TiredofItching

Fredericksburg, TX

#149 Nov 14, 2013
I am currently in my 5th month of this horror. I got scabies from my ex boyfriend. I wish I had NEVER gone to see him..it was a bad trip then and I've been paying for it every since.
About 6 weeks or so after our visit..I broke out in blisters and bumps all over..especially my feet, legs and private area. Then they spread to my arms..and by then I itched so bad I could hardly sleep. I had no idea what in the heck was wrong with me and finally went to the doctor. He put me on steroids..and gave me hydroxyzine for the itching.
I did the permethrin treatment...three times..with no luck. Then I tried the Kwell..all that did was make me sick for three days. Then I did the Eurax treatment..no good. I have changed my location 3 times during this time. I finally moved into my own house..which does not have carpet thank goodness. I think things would be worse if it did have it.
I have given up on the doctors and started treating myself. I've tried various things..but I think I've finally settled on a routine that will take about a month but that I have confidence will work. I've been studying what the scientists are saying and doing about this horror..and they agree that the usual treatments are no longer working. Doctors seriously need to get caught up to speed.
I have been taking Ivermectin injectable orally..but while it has helped to keep somewhat under control..it has failed to eliminate them. I was also spraying it on myself topically..but again it just didn't quite kill them.
I do believe DE can help in the environment..and of course I do my laundry with borax. I have also heard that spraying everything with Windex is very good. You need to spray it on everything and then leave the house for a bit. I put a dust mite/bed bug proof zippered cover on my mattress and pillows..with vinyl covers over that..so they are all double covered. When I take the bedding off..I spray down all of them with permethrin I mix myself from concentrate..and spray the inside of my shoes every night with it.
I have started putting Cydectin (Moxidectin) cattle pour-on all over my skin..and I discovered today and after reading this article

http://www.medscape.com/viewarticle/805780_5

..that you can also get it to take internally, and plan to get the Quest Moxidectin horse gel and start taking that. I was doing just the topical because up until tonight..I didn't even know there was a way to take it internally.
From what I have read since..taking it internally once per day..and putting it on topically once per day and leaving it on..every day for 30 days..plus all the usual stuff..laundry care w/borax and Windex/Permethrin/DE around the environment..will finally put this nightmare to rest.
I do think..that this disease..has definitely left my skin MUCH more sensitive to everything! Tags and seams of clothing just about drive me out of my mind..whereas before they didn't bother me. I also will give my skin some TLC..I have found that grapeseed oil and especially coconut oil is very soothing. I have been living on Zyrtec for the last several months since my script for the hydroxyzine ran out long ago. One or two Zyrtec helps a lot.
I pray for all of us affected by this..I have NEVER been through such a nightmare in my life..and I hope once it's gone I NEVER have to go through anything like it again. And I hope the scars go away..because my skin looks very bad now. I'm glad it's winter and I can keep my arms covered.
I hope that each of us finds an answer to this terror..and I hope maybe I have helped and this routine might be a cure for you also.
Prayers for healing and best of luck to us all!!
TiredofItching

Fredericksburg, TX

#150 Nov 14, 2013
A couple of other things I forgot to mention..sulphur soap with zinc oxide. I use it daily to guard against infection..and it seems to help some with the rashes that this infection causes. I recommend 3%..because any higher than that and you will smell like rotten eggs. I learned that the hard way..and it's not a good thing when you have to work with other people. But the 3% doesn't make me smell bad and still seems to work.
Also..I got some clove bud oil to mix with the grapeseed oil as strong as I can stand it. I plan to put that on and around the individual new bites. Apparently the Eugenol in clove bud oil kills the mites.
So add those things to the regimine, and pray!
pleasehelpmeee

