This US Laboratory Can ID Mites from ...
Janice

Hollywood, FL

#22 Apr 12, 2014
Flossy wrote:
<quoted text>
SKF is the woman who wrote the thread about Arm & Hammer.
SK = is Sweet Kitten = she is the grandma who wrote the thread Albendazole is Curing Me.
She is cured. They are both cured. But SKF (sandra) has Lyme Disease.
SK = Sweet Kitten does not have Lyme Disease. She took Doxy for a good six weeks following her Albendazole month then at least two more months of maintenance. She is well and happy and has helped many people.
With regard to how long mites live off the host, it depends which mite species it is. Bird mites have been proven to live off the host for 9 months. There are some weird different bird mite species. I do not know about other mites. As some mites live off skin cells I guess it depends how often the environment is cleaned off skin cells and debris.
I lose it on a regular basis lately, but a good ol' yummy and a cup of tea does it for me. Also swearing in the car with the windows wound up. Works wonders for built up stress. Try it at the top of your lungs :) Never have been one for illegal substances or alcohol. But would well understand if this nightmare drives a soul to whatever gets them through the day.:) It's more that a body should have to bear and can bring shame, isolation and horror. Life changing stuff.
We will all be wiser for sure after this is over and have learned so much about what works with handling stress, ill health, financial loss, employment loss and family concerns. I sure hope it is the only serious life lessons we all are forced to face. It's enough already!
Sandra is a grandma. She spoke of her grandson all the time.
You won't hear me say a thing about "Sweetkitten."
And, no, bird mites don't live 9 months off the host, either. No mite can live that long without a host. They are parasites. They are too small. They dry up and die after a few days. It depends on the humidity in the environment.. Yeah, they can eat dead skin cells.... but, live for 9 months off the host. nope.
Sweetkitten is an alias. She is an account one of you guys made up here. Shondatime (Laquisha I call her) is another alias account, too. Most of the accounts on here are aliases.
But, from what you said that you were in bed for a month and couldn't get up, and from what you typed here to someone, it looked like you were losing it. That is when the hard hitters come in. Driving in a car with the windows up and shouting is not going to do it.
When you can't get out of bed in the morning for days on end, you need to see a psych.
Try to play it off that a cookie and a cup of tea straightens you out, that's bs and you know it.

Since: Aug 12

Location hidden

#23 Apr 13, 2014
Flossy, thanks for the tip about swearing in the car. I need to lose it once in a while, too!

How did you keep from being recontaminated in the car? I used to have the energy to vacuum every day, but not anymore.

Hoping the Albendazole works!
Flossy

Mitchelton, Australia

#24 Apr 13, 2014
Itchytutu wrote:
Flossy, thanks for the tip about swearing in the car. I need to lose it once in a while, too!
How did you keep from being recontaminated in the car? I used to have the energy to vacuum every day, but not anymore.
Hoping the Albendazole works!
Boric Acid powder sprinkled on the floor and left there. NOT BORAX. They're different. Boric Acid is what is in Roach Prufe.

