Post-Scabies Treatment Eczema

Post-Scabies Treatment Eczema

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Fellow Sufferer

Morganza, MD

#1 Jan 16, 2007
I've suffered with Scabies since August. I know firsthand the physical torment, and worse, the mental anguish. Fortunately, I have had a doctor that has always been willing to treat. Originally, I used weekly treatments of 5% Permethrin. I used a total of about 6 tubes over about 6 - 8 weeks. Finally, through online research of my own, I discovered the Ivermectin article published by the physician in York, PA. Armed with this, I visited my physician and he prescribed the Stromectol. One week later, I followed up with him and took info that I had found on the Johns Hopkins Infectious Disease website. This info showed that it was best to prescribe a second dose of Ivermectin 7 to 10 days after the first. It also noted that severe cases (mostly seen only in immunocompromised individuals) may require combination therapy (Ivermectin and 5% Permethrin cream simultaneously). Because I had suffered so long, my second dose of systemic Stromectol was combined with topical 5% Permethrin. Since then, I've followed up with two additional full body Permethrin treatments. I have noticed that after about one to two days following my Permethrin treatments, I started seeing new bumps/itch. Previously, these used to take a week to occur. I also noticed that these bumps were a little smaller and also subsided in a day or two (but I would immediately hit them with more Permethrin cream, if for no other reason than my own mental sanity). I also read on this forum that other sufferers had made that the EXACT same observation. I'm a scientist by degree. As such, I believe in the medical study literature that has been published. In all of the studies that I have seen that evaluate treatment medications, 100% cure rate is achieved. It's true that this cure rate for some patients required multiple treatments, and or combinations of treatments. Almost all of us on this website have had many, many treatments and also different types of treatments. We’ve even invented some. I have come to the conclusion that my Scabies has long been cured, and that I am suffering from a post-scabies type of eczema brought on by the scabies and the treatment creams. Since my last Permethrin treatment, I fought the urge to retreat when bumps and itch arose. Instead, I used Benadryl cream and lotions. I am happy to report that this is really helping, and my symptoms become less it seems each day. There is other evidence on this forum as well to support this post-scabies treatment skin condition. I have read that some of you are still suffering with itching and bumps, while boyfriends, sons, or other close contacts are no longer symptomatic (I personally live alone). I think this may just be further evidence that the scabies are eradicated, and that some people, like you and me, have skin and immune systems that are hypersensitized due to all the repeated treatments. (CONTINUED IN NEXT POST)
Fellow Sufferer

Morganza, MD

#2 Jan 16, 2007
(CONTINUED FROM PREVIOUS POSTING)

I know this is long, but certainly not as long as we've all suffered. I have read posts by other fellow sufferers on another posting forum. They have come to the same conclusion that I have. There is also evidence of this post scabies eczema in literature. The literature only refers to this occuring in infants, but it does seem to correlate with many of our symptoms expressed within the posts here, and many adults as well in the other posting forum.

I hope this helps some of you. I know it is hard to believe, and it takes a Herculean effort to not apply more treatment. Please, stick it out. Go with the Benadryl, you may become pleasantly surprised in a weeks time. Of course, if my situation changes and I believe I still have an active infestation, I’ll be sure to let you all know. Although I have never posted before, this posting board is the only thing that has kept me sane for the last few months. It really helped to know there were others out there and that I am not crazy for feeling like I was the only one who could not find relief from scabies.

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scabicide

Les Ulis, France

#3 Jan 21, 2007
Fellow Sufferer wrote:
Hey there,

You are making an excellent point.
The question is this: if you stop all treatment, and your symptoms start getting worse, what do you do?

In 2 weeks, an egg can develop into a mature female, that will burrow and start laying eggs. Once you get to this stage, eradication again becomes more difficult, because eggs are hard to kill.

2 weeks is really not a long enough time to convince yourself that you are OK. We are all so traumatized, and some of us who, after a long struggle are arguably clear of the mites are still paranoid of going back into the mite hell.