Sunnyvale, CA

#151 Nov 15, 2013
hey all,
so its been 20 days since treatment, and its been very succesful and my boyfriend and i think that the scabies is completely gone...or thought it was but after a week or so of staying over and sleeping in his bed sheets i think I HAVE IT AGAIN. i noticed a small bump right on my thigh a couple of small pimple bumps, not nearly as itchy as when i had a full blown outbreak of scabie bites all over my legs, back, buttocks, neck, shins, and arms. its been MUCH better as i keep applying cream and doing laundry, washing everything on high heat and making sure i do not wear anything thats been contaminated. my bf however i am very worried about him because he is not washing his clothes or sheets daily now that THE PROBLEM IS GONE, im worried because of him not washing his clothes and tracking in more dirt and debris from outside into his bed he hasn't cleared the problem completely, even tho he did wash his clothes and laundry (everything) 20 days ago and we were treated at the same time. 9 days
I NEED HELP. what to do...continue to wash clothes?? and everything now that i suspect its back, until when can i REST EASY? when the bumps are gone...i tried that and did laundry. but then stayed over at my bfs and got it back again. and he has been cleaning too, so it makes sense if he didn't clean prior to getting home from work, he tracked in the mites from outside or whatever (his car maybe..) and now its back in his home.
im going to get some kleen free for him to spray his house with. until then, he is also using cream so he should KNOW WHAT TO DO.
just praying it will be gone. any suggestions so i don't panic anymore???
pleasehelpmeee

Sunnyvale, CA

#152 Nov 15, 2013
also he doesn't have a vacuum....how important is it to vacuum guys?? i vacuum my room quite frequently because i have carpeting, but he has wood floors. still i see dirt ALL OVER THE PLACE.:( i dont wanna be an annoying mom to him and clean his shit. but i think it would be wise if he did clean his place again and keep his shoes outside.
SMH

Owensboro, KY

#153 Nov 17, 2013
Think back to before the rash appeared. Not just a week or two, but could be over several years. Had anyone of you been running a low grade fever, hair falling out, fatigue, maybe mood swings and/or headaches etc.? Might have been diagnosed with the sudden exploding epidemic of "Fibromyalgia." or diagnosed with the bs Bipolar disorder? Just asking because the above 2 mentioned diseases are usually misdiagnosed overlapping autoimmune diseases. Hard to diagnose because the symptoms often overlap & give a confusing clinical picture. Also, some have these autoimmune diseases and are seronegative (have the disease, but it doesn't show up in the actual bloodwork. Most drs rely solely on those antibody markers to diagnose and often ignore the fact that some are seronegative, so no diagnosis no correct treatment. Your drs that are telling you all that you have scabies, giving you cream for scabies, haven't questioned their original diagnosis when the rash isn't going away with that cream? Might be time to find a new dr. Just my opinion and experience with this whole rash mess. Maybe the drs need to consider thyroid disease with overlapping Lupus. Keep in mind that just because the lab computer marks your results "within normal range" doesn't mean your thyroid levels are optimal for you. Good luck. Also, depression isn't always the cause of something. Sometimes, it's a symptom of something bigger. Same with anxiety . Especially when accompanied by cold and/or heat intolerance.
help

United States

#154 Nov 23, 2013
My son thats two has had scabies for the last 3 months a little over a month ago we started the treatment, the cream 5%. We did It times a week for 3 weeks. And I have been washing everything even shampooed my carpets and couch changed mine and his bed sheets every other night and he is still getting there bumps ALL OVER even on his face. He is miserable. What do I do!! I feel terrible. How did he get this?
sierra mills

Barbourville, KY

#155 Nov 23, 2013
I keep getting bumps on me after I used permethrin cream 5%, does it mean I may have very well been re-infected?
carole

UK

#156 Nov 24, 2013
I have had red bumps on my legs for about two years now. I have been getting more so went to doctors to ask if its scabies. He said no won't are there?
Anonymous

