Pokadot Patty

United States

#62 Feb 8, 2010
Vann from Tennessee wrote:
Patty,
This thread is about Morgellons. Did you see the thread title? The thread title says, "This isn't Scabbies folks, it is Morgellons."
This thread is not about scabies or mites. It is not about scabies cures. Sorry, my dear, but Morgellons is a frightening affliction that makes Scabies look like a cake walk. Those who have suffered Morgellons have wasted untold amount of $$$ and time treating for Mites, to no avail.
Whether you like it or not, Morgellons is real. And the fibers are UNDER the skin, so you must agree that it is impossible to come from any towel. I suggest you learn more about Morgellons instead of flaming my efforts to help people.
The 3 main symptoms of Morgellons are:
1) Fibers under, and coming out of the skin
2) Bumps under the skin
3) Tunnels under the skin MUCH larger than Scabie burrows.
Best to all,
Vann
Ugh....Vann,

I have scabies and I have had all the same symtoms!!

Patty
Pokadot Patty

United States

#63 Feb 8, 2010
Vann from Tennessee wrote:
Patty,
This thread is about Morgellons. Did you see the thread title? The thread title says, "This isn't Scabbies folks, it is Morgellons."
This thread is not about scabies or mites. It is not about scabies cures. Sorry, my dear, but Morgellons is a frightening affliction that makes Scabies look like a cake walk. Those who have suffered Morgellons have wasted untold amount of $$$ and time treating for Mites, to no avail.
Whether you like it or not, Morgellons is real. And the fibers are UNDER the skin, so you must agree that it is impossible to come from any towel. I suggest you learn more about Morgellons instead of flaming my efforts to help people.
The 3 main symptoms of Morgellons are:
1) Fibers under, and coming out of the skin
2) Bumps under the skin
3) Tunnels under the skin MUCH larger than Scabie burrows.
Best to all,
Vann
And again Vann is quoting what he has read....not experrienced!!
Patty
Vann from Tennessee

Jackson, TN

#64 Feb 8, 2010
Ben,

Morgellons is real, and people should know how to tell the difference between Scabies and Morgellons.

What is your best advice to identify Morgellons?

Best to all,
Vann
buggie

Albuquerque, NM

#65 Feb 8, 2010
MikDee wrote:
<quoted text>
This is what I feel I have, are you cured buggie? What does it take? it never seems to end. Is Kleen free, just like Cedarside?
You may or may not benefit from Best Yet by Cedarcide. I personally really love it. It came at a time when I was at the ultimate end of my rope. I was able to start a new job the day after receiving my first shipment. I switched from thoughts of suicide to having hope.

I enjoy the subtle aroma, it's gentle and nontoxic. I was so tired of permethrin poisons and felt like poisons could actually kill me.

I DID NOT EVER have the horrific itching that other people have.

Cedarcide helped my enviornment and car and helped me not drop mites when I visited other people's houses for social events that I couldn't get out of. I sprayed it on my clothes and shoes, leather couches and chairs, I wiped down my computer area with it (cover air vents, I killed my new imac computer and two dvd players). I fogged the car and house and I sprayed it on my bedding area and before getting into bed. I took it with me to the laundrymat and to the movie theatre to spray on seats etc. So I love the stuff and I'm grateful for all the time that Dan and Danae spent with me on the phone and to Megan in Maui for posting Cedarcide on her stopskinmites.com website.

That said, it did not kill mites in my hair or on my skin. It kills them on contact but it doesn't cure totally. It's not mean to cure them if they are living INSIDE the skin. Ivermectin kills them inside the body and is recommended by Dr. Ben Oldag creator of Best Yet by Cedarcide.

I spent a lot on Cedarcide and I don't regret one penny. I hardly use it now but I still have a gallon or two.

I've heard Kleen free is good. I've also heard there's a cheaper place to buy the equivalent. I've never used it.