At the slightest itch, I still spot treat with a topical, because I do not want to take a chance.

There is the unresolved issue of : where the hell did I get it in the first place? If you do not know the answer, there is always the fear "I can get it again".
Been There

United States

#4 Jan 21, 2007
scabicide wrote:
<quoted text>
Hey there,
You are making an excellent point.
The question is this: if you stop all treatment, and your symptoms start getting worse, what do you do?
In 2 weeks, an egg can develop into a mature female, that will burrow and start laying eggs. Once you get to this stage, eradication again becomes more difficult, because eggs are hard to kill.
2 weeks is really not a long enough time to convince yourself that you are OK. We are all so traumatized, and some of us who, after a long struggle are arguably clear of the mites are still paranoid of going back into the mite hell.
At the slightest itch, I still spot treat with a topical, because I do not want to take a chance.
There is the unresolved issue of : where the hell did I get it in the first place? If you do not know the answer, there is always the fear "I can get it again".
Perfectly said. Thank you.
Been There

United States

#5 Jan 21, 2007
For me, itching usually leads to new bumps. I still wonder. Are these new bumps due to live mite activity or to histamine reaction to breaking up of dead mites and debris?

Crawling then itching then bumps is a sure sign of live mites, in my opinion.
scabicide

Nürnberg, Germany

#6 Jan 24, 2007
Been There wrote:
For me, itching usually leads to new bumps. I still wonder. Are these new bumps due to live mite activity or to histamine reaction to breaking up of dead mites and debris?
Crawling then itching then bumps is a sure sign of live mites, in my opinion.
Well, here is the thing.. If you apply a topical, the bumps and the itching tend to go away. Is this not so?
I would suspect mites then. Or we are all mad as a hatter.
Been There

Vista, CA

#7 Jan 26, 2007
scabicide wrote:
<quoted text>
Well, here is the thing.. If you apply a topical, the bumps and the itching tend to go away. Is this not so?
I would suspect mites then. Or we are all mad as a hatter.
After applying topicals, some individual bumps start to dry-up but others continue to itch and are inflamed. Could be mite material or bacterial infection.

Burrows and larger bumps continue to be itchy and take much longer to heal. Some bumps surrounding a burrow may show up a day or two later. I never am completly sure if these bumps are from more live mite activity or due to the breaking up of dead mites or their debris.

Any new bumps found in a new body area are considered new activity.
Mary

Dade City, FL

#8 Feb 14, 2007
My husband and I have had the long (6 months) misery of scabies, first trying to get a diagnosis and then adequate (timely) treatment. We also found that repeated treatments of ivermectin plus lindane on a 5 day basis finally eradicated them.
The difference between an active case and a skin reaction to the debris? We found that if we rubbed or lightly scratched the spot, it would stop. Active cases don't.
Gradually over two months now the itch has become less frequent and seems to come on a 7 day basis.
What helps? Cortisone cream, but use it sparingly because the cortisone can cause a systemic reaction. Good "regular" lotion also soothes the skin. A Benadryl table taken at bedtime also seems to calm things down as does vigorous scrubbing with a bath brush, loofa, etc..
Does anyone have any ifo and how long this "after-itch" lasts? My demermotologist said it would repeatedly "come back", but didn't say how long it would continue. We have been "cured" for two months now, but my skin remains highly sensitized to any rub, tight clothing or environmental irritation. I find that the sites rotate in their itching pattern!
Unfortunately our episode went on so long we also had places on our faces, ears and nostrils. Those places seem to "return" more often.
It is too bad that the medical community doesn't have a verified program to treat this.
Been There