Kihei, HI

#157 Nov 25, 2013
BuggedOut wrote:
I've been dealing with this for a few weeks now. It's important to remember that treatment is 90% effective - and two treatments is almost a guarantee, if applied correctly and bedding/clothing is washed. Due to the nature of the mite, it's not medically recommended to apply pesticides to personal belongings.
After my first treatment (and not understanding the nature of the condition) I was spot treating my hands on a daily basis - mostly because I was afraid to touch everything and everything.
Just as we build a sensitivity to scabies, we build sensitivities to chemicals as well. Meaning - we build a stronger allergy. Plus the perm cream dries out your skin in addition to being a poison that our skin (on a cellular level) probably doesn't appreciate.
The rashes and skin problems that follow scabies and that follow perm. treatment is perhaps worse than a scabies outbreak! The only relief is to constantly take an oral antihistamine, a topical Benadryl spray, combined with strong steroid creams.
Even if there is a reinfestation - it would probably be wise to let the skin heal up before using more of that nasty permethrin. I'm curious to try the borax baths - however my skin is so sensitive that I'd really hate to use something that pulls moisture OUT.
Also, for me - I'm not bothered at night. But no matter what I do, between 9 & 10:30 in the morning, it's pure torture!
Was advised to get enough clothes for two weeks and wash them in hot water and then dry in the dryer. All other clothes needed to be bagged up for two weeks. At the 2 week mark, wash in hot and use dryer again.

Also told to clean out my bedroom AFTER I showed and did permethrin application. I steam-cleaned my bed. Washed my curtains and then vacuumed all the walls as well as the floor. After 8 hours or so, showered again and put clothes aside for washing in hot water, also.
*if clothes can't go into hot water, dry cleaning is suggested but I wash the items and hang them in the sun to dry.

Advised to use Cetaphyl restoraderm all over since I can't reapply permethrin for another week. The Cetaphyl has helped since my skin stays soft and moist and dry scabs bleed easily if given the slightest bump.

It doesn't help that I am a 'bleeder' or that I have a compromised immune system. I try to get sun on the scabs for just a bit every day. I think the scabies don't like the sun or the sun's heat, either. BUT, I can't tell if I've been reinfected or not. My scabs are now larger than the original 'crater' and the scabs are also black since they've bled more than once. I sometimes will be bleeding out of both arms and can't even put pressure on the spots to help slow down the bleeding!

I did however, go out and buy waterproof, non-stick gauze pads, wrap-around gauze and circular mesh for my arms. This has helped greatly so I can sleep at night, although I will bleed while I sleep. I don't know if it's caused by pressure when I toss or turn OR if I am scratching my scabs in my sleep. I have been staying up later than I ought to. Since the nights are chilly here, I often wake up to cold, wet spots from where I've bled overnight. Once I fall asleep, I manage to get in a solid 6 hours or more of much-needed rest.

Showering is the scary part now. I try to leave the bandages on while I shower. I guess pores open up and I don't get dressed right away. I sit on my bed, wrapped in my towel and then check the towel for blood. I can then either apply pressure or just sit back down (if I'm bleeding from somewhere that will get pressure if I stay seated). If I can reach active, flowing bleeding, I'll apply pressure using tissue or a clean cloth (more laundry!). Once it seems like I've stopped bleeding, I carefully get dressed, trying NOT to bump myself anywhere. If I'm lucky, there are no new bleeds occurring.

The itching is not so severe now. I hope & pray it's because the scabies have left my body!
mariko

