Giant hives post-scabies?

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Since: Aug 12

Philadelphia, PA

#1 Oct 9, 2012
Hi, I am about a month into post-scabies/post-treatment (I hope!).

One new thing that is happening is that occasionally I get hives larger than a silver dollar! They are extremely itchy. Prescription cortisone makes them shrink a lot and reduces the itch a lot, within hours. Sometimes I had marks that looked like hives during active scabies, but never humongous like this, and they would spread into small scabies rashes. These do not spread. But, if I scratch them, as I did in my sleep 2 nights ago, I get raised, wide red marks over a foot long! My skin is so WEIRD now.

Does anyone else get mega-hives post scabies and/or post-treatment? I searched the site and nothing came up.

Within a couple inches of the hives are tiny dash-mark lines/scratches, they are very, very thin and short, less than an inch long. Usually dark brown but 1 was pink and I panicked that it was a new burrow. I have had these scratch marks elsewhere without hives. They seem to be what some sores look like as they heal. I wonder if they are where the burrows/eggs were? I have only had 4 of the giant hives. I got a hive on my face with the last set of giant hives on my body (smaller luckily, but can't use the cortisone script on my face so it's still here and still itches) and I never had any scabies rash on my face nor did I treat my face. So this immune reaction to the mite material/meds is all over the place. My scalp still itches too, and I never had a rash there nor did I treat there either, beyond using harsh shampoos.

My dermatologist told me hives are not part of post-scabies and that I must be allergic to a medication that I have been taking for years. I think she's an idiot and I'm going to a new derm in November. Even though I hopefully no longer have scabies, I definitely have eczema now and need help.

I already got hives before scabies regularly (and eczema as a kid, but it looked different), but never anywhere near this big or raised.
lump

Denver, CO

#2 Oct 12, 2012
DesperateInPA wrote:
Hi, I am about a month into post-scabies/post-treatment (I hope!).
One new thing that is happening is that occasionally I get hives larger than a silver dollar! They are extremely itchy. Prescription cortisone makes them shrink a lot and reduces the itch a lot, within hours. Sometimes I had marks that looked like hives during active scabies, but never humongous like this, and they would spread into small scabies rashes. These do not spread. But, if I scratch them, as I did in my sleep 2 nights ago, I get raised, wide red marks over a foot long! My skin is so WEIRD now.
Does anyone else get mega-hives post scabies and/or post-treatment? I searched the site and nothing came up.
Within a couple inches of the hives are tiny dash-mark lines/scratches, they are very, very thin and short, less than an inch long. Usually dark brown but 1 was pink and I panicked that it was a new burrow. I have had these scratch marks elsewhere without hives. They seem to be what some sores look like as they heal. I wonder if they are where the burrows/eggs were? I have only had 4 of the giant hives. I got a hive on my face with the last set of giant hives on my body (smaller luckily, but can't use the cortisone script on my face so it's still here and still itches) and I never had any scabies rash on my face nor did I treat my face. So this immune reaction to the mite material/meds is all over the place. My scalp still itches too, and I never had a rash there nor did I treat there either, beyond using harsh shampoos.
My dermatologist told me hives are not part of post-scabies and that I must be allergic to a medication that I have been taking for years. I think she's an idiot and I'm going to a new derm in November. Even though I hopefully no longer have scabies, I definitely have eczema now and need help.
I already got hives before scabies regularly (and eczema as a kid, but it looked different), but never anywhere near this big or raised.
During the die off your body is overloaded with histamines and toxins. The way it is usually described is that the body is like a bucket, when your body can't handle any more the bucket overflows and you get allergic reactions including itch and rash that can be intense. Get in a hot shower and scrub with a bath brush. Drink lots of water. This too will pass.
ItchyinSeattle

Lynnwood, WA

#3 Oct 12, 2012
DesperateinPA, You can also get red inflamed rashes from using too much cortisone. One article I read said not to use it with scabies for that reason. Have you tried using Benadryl to see if it is an allergy? If it is an allergy that should help.