United States

#9 Feb 14, 2007
Mary wrote:
My husband and I have had the long (6 months) misery of scabies, first trying to get a diagnosis and then adequate (timely) treatment. We also found that repeated treatments of ivermectin plus lindane on a 5 day basis finally eradicated them.
The difference between an active case and a skin reaction to the debris? We found that if we rubbed or lightly scratched the spot, it would stop. Active cases don't.
Gradually over two months now the itch has become less frequent and seems to come on a 7 day basis.
What helps? Cortisone cream, but use it sparingly because the cortisone can cause a systemic reaction. Good "regular" lotion also soothes the skin. A Benadryl table taken at bedtime also seems to calm things down as does vigorous scrubbing with a bath brush, loofa, etc..
Does anyone have any ifo and how long this "after-itch" lasts? My demermotologist said it would repeatedly "come back", but didn't say how long it would continue. We have been "cured" for two months now, but my skin remains highly sensitized to any rub, tight clothing or environmental irritation. I find that the sites rotate in their itching pattern!
Unfortunately our episode went on so long we also had places on our faces, ears and nostrils. Those places seem to "return" more often.
It is too bad that the medical community doesn't have a verified program to treat this.
Thank you so much for your post. You help me confirm my belief that a 5 day duel treatment schedule is most effective in persistant cases due to delayed treatment or other causes.

I am using Ivermectin every 5 days in conjunction with benzoyl benzoate. In addition I treat my invironment with permethrin/IGR/PBO and use Benzoyl Benzoate/alcohol spray and as a laundry additive.

My dog and I both are having a heck of a time getting rid of this.

May I ask how many treatments of Ivermectin and Lindane you used? And what does of Ivermectin did you take for your body weight?

I am not cured so it's difficult to for me to comment on post cure itch. My skin is sensitized and I itch day and night. As you mentioned, the itchcy areas rotate.

Thank you again for you input. Very much appreciated. Bless you, and may you stay mite free.

Since: Jan 07

United States

#10 Feb 26, 2007
Mary wrote:
My husband and I have had the long (6 months) misery of scabies, first trying to get a diagnosis and then adequate (timely) treatment. We also found that repeated treatments of ivermectin plus lindane on a 5 day basis finally eradicated them.
The difference between an active case and a skin reaction to the debris? We found that if we rubbed or lightly scratched the spot, it would stop. Active cases don't.
Gradually over two months now the itch has become less frequent and seems to come on a 7 day basis.
What helps? Cortisone cream, but use it sparingly because the cortisone can cause a systemic reaction. Good "regular" lotion also soothes the skin. A Benadryl table taken at bedtime also seems to calm things down as does vigorous scrubbing with a bath brush, loofa, etc..
Does anyone have any ifo and how long this "after-itch" lasts? My demermotologist said it would repeatedly "come back", but didn't say how long it would continue. We have been "cured" for two months now, but my skin remains highly sensitized to any rub, tight clothing or environmental irritation. I find that the sites rotate in their itching pattern!
Unfortunately our episode went on so long we also had places on our faces, ears and nostrils. Those places seem to "return" more often.
It is too bad that the medical community doesn't have a verified program to treat this.
My itching has completely stopped, and I no longer get any rash or itchy areas. Like Mary said, when I did get them, it was always in the exact same spots on my body--very suspicious. These spots were where I had active outbreaks when I was infested. For me, the problem areas were the top of my right hand, my back, and my calves and thighs--but always in the same exact spots on those body parts. There was nothing special about those parts of my body. This is why after all the treatments that I took, I found it really hard to believe that the scabies would keep setting up shop in the EXACT locations on my body every time. Once I started treating with Benadryl, lotions, and steroid creams (prescription), it really helped. I feel really confident that I am completely cured. Because of this, I wanted to check in and see how you all were doing... Sounds like Mary is finally cured and on the road to full recovery.

Being single, I can actually date again--which is kind of nice...lol.

Don't lose hope, people. There is more than enough info at your fingertips throughout the posts on this forum to get you through this horrible thing.

