I think it's gone..just wanted to share my story.

Posted in the Scabies Forum

Hooray

Hanover, PA

#1 Jan 19, 2010
I just wanted to say thank you to all the kind and supportive people on this message board and all the wonderful advice I got over the past year. I have been battling scabies for a year and finally I believe I have seen the end. I had a very unusual circumstance and I just thought I'd throw out my story in case somebody else is experiencing the same thing. So I started getting all the scabies symptoms over a year ago and went to the doctor countless times and did EVERYTHING..and I mean EVERYTHING to cure it..and nothing helped. I did the perm, ivermectin, sulfur, borax, bb, endless baths and cleaning, and even hired pest control to fumigate my whole house (i had a moment when i was convinced it must be bed bugs). My scabies were never normal. I would go a week or 2 with no bites..and then i'd break out with 5 new bites a day for the next week and so on. One day it would seem like things were getting better and then the next it would seem like it couldn't get any worse. I never had them in the normal spots..they were so random all over my body..and absolutely none in my fingers or armpits or any common place. Now I have a dog and 2 cats (and a husband and a baby). The cats both seemed totally fine during this whole process..my baby never had a single problem (and i breastfeed her!)and my husband would get bites very randomly..he was never really bothered by it. Now my dog I would notice itch herself..but never badly..and her fur looked great and you would never think something was wrong with her. Anyways..right when all of this started I brought the dog to the vet and they said there was no way it was fleas, ticks, lice, or anything like that since those are very easy to detect. I give her frontline every month which is supposed to kill those things anyways. They said they did not feel it was mange by how nice her coat looked and they couldn't find any evidence.. but they would treat her for it anyways.. so they did. Now that I look back on the whole thing.. I think things were better for a very short time after she was treated..but it came right back so i didn't really notice and just figured it was obviously something wrong with me, and not the dog. Well I just went through a whole year of hell trying everything under the sun to get rid of this and devoting every second of my life to cleaning and obsessing and wasting so much money!! I just had a baby and I left my job to be home with her and this was supposed to be the happiest time in my life, and I was so depressed. Well about 3 months ago I decided I would bring the dog back to the vet to be checked again because I didn't know what else to do. They still couldn't find anything wrong with her and said she looked great..but they said they would do 2 ivermectin treatments for her this time just to make sure. I noticed it get better once they did it and i was fine for a few weeks until then it started to come back again! I didn't want to bring her back to the vet again since it obviously wasn't working so i bought some neem oil dog shampoo on ebay and decided i would start bathing her in it regularly. Ever since I have started doing this the dog doesn't itch anymore and I have not have one bite in 2 months. I do not wash my clothes and clean the house like a crazy woman anymore..I have finally stopped fearing this!
Hooray

Hanover, PA

#2 Jan 19, 2010
I don't understand what could have done this..or why the treatments didn't work for my dog..or why she didn't really have any symptoms.. or why I was the only one who got them from her..NOTHING makes sense. I was not giving myself any type of treatment when i started bathing my dog in the neem oil so i know she was the problem. I also wanted to note that i did have a biopsy done at the derm. so i am 100% sure that these were "bugs" we were dealing with. I just can't believe the hell i went through for such a simple solution. Obviously I didn't have "severe" scabies.. I guess I didn't really have people scabies at all..but I thought I did and it took over my life for a long time. So to anyone out there who thinks they must have scabies, but do not show "normal" symptoms and have bites that come and go and have pets.. then please make sure to treat them!! Just like some people don't react to scabies and get the rash..the same must be true for animals. My dog barely itched herself..she had absolutely NO lesions and her skin and fur looked great..she would just bite at her feet sometimes which is what made me think that she could be the problem. The fact that the shots didn't cure her makes me wonder if she is picking something up from outside? I think I will treat my lawn with an insecticide from now on. She also never passed the bugs onto any of my cats. It took me a year to figure out that this was coming from her..so please even if your pets don't show any signs or symptoms..realize it is possible you are getting this from them!!!
Hooray

Hanover, PA

#3 Jan 19, 2010
What the heck.. my whole story didn't appear for some reason..ah I will have to repost later..I can't retype the whole thing now. Maybe it will appear later.

