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Fighting in Florida

Port Saint Lucie, FL

#84 Jun 8, 2012
Here is the link to some very useful forums for non toxic treatments.

http://www.topix.com/forum/health/scabies/THI... #

I tried the Biosilk treatment and it worked like Permethrin Cream but is much gentler. Type it in the search box or go to the above link.

Also I spray everything down with 91% Isopropyl Alcohol or Windex and food grade Diatomaceous Earth in between house cleanings. It really has knocked down the mites.I also wear Repel Botanical Insect Repellant during the day, so they won't bite me.

I'm looking into buying an ozone generator to blast-fog the house with Ozone, I hear it will kill mites along with other harmful organisms. You can rent the machines in the states. Google it.
Scabiegirl

New York, NY

#85 Jun 8, 2012
If I could have done all this again I wouldn't use permethrin. I think iver is better and just a natural sulfur soap everyday. Idk. I wish I could have done things better now I have done so much my skin is so damage I think. and now I am suffering the consequences of not knowing what is going on.
To make a decision to stop it all and still feeling things is horrible. But I will stop bc at least I will have some physical symptom to show if they come back idk. I have done it all I am tired. And my apt is beyond cleaned. I have me own system cleaning every day. Nothing is missed. Clothing also alright another day today of waiting for this to be over
had enough

Anonymous Proxy

#86 Feb 4, 2013
I have had scabies since nov 2012. Ive posted on here when ive used something atht works, but i agree- i neglected putting stuff in my hair and kept reinfecting myself. Until my hair began to fall out. Human form of mange indeed. So I did my regime in my hair and im getting there. Nice and simple- clove oil!!!!!!(research link) http://www.ncbi.nlm.nih.gov/pubmed/20711455
i use it almost neat - diluted in a little cocnut oil with neem oil and anise oil- careful it burns a little. In a spray bottle, after bath shower twice daily and spot- applied, liberally, on face, head, scalp, comb through hair, and body- tie hair up. leave overnight. repeat in hair nightly, body twice daily. it works. im getting there after a year of trying everything, this is the most permanantly effective with no sideaffects, and people like the smell of the essntial oils (i dont tell them its to deter scabies of corse- the shame!!) i cant wait for this to be finally over, but i'll keep this up for another few weeks to be completely sure they are totally gone and zero crawly sesnations. I currently feel crawling once or twice a day. ive used this method for a couple of weeks. Previously ive tried (with variable results): sulphur soap (i still use this daily in the shower), bleach baths and spray (awful!), msm cream homemade (good, but not brilliant), epsom salts (helped my immune system &skin healing but did nothing about mites), permethrin (once diagnosed after 3 months of initial infection- took 3 weeks to reduce infestation by 30% and then I was getting neurological damage in my hands from the cream, so i stopped, and looked for a natural solution, also it didnt reach through the skin layers on my hands or wrists to kill them so I used nail clippers and surgically cut them out. I got rid of them there, I dont recommend this, but I was desperate!!!)

Many times Ive just wanted to cry, but then stopped myself knowing that crying wont get rid of them. There's so much shame with this thing.
THE BEST THING IS: ITS' A SKIN PARASITE, NOT A VIRUS. YOU WILL GET RID OF IT, IT'S NOT PERMANENT. PLEASE TRY CLOVE/NEEM/ANISE OILS DILUTED IN A LITTLE (i used too much coconut initailly and it wasnt strong enough) COCONUT OIL, AND APPLY EVERYWHERE, LIBERALLY, INCL HAIR AND SCALP and hands and feet EVERY DAY. SLEEP WITH IT ON YOUR HAIR AND BODY. CLEAN PYJAMAS EVERY NIGHT, INITALLY DO LOTES OF WASHING, BUT YOU CAN CHILL OUT ONCE THEY DIMINISH. TRY IF POSSIBLE TO WEAR DIFFERENT CLOTHES DAILY, AND PUT ONES YOU'VE WORN IN A WARM PLACE. THE MITES WILL DESSICATE (DRY OUT ) AND DIE. Wash bedding regularly, and communal sofa coverings.
will_It_Just_End