Good Luck...
SUSAN

AOL

#11 Sep 18, 2007
My lover and I were misdiagnosed for scabies, by two different dermatologists. Eventually, we were diagnosed properly, and treated. I have treated myself three or 4 times, with the Permethrin cream. I laundered my bedding, clothes, daily and dried my pillows daily. Vacumed and flipped my mattress, and more laundry. I have been back to my dermatologist weekly to view anything that may even resemble a scabie reinfestation.....my dermotologist keeps telling me that I do not have scabies. That this is post scabies, itch. I would think that if I still had scabies, I would be totally infested by now...because it has been months. I keep feeling, crawly feelings on my body, and then I itch. I have tried to look at my skin or areas of itch, as close to my eyes as I can ..to see if I see anything at all on my skin. THank God I havent seen anything...no new bumps, bites, etc. But I am still rather itchy. I am scared to get involved with a new boyfriend...because is it safe for him to sleep in my bed??? I have brought new pillows, but do I need to purchase a new bed? I have two children, and thank God to date they have not caught scabies from me. I would think that I am over scabies..or by now they would have gotten it. How can I get rid of the crawly itchy feeling. Almost feels like a little but crawls over me in different spots, and sometimes I feel like a pin prick (bite??) which I never felt when I was infested with scabies. At wits end....Help!!!! I no longer am in contact with the person that gave these things to me. I wouldnt wish this on an enemy.///
Mary

Hollywood, FL

#12 Sep 18, 2007
SUSAN wrote:
My lover and I were misdiagnosed for scabies, by two different dermatologists. Eventually, we were diagnosed properly, and treated. I have treated myself three or 4 times, with the Permethrin cream. I laundered my bedding, clothes, daily and dried my pillows daily. Vacumed and flipped my mattress, and more laundry. I have been back to my dermatologist weekly to view anything that may even resemble a scabie reinfestation.....my dermotologist keeps telling me that I do not have scabies. That this is post scabies, itch. I would think that if I still had scabies, I would be totally infested by now...because it has been months. I keep feeling, crawly feelings on my body, and then I itch. I have tried to look at my skin or areas of itch, as close to my eyes as I can ..to see if I see anything at all on my skin. THank God I havent seen anything...no new bumps, bites, etc. But I am still rather itchy. I am scared to get involved with a new boyfriend...because is it safe for him to sleep in my bed??? I have brought new pillows, but do I need to purchase a new bed? I have two children, and thank God to date they have not caught scabies from me. I would think that I am over scabies..or by now they would have gotten it. How can I get rid of the crawly itchy feeling. Almost feels like a little but crawls over me in different spots, and sometimes I feel like a pin prick (bite??) which I never felt when I was infested with scabies. At wits end....Help!!!! I no longer am in contact with the person that gave these things to me. I wouldnt wish this on an enemy.///
I know people on here are going to say post scabies, but the big clue here is when you said you felt the pin prick BITE. That's me. Bites and crawlies. You should be able to see a red mosquito looking red bite, where you feel the bite, especially the next day. Do you see anything? I would hold off on a new boyfriend, until you find out what's going on. You may be animal scabies.
Mary

Hollywood, FL

#13 Sep 18, 2007
SUSAN wrote:
My lover and I were misdiagnosed for scabies, by two different dermatologists. Eventually, we were diagnosed properly, and treated. I have treated myself three or 4 times, with the Permethrin cream. I laundered my bedding, clothes, daily and dried my pillows daily. Vacumed and flipped my mattress, and more laundry. I have been back to my dermatologist weekly to view anything that may even resemble a scabie reinfestation.....my dermotologist keeps telling me that I do not have scabies. That this is post scabies, itch. I would think that if I still had scabies, I would be totally infested by now...because it has been months. I keep feeling, crawly feelings on my body, and then I itch. I have tried to look at my skin or areas of itch, as close to my eyes as I can ..to see if I see anything at all on my skin. THank God I havent seen anything...no new bumps, bites, etc. But I am still rather itchy. I am scared to get involved with a new boyfriend...because is it safe for him to sleep in my bed??? I have brought new pillows, but do I need to purchase a new bed? I have two children, and thank God to date they have not caught scabies from me. I would think that I am over scabies..or by now they would have gotten it. How can I get rid of the crawly itchy feeling. Almost feels like a little but crawls over me in different spots, and sometimes I feel like a pin prick (bite??) which I never felt when I was infested with scabies. At wits end....Help!!!! I no longer am in contact with the person that gave these things to me. I wouldnt wish this on an enemy.///
If you are still infested, then, instead of buying a new bed, buy an air mattress, until everything subsides. Have you tried using ivermectin? It has cured alot of people on this forum. do you have pets?
divina27

Brooklyn, NY

#14 Sep 19, 2007
I do feel crawlies. But are we supposed to feel them? These mites are very small. Is that heightened awareness and sensitive skin due to treatment?