Since: Jan 14

Location hidden

#25 Apr 13, 2014
Flossy wrote:
<quoted text>
Okay. I lost my temper. I was sarcastic. I wanted to throw a tantrum. I was wrong to do that. I hate coming on this forum. It broke me in many ways and I tried so hard to help so many. But the need to check on everyone the desire to help just kept drawing me back.
I put up a new thread on what to expect from Albendazole. I encourage you to try it. I wasted so much time and suffered so much trying everything else. But then, none of us on here knew about Albendazole two years ago.
You new guys have the knowledge of it now. Please take it. Don't be afraid. Be persistent and consistent and prepared and it will cure you.
Don't let fear and confusion hold you back with the end result of suffering another two years of the nightmare. Treat your boyfriend and any pets and do everything. Don't stop when it makes you feel a bit sick. It is normal and it means you are being cured.
Buy all of the things listed and have them at hand ready so you will be able to cope with the nausea and itch.
Print it out , stick it on the fridge and read a bit every day, over and over so you don't miss anything. Brains that are stressed do not absorb information easily or store it.
I wish you well and I do sincerely hope you use this regime and save yourself more pain and dollars.
I do understand Flossy. I don't know if you know, but I have done so far-8 tubes of permethrin, 2 tubes of Eurax, 2 days of sulfur ointment, clove and tea tree oil, 1 dose of Stromectol, did the garlic and onion thing, tried apple cider vinegar, neem soap...none of it has really helped any. Only thing the first round of permethrin did was take away some sores and scars on my back. Other than that, nothing...still getting bites/stinging/rashes/burrows all over/crawling, think I've got a nodular scabies on my right middle finger, and seeing a lot of teeny tiny black specks. I am in contact with a couple of people doing the Albenz/Val treatment and from what I understand, for them it is working out pretty good. So it is something I am considering. I just want to get all of the information I can on it before I just jump right into it.

We have given our cat away to a no kill shelter because I felt that she could be harboring the mites from me even with her being on something.

As far as household members, neither my boyfriend or our son supposedly have any symptoms...which I don't believe. Finally got their doctors to at least RX them a couple of doses of permethrin back in Feb....but my boyfriend refuses to treat himself or our son. He has not been very understanding about this whole situation and acts like it is my problem to deal with and that it isn't that big of a deal....which is pretty sad after almost 13 years together and a 7 year old child. So basically at this point, I'm on my own, and a handful of people on this forum that I am in contact with know the whole story.

Sorry to write out my problems...just with this, really don't want to be telling people I know, so I come here, get my ideas, and let out what I have to say about this.

I will check out your other thread and see what it says...again thank you for the information and sorry about the misunderstanding.
Flossy

Mitchelton, Australia

#26 Apr 13, 2014
sosadsodesperateinil wrote:
<quoted text>
I do understand Flossy. I don't know if you know, but I have done so far-8 tubes of permethrin, 2 tubes of Eurax, 2 days of sulfur ointment, clove and tea tree oil, 1 dose of Stromectol, did the garlic and onion thing, tried apple cider vinegar, neem soap...none of it has really helped any. Only thing the first round of permethrin did was take away some sores and scars on my back. Other than that, nothing...still getting bites/stinging/rashes/burrows all over/crawling, think I've got a nodular scabies on my right middle finger, and seeing a lot of teeny tiny black specks. I am in contact with a couple of people doing the Albenz/Val treatment and from what I understand, for them it is working out pretty good. So it is something I am considering. I just want to get all of the information I can on it before I just jump right into it.
We have given our cat away to a no kill shelter because I felt that she could be harboring the mites from me even with her being on something.
As far as household members, neither my boyfriend or our son supposedly have any symptoms...which I don't believe. Finally got their doctors to at least RX them a couple of doses of permethrin back in Feb....but my boyfriend refuses to treat himself or our son. He has not been very understanding about this whole situation and acts like it is my problem to deal with and that it isn't that big of a deal....which is pretty sad after almost 13 years together and a 7 year old child. So basically at this point, I'm on my own, and a handful of people on this forum that I am in contact with know the whole story.
Sorry to write out my problems...just with this, really don't want to be telling people I know, so I come here, get my ideas, and let out what I have to say about this.
I will check out your other thread and see what it says...again thank you for the information and sorry about the misunderstanding.
I Know. It is hard to believe and accept, but by the time a week has passed from the moment of infestation, the beasts can start to tunnel vertically. I know some nests go as deep as a centimetre into the tissue that is underneath the dermis and the epidermis. So nothing topical by this stage will touch them. It will only kill the crawlers and the bastards in the deep tissue keep breeding.