Since: Aug 12

Philadelphia, PA

#4 Oct 13, 2012
Thanks for your replies.

Lump, I don't think my skin is ready to be scrubbed yet. I've only just been able to tolerate hottish water. Shaving is still a combination of terribly itchy and painful, applying moisturizer asap helps, but it's still hardly bearably for about 30 minutes afterwards, and a new rash pops up that lasts for 1 to 3 days (I'm a woman, so I shave lots of places). I've tried not shaving, but that's uncomfortable too, because then I get chafing and a rash from that. Feels like I just can't win right now.

But it IS getting better-- when I think about the past week, I don't feel like I'm getting better, but when I think about the past 4 weeks, I'm getting much less rashes, hives and itching.

ItchyinSeattle, I am worried about the cortisone too. I now only use it when I have something that is clearly a hive. The dermatologist had me using it over large areas of my body, like my entire thighs, and I think that was bad advice. On the tube is says not to do that, and not to use for more than 2 weeks at a time. I've been using it for a month. Haven't used any in a couple days and just want to phase it out until I see a new dermatologist next month.

With the silver dollar hives, when I had 1 on each leg, I used benadryl cream on 1 hive and the steroid on the other. They both reduced the size of the hive and the itching, though the steroid brought it down more and kept the itch away for good. The benadryl side remained a little itchy and lasted 4 days longer, whatever that means.

I'm on two oral antihistamines, Allegra and Singulair (I was on that already for asthma). Sometimes I add oral Benadryl but I think I am immune to it now, after 6 weeks of nightly use when the scabies itching was crazy. It doesn't even make me sleepy at all at 50mg. Didn't then, didn't now. Switched to ChlorTrimeton and that didn't help either.

But, really, most of my rash is gone at the moment, other than transient hives that are flat, mostly on neck, chest, wrists, inner arms. It's just when I shave again that raised ones will appear. Hopefully that will stop happening too. I think that is eczema? Or the mite crap coming up from the exfoliation of shaving? Or both?
Nick58360

Birmingham, AL

#6 Jan 19, 2013
Desperateinpa how are the hives going? Just googled scabies and hives because my daughter just started braking out in hives after amoxicillin tx and reminded me of 13 years ago. My senior year of high school nearly every close friend I had came down with scabies within 2 or 3 month period. Most cases were transmitted through light physical contact (not sexual). Because so many friends had been diagnosed, a friend that saw me vigorously scratching problem areas told me that I had scabies. After investigating and confirming I had classic symptoms, I got a tube of permethrin cream from md friend and treated. Relief within a day. Within a few days of treatment I broke out with worst case of hives! Large extremely itchy welts all over my body but especially my back. At this point I went to dermatologist and informed that welts started after treating scabies. Dermatologist said I didn't have scabies but hives and that I had misdiagnosed myself. I'm 100% sure I started with scabies just as I was 100% sure that it was hives post treatment before going to MD... The point is that the dermatologist was very wrong and seemed to think that it was impossible that the hives were a side effect of scabies or scabies treatment. Common sense told me that he was wrong because scabies were gone and hives were suddenly there! Zrtec worked amazingly. Claritin not so much. I thought I was going to be on Zyrtec chronically because once a month I would stop taking and the hives would immediately return full force and cover my back with large extemely itchy welts.. This lasted for 8 solid months! After 8th month and a test day without Zyrtec the hives did not and never again returned!
HealingIn WA

Wenatchee, WA

#7 Feb 20, 2013
Thanks Nick58360... I'm going to try Zyrtec! After a few weeks of struggling with scabies (not knowing what it was) I finally went to the doctor. Although it was the walk-in clinic and they didn't test me I know 100% that's what it was - 2 reasons - 1) the person I got it from was later tested & it was confirmed and 2) the Rx cream worked wonderfully. I did my treatment 2.5 weeks ago. A few days to a week later I got what seemed to be clearly hives just on my arms/elbows/hands.(Didn't have scabies there). They are embarrassing, hideous, and can easily bleed if I scratch them. Out of pure panic that I might be having some sort of reoccurance of scabies - or just to make sure I got rid of them I did a 2nd treatment a little less than a week ago. The hives on my arms are worse now. Pretty certain it's an allergic reaction post-treament.(which I'm reading is not that uncommon). I'm really hoping the Zyrtec works. I've tried other OTC meds (generic, Claritin, Benedryl) in addition to a various array of anti itch creams, lotions, oatmeal baths. I need some relief! They are driving me bonkers and it's embarrassing! I will say though, I do continue to take periodic epsom salt baths... seems to help calm and heal the skin.

