get it by sitting on the chair as someone that has it, you can get it by shaking hands, by hugging someone, even sitting on a toilet seat.
-- Think about it, scabies like to live in protected spots of our bodies, and really love the skin between our fingers because of that. So, anything you touch can become infected and then the next person that touches said thing can catch it.
IF you have scabies you need to notify your local health department and tell them that you think it is an epidemic! They might just try to tell you to get treated and not want to talk to you but DONT let them do that!
--Health departments need to start keeping track of outbreaks and notifying/educating the public in general about scabies!
**If you're worried about it being traced back to you, give a fake name when you call or email them from an email address you set up just for that purpose.(IT's what I'm doing)
To really stop scabies EVERYONE needs to be treated, this means you(A) everyone(B) that you've been in contact with, everyone(B) that has touched something you've been in contact with, everyone(C) that has been in contact with people/things from (B), everyone(D) that has been in contact with people/things from (C) and so on.
IF this doesn't happen people that treat themselves will just get it again.
------
My Story:
Like all of you here, I have scabies and like a lot of you, I've tried curing them without success. I've had them for a few years, tried treating multiple times and haven't been able to get rid of them. Either that or, I've been immediately reinfected by people around me.
I myself have a ton of shame around the fact that I've had it so long and not been able to get rid of it. I also have a ton of shame knowing that I've infected friends/family and random people around me even though I've tried to minimize my contact with people. I've massively cut down on my social life and spent the vast majority of the last few years in hiding. I just told an amazing man today that I can't have a relationship with him for 'personal reasons' because of these microscopic vampires.
Hell, I've been suicidal over it!!!
I'm quite frankly sick and tired of shaming myself over this and have decided to stop letting these pests run my life.
I've told friends, family and even written notes to clients(I work in private houses) saying whats up, the signs etc and out right had people say they didn't think they had it even though they obviously did.(IE: Animals CAN get it! Two clients had dogs that were itching like crazy, put on medication and the clients didn't believe me when I told them, even though I gave them links to info online from trusted sources).
Because of this I finally decided to contact my local health department and am going to force them to do something about it.
You should also!

Since: Jan 13

Brooklyn, NY

#2 Feb 27, 2013
WeAllItch,
I would be surprised if you can report this to the local Health Department. I think it will only take the word of doctor/clinic/hospital--someon e licensed to diagnose.
Please report back on the outcome of your effort.
I will agree that scabies--or whatever we are suffering from--is advancing throughout the developed world.
Gene-ette
Calling High Power s

Auburn, NY

#3 Feb 27, 2013
Some people seem immune and more study as to why should be done. Maybe it's something in our blood make up that makes it worse for some then others.

I feel I have only survived to date because of Permethryn and Ivermectin.

My family cannot get treatment unless I can get a real diagnosis. to date, only a few physician assistants and one resident md really showed any effort to try to prove scabies.

Roundworm can have similar symptoms and is often over looked.

Don't give up because it will only add to the mystery.

Health departments will examine your workplace and home if requested. Most times they won't check for much unless you have official diagnosis with tests proving it.

It's also hard to prove if you've just become re-infected or that it was never really fully cured before. Dormant or at such a small level that it took a long time for external symptoms to appear.

I thought I was cured twice now and feel I was close 3 other times. Now in a stage where I am forced to try feed stores or online to get more medicine. Nothing to date I have found can cure any area of my body but my method does seem to make it spread slower.
WeAllItch

Portland, OR

#4 Feb 27, 2013
gene-ette wrote:
WeAllItch,
I would be surprised if you can report this to the local Health Department. I think it will only take the word of doctor/clinic/hospital--someon e licensed to diagnose.
Please report back on the outcome of your effort.
I will agree that scabies--or whatever we are suffering from--is advancing throughout the developed world.
Gene-ette
gene-ette,

The key is that if enough people report it to the health department they HAVE to start listening to us. I've been misdiagnosed by a doctor and had another one not believe me but prescribe me permethrin anyway so going the doctor route is a no go.
WeAllItch

Portland, OR

#5 Feb 27, 2013
Calling High Power s wrote:
Some people seem immune and more study as to why should be done. Maybe it's something in our blood make up that makes it worse for some then others.
I feel I have only survived to date because of Permethryn and Ivermectin.
My family cannot get treatment unless I can get a real diagnosis. to date, only a few physician assistants and one resident md really showed any effort to try to prove scabies.
Roundworm can have similar symptoms and is often over looked.
Don't give up because it will only add to the mystery.
Health departments will examine your workplace and home if requested. Most times they won't check for much unless you have official diagnosis with tests proving it.
It's also hard to prove if you've just become re-infected or that it was never really fully cured before. Dormant or at such a small level that it took a long time for external symptoms to appear.
I thought I was cured twice now and feel I was close 3 other times. Now in a stage where I am forced to try feed stores or online to get more medicine. Nothing to date I have found can cure any area of my body but my method does seem to make it spread slower.
You're right, more studies need to be done about immunity etc; however most doctors don't even want to bother taking the time to properly diagnose what is causing the itching. They just want to throw a cream (Typically they will just treat the symptoms and get you out of their office ASAP. This really goes for the vast majority of stuff we go to the doctor for. I've lost track of how many times a doctor has been said *Technical Jargon*= Translation: I have no clue what's wrong, take this and you'll feel better".)