If your boyfriend and son have so symptoms it is highly likely hey are not infested. My husband was with me the night I got infested from a patio that was frequented by wild birds. He did feel bites on the night, but nothing further happened. The next morning I was covered in hives and the nightmare started. I have sun damaged dry skin and he has smooth oily skin. He has never had them and we sleep in the same bed every night. The dog was with us and he got them too. He has dry skin too. The woman who lives in the house has never had them. She has oily smooth skin.

I tested this theory to make sure my husband has not got them. I dosed him with Albendazole for ten days = nothing. No itch, no spots.

So just focus on yourself and your bed and your environment and car. Details are on the other thread. http://www.topix.com/forum/health/scabies/T4Q...
Flossy

Mitchelton, Australia

#27 Apr 19, 2014
The test results came back 8 days after I sent them off to the US. They are only able to identify two types of bird mite and the result was negative for both of them.

It seems they have not tested for sarcoptes, which I also wanted. I do have more samples so will wait to get a response to my enquiries after the easter break.

I have also asked them if they could find a way to DNA test for this strange mite that has been known to infest humans long term.

Dermatophagoides Scheremetewskyi Bogdanow

http://www.asktheexterminator.com/Mites/Skin_...

TEST RESULTS
Site: Home
Test Date: 04/18/14
Area Swabbed: EGGS
Location in Room:
Species: ENVIRONMENTAL
Medium: EGGS,
Pesticides:

TEST RESULTS*
Acct:
Acct ID:
Contact:
Organization:
Phone:
Email:

Test Description Result Comments

Dermanyssus General Negative
Ornithonyssus General Negative

Since: Mar 14

Somerville, MA

#28 Apr 20, 2014
sosadsodesperateinil wrote:
<quoted text>

As far as household members, neither my boyfriend or our son supposedly have any symptoms...which I don't believe.
Ive been doing a lot of reading on the bird mite of recent, and this post made me recall this little tidbit I read

Q: Why am I the only one bothered by them in our home?
A: It is not well understood how these mites select a host, but they are very tenacious and often content with parasitizing one individual in the home. This could possibly be due to the pheromones they use to communicate with others, as they tend to swarm the host mammal and crawl or bite in large numbers.
It’s possible then that you have been the one victim in the home and it’s their pheromones coming off your person that keeps them attracted to you and not you bf and /or son.

My source: http://www.birdmites.org/FAQ.html
Katee

Homewood, IL

#29 Apr 20, 2014
Dermatophagoides Scheremetewskyi Bogdanow

There is NO information on this anywhere other than one from this scientist making the claim back in 1952, a birdmite site and this exterminator. Except this:

http://www.researchgate.net/publication/51883...

These are the things that make us look crazy. I wouldn't put a lot of thought into claims of super mites that can't and haven't been proven. I know a lot of us have had issues for a long time and can't get rid of this, but this doesn't help the case. Just my opinion. Don't flame me out for it, just trying to keep logical.
Flossy

Mitchelton, Australia

#30 Apr 20, 2014
scratchmeplease wrote:
<quoted text>
Ive been doing a lot of reading on the bird mite of recent, and this post made me recall this little tidbit I read
Q: Why am I the only one bothered by them in our home?
A: It is not well understood how these mites select a host, but they are very tenacious and often content with parasitizing one individual in the home. This could possibly be due to the pheromones they use to communicate with others, as they tend to swarm the host mammal and crawl or bite in large numbers.
It’s possible then that you have been the one victim in the home and it’s their pheromones coming off your person that keeps them attracted to you and not you bf and /or son.
My source: http://www.birdmites.org/FAQ.html
I agree. I also suspect I was targeted by the mites as I had a small wound on my right lower leg at the time. I was treating a skin cancer. I also had no shoes on. So it is possible the mites were able to sense my presence much more than anyone else sitting there and swarmed me. Why would they leave the host they are on to go to another? Although, my little dog has them and if I cuddle him, I get one on me that digs in (luckily I always feel it and can deal with it straight away) If my husband cuddles the dog he never gets any on him or if he does they do not try to dig in.