United States

#87 Feb 8, 2013
had enough wrote:
I have had scabies since nov 2012. Ive posted on here when ive used something atht works, but i agree- i neglected putting stuff in my hair and kept reinfecting myself. Until my hair began to fall out. Human form of mange indeed. So I did my regime in my hair and im getting there. Nice and simple- clove oil!!!!!!(research link) http://www.ncbi.nlm.nih.gov/pubmed/20711455
i use it almost neat - diluted in a little cocnut oil with neem oil and anise oil- careful it burns a little. In a spray bottle, after bath shower twice daily and spot- applied, liberally, on face, head, scalp, comb through hair, and body- tie hair up. leave overnight. repeat in hair nightly, body twice daily. it works. im getting there after a year of trying everything, this is the most permanantly effective with no sideaffects, and people like the smell of the essntial oils (i dont tell them its to deter scabies of corse- the shame!!) i cant wait for this to be finally over, but i'll keep this up for another few weeks to be completely sure they are totally gone and zero crawly sesnations. I currently feel crawling once or twice a day. ive used this method for a couple of weeks. Previously ive tried (with variable results): sulphur soap (i still use this daily in the shower), bleach baths and spray (awful!), msm cream homemade (good, but not brilliant), epsom salts (helped my immune system &skin healing but did nothing about mites), permethrin (once diagnosed after 3 months of initial infection- took 3 weeks to reduce infestation by 30% and then I was getting neurological damage in my hands from the cream, so i stopped, and looked for a natural solution, also it didnt reach through the skin layers on my hands or wrists to kill them so I used nail clippers and surgically cut them out. I got rid of them there, I dont recommend this, but I was desperate!!!)
Many times Ive just wanted to cry, but then stopped myself knowing that crying wont get rid of them. There's so much shame with this thing.
THE BEST THING IS: ITS' A SKIN PARASITE, NOT A VIRUS. YOU WILL GET RID OF IT, IT'S NOT PERMANENT. PLEASE TRY CLOVE/NEEM/ANISE OILS DILUTED IN A LITTLE (i used too much coconut initailly and it wasnt strong enough) COCONUT OIL, AND APPLY EVERYWHERE, LIBERALLY, INCL HAIR AND SCALP and hands and feet EVERY DAY. SLEEP WITH IT ON YOUR HAIR AND BODY. CLEAN PYJAMAS EVERY NIGHT, INITALLY DO LOTES OF WASHING, BUT YOU CAN CHILL OUT ONCE THEY DIMINISH. TRY IF POSSIBLE TO WEAR DIFFERENT CLOTHES DAILY, AND PUT ONES YOU'VE WORN IN A WARM PLACE. THE MITES WILL DESSICATE (DRY OUT ) AND DIE. Wash bedding regularly, and communal sofa coverings.
Hi here is a short brief on what weve done . we are a family of nine and have had scabies for 6 months, we are desperate! most of us have it on our heads, My mom and two brothers actually SHAVED their heads cause they couldn't get them off! we've tried Sulfur cream, peritherin, Ivermectin, essential oils mixed with olive/coconut oil, even gone on a diet that cuts out sugar,wheat,gluten,diary. We are currently soaking in 1 bath a day containing: Borax,peroxide,bleach and sea salt then applying 30% sulfur cream witch seems to be working. you said that you had success with the oils? how long did you do it for and how much did you use??? any information would be great!! thankyou!
Ayla

New York, NY

#88 Feb 9, 2013
Scratchy Itchy and Scabies girl, I highly doubt you have Scabies. Especially when I hear things like "13 years" the alarm bells go off. If you've been treated with Ivermectin and it hasn't gone away, continually taking it is a bandaid and will not help long-term.

I suggest spending some time in the Morgellons forums. I forget who the original poster of the thread is, but those photos look like Morgellons lesions to me. If you have eczema on top of that, then your journey may be even more difficult.

The easiest and quickest way for you to cut to the chase and put to rest whether this is scabies or not is to purchase a cheap hand held microscope for $12 (U.S.) dollars at Radio Shack. Look at the rashes and sores and look at your skin in general. If you see 'fibers' then you need to release this thought of scabies and learn what people are doing for Morgellons. Fibers are the defining symptom of Morgellons disease — no other illness has this as a symptom.

If you need to see what the fibers look like, I have tons of clear photos on my website in the galleries.
morgellonsdiseaseawareness.com

Morgellons causes one to feel like there are bugs crawling on them, intense itching, stinging and biting sensations as well as a host of other conditions. Many people feel the crawling most in their hair and eyes, eyebrows. Most people who have Morgellons do not have bugs (although there are those that do, which I believe comes as a co-infection). Even if the miticide works, it's still not an indication of parasitic infestation. I took Ivermectin and it helped me greatly, but there could be other reasons for that. It wasn't a "cure" by the way, either. Once you have Morgellons it is a condition you will need to learn to manage.

You can keep banging your head on the "Scabies" platform or you can get a microscope and really take a look at the problem. If you see absolutely no fibers, then I'd be more likely to believe it's scabies, but one can rid themselves of scabies and if you haven't done that in more than a few months, I'm thinking it's Morgellons.

P.S. no doctor is going to give you a Morgellons diagnosis as the western medical system doesn't believe it's real and they will be unlikely to look at your skin with a microscope—so you need to be the one to do this. You also run the risk of having them write "delusions of parasitosis" in your chart, a permanent and destructive mark on your records. So be careful how you speak to a physician.

If you can't find a cheap microscope in your locale, I have a link on my homepage to an online source.