So again, we need to PUSH back on the doctors and the health departments to do some outreach. We shouldn't have to suffer!

Btw, I know it's scabies, not roundworm etc based on the fact that I'm 100% sure I know where I got it from.

Again, I say notify your health department, force your doctor to notify them. Hell, I'm thinking of bombarding local news stations with it.
WeAllItch

Portland, OR

#6 Mar 15, 2013
I'm just bumping this one up because I'm horrified that no one is responding to it or taking it seriously.

It sucks having scabies but curing ourselves won't keep you scabies free because we've probably infected other people; even if we try to isolate etc.

Think of this people:

Scabies like living on your on the skin between your fingers. You can hold on to something, rub some scabies off on it and then have someone else touch it and they can get it! If your clothes are infected and you sit on a chair for awhile, the scabies can fall off and then the next person sitting on the chair can get it.

I actually decided to so some math around potential infections the other day and came up with some scary numbers.

Potential Scabies infections per day if there is one untreated person infecting others

Infections from person #1 (Us that know we have it)
(Group A)
Low Mid High
5 50 100

People infected from group A (Group B)
Low Mid High
25 2,500 10,000

People infected from group B(Group C)
Low Mid High
625 6,250,000 100,000,000

Again, I say it is an epidemic! Do some searching for outbreaks and you can find them happening everywhere!

Contact your local health department and the CDC and force them to do something about this and STOP giving into the shame of having a parasite that you can't get rid of on your own.

--You might have to fight with the Health department and the CDC to get them to listen to you but it is worth it! I have a meeting later today with my local health officer to discuss scabies outbreaks in town as well as elsewhere.

If you need help finding out how to contact your local health department (A manager, not a gatekeeper), let me know and I'll be more then happy to help.
WeAllItch

Portland, OR

#7 Mar 15, 2013
And btw, that chart of potential infections is only extended out 3 groups of people. It actually could go way further then that.

Example:

Group A (from you)
Group B
Group C
Group D
Group E
Group F

...all this in one day!!!! And it can go on, I shudder at the numbers.

Since: Feb 13

Royal Oak, MI

#8 Mar 15, 2013
Hi. I wanted to comment that yesterday, I discovered that my boss (I work in an office) has this lovely bug, too. I've noticed him itching for about a month now, and wanted somehow to mention to him that maybe his itching wasn't natural; but how do you tell your boss? Anyway, he was in his office and suddenly hollered, "Hey! Something just bit me!" I almos fainted. I went into his office, asked him where did something bite him. He showed me his forearm, and, guess what? It was mighty familiar from what I've been going through for more than seven months now. I said me should make an appointment with his dermatologist, and he said, "Have you had this itch, too?" All I could say was, yes, I have, but I think I'm better now. And I left it at that. I don't think he's taking it seriously, though. I don't know if he's made an appointment yet. He's a proscrastinator big time. How can I tell him what's going on without possibly losing my job? I can't get that personal, and I'm not even sure where he got it, or where I got it, or whatever...I'm not really all that young anymore, and I can't afford to lose my job. He might have been the one to give it to me originally by sharing computers, or maybe not. Who knows how we get this lousy thing anyway? Or how the person who gave it to you got it originally? So, how can I tell the health department about this rotten situation? Got any suggestions??

Since: Feb 13

Royal Oak, MI

#9 Mar 15, 2013
Typo alert: I mean, I said that "HE" should make an appointment with his dermatologist, not "ME" make an appointment! I'm not going to make an appointment for him, unless he asks me!
WeAllItch

Portland, OR

#10 Mar 15, 2013
*thinks*

After just reading/watching this story about a Chase Bank office having an outbreak:

http://www.firstcoastnews.com/news/article/26...

I could totally see your boss getting it or giving it to you.

I think the real answer again is complinging to your local health department/cdc. The more people that actually report this the better!

So that being said if you want to take on notifying people yourself:

If you work for a big company and have an HR department, write an anonymous letter(printed and drop it in an HR person's mailbox) expressing your concerns without mentioning names.

You could also see if your doctor would be willing to write a letter to your boss that doesn't identify you personally.(Just have it say "An employee at this company has expressed concerns").

If you work for a smaller company, I'm not sure how to go about it.

