My Ivermectin Treatment Story
In_UK2

Haarlem, Netherlands

#1055 Nov 29, 2012
Thanks, Been 8 yrs;
Am going through specialist after specialist in Tropical Medicine Centre presently. General consultation tomorrow with top doctors. We'll see. Symptoms still strong. They (TMC) may wimp out on diagnosis, but am beingfurther helped and pointed toward good experts by friend who was in a multi-million album selling band. It's a battle, but believe you are on the right course. If no joy, will start on your mix suggestion. Will combine with antibiotics and environment move to cold climate as well.
Susie

Bisbee, AZ

#1056 Nov 29, 2012
Great to hear from you.
Been 8 yrs

San Jose, CA

#1057 Nov 29, 2012
Hi UK2,

You may want to try the following as well, should see result in 3 days:


Morgellons CURE, Remedy, HOPE, Healing, HELP, Relief, LOVE, Solution...REALLY WORKS! TheHipsterPipster


Another is nutrsilver which may be able to put it under control. It is expensive but should see result in one week!
In_UK2

Netherlands

#1058 Dec 4, 2012
Conclusion: I have used all the financials at my disposal to see top medical professionals, public and private, outside the USA where I have been living a good part of my life. I have myaisis, now in an advanced stage with a cure is improbable. The Ivermectin (Vermectin from Atlantic Laboratories) first prescribed in large doses over a two month period by two Bangkok Hospitals (Phayathai 1&2) cut symptoms down to almost manageable levels - some days. Lindane was also prescibed daily during this period. When treatment ended and back in Europe with no cure, the oral taking of animal injectable ivermectin (Noromectin and Paramectin) worked as well to the same extent. Pour on ivermectin as a topical after exhausting the Lindane also worked as well, but i had only one 250ml bottle. After all the ivermectin and Lindane used, my tests on kidneys and liver last week at the Amsterdam Medical Centre University Hospital showed no signs of damage. Thank God. I'm almost through arranging my assets and will try to think next on what to do since this is not curable in the same way as a scabies infestation. It can go to the brain from the middle ear, and this scares me, but I assure you at this point I am impeccably sane (as far as my personality allows). My ex partner and friend still has this illness and the doctors gave her a mixture of antibiotical IV's over two and a half weeks in a UK hospital. Also a lot of prescription antibiotics as out patient where she is doing much better. She still has occasional symptoms though. I think the antibiotics keep the fungal and bacteria food source down. We both had Stromectol (Merck) from the Vaccinology and Tropical Medicine Centre, Oxford University, but two doses were not enough and their policy is to send patients back around through GP, dermatologist, blood testing and finally back to them. This is the life long holding pattern they put you through. Shame UK.

I sincerely believe the initial infection came at a time when my monthly finances were being unduely used by others and this triggered my asthma, putting me in the hospital with an oxygen blood level of 72. My immune system was too weak and my frequent subsequent travels to Romania could have presented an infection opportunity. My immune system has since recovered substantially, but the continual ivermectin and myaisis probably kept thing lower than should be.

What I did is not a scabies treatment, but solely writting my journey. These treatments are not recommended for scabies sufferers, although ivermectin may work. This is a scabies forum and my illness is different and very rare. The forum and all it's diverse personalities gave me a place to blog my fight. And i thank you all, even the unusual ones.

Love to Maus and Tennis Racket
Jill

Long Beach, CA

#1060 Dec 4, 2012
UK2
how can u have myiasis when your insects are different. myiasis is fruit fly.

if you don't identify your bug infestation, then you will never find cure.

Since: Oct 12

East Elmhurst, NY

#1061 Dec 4, 2012
Misery, Docs are "warning not to treat the scalp"? That's weird. Why would someone be warned off of treating her or his scalp? Besides that, mites and such burrowing things do go into the scalp. It's such a vulnerable skin and it's covered with hair follicles, which the mites use as hotels.

Clearly, the docs who have never suffered from this stuff have no idea what it is, what it is like and what to do about it.