Since: Aug 12

Philadelphia, PA

#8 Feb 20, 2013
Hello, it's been 4 months since I posted about this, and unfortunately, I still get giant hives for no apparent reason, but less frequently. I've posted more in the "post-treatment eczema" thread that I still have all sorts of skin problems I didn't have before, and the ones I did already have are magnified now. Those damn scabies set off a terrible immune reaction that some of our bodies don't seem to be able to turn off, and we overreact to all sorts of things. Besides the hives, I get what my allergist calls "urticaria," bright red areas and lines and spots, usually across my chest and face, that are flat unlike hives. They are kind of a cross between hives and eczema.(I get them most often when I am feeling emotional, am hot or cold-- it's a guarantee after showers). I also still get some raised red bumps that look like scabies after I shave. It's gotten better, but STILL happens and I've been cured since September.

I take singulair and zyrtec (already was for asthma and allergies) and sometimes a prescription antihistamine, but they really only help my upper-respiratory allergies/asthma, not my skin. Prescription steroids reduce the size when I get hives, but you can't use it on your face.
Zachary clader

Vancouver, WA

#9 Feb 24, 2013
Uv had this same thing for about 4 months, I got treated for scabies 3 times but still have these reourrcing rashes a few times a day.

Since: Aug 12

Philadelphia, PA

#10 Feb 25, 2013
Zachary clader wrote:
Uv had this same thing for about 4 months, I got treated for scabies 3 times but still have these reourrcing rashes a few times a day.
I treated with perm 3 times also, plus 2 doses of Ivermectin. I have a rash and/or itchiness or redness somewhere on my body at all times even after all this time (at times, just 1 tiny spot, at other times, my whole chest is red). It's annoying for sure, but it is not scabies. Allergy/immune problems are way better than what having scabies was like. If your rashes come, then go, then come again, I really don't think they are scabies, I think it is the allergy/immune thing. It sucks, but it's way less disturbing because it means no bugs or their babies or their feces are existing under your skin, and you are not contagious, you can have human contact. Your immune system is simply overreacting, that's all. And it will improve over time. You are going to be ok.
Freewheelin Franklin

Denver, CO

#11 Feb 26, 2013
DesperateInPA wrote:
<quoted text>
I treated with perm 3 times also, plus 2 doses of Ivermectin. I have a rash and/or itchiness or redness somewhere on my body at all times even after all this time (at times, just 1 tiny spot, at other times, my whole chest is red). It's annoying for sure, but it is not scabies. Allergy/immune problems are way better than what having scabies was like. If your rashes come, then go, then come again, I really don't think they are scabies, I think it is the allergy/immune thing. It sucks, but it's way less disturbing because it means no bugs or their babies or their feces are existing under your skin, and you are not contagious, you can have human contact. Your immune system is simply overreacting, that's all. And it will improve over time. You are going to be ok.
The rashes are reaction to toxins being released inside the body. Take some baths with 1/2 cup epsom salt, 1/2 cup sea salt and 1/3 cup ground mustard seed. This is the healthiest way to pull stuff out of your skin. Make the bath hot and stay in for at least 30 minutes. Keep some water next to the tub so you can stay hydrated. I found mustard seed at my health store in bulk cheap then ran it through the blender until it was powder.

You might be surprised what comes out of you.

