In Cal

United States

#326 Jul 14, 2012
In UK2 wrote:
:
...My ex and I were at the best hospitals in Bangkok and in the end were referred from the Infectious Disease department at Phaya Thai Hospital Nr. 1 to the head doctor's professor.... the worst case he had seen... daughter... finally transferred her to the tropical disease centre at the UK's leading unversity. Upon my return... biopsy...positive scabies mite... new HIV test (NEG), a prescription of Dermovate steriod cream and a return appointment in a month's time.
Meanwhile, my ex was already being given Stromectol... her scrapping turned up positive mite debris... they are still attempting to find a reason and treatment plan... I transferred from my GP up north to her GP in the south, which involved me having to move in with her... still not received a referral letter from the GP to her specialist at the tropical disease centre, but expect this by tomorrow when the next appointment there is...been treating myself with Ivermectin...caution to people: do not treat with Ivermectin and a topical at the same time. I think this is the reason that I now have an infestation in my sinuses, and I suspect, deep in my throat, because whenever I lay down now, a soft lump arrises from deep in my throat, then top part of my throat and ears start to tingle before bites start being felt on shoulders and arms. My body sores are healing, but now it is primarly new bites on shoulders, forearms and hands, which I sleep on. Anyone else can comment?... I am still hoping (praying now) that a doctor will take a heightened interest in us. I am not the type to self-medicate or try expermental treatments, but the doctors are leaving me, and many of you, in this terrible position.
I'll post more after tomorrows appointment with the specialist at the tropical disease centre.
.
1. Is the Dermovate working at all??? 2. Itchy Scratchy said and I so agree: "immune boosting strategies...
1) Multi-vitamins, several times per day (keep a running heavy stream in your system)
3) Cut down/eliminate sugar, pasta, potatoes, rice, wheat (bread), and corn based products.(Very, very tough to do, I know....).
4) Increase intake of fruits & vegetables
5) Eliminate intake of alcohol & caffeine
Additionally - shower often - I'm talking 3+ times/day. Mites feed on the dead skin cells, bacteria, fungal spores, and skin secretions. Showering elimates much of this, for a short time....it won't rid you of scabies, but it can't hurt to cut off their food supply as much as possible."
Do this stuff. I take GNC Multivitamin Ultra Mega Gold. One pill-great-easy. But forget the mass vitamin C. Jury is still out. Do an Atkins or Susan Summers type diet for the reasons Itchy stated. Also, Loose the weight. Now is as good a time as any. Your immune system will improve as you start moving better. Articulated at every joint is what you need to strive for. Also, my littleist sister said upon getting sinus surgery: every thing you can smell is actually a tiny bit of the real actual product touching your sinuses and I have to be so careful of smells after surgery to prevent infection." I never think of farts the same after hearing that. Ick! Someone's actual poopy dupe inside my nose! Abeit small, still ick! So yes, a microbe of scabies, you betcha I can see how it can get into your ear, nose and throat system. One time I said, "if you have a bronchial infection, just clean the shower with that bleach spray, know how it burns the inside of your nose and lungs? Well its burning them too!" I don't know why I said that, but it can't hurt to clean the shower after using it!:)
itchybitchy in Calgary

Calgary, Canada

#327 Jul 15, 2012
I agree...a super good diet...as you just mentioned is the way to go. B vitamins to calm the nervous system...fruit and berries-blueberries.
I find hydroxyzine 25 mgm (a Rx antihistamine...
Atarax in Canada)good for the itch...super in fact.One at night.
I still have a few but the Ivermectin was the answer I needed from you UK2.
Thanks so much and I wish you and your ex the best...sounds horrible and I was over the edge
with my case!
And yes same thing with the arms, the lump, the nose
Anonymous