Kihei, HI

#158 Dec 2, 2013
BuggedOut wrote:
I've been dealing with this for a few weeks now. It's important to remember that treatment is 90% effective - and two treatments is almost a guarantee, if applied correctly and bedding/clothing is washed. Due to the nature of the mite, it's not medically recommended to apply pesticides to personal belongings.
After my first treatment (and not understanding the nature of the condition) I was spot treating my hands on a daily basis - mostly because I was afraid to touch everything and everything.
Just as we build a sensitivity to scabies, we build sensitivities to chemicals as well. Meaning - we build a stronger allergy. Plus the perm cream dries out your skin in addition to being a poison that our skin (on a cellular level) probably doesn't appreciate.
The rashes and skin problems that follow scabies and that follow perm. treatment is perhaps worse than a scabies outbreak! The only relief is to constantly take an oral antihistamine, a topical Benadryl spray, combined with strong steroid creams.
Even if there is a reinfestation - it would probably be wise to let the skin heal up before using more of that nasty permethrin. I'm curious to try the borax baths - however my skin is so sensitive that I'd really hate to use something that pulls moisture OUT.
Also, for me - I'm not bothered at night. But no matter what I do, between 9 & 10:30 in the morning, it's pure torture!
Since your skin seems to be drying out, try a moisturizing lotion like Cetaphil Restoraderm. I find that it helps keep my skin moist but on the down side of things, I am also finding that I am bleeding while asleep. I have additional medical issues: pancreatic cancer, low red count (hemolytic anemia), cirrhosis of the liver and Hepatitis C. I have always had sensitive skin and I feel like I have the worst-case scenario. Just when I think the scabies is clearing up, I'll start bleeding again. I think the insides of my arms are much better but the scabies on my back seem much worse now. I am worried that as the different scabs heal, some of them seem to be infected. I have wrapped my arms in gauze and then gotten them soaked while showering. I then roll the gauze off and some of the scabs some with it. I wonder if an antibiotic cream would help. I don't need to be taking more pills!
I have kept my clothes in another room and left the rest in bags, while I attempt to steam clean my bed - again - and wash my curtains, vacuum all four walls and the ceiling to try and eliminate the source. If I could pinpoint it, that would be a big help.
I've had to stay away from our cats because someone told me they can carry mites from other animals and we have some feral chickens in our neighborhood!
I am trying not to lose my mind because the itching ramps up at night and I can't sleep. Once I fall asleep, I wake up to wet spots from bleeding. Since I bleed easily, I often feel very weak.
Cured

Exeter, UK

#159 Dec 3, 2013
I used permathrin for about 8 months til i looked for other methods. buy a 1 liter spray bottle, peppermint oil and clove oil, clove oil is extremely painful near mucus gland!, add 1/5 of both to the bottle and dilute with water til its full, spray everything, your body (watch out for eyes and privates!), you clothes your wearing twice a day, where you sit and walk. and your bed twice a day.

buy vacuum airtight bags, put all your fabrics in them for 2> days after washing and spray anything you wear.

cheap and effective.

check allergies first though!
itchy

London, UK

#160 Dec 14, 2013
Zac wrote:
Iv had scabies for months and don't countless treatment iv spent thousands of dollars on cream, new bed, clothes, everything and still get bumps, rash and itching? What's this mean? Help? I'm on the edge of killing myself
Zac, you need to make sure you're talking to someone-friends family someone. Don't let this get on top of you. I empathize with you as, I got really depressed about it and was signed off work with stress, plus put on beta blockers. Im still fighting this horrible mite. Contradicting others views on this forum- NEEM DOES WORK! But only in conjunction with other things. Be careful with neem oil though as, I burnt myself with it. A couple of drops in body cream will help with the itching and over time will confuse the mites into not wanting to eat or breed. Wrap your mattress in plastic bags and leave your used clothes/bedding/ coat 7 days in w plastic bag before washing, drying n ironing. I put a couple of teatree drops in my shampoo and wash daily with sulphur soap. Then, whilst in the shower I apply a 6% clove oil to100% carrier oil (I use almond oil) and rub that all over my body avoid your eyes! It burns like hell, but it helps. I think I may have reinfected myself with my shoes as, I've just felt my first bite - pin prick senseation in 2 days, so im on the right track. If I feel like crap or im feeling down, I talk to my friends. Keep your head up and continue the fight. You will beat this! I hope this info helps. Please let me know how you get on. X
SEW

Dumfries, VA

#161 Dec 19, 2013
long timer wrote:
let it go psy,, no point in fighting on here,,i dont know why but my name came up as Ryu in my last posting..lol,,,so what i would like to know again from above before this fight broke out is when you get the nodules on your penile shaft what do they look like,,i get just a few spaced out,small and seem to have just a tiny bit of what looks like water in it,did or does any one else have the same? iam having a hard time with this because its been almost a year and iam still dealing with it,,i was just told 3 weeks ago by my specialist thats what she "thinks" it is and the 5% cream did in fact clear up the rash on my arm (never itched) that looked just like a scabies rash and my last out break on my shaft was the easiest one i ever had/ my partner that i was with for the first 7 months this was happening with was tested twice for herpes and it came back negitive i had a swab test done and it came back clear as well,,iam just so lost i feel like crying at this point
You can have the rash tested for Scabies at certain times. Their are also blood tests for herpes.
Jazzman