I think perhaps it is pheromones that attract them and also it could be skin type that makes it either hard or easy for them to dig in.

Since: Mar 14

Somerville, MA

#31 Apr 20, 2014
another interesting read if you have an aviary red mite:
not recommending it but interesting none the less

http://poultrykeeper.com/red-mite/predator-mi...

haha guess who sells them?
http://www.amazon.com/s/ref=nb_sb_noss_1...
Katee

Homewood, IL

#32 Apr 20, 2014
Sorry, don't misunderstand what I meant. I think this lab has merit and it's a good thing. But I just, in my opinion, would not be asking them to identify a mite that was discovered and studied by a person that the scientific community considers delusional. That's all, just makes us all look the same which is what they think in the first place.

Since: Mar 14

Somerville, MA

#33 Apr 20, 2014
Flossy wrote:
<quoted text>
I think perhaps it is pheromones that attract them and also it could be skin type that makes it either hard or easy for them to dig in.
Yes, I'm a dry skin type and I read dry skin types maybe more susceptible to these type of mites. I thinking this pheromones thing is key and I may be scenting my bedroom with some of the recommended oils from that site. Its suggesting one can disrupt the pheromones signal with strong enough counter scents such as pine or cedar oils.

Since: Mar 14

Somerville, MA

#34 Apr 20, 2014
If they are waiting for me to return home and go to bed hopefully they wont smell these pheromones and try to reinfect me as they have been trying to do recently.

my source once again is: http://www.birdmites.org/FAQ.html

Since: Jan 14

Location hidden

#35 Apr 20, 2014
scratchmeplease wrote:
<quoted text>
Ive been doing a lot of reading on the bird mite of recent, and this post made me recall this little tidbit I read
Q: Why am I the only one bothered by them in our home?
A: It is not well understood how these mites select a host, but they are very tenacious and often content with parasitizing one individual in the home. This could possibly be due to the pheromones they use to communicate with others, as they tend to swarm the host mammal and crawl or bite in large numbers.
It’s possible then that you have been the one victim in the home and it’s their pheromones coming off your person that keeps them attracted to you and not you bf and /or son.
My source: http://www.birdmites.org/FAQ.html
SMP-after reading the link you posted...I'm thinking, it isn't bird mites. Well....most likely not. The reason is because, from what I have seen and read overall....is that bird mites are/can be more visible to see than the scabies mite. What I'm seeing on me is extremely tiny....I can say I would never see it if I wasn't looking hard for it after I feel the biting/stinging or crawling. Can't tell what it is, just looks like a VERY VERY tiny black dot/speck. <----Like that period.

But I do appreciate the information! If not for me...anyone else who might be having an issue with bird mites.

Also Flossy-I believe I have a nodule on my right middle finger. Is there any particular wart remover(name of it) that you would recommend to use? Or is any of them fine? I thought I read somewhere that cuticle remover would do it, but for this last week or so....it hasn't helped any. Still the same....very raised and like a pinkish color.

Since: Mar 14

Somerville, MA

#36 Apr 20, 2014
deja vu

Bird mites are very small; a mature NFM is no more than about .5 mm in length, and D. Gallinae is typically no more than about .4 mm in length. A mature bird mite would be about the size of the period at the end of this sentence.

My source page 3: http://birdmites.org/mites.html
Flossy

Mitchelton, Australia

#37 Apr 20, 2014
Katee wrote:
Sorry, don't misunderstand what I meant. I think this lab has merit and it's a good thing. But I just, in my opinion, would not be asking them to identify a mite that was discovered and studied by a person that the scientific community considers delusional. That's all, just makes us all look the same which is what they think in the first place.
This reads to me as ''if you ask them to identify a mite that was discovered and studies by a person that the scientific community considers delusional, then you will appear delusional and we will all be viewed as delusional too".