Since: Aug 12

Philadelphia, PA

#12 Mar 4, 2013
Freewheelin Franklin wrote:
<quoted text>
The rashes are reaction to toxins being released inside the body. Take some baths with 1/2 cup epsom salt, 1/2 cup sea salt and 1/3 cup ground mustard seed. This is the healthiest way to pull stuff out of your skin. Make the bath hot and stay in for at least 30 minutes. Keep some water next to the tub so you can stay hydrated. I found mustard seed at my health store in bulk cheap then ran it through the blender until it was powder.
You might be surprised what comes out of you.
Thank you. Do you think that a hot bath for 30 minutes would be good for someone with eczema and urticaria though? I start to get rashy, itchy and red after being in a warm shower for 10 minutes or so. Or is that the point-- go through the pain/discomfort for 30 minutes straight with the ingredients you suggest and I'll see a decrease in the rashes and redness?
Wendell

Princes Town, Trinidad and Tobago

#13 Jun 21, 2013
I used Lindane treatment for scabies and after 2 days of no more Lindane i broke out with coin sized hives which are very itchy,,,,,,,,what to do tries cortisone and benadryl ...........works but itch is very bad and hives make me uncomfortabe..
nielsen

Oakland, CA

#14 Jul 23, 2013
DesperateInPA wrote:
Hi, I am about a month into post-scabies/post-treatment (I hope!).
One new thing that is happening is that occasionally I get hives larger than a silver dollar! They are extremely itchy. Prescription cortisone makes them shrink a lot and reduces the itch a lot, within hours. Sometimes I had marks that looked like hives during active scabies, but never humongous like this, and they would spread into small scabies rashes. These do not spread. But, if I scratch them, as I did in my sleep 2 nights ago, I get raised, wide red marks over a foot long! My skin is so WEIRD now.
Does anyone else get mega-hives post scabies and/or post-treatment? I searched the site and nothing came up.
Within a couple inches of the hives are tiny dash-mark lines/scratches, they are very, very thin and short, less than an inch long. Usually dark brown but 1 was pink and I panicked that it was a new burrow. I have had these scratch marks elsewhere without hives. They seem to be what some sores look like as they heal. I wonder if they are where the burrows/eggs were? I have only had 4 of the giant hives. I got a hive on my face with the last set of giant hives on my body (smaller luckily, but can't use the cortisone script on my face so it's still here and still itches) and I never had any scabies rash on my face nor did I treat my face. So this immune reaction to the mite material/meds is all over the place. My scalp still itches too, and I never had a rash there nor did I treat there either, beyond using harsh shampoos.
My dermatologist told me hives are not part of post-scabies and that I must be allergic to a medication that I have been taking for years. I think she's an idiot and I'm going to a new derm in November. Even though I hopefully no longer have scabies, I definitely have eczema now and need help.
I already got hives before scabies regularly (and eczema as a kid, but it looked different), but never anywhere near this big or raised.
i got hives before i knew i had scabies and other anaphylaxis symptoms. i went to an immunologist who tested me for just about everything under the sun and i wasn't allergic to any of them. because everyone has an allergic reaction to scabies it's hard to explain why i would have anaphylaxis, but i'm sure that's what it was. the only reason scabies came up for my itching was because my b.f. developed a suspicious rash as well. the hyper allergic responses continued, hives included. i even shot myself with an epipen.

for the first four weeks after treatment i was just as bad off as if i had live mites. it was very hard to have faith i was recovering. now i am seven weeks and the rash comes and goes and periodically itches, but nothing like it did. i have eczema as well and blooms of psoriasis. i'm using a steroid ointment every other day called halog, but mostly i'm finding it critical to keep the entire body moisturized.

i would mention the hives and your belief it's caused by scabies. i would not push the issue though because my experience was that no one wanted to leave conventional thinking behind in any way. it's the first diagnosed disease of mankind, but there's a lot of conflicting information about scabies and frankly i think it's astoundingly unresearched.