Bend, OR

#162 Dec 21, 2013
Okay, so it's normal to get pimples after the perm cream? I'm just making sure, because I did the treatment twice now and now am getting pimples on my face. Also, I put my comforter in the garage because i didn't have a bag big enough to ziplock it, I left it in there for 2 days, and now have it back on my bed. I slept with it on my bed last night, which is when I also did the treatment the 2nd time, I just figured if there were stray bastards that they would get on me and die. I've done everything I can, but short of deep cleaning my life I can't really do anything else. My boyfriend's doctor said to leave things alone that I've touched in recent past for 36 hours, also my boyfriend said that my car was okay because the mites like being on my and wouldn't move around too much. I'm so done with this, I just want to make sure that the scabies are gone.
Alicia ann

United States

#164 Dec 29, 2013
pleasehelpmeee wrote:
hey all,
so its been 20 days since treatment, and its been very succesful and my boyfriend and i think that the scabies is completely gone...or thought it was but after a week or so of staying over and sleeping in his bed sheets i think I HAVE IT AGAIN. i noticed a small bump right on my thigh a couple of small pimple bumps, not nearly as itchy as when i had a full blown outbreak of scabie bites all over my legs, back, buttocks, neck, shins, and arms. its been MUCH better as i keep applying cream and doing laundry, washing everything on high heat and making sure i do not wear anything thats been contaminated. my bf however i am very worried about him because he is not washing his clothes or sheets daily now that THE PROBLEM IS GONE, im worried because of him not washing his clothes and tracking in more dirt and debris from outside into his bed he hasn't cleared the problem completely, even tho he did wash his clothes and laundry (everything) 20 days ago and we were treated at the same time. 9 days
I NEED HELP. what to do...continue to wash clothes?? and everything now that i suspect its back, until when can i REST EASY? when the bumps are gone...i tried that and did laundry. but then stayed over at my bfs and got it back again. and he has been cleaning too, so it makes sense if he didn't clean prior to getting home from work, he tracked in the mites from outside or whatever (his car maybe..) and now its back in his home.
im going to get some kleen free for him to spray his house with. until then, he is also using cream so he should KNOW WHAT TO DO.
just praying it will be gone. any suggestions so i don't panic anymore???
. My boyfriend and I have battled this for six months. We thought oh its over. Then bam 3 or so weeks.. new bumps and itchies. Over and over. time frame always the same. Came across article of post scabies in Vietnamese adopted children lasting for months. and the new bumps and itching would occur about every three to four weeks...this follows our timeline to a tee! Of course we kept treating the second we felt this. So now I think back to original infestation which was entire body crawling and no relief from benadryl etc. I've stopped tx as we've tx mmm at least 20 times. and with ivermectin as well so if you have the new bumps and more localized itchy and its about every three or so weeks and is helped with bensdryl I believe this to be the post scabies horror show. Good luck .it is definitely a life ruined. oh the new bumps and itchy should get less intense as time goes on. they say the longer you didn't know you had scabies...like if you tx at 8 weeks when symptoms show prob a couple months post itchy. if u wait because the doctors are imbecilic wastes of space....well I imagine months. Why is there no more research on this post scabies! Ridiculous. its obviously a wide spread epidemic and when docs say oh post scabies last a month no longer!!?? Why did it take me almost 6 months to find a poorly written research field paper from Vietnam to make this shit understandable?? Come on America. For shame to let your citizens suffer this unbearable mental and physical torture??
Cant you just go away