My other favorite and affordable items are: apple flavored horse paste ivermectin, now I'm liking D.E. if I can ever remember to ingest it, pomado de azufre sulfur cream, and now I'm really liking baking soda made into a paste for the skin. I might try that on my hair soon. I washed my hair last night with arm and hammer powdered laundry detergent (recommended by bitten1) and my hair is kinda thrashed right now but I have color and bleach on my hair. I will use Arm and Hammer powdered laundry detergent for all laundry forever. I am 99 percent cured but I may have mites living in my liver or inside my skin forever. Occasionally I see a tiny red pinpricks on my shoulder and Vann posted that that is a hatchling making a moulting pouch. So that's not something I will ignore. In August 2008 I was totally infested without feeling a thing on my skin. So I won't ignore tiny pinpricks on my skin!!
Pokadot Patty

United States

#66 Feb 8, 2010
Vann from Tennessee wrote:
Ben,
Morgellons is real, and people should know how to tell the difference between Scabies and Morgellons.
What is your best advice to identify Morgellons?
Best to all,
Vann
Keep hurting people Vann....it's what you do best!
Ben does not believe he has Morgellons.
Patty

Since: Aug 09

Location hidden

#67 Feb 8, 2010
No idea.........
skf

Glasgow, KY

#68 Feb 8, 2010
its mites all the way. . .. we know better than anyone. people who have not and dont know about the hell and horror a sufferer endures needs to know something about it before they give any advice. just my opinion....
Vann from Tennessee

Laconia, TN

#69 Feb 9, 2010
SKF,
Congrats on being cured since last year!

Here is the official definition of Morgellons, and it has nothing whatsoever to do with Mites, as we will see. Short version:
http://www.morgellons.org/life_with.htm

Morgellons Disease Characterization
1.“Filaments” are reported in and on skin lesions and at times extruding from intact-appearing skin. White, blue, red, and black are common among described fiber colors.
2. Movement sensations, both beneath and on the skin surface. Sensations are often described by the patient as intermittently moving, stinging or biting.
3. Skin lesions, both (a) spontaneously appearing and (b) self-generated, often with pain or intense itching...
4. Musculoskeletal Pain is usually present, manifest in several ways. Pain distribution is broad, and can include joint(s), muscles, tendons and connective tissue....
5. Aerobic limitation is universal and significant enough to interfere with the activities of daily living....
6. Cognitive dysfunction, includes frontal lobe processing signs interfering with logical thinking as well as short-term memory and attention deficit.
7. Emotional effects are present in most patients. Character typically includes loss or limitation of boundary control (as in bipolar illness)...
More here & other common symptoms:
http://www.morgellons.org/case_definition.htm

Bottom line, treating a Morgellon patient for Mites is a waste of time and money.

Best to all,
Vann
Vann from Tennessee

United States

#70 Feb 15, 2010
Cross-Link; There is a lot of information on Morgellons here:
http://www.topix.com/forum/health/scabies/TNU...
"Nightmares Do Come True" reports his significant recovery and advice on Morgellons.

Vann
Nightmares Do Come True

United States

#71 Feb 15, 2010
There is a lot of confusion when it comes to mites and Morgellons, and everything in between. I believe that I actually did have scabies for a few weeks when this all began. I know that I have Morgellons now! The thing is, and it is what no one seems to be addressing on these threads, is that the immune system plays a vital role when it comes to both mites (or any other microscopic bug for that matter) and Morgellons. This is why there are many cases of Morgellons that test positive for Lyme disease, because the immune system is thrashed!
Now, I know that some of you will disagree with me, but I personally feel that getting healthy, especially when it comes to improving the immune system, is the most important aspect to fighting microscopic bugs or Morgs. Once our immune system is down...it allows for other viral, bacterial, and fungal infections to get a toehold in our body. There is much evidence to support the theory that once we have a fungal infection, our bodies emit pheramones that attract these microscopic critters.
So here is the deal, I figure I got bit by a mite, what kind really is of no consequence at this point. Well because of the extreme breakdown due to the mite infestation and treating with all kinds of chemicals...I was susceptible to other microscopic bugs. It very well may be that I had Morgellons for many years without symptoms, in fact it is my true believe that I had it for many years before the symptoms surfaced.
The very best thing that happened to me throughout this ordeal of fighting mites is I put coconut oil on, then sulfer ointment, then a thick layer of vaseline, followed by wrapping myself in a plastic jogging suit. Well this was meant to smother the mites of course, but what happened is that I found hundreds of white threads on my face and head. The smothering made these things come out of me! This was a landmark point in my fight, because I stopped using chemicals forever!
I now take vitamins and supplements to improve my immune system and to generally get more healthy. I put coconut oil on everyday, from head to toe...by the way, when I put the coconut oil on, I generally find about 20 bluish-purple threads exuding from my pores on stomach and upper legs, and head too. I keep my entire body shaved, after two weeks of growth I feel more twitches and activity, so it's easier to deal with shaving than bugs.
I have not taken any Iver in over a month, and probably won't as long as I remain at status quo. I tried the DE when I thought it was mites, I used it on the carpet and took it internally(food grade for both) I do believe that it along with borax helped immensely for the carpets, but ingesting it never seemed to make a big impact on my body. I have also tried nutrasilver without gaining any impressive ground, but in all fairness...I never had lesions.
So now I take CoQ10, Probiotics, Magnesium, Calcium, Zinc, B12, and B6, along with using the coconut oil everyday. That's it, all I do to fight the Morgs on my body. I am not fully recovered, but I have a solid 80% less activity from when this ordeal started. I know that not everyone's body is the same, and this may not work for some, but I want this information out there for those that it may help! God Bless You All...if it wasnt for finding this forum back in October I wouldn't be where I am now.
Joe