hope that helped.
Ccj

Marysville, CA

#17 Aug 25, 2013
DesperateInPA wrote:
Hi, I am about a month into post-scabies/post-treatment (I hope!).
One new thing that is happening is that occasionally I get hives larger than a silver dollar! They are extremely itchy. Prescription cortisone makes them shrink a lot and reduces the itch a lot, within hours. Sometimes I had marks that looked like hives during active scabies, but never humongous like this, and they would spread into small scabies rashes. These do not spread. But, if I scratch them, as I did in my sleep 2 nights ago, I get raised, wide red marks over a foot long! My skin is so WEIRD now.
Does anyone else get mega-hives post scabies and/or post-treatment? I searched the site and nothing came up.
Within a couple inches of the hives are tiny dash-mark lines/scratches, they are very, very thin and short, less than an inch long. Usually dark brown but 1 was pink and I panicked that it was a new burrow. I have had these scratch marks elsewhere without hives. They seem to be what some sores look like as they heal. I wonder if they are where the burrows/eggs were? I have only had 4 of the giant hives. I got a hive on my face with the last set of giant hives on my body (smaller luckily, but can't use the cortisone script on my face so it's still here and still itches) and I never had any scabies rash on my face nor did I treat my face. So this immune reaction to the mite material/meds is all over the place. My scalp still itches too, and I never had a rash there nor did I treat there either, beyond using harsh shampoos.
My dermatologist told me hives are not part of post-scabies and that I must be allergic to a medication that I have been taking for years. I think she's an idiot and I'm going to a new derm in November. Even though I hopefully no longer have scabies, I definitely have eczema now and need help.
I already got hives before scabies regularly (and eczema as a kid, but it looked different), but never

anywhere near this big or raised.
I got hives on my balls after several perm and iver treatments, crotamiton, precipitated sulfur. The hives spread to my lower chest, upper chest, inside arms, and now neck and face. I've been treating for 45 days now. I still get what looks like scabies bumps. Now that I have hives on my face, I'm questioning whether I should do my next perm treatment. What do u think ?
desperateinPA

Baltimore, MD

#20 Sep 19, 2013
Ccj, unless you are living in a situation in which you believe you are getting repeatedly re-infected with scabies, I do not think you have them anymore. I think you now have eczema, urticaria, and super sensitized skin and immune system from having had scabies. You've used perm and several other treatments many times. Do you know where you caught them? If you cleaned your apartment, kept up with the daily laundry for a couple weeks, I can't imagine you'd need another treatment. Your skin probably needs rest. Have you found a good doctor? I can say this after having some perspective-- it's been almost a year since I was pretty sure I was cured. In retrospect, I think I believed I had them for a month longer than I actually did. Then I still had some scares where I thought I had them, because I get not just hives but scabies-looking rashes even today. But I know I no longer have scabies.
desperateinPA

Baltimore, MD

#21 Sep 19, 2013
I don't know why it says I'm in CA (I wish!)-- I didn't log in and didn't enter my name correctly I guess? But I am the same person who started this thread.
Friend

Ellicott City, MD

#22 Sep 20, 2013
When is it safe, if ever, for me to be around a boyfriend who has just gotten scabies,- interestingly he has two big welts (hives?) as well one on his buttock and on his thigh -(we can only think it came from a casino(!) where he had spent days and nights playing slots as well as at tables). He saw a doctor yesterday and got cream and Benedryl but it looks like this goes on forever, comes and goes and is not easily if ever cured. Told him I cannot see him 'til he gets more info. We thought it was poison ivy so I wouldn't let him touch me at all as I am very allergic to that. He does not live with me but we have shared space together (in car together, at tables, but not handling common things as such.) Now I'm praying I don't get scabies as I am a caretaker. Can I really resume a relationship with him?
Katee

Homewood, IL

#23 Sep 22, 2013
WOW! I just wrote on 3 other threads about this before I realized this one was out there. I have broken out in hives all over too, except my back, butt and face/head. The weird part is that those were the places I had scabies the worst.