Feel free to contact them yourself and tell them what you think. I think they need to expand the species of mites they are holding DNA samples of. It would be good for their business and do the world good. They could actually make themselves a very lucrative living as nobody else seems to be doing it.

I will be asking them to increase the species of mite they can identify. I will be extra careful not to appear like I am crazy. So far they have been nothing but considerate and shown their dedication to helping me get an identification.

I don't think I am representing the members of this forum in a negative light. These people are not MD's , they are individuals dedicated to helping find answers for people like us. They do not have an agenda.

Besides, I have never mentioned the forum.

I know you meant well and meant to point out an aspect that causes problems for us all, but it is enough to make a person not want to share new information if wording is not done with care.

That is exactly why all the veterans left the forum. I came back when I had new information and to support Ashleyshere and Sweet Kitten.
Flossy

Mitchelton, Australia

#38 Apr 20, 2014
Katee wrote:
Dermatophagoides Scheremetewskyi Bogdanow
There is NO information on this anywhere other than one from this scientist making the claim back in 1952, a birdmite site and this exterminator. Except this:
http://www.researchgate.net/publication/51883...
These are the things that make us look crazy. I wouldn't put a lot of thought into claims of super mites that can't and haven't been proven. I know a lot of us have had issues for a long time and can't get rid of this, but this doesn't help the case. Just my opinion. Don't flame me out for it, just trying to keep logical.
ps I did not mention super mites at all. I think you have misunderstood. I just know there are a lot more bird mites than the two they are testing for. I think everyone would also benefit if they got some DNA samples of norwegian crusted scabies. Many have that.
Flossy

Mitchelton, Australia

#39 Apr 20, 2014
sosadsodesperateinil wrote:
<quoted text>
SMP-after reading the link you posted...I'm thinking, it isn't bird mites. Well....most likely not. The reason is because, from what I have seen and read overall....is that bird mites are/can be more visible to see than the scabies mite. What I'm seeing on me is extremely tiny....I can say I would never see it if I wasn't looking hard for it after I feel the biting/stinging or crawling. Can't tell what it is, just looks like a VERY VERY tiny black dot/speck. <----Like that period.
But I do appreciate the information! If not for me...anyone else who might be having an issue with bird mites.
Also Flossy-I believe I have a nodule on my right middle finger. Is there any particular wart remover(name of it) that you would recommend to use? Or is any of them fine? I thought I read somewhere that cuticle remover would do it, but for this last week or so....it hasn't helped any. Still the same....very raised and like a pinkish color.
There is one in Australia called Wartner, you guys probably have different brands.

Just ask for the Paint-on type with at least 17% salicylic acid in it. Most have 20%. It works really well, put it on twice a day and pick off the dead skin that forms once every day or two. It does not hurt much, though by the time you get down to normal tissue level it gets a bit sensitive because the nest material is numb and once that is gone it hurts a little.

Then you can put some strong magnifying glasses on and move the tissue around to see if there are any eggs attached. Remove them and keep in clear alcohol or rubbing alcohol in a sealed jar in case you ever want an ID.

Then you can put any topical on the raw tissue. BB is what I used. It soaks in well and kills any live ones. I always keep a bottle for any that get on me from the dog who is behind me in his treatment by a couple of weeks. PS I found a scaly lump on his butt so I am putting the wart remover on him. He has had no problem with it.
Katee

Homewood, IL

#40 Apr 20, 2014
Oh no, I didn't mean the forums at all. Who cares about these forums. It's like when you go to the doctor and say anything about what you saw on the "internet", their eyes start rolling back up into their heads. You lose instant credibility with them! That study was rejected and the scientist was considered delusional. That's all.
pretty crazy

Paris, France

#41 Apr 21, 2014
Katee, I don't think Jay (I don't remember her full name) was crazy. I think she was discredited out of ignorance. Her paper was not retracted. It still stands, but with controversy. She suffered as we do. Her main detractor used DP the same way our docs do. Nothing new there.

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