Hope this helps.
had enough

Barking, UK

#89 Feb 12, 2013
will it just end: i used coconut oil to equal amount half neem and half clove. spray on after hot shower. also added to sea salt and used as scrub inn shower, then rinsed off. spray on all the time, take sample out to work and applied as necessary. Soak cotton gloves in oil and wear at night. Put in hair and massage into scalp overnight, wash out in morning, reapply to body (not scalp as i have to work). PEOPLE LIKE THE CLOVE SMELL (which thank god is a relief)
Neem oil applied neat to face, and clove oil neat to scalp if intense itching/crawling.

any more qu's please ask!! x
Magda Petit

Curitiba, Brazil

#90 Jun 4, 2013
Doctors don't know everything about scabies. I had five rounds of ivermectin until I got cured with a combination of medication & essential oils. Much persistance was needed, two doctors seen (one an asshole, the second a good one). I also got BIG sores on my back, torso, neck, arms, and legs (doctor called it nodular scabies). It's been one month now.I am cured, I don't feel crawling, I don't have fresh bites. Calendula oil helps a lot. YOu buy 100 grs dried calendula and let it soaking in almond oil for one week, then sieve it. Add some drops of teatree oil (just a little, it can BURN your skin - and also kills mites). Apply it twice a day all over your body. Treat yourself with mild products - no strong soap, no strong shampooing, nothing. YOur skin is still shedding debris that are INSIDE it and desperately trying to heal itself. You will get better. Also, try some vitamins - cod oil, ADE vitamins, E vitamin. Don't overdo. Keep washing clothes & cleaning house for at least 10 days. Have faith. You will heal. Best wishes.
AntiScabies

Desoto, TX

#91 Jul 5, 2013
I just finished the journey of getting rid of them, http://antiscabies.com/...
Rainymtnranch

Richmond, CA

#92 Aug 30, 2013
Part 1

For starters, I would like to thank everyone who posted material. Knowing I was not alone was the only thing that kept me and my family from quitting this earthly existence.

The tips helped me craft the all out war I waged to get my life and household back.
Some links I had found, though I digested it all and incorporated it into this posting.
http://www.earthclinic.com/CURES/scabies4.htm...
http://www.topix.com/forum/health/scabies/TS4...
http://mypreciousthingz.blogspot.com/2012/06/...

(excuse the errors in ingredients caused by iPad auto complete spelling. The amount of info I am entering is a lot)
Also excuse the possible repeat of paragraphs, Or minor organization problems, I am not able to re-live this experience as long as it would take to properly edit this entire write up. I organized this as best possible in 2 writing sessions.

Materials (things I used, for methods/application see detail below or look at posts from others)
Drop cloths (plastic) for furniture (pack of 3 best value at Walmart)
Tape to secure drop cloths on furniture
Tack mats (use shelf paper upside down, taped to floor with blue tape)
Clean room tack mats avail online, but sometimes hard to get quickly delivered.
Swiffers
Bleach wipes
Clorox cleanup
Latex gloves, disposable one use only
Ziplock bags
Marker
Towels small (Walmart has 12 for $15 in the car wash isle, I used these for the showers instead of washing lots of large towels after one use
Towels, medium ( hair, showers)
Bleach for laundry wash
Scotch packing tape to collect bugs (clear is good for microscope review, can bring samples to doctor)
Lice gel treatment - took to using this on whole body, then shower.
Walmart had large bottles . Cleaned and reused combs, was nice to have a stable of clean combs to grab.
Rx permethrin
RxTriamcinolone .1%
Rx Hydrocortisone 2.5% just caused caking of cream on skin and caused patient to just feel hot.
Sarna skin original cream (normal has like. Cooling camphor in it, sensitive has no cooling gent. Cooling gents like c phor in creams are not well tolerated by kids , they tend to get cold and cannot tolerate term until bath, even warm bath water is colder when the creamed skin hits the bath.
Sarna skin sensitive cream, better for kids.
Sulfur soap. Sulfur soap felt nice on skin, but scaled up the shower door with residue.
Hand sanitizer
Orange oil
Tea tree oil
Coconut oil
Sulfur cream 10%(best was de la cruz sulfur ointment posada de azure 10%) best cost was Walmart or cvs.
Mothballs or moth ice
Vacuum bags or space saver bags
Trash bags
Foot powder borax bran iodide ( Walgreens)
Walgreens fast acting odorless analgesic crime, trolamine salicylate 10%, inactive ingredient aloe barbadensis leaf extract, Cheryl alcohol, glycerin, mineral oil, potassium phosphate, propyl paraben steric acid, triethanolamine, water,(did not work as well as muscle rub to quit the bug skin sensation)
Muscle rub ultra strength Walgreen s brand (active ingredients: camphor 4%, menthol %10, methyl salicylate 30%', inactive ingresdientss: carbomer, dis odium EDTA, glyceryl lstearate SE, lanolin, ploys ornate 80, potassium hydroxide, steric acid, trolls mine, water.
Rainymtnranch

Richmond, CA

#93 Aug 30, 2013
Part 2
Concepts
This is ALL OUT WAR.
it will have costs, waste generation and some casualties lost.
Get a calendar, note dates of treatment, doctor visits, any other details of the day: what treatments were done
This will help you remember ( this situation often feels like Groundhog Day, lonely, hard work, volume of things to do)
Note any creams used on whom and number of times per day of showers, creams, oils, etc
When something changes for better or worse or to show progress the calendar visual is very helpful
It also helps as a communication tool with doctors who do not know how you feel and do not understand the depression, manic feelings and urgency that the patient feels. It helps guide the discussion. It helps they understand you situation timeline.