Separately, I finally discovered that using facial cleanser on your eyes during regular facial cleansing really cuts down the itchies and dryness. I used to keep the cleansers away from my eyes! A childhood carryover from trying not to get soap into my eyes. Things to do: keep eyes lightly shut (not squeezed) and gently massage entire "mask" area (including between the eyes, as well as the brows and the outer corners -- the crows feet area) with a good, gentle cleanser. Yeah, I know it's common sense. But it never occured to me. OMG, Lol!

Be well,

Queen of Outer Space
misery_in_au wrote:
<quoted text>
You know I think you're right Hope. I'm going to try this and keep reducing the numbers- no falling out of mites eggs etc the past four days- proof that the numbers have dropped quite a bit.
on my soapbox again- The protocols from the CDC and those in other countries need changing urgently.
One point: If doctors are advocating cleaning one's environment thoroughly, but warning not to treat the scalp because the mites supposedly don't go there, it defeats the purpose of the treatment. Just because the mites don't necessarily establish themselves in the scalps of all sufferers doesn't mean that they're not present in the scalp or hair or facial features.
I reckon there should be Two changes to the CDC protocol: one should include the application of all topical treatments to the scalp, the same as for the body, and also a recommendation that those with the disease should use a nit comb several times daily to clear the hair of the adolescent mites which hide there, exactly the same way they hide in the environment.
misery_in_au

Sydney, Australia

#1063 Dec 11, 2012
Queen of Outer Space wrote:
Misery, Docs are "warning not to treat the scalp"? That's weird. Why would someone be warned off of treating her or his scalp? Besides that, mites and such burrowing things do go into the scalp. It's such a vulnerable skin and it's covered with hair follicles, which the mites use as hotels.
Clearly, the docs who have never suffered from this stuff have no idea what it is, what it is like and what to do about it.
Separately, I finally discovered that using facial cleanser on your eyes during regular facial cleansing really cuts down the itchies and dryness. I used to keep the cleansers away from my eyes! A childhood carryover from trying not to get soap into my eyes. Things to do: keep eyes lightly shut (not squeezed) and gently massage entire "mask" area (including between the eyes, as well as the brows and the outer corners -- the crows feet area) with a good, gentle cleanser. Yeah, I know it's common sense. But it never occured to me. OMG, Lol!
Be well,
Queen of Outer Space
<quoted text>
Yeah, and those in the profession are STILL warning not to use perm on the scalp- bought some 5% cream today and received the same worn-out admonition from a pharmacist this time, yet again! Jeez, let THEM be in agony and see how they feel with some know-all telling them not to treat it. Was told that perm should not be applied to the scalp, ever. Blardy unbelievable...
misery_in_au

Sydney, Australia

#1064 Dec 11, 2012
In_UK2 wrote:
Conclusion: I have used all the financials at my disposal to see top medical professionals, public and private, outside the USA where I have been living a good part of my life. I have myaisis, now in an advanced stage with a cure is improbable.
Absolutely gutted for you, UK. Thanx so much for updating. Where to now?
As ever, the very best thoughts and wishes for you.

Hope, the antibac dishwash liquid continues to help a bit, along with topical perm and isopropyl alcohol gel, and borax etc. Not clear yet.
Hope

Edmonton, Canada

#1065 Dec 17, 2012
Hello Everyone,
I believe we are misdiagnosed with bird mites or what ever. I have been doing some reading on "Amoeboids". It is a one-celled organism with fibers. Characteristics are very similar especially in reference to the fibers (mode of transportation). They are changelings too. Starting to make perfect sense. I will be going to the Dr today....
Treatment I found online is a combination or Miltefosine, Fluconazole and Albendazole.
I hope you are doing alright UK2.
Blessings!
cured _not_cured_almos t

Saint Albans, VT

#1066 Dec 17, 2012
Hope wrote:
Hello Everyone,
I believe we are misdiagnosed with bird mites or what ever. I have been doing some reading on "Amoeboids". It is a one-celled organism with fibers. Characteristics are very similar especially in reference to the fibers (mode of transportation). They are changelings too. Starting to make perfect sense. I will be going to the Dr today....
Treatment I found online is a combination or Miltefosine, Fluconazole and Albendazole.
I hope you are doing alright UK2.
Blessings!
I read a study where it took the clinicians months to look into the fibers to see the mites.
I have been reading how people who have lyme use those drugs, antibotic and anti fungals. I will go that way too if this borax doesn't work.
Or maybe sooner. Good luck and Hopefully you will share more as you treat yourself.
Hope