Saint Albans, VT

#328 Jul 19, 2012
In UK2 wrote:
Hi all. My apologies for not writing further, but my iphone screen is zapped and I am now back in the UK again.
Here is my update:
My ex and I were at the best hospitals in Bangkok and in the end were referred from the Infectious Disease department at Phaya Thai Hospital Nr. 1 to the head doctor's professor at the goverment hospital. The head said to me that this was the worst case he had seen and suggested an HIV test. I had never considered this because of my lifestyle. Two nervous hours later, a NEG result came back. Back at the hotel, my ex started to freak out and demanded to go back to the UK. A changed ticket ($130) and she was on a flight that evening. I really did not wish to return to the UK and especially without meds. The meds took another week to procure and reluctantly, I returned.
My ex's daughter had brought a complaint against her GP clinic and they finally transferred her to the tropical disease centre at the UK's leading unversity. Upon my return, I went to the GP and tried to get transferred to the same unit. Finally, after a lot of fuss (a lot), I was sent forward to dermatology who took a biopsy by simply scraping a wooden "say ahh" stick across an old healing sore. At least in Bangkok they used an acid and scalping while taking at least six scrapes (positive scabies mite). Oh, they also gave me a new HIV test (NEG), a prescription of Dermovate steriod cream and a return appointment in a month's time. Oh how I hate UK medical.
Meanwhile, my ex was already being given Stromectol prior to any scraping or biopsy. Subsequently, her scrapping turned up positive mite debris. The analysis still says "some form of parasite infestation." What is wrong with the medical profession here?? At least they are still attempting to find a reason and treatment plan. They asked for me to accompany her on an appointment; which I did.
So... I transferred from my GP up north to her GP in the south, which involved me having to move in with her. Note: UK residents will understand the bureaucratic mess and what is involved in all this. This took a further week and also have still not received a referral letter from the GP to her specialist at the tropical disease centre, but expect this by tomorrow when the next appointment there is. Again, I would have preferred to stay in Bangkok and probably should have. Instead, I have been treating myself with Ivermectin as prescribed by the Thai doctors. Incidentally, each hospital does an HIV test and my third, naturally, was also negative: duh.
I also wish to add one caution to people: do not treat with Ivermectin and a topical at the same time. I think this is the reason that I now have an infestation in my sinuses, and I suspect, deep in my throat, because whenever I lay down now, a soft lump arrises from deep in my throat, then top part of my throat and ears start to tingle before bites start being felt on shoulders and arms. My body sores are healing, but now it is primarly new bites on shoulders, forearms and hands, which I sleep on. Anyone else can comment?
My family, particularly my brother, want me to go immediately to the States, but I am fully aware of the logistical aspects associated with this move, plus higher costs etc. I am still hoping (praying now) that a doctor will take a heightened interest in us. I am not the type to self-medicate or try expermental treatments, but the doctors are leaving me, and many of you, in this terrible position.
I'll post more after tomorrows appointment with the specialist at the tropical disease centre.
Saline got them out of my eyes, ears and nose.
Doesn't kill just makes them move.
Gargle with salt water. They hate it, at least mine do. Not sure we all have same mite problem but cheap to try. Good luck.
itchybitchy in Calgary

Calgary, Canada

#329 Jul 20, 2012
Please listen to this.I am having another outbreak and have found something they hate:

TEATREE OIL

Maleluca plant from Australia
Crazylady

Texas City, TX

#330 Jul 20, 2012
itchybitchy in Calgary wrote:
Please listen to this.I am having another outbreak and have found something they hate:
TEATREE OIL
Maleluca plant from Australia
Try clove oil too. Austrailian researchers found that it kills the mites in 15 minutes back in August. It burns like hell but it qworks better for me than the tea tree.
Crazylady

Texas City, TX

#331 Jul 20, 2012
buggin out wrote:
Can some one tell me some cleaning solution to kill these mites and their eggs? Does borax kill all lifestages? Should it be mixed with h2o or just poured on dry? Does it kiill in the washing machine? Ive been boiling everything and im lost and so backed up its scary..sooo much laundry with two toddlers.. help. Lol
I ordered 36 percent permitherin insecticide on amazon.
itchybitchy in Calgary

Calgary, Canada

#332 Jul 24, 2012
if you have a dog she needs to be treated too. they pick up the scabies and need special canine scabies treatment.
itchybitchy in Calgary

Calgary, Canada

#333 Jul 24, 2012
Crazylady wrote:
<quoted text>Try clove oil too. Austrailian researchers found that it kills the mites in 15 minutes back in August. It burns like hell but it qworks better for me than the tea tree.
Thanks
itchybitchy in Calgary

Calgary, Canada

#334 Jul 24, 2012
Crazylady wrote:
<quoted text>I ordered 36 percent permitherin insecticide on amazon.
A guy named Langloiers said to spray with permethrin 38%. The bed, the box spring. I think the bed is super important. I bought a new bed for when there cleared. Also I got rid of my "cloth"couch and got a leather one.
I talked to an American dermatologist, online, dermdoc19 and he said Ivermectin almost ALWAYS WORKS.
I am reinfected due to my dog

These things are so hard. Clean, clean.