Push for immediate appt s with dermatologist or other doctors, the delay in a dermatologist appt caused some of the explosion of this population after the primary doc timed the treatments wrong. dermatologists like the easy schedule of their practice (primadonas), often they see no urgency (until of course you are in their office and they see you then they act ingratiatingly urgent. Otherwise be prepared that most doctors don't care or get it or understand the disease. They are detached and just following a script, despite very contagious and the need for the patient to stay away from work and daycare.

If you don't get the treatment right the first time, permethrin treatments Rx is expensive because the pharmacy coverage is considering one tube per month. Despite requirement to use it in one day and then a week layer again all one day. There are a lot of out of pocket expenses here. Minimize your costs by managing the care provider, be firm, tell them what you need don't expect them to know or understand the strict all-out-warfare protocols.

Make sure doctor knows to prescribe one tube for each person in house, even if the other family members are not seen. All housemates need treatment. Rx only covers a tube per person. Get greedy to request or force another tube, if you spill it, you won't have enough. If they won't prescribe for a spouse, call the spouses doctor immediately, tell the doctor what was diagnosed and what you were prescribed and get them to call in a prescription for the other family members.

There are different permethrin manufacturers. The Targets pharmacy permethrin (Actvis mid atlantic llc brand) was more liquidy and easier to spread. Cvs (Perrigo brand) pharmacies have more creamy, thicker application. Harder to spread and cover everything.

Disability coverage by employer for adult is helpful to cover child care issues. Child cannot mix with other kids when infected. Dermatologists charge to complete employer forms for disability coverage. My child and i had scabies, she could not go to school. At least I got the doctor to understand that I should be kept home with scabies and not impact my coworkers. Being able to care for my child when no other care was available was helpful. Did not have vacation available to use. Dermatologist do not know how to fill company disability forms out. Ensure you carefully check the paperwork. Ensure they know they cannot charge you for incorrectly completing the paperwork. Do not let them go or leave their office until you submit the paperwork via fax or make them fax it, look it over for correctness yourself, and get your company nurse or hr rep to approve the paperwork. Dermatologists take their time correcting their errors and it can affect your employers system, discipline tolerance, etc. nurse practitioners at work who know your case through hr can help prescribe follow ups if needed because of a negligent Dermatologist.
Rainymtnranch

Richmond, CA

#94 Aug 30, 2013
Part3

The disruption of sleep during this infestation also affects your mind and mental state.
Realize that you are the only advocate for your child. No one else cares about your kid unless you make them act. Dermatologist just want you and your infested cloud out of their office. You are there because you are sick, they would rather have patients with appointments for Botox or other high dollar treatments.General actions:
Couches & mattresses & seats wiped with bleach wipes
Heat treat everything in dryer
Everything in bags (all toys, all clothes, rugs, pillows, blankets,)
Vacuum bags (space saver bags) with moth balls
Full utilization of washer /dryer, use and schedule with little down time. I even woke up through the night to do another load.
All toys that cannot be wiped need to be put away in bags for 1-2 months or more. Kid won't miss it.
Kid to take a bath, with three oil treatment
Keep asking them if they are itchy
Bleach garage floor, entry steps
Bleach driveway or other approach
Control areas of clean laundry, everything is one way, if it falls on the floor or touched some untreated thing, it goes back to the beginning of the treatment process.
We had one bedroom for washed clothes, stuff.
Treatment bags or toys in bags were in garage
Furniture use was managed to minimize cleaning certain areas everyday.
Laundry baskets were either wiped or if collapsible, they were placed in dryer then post treatment used for clean clothes.
Collapsible laundry baskets from ikea were more durable than 99cent store. Both fit in Dryer.
Clean treated Laundry baskets did not touch floor where dirty laundry or other infested area
They would carry clean clothes sheets then collect the sheets the next day and go to garage and get treated.
Garbage bags also were used for collecting laundry in waiting.
My thought was that critters that could weaken and drop off would then attach to feet, socks, other items and cling to life. If they were stuck in a bag waiting for washing the. They were contained.
Always think CONTAINMENT, LIKE OUTBREAK!
Stay away from used areas +3 days (most info says these things die in 24 hours without a meal, but I have experienced different and some web info cites studies where female mites lived 96 hours!)
Razors and Luffas one use or bleach treat
Combs bleach treated.

Pillows mattresses covered in plastic cases.(bed bath beyond)

Furniture contained in plastic drop clothes.