Whatever you do is going to be an uphill battle!
I just got off the phone with my local county Health Officer; he had actually contacted hospitals etc in the area asking if there was an increase in patients and they said there wasn't. So, he totally shot me down asking for more proof that there are undiagnosed or misdiagnosed cases. The ONLY way to get authorizes/doctors to listen it to force them to by bombarding them with complaints from many people.

Also: If your boss fires you for something like a scabies outbreak you can totally sue him and will probably win.(I mean hello, you are notifying him about a health concern that: A) You can randomly get from people around you, B) You've been treated for, C) You're trying to make sure he is healthy, D) That other people don't get it(other employees/customers/family members etc).

I'm honestly running into this problem right now with my social circle as well as clients: I've treated myself, notified clients/friends and had them not think they are infected. This of course meant that I just got reinfected.

We need to make sure everyone in our social/work circles as well as everyone in theirs etc get treated as well as treat ourselves or this will just keep going on.
sharon

Orlando, FL

#11 Mar 15, 2013
I have had this for 11 yrs now, and I work in an office w/ 300 people who share phones and chairs. It is spreading like wild fire.. Intense itching, crawling feeling, some have had bad infections from the scratching and ended up in the hospital. This is in Lake Mary Florida.
WeAllItch

Portland, OR

#12 Mar 16, 2013
Sharon, report it to the local health department! I'm pretty sure you could call them and tell them anonymously that there is an outbreak in your office building.

Since: Feb 13

Royal Oak, MI

#13 Mar 16, 2013
The office I work in is very small. There's no way I could do anything anonymously there. But I sure don't want to be reinfected! I'm going to have to go back myself when it's closed and clean up and spray - AGAIN - my whole area, and my boss's area, and all over the office, I guess, to at least try to stop the spread. I'm so sick of battling this horrible thing.
misery_in_au

Cobbitty, Australia

#14 Mar 19, 2013
I too am of the opinion that through apathy its becoming epidemic here in Australia. Everyone itching, being bitten, scratching, denying it, doctors denying it but wanting you to not touch anything in their office... goes on and on... there is a great shame and stigma and even worse for people who have it.
WeAllItch

Portland, OR

#15 Mar 19, 2013
WOaW,
Since you have gotten a diagnosis from a doctor and already kinda talked to your boss about it; maybe have your doctor right a letter to your boss explaining what scabies is and that it is highly contagious and that it can be passed easily in an office environment.
Treating your whole office is a great idea but you will have to keep doing it if your boss and other coworkers don't get treated as well as their family/friends and their houses etc.
WeAllItch

Portland, OR

#16 Mar 20, 2013
WOaW,
I forgot to answer your question about how to contact your local health department.

Do a Google search for your county health department and call or email them. they might not take any action but at least you can report it to them.
WeAllItch

Portland, OR

#17 Mar 20, 2013
Misery, I totally agree on all accounts!

I say ***k that, report it to the health department, complain to the hospital/doctor office director. Get your friends that have probably been infected to do the same.

Report it to the news etc etc.
misery_in_au

Sydney, Australia

#18 Mar 20, 2013
The stigma is so great that its now being reported in other cases as well... meant to add this article found here on topix: http://www.stuff.co.nz/national/crime/8254010...

so, if its being seen as abuse or neglect then why would the people suffering from it report it?

Then you have the added problem of not being able to afford treatment. I suspect this is one of the many reasons its kept hushed, and the medical fraternity do a great job of keeping it swept under the carpet, literally.

Unfortunately, there's a huge rise in middle class people such as us acquiring it, so how can it be from dirty or squalid circumstances? Mine is bird mites from the roof- how on earth could that have been known about or prevented? But still the stigma continues.
WeAllItch

Portland, OR

#19 Mar 20, 2013
Misery,

*blinks* The child abuse is horrible!

However, the article totally helps perpetrate the mindset that only unclean people (Both personal hygiene and house cleanliness) get it. Which we know is so not the truth and the CDC even states.

You're right about the bird mites, not much you can do about it.

As for it being kept hushed, I don't know. I actually talked to my local county health officer about scabies outbreaks in my area and he had contacted local area hospitals etc asking if there was an increase in cases. All of the places he contacted said there hadn't been. However, I think it is more that doctors are misdiagnosing people/not giving a rat's *** and just prescribing them something to stop the itching.(Steroidal creams!!)

-I've seen that happen to a few people close to me.

Again, the answer is: If you have mites SCREAM about it to all your local health authorities.(Look what happened with Morgellons; people screamed to the CDC and they finally did a study).

Since: Oct 12

Sydney

#20 Mar 20, 2013
You know, Australia has something like the CDC. Local pharmacists (more knowledgable than the doctors for some reason) all say that its increasing along with lice. Am going to try to find the name of our national equivalent.

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