Hot water and I think the dryer is really important for killing them in clothes
itchybitchy in Calgary

Calgary, Canada

#335 Jul 24, 2012
Crazylady wrote:
<quoted text>I ordered 36 percent permitherin insecticide on amazon.
lysol too

Since: Jul 12

Brooklyn, NY

#336 Jul 27, 2012
My heart goes to all of you. I am suffering this since April but my guess is that I had it for a long time without knowning. After 20 permethirn and many iver shots. Here I am trying Advantix mixed w freedom 45. When I wasn't getting healed I knew my case was complicated and I show no symptoms but few bites and crawling pinprick. Did Advantix 3 days no shower. Then another 3 days. I wish I did this from day one. But I didn't know any better.
Advantix healed my pimples on my back ( have never had acne before ever) huge pimple on my scalp is gone. Now I am planning on doing Advantix another 8 days w a bleach bath daily. Pinpricks are gone basically even in my head. But movements still there it is more a movement not crawling on skin. I wish I could know what that is. Still have speaks coming off my skin. After 4 months ( crawling and biting was unbearable at first ) now things are better but the amount of specks kind of the same. I am totally isolated have been naked for the past 6 days at home. I am afraid to wear my clothing or my shoes. Bags and shoes are in freezer for days while i am doing this and spraying foor with poison and cleaning floor with borax, bleach and miticide. Sleeping in leather sofa and spraying the hell of it w everything I have twice a day.
I know they live in me more than any other place. I lost so much money and my parents and friends really don't know what is going on. Things are clearing up sensations too. But I am afraid that after these 8 days or 10 things will be back or I will be re infected. I am thinking of doing 30 days of these poison. I don't care. Something has to kill them or kill me.

Since: Jul 12

Location hidden

#337 Jul 31, 2012
Hi All,

I have been reading the scabies topix since Nov2011, gives you idea how long I have been trying to get well. Doctors were of no use, tons of money gone! No one has any idea what your going thru it seems, except the people here on this forum.
This the first week I have felt well in nine months. The major thing I have learned is don't use so much poison, I hate to think what I have done to my inside with permethrin and ivermectin. At least keep the poison on the floor and not yourself so much.

I read so much about sulphur and how it is not so toxic to your body, I decided about six weeks ago to go that route. Been using about 12 tabs a day of 30c pellets dissolved in a bottle of water, I drink half in am other half in pm.

I also made a spray for myself out of the pellets and MSM and keep my skin sprayed with this. Just dissolve it in water, about a dozen or so tabs and one scoop of MSM to a ounce or two of water. Does not show on skin and no smelly creams are needed, but keeps a light layer of sulphur on your skin.

If you do use sulphur,do your research on line first. Just start out with one tab a day to see if you have a reaction. You can buy this at any health food store.
The good thing from all of this is that I am 25 lbs lighter(no more sugar) and am more thankful for everything, don't take nothing for granted.

May God bless you all and may you find what works for you really soon!
Peter

Mandeville, LA

#338 Jul 31, 2012
Did you cure them? I need your help please.!!!!!!

Since: Jul 12

Location hidden

#339 Aug 1, 2012
Peter wrote:
Did you cure them? I need your help please.!!!!!!
I am not qualified to help anyone, just letting this forum know what helped me....

I have had this so long, I can't say if I am cured, but sure do feel better than I did six weeks ago. All the biting has stopped and just have the post scabies itching now. This is a dreadful condition, but everyone is different and needs different care.

You have to do your own research and finds what works for you. I just quit all the toxic stuff and wanted to try natural cures. I overused the toxic meds it made me feel sick and made my skin more of a mess. Also, try not to be stressed out so much, it does just make it worse. Just be aware if you try natural, it will take time, it does not work fast.