Car seats had to be treated or quarantined to stop bug life cycle.
Car seats that could not be left for a week without use has to be covered. Plastic Drop cloths were disposable, or beach towels one use cover and wash in hot.

All day work agenda is to tackle the mountain of household items to clean, treat, heat treat, bag and wipe. And swiffer at least 3x a day
Replace tac mats, use tac mts to wipe feet, deduce floor debris, tracking, travel of bugs.

Wash clothes in very hot
Increase water heater temp
Wash clothes inside out many times.
Wash all socks and underwear in hot with bleach or agents

Contain shoes in bags with moth ice
Heat treat shoes as possible
Shoes and clothes may shrink, casualties of war.

Contact potential affected people: hotels, baby sitters, schools, close family. Tell them what to watch for so they can act on treatment.
Stay away from hospitals, eldercare centers, scabies is very contagious and tough to manage in those facilities. Protect your loved ones by keeping away from them.
Rainymtnranch

Richmond, CA

#95 Aug 30, 2013
Part4
Keep samples each day of anything found.
Mark in dated bags, location taken from
This also helped gauge when things get better.

Our experience was many relapse episodes unfortunately.
After fighting the initial time it got better but then the backlash of not properly containing clothes, hair, etc. caused a relapse.
I realized after doing everything the doctor said for weeks, that i felt bites on feet and back where my hair had just been combed out. my scalp was not itchy, but whatever was dropping onto my back in microscopic size was a vector. plus my husbands shirts might be dropping mites who then lived.
We found the vectors to be hidden in our hair, scalp, floors.
Once we attacked the scalp spot on top of the kids head and the hair bands and the increased frequency of swiffer (so glad we don't have carpet!)
Treated hair
Contained dry cleaning shirts
Swiffer until the swiffer sheets are clean
Tied hair in buns for over 8 months
Then final change toward recovery and improvement was when contained hair and floors and clean room criteria.
Rainymtnranch

Richmond, CA

#96 Aug 30, 2013
Part5
Meds or skin treatments
Rx:
Permethrin 5% a tube per adult, some left over from kids tube apply for neck to toes, get under nails and in ALL spaces, cracks. They say 8 hours, but in one treatment towards the end of many unsuccessful treatments, we left it on for 24 hours. Permethrin also had Cooling tingly affect, unsure if this was nerve response or the meds acting.
We also did lice body shampoos
Lice gel treatment - took to using this on whole body, then shower.
Walmart had large bottles .
Cleaned and reused combs, was nice to have a stable of clean combs to grab.
Dermatologistskept trying to soothe skin with Rx for:
Triamcinolone .1%
Hydrocortisone 2.5% just caused caking of cream on skin and caused patient to just feel hot.
Dermatologist office also tried to sell Saran for double the Walmart cost.$20 a bottle, I returned it, I would have guessed then that they resell possibly used and returned bottles. They were not surprised I returned the bottles or that I was angry at the rip off.
Sarna skin original cream (normal has like. Cooling camphor in it, sensitive has no cooling gent. NOTE: Cooling agents like camphor in creams are not well tolerated by kids , they tend to get cold and cannot tolerate term until bath, even warm bath water is colder when the creamed skin hits the bath.
Sarna skin sensitive cream, better for kids.
Sulfur soap felt nice on skin, but scaled up the shower door with residue.
Multi layer treatment,(recommended by web folks who said permethroin did not work.) made black things come out of skin. Put in layers over whole body. Get help,for your back.
Hand sanitizer
Orange oil
Tea tree oil
Blue magic Coconut oil
Left these on for about an hour then showered and sometimes followed with sulfur cream
It is killing these bugs but also Both oils and sulfur creams caused the skin to expel black stuff. I agree this must be the bugs dead and leaving.
I Liked tea tree oil and it soothed the skin.
Orange oil smells nicer, bugs did NOT like orange and tea tree oils.
Enjoyed the thought of winning small battles with orange and tea tree oils. Also the sulfur cream.
Felt like they were suffering.
Some of these smell bad, segregate clothes you will wear with these creams and oils.
Eventually the sulfur smell and tea tree smells go away, after many washes, but the relief is worth the smell.
Sulfur cream, get help for back. Some blogs said to put on for a hour. In some cases I got desperate and left it on all day. Again calendar helps keep facts straight.
At some point my trusted doctor and my replacement good dermatologist agreed that the mites were likely not there and I was dealing with nerve sensations.
Long after the initial scrapes of diagnosis, and treatments, i saw bumps and lesions. I had 3 biopsies, each time they cut 3 spots, 9 cuts and none showed infection.
I paid a lot for the biopsies and their analysis. Learned eventually that skin healing response can produce these bumps. It is part of the response to the medicine and also the bugs. Also going bck to work, some of my clothes were tight and the skin response to tight clothes was to create its own lesions nd bumps.
At this point I resorted to treating the sensations.
Some of the web posts stated: kill scabies in five minutes..... So I tried it.
Rub down with muscle rub and then go take a bath with foot powder.
Materials listed below:
Foot powder borax bran iodide ( Walgreens)
Walgreens fast acting odorless analgesic crime, trolamine salicylate 10%, inactive ingredient aloe barbadensis leaf extract, Acetyl alcohol, glycerin, mineral oil, potassium phosphate, propyl paraben steric acid, triethanolamine, water,(did not work as well as muscle rub to quit the bug skin sensation)
Muscle rub ultra strength Walgreen s brand (active ingredients: camphor 4%, menthol %10, methyl salicylate 30%', inactive ingresdientss: carbomer, dis odium EDTA, glyceryl lstearate SE, lanolin, ploys ornate, 80 potassium hydroxide, steric acid, troloamine, water
Rainymtnranch