Canada

#1067 Dec 18, 2012
I will try to see another Dr today. This Dr prescribed Nizerol Shampoo and an anti fungal cream where I'm suppose to apply it to parts of the skin where and when it felt itchy but not over the whole body. UGHH! He says I have a fungal infection. Why don't they listen!!!

Since: Aug 12

Location hidden

#1068 Dec 18, 2012
In_UK2, please contact me regarding another sufferer. She needs someone to talk to and you are one of the most articulate posters here. Please help, if you can. If anyone knows how to contact UK2, please let me know or let him know that I need his help.

UK2, many of us have been following your journey and praying for you, even though we haven't been posting. Please let us know about your continued progress, even though it may not be relevant to "scabies." I'm sure many of us here have an infestation of something other than scabies, so don't let that prevent you from posting or reading here.

Godspeed to you.
Hope

Canada

#1069 Dec 26, 2012
This may be good news for many of you! I followed the last DR's treatment except I didn't get the cream just Nizerol Shampoo. Twice a week I apply it head to toe and leave it on for 15 mins before rinsing and yes it is working!!! I'm so happy I can show off my skin again! No more crawlies.
I'm quite confident that what started out as scabies (b/c they would painfully cut through under my skin and would also die when I applied oil to them) had progressed to a fungal infection perhaps from the scabies or the meds themselves?
The fungal infection mimics an infestation down to the crawlies rashes and bumps on skin and scalp.
I hope this will help a lot of you!!!
All the best!!!
Hope

Canada

#1070 Dec 26, 2012
Give it a shot...it's worth a try!
Nizerol is located in the dandruff shampoo section.
RobHC

Derby, CT

#1071 Dec 28, 2012
That sounds great, please post new news if you can. Hugs, thinking of you
Hope

Canada

#1073 Dec 28, 2012
haha uh ya well like I said...I have no more crawlies, bumps and rashes on skin have gone and/or are dissappearing, no new marks...and nothing alarming to report.
Nizerol's active ingredient is Ketoconazole and is also contained in other brands of dandruff shampoos, if you can't find that one. There are also other medicated shampoos that will work.
http://en.wikipedia.org/wiki/Tinea_versicolor
Hope

Canada

#1074 Dec 29, 2012
I have done it all...iver, peroxide, perm, bleach, borax....It helped keep the infection down.
In a post awhile back I think it was MIU who hit on Selsun Gold Shampoo. She was onto something, that may work just as well?
The DR recommended the treatment for a month and to return if it wasn't going well. You can take the same or alternative meds orally.
Hope

Canada

#1075 Dec 29, 2012
typo MIA sorry! Hope you are doing well!!
Hope

Canada

#1076 Dec 29, 2012
Shelly W

Los Angeles, CA

#1077 Jan 1, 2013
where ever you are UK2

Iodine is going to help so much!

http://www.jcrows.com/iodine.html

also ivermectin that has praziqantel in it!

There are also pheromone insect traps that will help catch them from in the environment.

Buying the Talstar brand Deltamethrin and making a spray really strong and spraying everything will get them out of your home!!!!!!!!!!

scooby doo, where are you?

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Scabies Discussions

Title Updated Last By Comments
have you had scabies for years post here. (Jul '10) 17 hr Dakota 40
How long does Ivermectin take to work? (Mar '10) Sat Shannon33538 243
Colloidal Silver (Jan '17) Fri DeV 2
Turpentine (Oct '10) Apr 20 Claris 32
100% true cure for scabies/ dont waste money a... (Jan '14) Apr 20 Nurse 29
durvet ivermectin pour on for cattle CURE (Sep '11) Apr 19 Songbird6352 336
Mites butting me Apr 19 EP Endlessly Perp... 3