I didn't feel crawlies before I was diagnosed with it. Care to speculate?
SUSAN

AOL

#15 Sep 19, 2007
Mary wrote:
<quoted text>
I know people on here are going to say post scabies, but the big clue here is when you said you felt the pin prick BITE. That's me. Bites and crawlies. You should be able to see a red mosquito looking red bite, where you feel the bite, especially the next day. Do you see anything? I would hold off on a new boyfriend, until you find out what's going on. You may be animal scabies.
I dont have any animals. I have no red bite marks...nothing visible. I am feeling like I want to see a shrink. My head even itches at times. I have used lice shampoo three times...have had people look in my hair, etc. It seems when I am busy, I am not so focused on my skin, and I dont itch as much. I was on vacation for a wk...didnt itch, but got itch as soon as I got home.........could I be allergic to dust mites??? My feet are itchy, and feel that crawly sensation. I just want to get this nightmare over with once and for all. Are there any skin tests that could check to see if anything is going on in your skin>
SUSAN

AOL

#16 Sep 19, 2007
divina27 wrote:
I do feel crawlies. But are we supposed to feel them? These mites are very small. Is that heightened awareness and sensitive skin due to treatment?
I didn't feel crawlies before I was diagnosed with it. Care to speculate?
I never felt that crawly feeling when I was really infested...and I had never felt the pin prick (bites) when I really had the scabies. ITs making me crazy....at wits end. I keep telling myself, that IF I still had scabies..I would be covered, or infested like all the pink pictures you see online....but the bottom line is...I do still itch...HELP

Since: Aug 07

Kelvin Grove, Australia

#17 Sep 24, 2007
I too experienced things similar to Fellow Sufferer. It is really hard to believe you arent infested once you are cured.

I have gone through almost everything listed on these forums, and spent a lot time going through the scientific literature. Also just just recently I had a chance to meet with one of Australia's foremost experts on the subject.

I have posted my whole story and my aggressive treatment plan in greate detail. I have summarized some of the most insightful of the research I read. I have posted my experience with post scabies/post treatment. And I just added some details about my meeting with the parasitologist I mentioned above.

This is all posted on Progress' Scabies Forum.

A lot of what I say on it may fly in the face of what some other people here believe and what you may actually be sensing yourselves.

So take it or leave it, but I recommend at least reading it because there is a lot of stuff on there that no one else has discussed or mentioned on any of these other forums.

Goodbye and good luck.

Progress
Ray

Kansas City, MO

#18 Oct 14, 2007
I am experiencing something similar to what many of you have posted, though it is on a much longer time scale. I was wondering if there is anyone out there who could relate.
I had scabies when I was 8 or 9--on my hands. The most severe area that persisted the longest was my left index finger. There was an area on the middle segment where the skin damage was pretty bad, with some deep ugly scabbing going on.
The scabies was eventually cured--I don't remember how long it lasted, but it seemed like forever to me at the time. I'm now 25 and was diagnosed with eczema at that exact same location (the midle segment and knuckle of the left index finger) a few years back. Basically I get the vessicles, itching, and cracking, and it is most pronounced in the winter months.
The physician who diagnosed me said there was no relation, but I can't help but think it is an enormous coincidence. Could it be possible that there was some permanent damage that make me susceptible to eczema in later years?
I know this isn't quite the same thing others have been talking about, as the eczema is mostly right after the scabies, during the healing phase, but I can't help but get the feeling it is related in some way.
Does anyone else have experience with long-term eczema on the same areas s/he previously had scabies? Has anyone come across any literature that might support this?
Thanks for your help, and good luck to everyone!
mite hater