Richmond, CA

#97 Aug 31, 2013
Part6. Notes on kids
Sarna skin cream (normal has like. Cooling camphor in it, sensitive has no cooling agent.) Cooling agents like camphor in creams are not well tolerated by kids , they tend to get cold and cannot tolerate them until bath, even warm bath water is colder when the creamed skin hits the bath.

Kid management: explain bug infestation
Ask if they can help, kids love to help swiffer.
Set standard that the "doctor says" must do medicines, creams, baths, cleaning, toy a quarantine time, etc
Buy them a swim cap for hair treatments, character caps help too.
They can use wipes to help clean while you use Clorox wipes
They can help clean bathtub
No stuffed toys for a while, they are " in the laundry"
Use google images to demonstrate the sickness.

Notes: on additional controls and responses.
known to infest just skin, not scalp, however, I found an infestation on my daughters scalp (3 yo) only infants supposedly get scalp infestation.......hmmmm.....we had scalp stuff.
Also noticed that it felt like critters on my back falling from hair. Like biting on my back immediately 10 mins post shower and lice treatment on hair.
Felt like these had gotten into our hair by retreating to un-permethrin treated areas also hair bands/ scuunccii on floor had collected and harbor end critters.
Mom Treated scalps of mom and daughter with permethrin, told doctors, although we were told it was not needed.
Shortened daughters hair to minimize combing about shoulder length.
Pediatrician Rx sklice for scalp treatment, new technique and was $80 with prescription coverage.
Also felt like critters on floor from clothes, skin, wherever, and they keep cycling onto person
Noticed that doing laundry, I felt bites on my feet start when I got near laundry pile.
Contained husbands dry cleaning inside large plastic bags so no critters could drop and move. Quarantined this clothing in garage with more tarp underneath.
Purse and gym bags with cleats, heart rate straps, watches, etc all infected. All isolated, treated, etc.

Sensations
Felt itchy, crawly, ears, top of head, nose, toes, armpits, waistband. Bra bands, etc.
Permethrin felt cooling when applied. I felt it more than husband. The relief sensation was comforting and addicting. This may be caused by nerve agent nature of the drug. As nerves healed over time, tingling and bug sensation would occur.
When done, wear loose clothes for 6-8 months or tight clothes will cause skin response similar to scabies, lesions that is simply an immune response. Took months for sensations to stop. The muscle cream and foot soap bath really worked like a switch to stop the tingling buggy feeling. It was terribly uncomfortable to be so cold and wet, brutal treatment, but worked.
Rainymtnranch

Richmond, CA

#98 Aug 31, 2013
Part7

Root cause investigation thoughts:
Unsure if we only had scabies or a multi infestation with other mites.
Massage June 6, 2012, then went to work out. Masseuse was rookie, concerned about transfer to heart rate monitor.
Possible June infection from hawaii trip
Possible gym infection, possible daycare route,
Daughter and mother worst infected
Daughter and mother waking up all night when sensation and biting occurred. Also think there were body lice in play here

Daycare friends had traveled possibly infected us, but not honest enough to alert others to the risk,
No one in our house got any infection here by visiting. Baby sitters were fine.
Daycare provider had heavy pubic scratching and also hospital astray hospital cancer.

Also worried about work chair, put raincoat over chair and switched chairs.
Bart train seats, infidelity, all possiblities that were considered.

I think there was scabies, plus some other mite from the driveway fir trees. Used to get bites when sitting in pickup truck bed that has fir tree cones and debris from trees.
Twice found visible bugs, not ants coming from driveway toward garage and laundry, liked sweaty clothes. Scabies are not visible, so these were other mites. Once floor controls and hair scalp was addressed, all bites stopped.
Sensations continued, but camphor creams helped stop brain response.

Mental

Dermatologists smug over initial first treatment by primary care doc because it was a 2 week treatment,
Corrected with 1 week treatment, but they also refused to accept there was another reinfection. Bites on back and feet, they said, it's not scabies, cannot help you. Second opinion dermatologist said scabies. Also other bugs were on driveway and floor, and scalp, initial dermatologist and other doctors seemed hopeless that they could not help.. This is when I realized it was all out war to quarantine everything's movement more tightly than the TSA at the airports.