What I thought caused the hives is that my doc took 4 biopsies off me of bumps I had after my treatment for scabies was completed (2 doses of permethrin & stromectol together a week apart). The biopsies came back this time as folliculitis. The new bumps were larger and still itchy (I think I've seen them referred to as nodules). He gave me an antibiotic and antibiotic lotion to cure the folliculitis. The antibiotic was cephalexin, and when I read about this drug it was linked to giving people hives about a week after use. Also, part of the hive reactions to this was small raised red bumps, that felt like pinpricks when they occurred, that turned into huge hive welts. This was happening to people who took the medication and they were not scabies patients. It was exactly what happened to me so I just assumed it was the cephalexin that caused it.

Now I wonder.

I'm on prednisone and benadryl. The prednisone starts working about 3-4 days later, not immediately. But they are still spreading. Weird though that I don't have them at all on my back which is where the scabies was tearing me up worst.

No answers here, just curious about this now.
desperateinPA

Marcus Hook, PA

#24 Sep 22, 2013
Friend wrote:
When is it safe, if ever, for me to be around a boyfriend who has just gotten scabies,- interestingly he has two big welts (hives?) as well one on his buttock and on his thigh -(we can only think it came from a casino(!) where he had spent days and nights playing slots as well as at tables). He saw a doctor yesterday and got cream and Benedryl but it looks like this goes on forever, comes and goes and is not easily if ever cured. Told him I cannot see him 'til he gets more info. We thought it was poison ivy so I wouldn't let him touch me at all as I am very allergic to that. He does not live with me but we have shared space together (in car together, at tables, but not handling common things as such.) Now I'm praying I don't get scabies as I am a caretaker. Can I really resume a relationship with him?
Friend, I believe it is safe to be around your boyfriend when he is certain that he has been cured. Most people DO get cured. Unfortunately, though listserves like this can be very helpful, the people who are posting the most are the people who have had the toughest cases and keep getting reinfected. So, it looks like people struggle with scabies for years, but that is just not the case. Most people who get this treat a couple times, and though skin irritation persists, they really are cured. If your boyfriend uses the permethrin cream twice, a week apart, and does daily laundry, vacuuming, and disinfecting of other items (cell phone, put items that can't be washed in freezer, etc.) he will likely be rid of scabies, and you can resume your relationship with him. My doctor told me to wait a week after treating to resume physical contact with my boyfriend. That's what I did, and he did not catch scabies.

Since: Oct 13

Marysville, CA

#25 Oct 4, 2013
desperateinPA wrote:
Ccj, unless you are living in a situation in which you believe you are getting repeatedly re-infected with scabies, I do not think you have them anymore. I think you now have eczema, urticaria, and super sensitized skin and immune system from having had scabies. You've used perm and several other treatments many times. Do you know where you caught them? If you cleaned your apartment, kept up with the daily laundry for a couple weeks, I can't imagine you'd need another treatment. Your skin probably needs rest. Have you found a good doctor? I can say this after having some perspective-- it's been almost a year since I was pretty sure I was cured. In retrospect, I think I believed I had them for a month longer than I actually did. Then I still had some scares where I thought I had them, because I get not just hives but scabies-looking rashes even today. But I know I no longer have scabies.
I was in the Amazon in Peru when the first welts showed up May 15, 2013, I thought they were mosquito bites and didn't do anything about it until July 1st when I finally got health insurance. I slept with a girl a week prior and spent the night in the airport and slept in some rustic beds in the Amazon, so any of those places, I may have got it. Although they say it doesn't show up for 2-4 weeks and I had only been in Peru for two weeks. I've followed all the cleaning procedures since July 1st. I still get single bites or bumps that can turn dry or just feel like skin. I've had hives from head to toe. Right now the hives cover my whole right side of my belly. The 4 treatments of Ivermectin and 5 of Permetherin really screwed me up. Since then I've tried DE, sulphur and petroleum jelly, clove oil and coconut oil or Jergens lotion, b\c I still get itchy bumps that start with one bump and grow to several interconnected bumps the size of a nickel. I've been seeing a dermatologist for two months. He still wants me to treat with Permetherin. I already feel that stuff really messed up my body. So I had him refer me to another dermatologist apart of the UC Davis med center. I have to wait two weeks. I already lost one girlfriend, and pretty much avoid girls because I can't get into an intimate relationship. F..ing depressing.

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