Mechanicsburg, PA

#19 Oct 17, 2007
Hi. I have had scabies for 6 weeks now. It has been the worst 6 weeks of my life! my 2 kids (18mo and 4yrs)and my husband also have them. my Kids seem to have them less severe than my husband and I. We have all used permithern 5%cream 3 times now. I feel good and think its finally gone till day 4 then I start itching really bad, along with bites(pin pricks) and red bumps. before we used the cream we tried tea tree oil, which seemed to keep them from getting worse but did not take them away. when we quit using the tea tree oil our bites got twice as bad. I wash and dry clothes and bed linens after every use.vacume my couches 2x a day and put clean sheets over top of them everyday. we all have plastic covers on our matresses and pillows. I have read about people applying the permitherin cream again even though they were cured because they thought they weren't cured. I thought maybe that was my problem.. that I was reaplying when I shouldn't be but my concern is that I get bumps that look like scabies in areas other than the areas I keep reaplying the cream to ( because I'm paranoid ) like my knuckles. after each of the 3 treatments My knuckles started getting itchy and feeling "infested", but I didn't keep obsessively apply the cream to them. I don't want to keep using the cream,I feel horrible each time I put it on my kids. And from what I've looked up on the internet the sites say the mites don't go on your scalp, but my head is the itchiest and I have bumps along my hair line and my scalp. I'm looking into seeing a dermatolagist within the next week but any info will help.I feel very lonely and have not been able to visit my family and friends for almost 2 months so I don't infest them. Do you think I could be the most infected cause I'm the one handling the clothes? I know its scabies becuse we contacted it through my nephew who was diagnosed with it and his whole family was treated with permitherin cream 1x and healed.sorry for rambling. thanks for listening
zooks ID

Orlando, FL

#20 Oct 17, 2007
mite hater
I am in about the same position as you are, so I am not a wise mite person yet, but I will share what I know.
We also put permethrin on. My kids and husband cleared up and that seemed the end, but after putting it on myself 2 more times, it seemed I might have just as well been putting water on.
Anyway yes I believe that the mites do go into your hair, that has been my experience as I took tones and tones of borax/pepperment enzyme baths,(oh and I tried the tto as well) so my legs and arms and torso are free but instead I believe I chased them into my upper back neck and scalp - horrible, and much harder to reach.
So I have been taking some good advice from this board. Yesterday I rubbed sulphur mixed with lotion on my skin and washed it into my hair and left it on. Well I had the best most restful sleep I have had in 4 weeks. No bumps, No movement, Nothing. I am not 100% sure how safe sulphur is, but one thing I do know is that it is safer than permethrin!!!! SO if you are like me and desperate you might give that a try (I actually went to a feed store and brought high yield sulphur, its used for plants I think, and mixed it with baby lotion I am going to use it for a while)
Anyway I know what you mean about feeling lonely, it is such a burdon, and really weighs you down, its hard on everyone and though I have never had a depression problem I can see that these things are pushing me awfully close to developing one, along with possibly a compulsive disorder too (frenzied cleaning that we all do - by the way are you using borax, that seems to help wonderfully, I put it in my carpets, laundry and as of last night underneith the plastic sheeting on my bed.)
anyway good luck, and as I keep telling myself this will pass - at least the sulphur has me feeling optimistic (by the way I also used ivermectin and that didnt do anything, but I am going to give it another try with grapefruit juice and better timing etc, these posts really have great insite and answers)
How are your kids coping, its really hard on mine not being able to go over to their friends houses and play - and I told the school, so I hope they dont get teased. What a drama - who would have ever imagined going through something like this!
We definately caught ours from a motel room (I felt pin pricks all night and thought it was fleas) anyway good luck with this, and keep optimistic, you will find something that works for your family

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