Doctors Refused to consider scalp, until pediatrician saw what I saw. So we switched to sklice Rx.
Pediatrician was helpful and had really seen scabies so follow up bumps were discounted and patient at ease.

then dermatologists were bullish when not considering the comfort level of patient, excreted bugs appearing were dismissed as dirt/debris.

Bully doctors would discard the patient, prescribe more creams, just to make more money, don't care about patient. They left patient to mentally suffer. Sometimes felt like there was no future life away from scabies condition. Hopeless, very suicidal and very risky.

As if they did not understand this was skin expressing the bugs out. Black things appear on these patients as commonly anecdotes on the Web, people don't all have the same story by chance. this phase exists.and the doctor treats them as crazy people.
as if these black things are in their minds only. As if derms don't get that there is stuff and cannot explain what it is to a patient. They need tone able to understand and help the patient brought.
Now I clearly know more than any dermatologist about scabies. That first derm office should be disciplined by the med review board.
Skin issues also followed with fungus or other immune response lesions that were scary to experience as a potential comeback of the bugs.

Web logs were helpful. Felt not alone.
Good tips
Some people wrote what their experience was as opposed to actual science, but it was helpful.( e.g., one post said they saw moving black bugs under microscope. I found this questionable. The debris was likely bugs but they were only coming out because skin was expressing the debris. I never saw live specimens.)
Rainymtnranch

Richmond, CA

#99 Aug 31, 2013
Part 6, not sure how this happened out of order...

Notes on kids
Sarna skin cream (normal has like. Cooling camphor in it, sensitive has no cooling agent.) Cooling agents like camphor in creams are not well tolerated by kids , they tend to get cold and cannot tolerate them until bath, even warm bath water is colder when the creamed skin hits the bath.

Kid management: explain bug infestation
Ask if they can help, kids love to help swiffer.
Set standard that the "doctor says" must do medicines, creams, baths, cleaning, toy a quarantine time, etc

Buy them a swim cap for hair treatments, character caps help too.

They can use wipes to help clean while you use Clorox wipes

They can help clean bathtub

No stuffed toys for a while, they are " in the laundry"

Use google images to demonstrate the sickness.

Notes: on additional controls and responses.

known to infest just skin, not scalp, however, I found an infestation on my daughters scalp (3 yo) only infants supposedly get scalp infestation.......hmmmm.....we had scalp stuff.

Also noticed that it felt like critters on my back falling from hair. Like biting on my back immediately 10 mins post shower and lice treatment on hair.

Felt like these had gotten into our hair by retreating to un-permethrin treated areas also hair bands/ scuunccii on floor had collected and harbor end critters.
Mom Treated scalps of mom and daughter with permethrin, told doctors, although we were told it was not needed.
Shortened daughters hair to minimize combing about shoulder length.
Pediatrician Rx sklice for scalp treatment, new technique and was $80 with prescription coverage.

Also felt like critters on floor from clothes, skin, wherever, and they keep cycling onto person

Noticed that doing laundry, I felt bites on my feet start when I got near laundry pile.

Contained husbands dry cleaning inside large plastic bags so no critters could drop and move. Quarantined this clothing in garage with more tarp underneath.

Purse and gym bags with cleats, heart rate straps, watches, etc all infected. All isolated, treated, etc.

Sensations
Felt itchy, crawly, ears, top of head, nose, toes, armpits, waistband. Bra bands, etc.

Permethrin felt cooling when applied. I felt it more than husband. The relief sensation was comforting and addicting. This may be caused by nerve agent nature of the drug. As nerves healed over time, tingling and bug sensation would occur.

When done, wear loose clothes for 6-8 months or tight clothes will cause skin response similar to scabies, lesions that is simply an immune response. Took months for sensations to stop. The muscle cream and foot soap bath really worked like a switch to stop the tingling buggy feeling. It was terribly uncomfortable to be so cold and wet, brutal treatment, but worked.
Scabies Free

Annapolis, MD

#102 Apr 26, 2014
This kills scabies 100%
http://www.naturalginesis.com/kleen-green-nat ...
I tried all of the natural methods and the medications on the market, they're were only good for temporary relief if that. The skin ointment permethrin is extremely bad for your skin as it contains cancer causing carcinogens. At $40 a tube, permethrin does not work. Natural Ginesis works. You buy a bottle and dilute it with water according to the manufacturer's instructions and spray it all over your body twice a day until the scabies are gone. The scabies and their eggs are killed using natural enzymes. Natural Ginesis contains no harsh chemicals and is non-toxic to humans. I used this stuff for months to prevent reinfection from other family members. It is truly the only relief that I have found. I've been scabies free for 3 years.
ann nonymous