Hollywood, FL

#165 Dec 30, 2013
Alicia ann wrote:
<quoted text>. My boyfriend and I have battled this for six months. We thought oh its over. Then bam 3 or so weeks.. new bumps and itchies. Over and over. time frame always the same. Came across article of post scabies in Vietnamese adopted children lasting for months. and the new bumps and itching would occur about every three to four weeks...this follows our timeline to a tee! Of course we kept treating the second we felt this. So now I think back to original infestation which was entire body crawling and no relief from benadryl etc. I've stopped tx as we've tx mmm at least 20 times. and with ivermectin as well so if you have the new bumps and more localized itchy and its about every three or so weeks and is helped with bensdryl I believe this to be the post scabies horror show. Good luck .it is definitely a life ruined. oh the new bumps and itchy should get less intense as time goes on. they say the longer you didn't know you had scabies...like if you tx at 8 weeks when symptoms show prob a couple months post itchy. if u wait because the doctors are imbecilic wastes of space....well I imagine months. Why is there no more research on this post scabies! Ridiculous. its obviously a wide spread epidemic and when docs say oh post scabies last a month no longer!!?? Why did it take me almost 6 months to find a poorly written research field paper from Vietnam to make this shit understandable?? Come on America. For shame to let your citizens suffer this unbearable mental and physical torture??
What a troll you are. People are getting cured and moving on. Why all the blah blah on this forum every day. boring to read your same stuff every day here.
You sound like trish. you use a cell so we cant see your location. god only knows why you found a poorly written paper on post scabies. This isn't an American problem, it's a global problem. And Albendazole is not the magic bullet, either.
doctors are imbecilic wastes of space? wow, i guess you will get no help from them if you have that attitude, trish. Open up shop trish, and have at it.
Mary

Mesquite, TX

#166 Dec 31, 2013
I had scabies for over a month, I used basically everything. I'm getting bruises on my body? Is anyone getting this? And why??
judy

United States

#167 Jan 12, 2014
is it normal to get new red little bumps on hands the day after 5% treatment. did it not work or is it to soon to tell
Tiredofitching

Fredericksburg, TX

#168 Jan 19, 2014
I no longer have scabies. I was still getting bumps and rashes, and I went back to the doctor. She took one look at the bumps and said..that's not scabies! So, even though it was difficult..I quit treating myself for scabies and began treating myself for dermatitis...and lo and behold..I am better! I think all the topical treatments were giving me dermatitis, and all the while I was thinking I still had scabies.
It might be a good idea for those who still think that they may be infected with scabies to stop treating for it for a little while..start treating your skin for dermatitis, and see if you get better. I would have bet a million dollars I still had scabies..seriously, when in reality I had given myself dermatitis from repeatedly treating myself for scabies I no longer had. It can look very much the same..trust me. It's only been two weeks since I quit putting stuff on me and taking ivermectin. I am still getting bumps..but they are nothing like when I had scabies and much less of them since I stopped putting on topical treatments. I'm pretty sure my skin was reacting to all the things I was putting on it. But..it is getting much better!
I felt I had to pass this along..I'm sure I'm not the only one who's skin is reacting to all the abuse of things being put on it to treat something you honestly may no longer have! It is worth a try for you to see if you have the same result!!
maraknocka

Charleston, SC

#169 Jan 19, 2014
I must add my 2 cents into this as well,our whole family was treated back in May, I guess somehow we got reinfected again in June and we had to retreat ( son picked up at daycare ), so after spending hundreds of dollars with two full treatments 7 days apart twice, having the carpets & furniture prof. cleaned, both cars cleaned prof, I was washing sheets and laundry daily, it was not as simple as put the cream on, wash your sheets and laundry and poof they go away, I was losing my mind because we kept getting bumps well through the summer, my neck was horrible, our son kept getting pop up rashes on his hands, ankles, head, neck, we treated two more times 7 days apart, it was a nightmare. my clothes itched, our skin was a mess, I was depressed because I didn't know what else I could do, I started using Neem soap, it was not a cure all, but I just figured why not, weve done all these treatments and we took the ivermectin, I had read that Neem would stop the reproduction cycle, not kill them overnight, it is now January, and my skin has improved, I still have rashes and bumps that pop up and our son still gets the rashes on his elbows & ankles and hands, we know longer have scabies now its eczema from the scabies. the itching has greatly improved but scabies is no joke, I say all that to say, all that extra treatment we did was unnessasary, I should have came to this sight and saw soooo many people continue to get bumps, break out for months after they are incially treated, keep your chin up, it does get better

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