If I was not feeling better by now, I was going to see a homopathic doctor for advice. There is also a lot of good info in these forums, just have to research. Will pray for you to find what works for you soon!
alivingmisery

Livingston, LA

#340 Aug 1, 2012
You are absolutely right!!(from my layperson's experience).
The researchers have missed something.
Here's a little well kept secret-- Amoxicillin kills them from the inside out. A protein in the drug attacks their neuro-system and renders them soon paralyzed.
But the near-ban on antibiotics, unless you're dying, keeps theses things going in our society. I am 47 and NEVER in my life had heard of anyone from my generation suffering with this plague.
My grandmother, 1917-1993, mentioned "the itch" to us kids, jokingly-- but none of us knew it was even possible to come in contact with it. Again, antiobiotics had done well in the 40s, 50s, 60s, 70s, 80s, and 90s-- to keep it away. Penicillin was once perscribed for scabies and lice! Did you know that?
You will NOT find anything on the internet about Amoxil as a "cure" for scabies, but if you can get ahold of some, you can prove it to yourself. Make sure your dosing is at high enough and take 2x/day for 2 weeks. The suckers WILL come back though, as soon as you end the treatment. I plan to get on and stay on it for 6 months.
The Lord knows, you get to the point that you will try ANYTHING.
Itchy Scratchy wrote:
I'd be highly skeptical that the scabies eggs could last for years.
However: I do know, for a fact, that I got reinfected from a bed that hadn't been touched in roughly 8 days. From that experience, I learned the "scabies can't live more than 72 hours off a host" is bunk.
Yep, the mites might die after 72 hours (although I am suspect of even this)....but the eggs don't. I figure I was reinfested by recently hatched mites.
Its all fine to be a medical professional. And information from accredited scientific/medical jourals certainly has value. But there is no substitute for experience.
Those who have had scabies for an extended period of time tend to know much more about them than any doctor or researcher. Of course, the ultimate resource would be a doctor who, themselves, has had scabies for years....
<quoted text>
Itchy Scratchy

Mesa, AZ

#341 Aug 1, 2012
Where did you read that antibiotics (amoxycillin) can kill scabies mites?

Interesting if true - but I wouldn't go hog wild dosing on it without definitive proof.

There are good reasons why antibiotics are so regulated. Taken incorrecty and/or taken too often leads to premature resistant bacterial strains.
alivingmisery wrote:
You are absolutely right!!(from my layperson's experience).
The researchers have missed something.
Here's a little well kept secret-- Amoxicillin kills them from the inside out. A protein in the drug attacks their neuro-system and renders them soon paralyzed.
But the near-ban on antibiotics, unless you're dying, keeps theses things going in our society. I am 47 and NEVER in my life had heard of anyone from my generation suffering with this plague.
My grandmother, 1917-1993, mentioned "the itch" to us kids, jokingly-- but none of us knew it was even possible to come in contact with it. Again, antiobiotics had done well in the 40s, 50s, 60s, 70s, 80s, and 90s-- to keep it away. Penicillin was once perscribed for scabies and lice! Did you know that?
You will NOT find anything on the internet about Amoxil as a "cure" for scabies, but if you can get ahold of some, you can prove it to yourself. Make sure your dosing is at high enough and take 2x/day for 2 weeks. The suckers WILL come back though, as soon as you end the treatment. I plan to get on and stay on it for 6 months.
The Lord knows, you get to the point that you will try ANYTHING.
<quoted text>
CrawlyGirl

East Elmhurst, NY

#342 Aug 4, 2012
In UK2...how are you doing? Following your story and hoping for an update!
RHC

Branford, CT

#343 Aug 6, 2012
I just wanted to say that I check in here every week or since May 29th and you are always in my thoughts.

all the best
EMM

Chiang Mai, Thailand

#344 Aug 13, 2012
In UK2,

I went thru 17 pages reading your post with great concern.
I hope you are checking back on this site. Please take a look at this link,

http://morgellonspgpr.wordpress.com/2009/09/1...

and it might be a good idea to contact Dr. Omar M. Amin in Arizona.

Your conditions sounded very similar to the case studies presented. That infestation was opportunistic but not the cause of your conditions. It may be NCS. Please seek advice.
Rey

Calgary, Canada

#345 Aug 13, 2012
High doses of iver messes with vision and coordiantion/balance. Yes it is temporary.

I have found that when one starts to disappear, that is when they are spreading or moving.

I hope your treatment works.

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