Phoenix, AZ

#103 Sep 4, 2014
almost invisible bugs; you need a flash light to see them at night. they bite mostly at night. They have a needle like appendage that can burrow in your skin that even tweezers won't remove. You need nail clippers to cut them off the skin. They imbed in plastic and metal. I know. WTF. They love burrowing in your head, eyes and ears and crotch. I clapped to crush one back lit by the sun and hundreds came from every where due to the 'noise'. Noise activated bugs. They bite much worse with the fan 'noise' on. During the day they zone in on your head like a locked down missle launch. There were thousands on the dirt trails when I was offroading a few days ago. One bit my forehead in a farm area when I was riding a bicycle. They are everywhere and spread by chem trails; no kidding! How do you speed up the dying process because I can't take this. Tried everything!
STARGATE

Spring Hill, KS

#104 Oct 5, 2014
The permetharine does NOT work. Bleach doesn't work and is gerously poisonous). Borax doesn't work, flea and tick dog shampoo (which is poisonous) doesn't work. I battled scabies for three years. I will tell you what works.

I had scabies after trying on a hat at a department store. That is all it takes to get them. They are persistent and do not die easily. I battled them for almost three years....Yes, 3 years. I tried dog flea shampoo daily with a specific ingredients in it (suggested on a web blog). I tried many different things that I read about, including things on actual medical pages.
Finally, I decided to try something on my own and the scabies were gone permanently in two weeks. Here is what I did to get rid of scabies for good:
I knew that nearly anything can not live in a salt environment. I knew that scabies were persistent and they "tunnel" below the skin and cause a puss infection and just won't die easily. I knew all the things I read in blogs didn't work either. I was frustrated and angry.
So, I went out and bought #36 grit sand paper and cut it into 3 inch x 3 inch squares (it will ruin your scissors. I had to buy another pair of scissors to replace the pair that got ruined).#36 is a very large grit sand paper). I also got some large grit sea salt.
I put some sea salt in a small glass with warm water and let it devolve a bit. Sea salt has large crystals and won't dissolve quickly, but don't worry about that, it doesn't need to dissolve completely.
I wet my head with warm water and then sanded my scalp, gently at first to get used to the pain of sanding, and then harder as I sanded my scalp where the scabies were. For me, they were on both sides of my scalp (heavily), and on the back of my scalp. My scalp had puss everywhere the scabies were located.
I knew that sanding my scalp would break open the skin, exposing the scabies and releases the puss from their burrowing which caused the infection.
After sanding my scalp, I rinsed my head, and of course there will be some pinkish blood in the sink, but not a lot. Then I took the liquid sea salt and poured it on my scalp. Yes, you can bet it burns. But I had enough of battling scabies.
So, after sanding and then pouring the sea salt liquid on my scalp, I let it set a minute until the burning stopped (it will stop burning)... hang in there.
Next, I took about a teaspoon of dry sea salt and put it in the palm of my hand and then rubbed the heck out of where I sanded which is basically sanding my scalp with sea salt. Yes, you can bet that burns, too ...It will be worth it because this will get rid of scabies for good in only two weeks....Hang in there, the burning will stop after about one minute.
I rinsed my scalp clean of all salt, and then took paper towel and dabbed my head dry (yes, the paper towel will be pink-ish with blood).
I repeated this process every other day (sometimes every other-other day) for two weeks (about 6 times total). After only TWO WEEKS is all it took. The scabies and infection were gone... for good.
I also went out and purchased 7 CHEAP pillow cases. I changed my pillow case each day.
It might scar your scalp or skin wherever you sand, I don't know because I've never looked at my scalp to see. Scabies also scar the scalp, so I figured it didn't matter. I wanted the scabies gone....They are gone.
I tried many things, and the permetharin crap does NOT work. Oat meal doesn't work, starving them of oxygen with vaseline doesn't work. Bleach doesn't work. Hydrogen peroxide doesn't work. SANDING and SALT absolutely works.
BuggedOut

Tucson, AZ

#105 Oct 23, 2014
Magda Petit wrote:
Doctors don't know everything about scabies. I had five rounds of ivermectin until I got cured with a combination of medication & essential oils. Much persistance was needed, two doctors seen (one an asshole, the second a good one). I also got BIG sores on my back, torso, neck, arms, and legs (doctor called it nodular scabies). It's been one month now.I am cured, I don't feel crawling, I don't have fresh bites. Calendula oil helps a lot. YOu buy 100 grs dried calendula and let it soaking in almond oil for one week, then sieve it. Add some drops of teatree oil (just a little, it can BURN your skin - and also kills mites). Apply it twice a day all over your body. Treat yourself with mild products - no strong soap, no strong shampooing, nothing. YOur skin is still shedding debris that are INSIDE it and desperately trying to heal itself. You will get better. Also, try some vitamins - cod oil, ADE vitamins, E vitamin. Don't overdo. Keep washing clothes & cleaning house for at least 10 days. Have faith. You will heal. Best wishes.
I've had scabies for a little over three years. Went to a new doctor, a recent graduate, and she had the nerve to tell me "No one can have scabies for three years." I wanted to punch her. Where can one buy 100 grs. dried calendula?

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