Hollywood, FL

#72 May 12, 2010
clod

Asheville, NC

#73 Jun 13, 2010
i had morgellons 8/09 til now and i am 90% cured. this is not scabies. youtube nanotransformaion and watcht their vids they helped me get rid of this. get rid of all cotton and cover new furniture w/ vinyl covers

good luck

ps. its not scabies
Mel

Westwood, NJ

#74 Sep 18, 2010
nanotransformaion was taken over by a paid govrment dis information pro,it is no longer valid
Mange

Englewood, CO

#75 Sep 19, 2010
Sam wrote:
endless itch, scabies can be seen with the naked eye, just barely, but they can be seen. Maybe there is, and maybe there isn't something called Morgellons. But if it is real, then why can't doctors and scientists find out what it is? It can't be that difficult to take a piece of entwined fiber and use all the technology they have to determine what it is.
I think most, if not all, of the people who think they have morgellons really have scabies, but I also believe there are many different strains of scabies and many of these are resistant to some traditional scabies meds.
Stinging sensations on hands, feet, scalp is scabies. I'm not trying to be mean or argue, just posting my opinion and experience. When I had open sores from the scabies, I could find all kinds of fiber stuff in there, and it scared the crap out of me. But with repeated scabies meds, no more sores, bumps, bites, fibers, pepper dust, white eggs or sand, crawling, or anything. If you think you have Morgellons, please reconsider that you might have scabies.
So what meds did you use?

Anyway... morgellons disease might be a type of mite that is so so small that it cannot be seen even with magnification... you never know... if you think about how small the atom is... imagine... there could be something much smaller. We are only human and are limited to our capabilities of being able to see certain small things... even with magnification.
Laura

Spokane, WA

#76 Sep 19, 2010
Hi Mange! I have a lot of questions about the possible connection between scabies and "morgellons." It's hard to explain how someone with scabies could have it for more than a year after hitting it hard with standard protocol. Maybe morgellons is just a mite that's so small it can't be seen with the human eye. You could be right. Thanks for the insight.
Aaron

Hollywood, FL

#77 Oct 8, 2010
A protocol for treatment of Morgellons:

http://howicuredmorgellons.com/melsprotocol/
Issues

United States

#78 Oct 22, 2010
Laura wrote:
Hi Mange! I have a lot of questions about the possible connection between scabies and "morgellons." It's hard to explain how someone with scabies could have it for more than a year after hitting it hard with standard protocol. Maybe morgellons is just a mite that's so small it can't be seen with the human eye. You could be right. Thanks for the insight.
I have issues. I had the typical scabies symptoms or so I thought. Felt like fire ants were biting my back, shoulders, and neck (scalp & face a little) at night. "Zits" that had a little egg or white bug come out when popped (gross). Occasional V or zigzag pattern around a bite. Went to doctor and said I think I have scabies. She looked at it and agreed (no scraping or testing) and prescribed Permethrin. I am now on my second application. Now I'm seeing occasional red dots the size of a period on my body (mostly the torso). I believe all the dots are flat on the skin. Could this be bird mites? I've heard they are raised though. I did handle birds at a pet store, and I pet a wild bird for about a second until it woke up and flew away. Not sure how I got any of it. If it's scabies, I did hang out with a guy, but we basically just kissed, hugged, & held hands (he doesn't have symptoms). Also, I went to movie theater, and hung out at a friend's house for a few hours on the couch listening to music/watching tv.(Her ex-boyfriend had slept on that couch the night before). Could scabies have gotten on my clothes from sitting on a couch or movie theater seat? Now I am also occasionally seeing fine white fibers on my skin. Sometimes they look like little balls of fiber. They don't appear to be coming out of my skin and there is no pain (at least not yet). Is this characteristic of morgellons, and are people who have had mites more likely to get morgellons? This has all been happening over the last few weeks, so it's relatively new for me. My family doesn't understand. Please help. Thank you!
Issues

United States

#79 Oct 22, 2010
I have issues. I had the typical scabies symptoms or so I thought. Felt like fire ants were biting my back, shoulders, and neck (scalp & face a little) at night. "Zits" that had a little egg or white bug come out when popped (gross). Occasional V or zigzag pattern around a bite. Went to doctor and said I think I have scabies. She looked at it and agreed (no scraping or testing) and prescribed Permethrin. I am now on my second application. Now I'm seeing occasional red dots the size of a period on my body (mostly the torso). I believe all the dots are flat on the skin. Could this be bird mites? I've heard they are raised though. I did handle birds at a pet store, and I pet a wild bird for about a second until it woke up and flew away. Not sure how I got any of it. If it's scabies, I did hang out with a guy, but we basically just kissed, hugged, & held hands (he doesn't have symptoms). Also, I went to movie theater, and hung out at a friend's house for a few hours on the couch listening to music/watching tv.(Her ex-boyfriend had slept on that couch the night before). Could scabies have gotten on my clothes from sitting on a couch or movie theater seat? Now I am also occasionally seeing fine white fibers on my skin. Sometimes they look like little balls of fiber. They don't appear to be coming out of my skin and there is no pain (at least not yet). Is this characteristic of morgellons, and are people who have had mites more likely to get morgellons? This has all been happening over the last few weeks, so it's relatively new for me. My family doesn't understand. Please help. Thank you!

Since: May 10

Location hidden

#80 Oct 22, 2010
what exactly is morgellons? Yes, of course u can get mites from a couch, a boyfriend, a bird. They r parasites that hitch a ride on you. Continue your treatments and cleaning.
Issues wrote:
I have issues. I had the typical scabies symptoms or so I thought. Felt like fire ants were biting my back, shoulders, and neck (scalp & face a little) at night. "Zits" that had a little egg or white bug come out when popped (gross). Occasional V or zigzag pattern around a bite. Went to doctor and said I think I have scabies. She looked at it and agreed (no scraping or testing) and prescribed Permethrin. I am now on my second application. Now I'm seeing occasional red dots the size of a period on my body (mostly the torso). I believe all the dots are flat on the skin. Could this be bird mites? I've heard they are raised though. I did handle birds at a pet store, and I pet a wild bird for about a second until it woke up and flew away. Not sure how I got any of it. If it's scabies, I did hang out with a guy, but we basically just kissed, hugged, & held hands (he doesn't have symptoms). Also, I went to movie theater, and hung out at a friend's house for a few hours on the couch listening to music/watching tv.(Her ex-boyfriend had slept on that couch the night before). Could scabies have gotten on my clothes from sitting on a couch or movie theater seat? Now I am also occasionally seeing fine white fibers on my skin. Sometimes they look like little balls of fiber. They don't appear to be coming out of my skin and there is no pain (at least not yet). Is this characteristic of morgellons, and are people who have had mites more likely to get morgellons? This has all been happening over the last few weeks, so it's relatively new for me. My family doesn't understand. Please help. Thank you!
Issues

United States

#81 Oct 22, 2010
Thank you Jodyy. I guess I need to quit focusing on how I got this and just deal with it. Hopefully all the cleaning and permethrin will kill these beasts! If not, I guess I'll get the house fumigated.

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