Since: Aug 09

Location hidden

#4 Jan 19, 2010
Hooray....please repost this with paragraphs and use the return every now and again....you'd get your story across a lot better that way ....that is if you want people to read it...........double spaced too.........people are quite friendly here but ....tired........so if you can , break it up a bit. Good luck :)
Vann from Tennessee

Jackson, TN

#5 Jan 21, 2010
Hooray,

Wonderful story with a great ending. Congratulations. Did your dogs sleep on your bed? Pokadot Patty has problems and her dogs share her bed. Perhaps your story will help Patty.

I am keenly interested in non-toxic treatments. Did your vet recommend the neem oil shampoo? What brand did you choose? Was it stinking?

PS) If you lose your message text again, just use your Browser "Go Back One Page" to retrieve it & re-post your comment. On a long message, I "Reload Current Page" to get the new topix message number. Topix times out your message on long messages, so "Reload Current Page" prevents this timeout.

Great detective work,
Vann
itchygirl

Youngstown, OH

#6 Jan 21, 2010
Hooray,
I have been on this forum for over a year now. Same thing- resistant scabies that responded to nothing, and didn't come in the usual places. It started when we moved to NE Ohio. Affected mainly me in my family of 6. Many trips to the derm, probably 30 tubes of perm, sulfur, DE, neem, borax, etc. etc. They would clear for a short time while I was treating then return with a vengeance. I seemed to get them more in specific places in my house, and I was getting no sleep- I was getting bit all night every night.
My regular vet told me my animals were fine. Took them to a vet derm and she told me probable cheylatiella (rabbit mites). She said that contrary to popular (veterinary) belief, cheylatiella can be hard to find. She prescribed heavy doses of interceptor given weekly for a month. Very expensive but worked. We had a warm spell right after they finished, and I think they got it again from the yard. I have since put my dogs on monthly doses of Promeris, which has just been approved for mange. It took a few days, but I can hug my dogs now without getting 'crawly'. I am going to continue using Promeris on my dogs indefinitely. I know of someone else who is keeping her dogs on small daily (oral) doses of ivermectin on a long term basis- just like you would for Demodex mange.
Cats are more problematic as they can't take many insecticides. The Interceptor worked on them, but is pricey at the dosage required. And Promeris for cats doesn't contain Armitraz, which I think is the key in the dog stuff. Cat's can't take it. I am going to bite the bullet and do another round of Interceptor dosing on the cats, then keep them on Advantage multi.Advantage multi isn't as good as interceptor, but I think if they aren't coming in on the dogs, it will work. I have tried many other things, and these seem to work. Ivermectin works- but I almost killed one of my cats with it when she reacted badly.
For myself, I used ivermectin horse paste during the worst of this. The stuff from India doesn't seem to be as strong. It worked for me but I noticed that I only felt relief with it it my environment was clear. They have to bite you to die from the iver, and if you have thousands in your environment you will not notice a difference. I also liked Eurax lotion (not cream)- available in the US prescription or UK over the counter- until it went up to $81 with insurance. If you are in the UK, it is an awesome item, I strongly suggest getting a couple of bottles. I switched to Happy Jack Sardex Mange Spray, which has the same ingredient as Benzemul (scabies and lice med). It stinks and burns for about 10 minutes, and you can't use it on your face (scalp is OK), but it works.
I spray my house and car with Cyonara mixed with an IGR. you can get both online. They work much better than regular household sprays. Roach prufe has also been great in combatting this, as have Hot Shot no pest strips. I have spent $$$$ on products over the last year and this is what works for me.
I use 1/2 cup of ammonia diluted with water in every wash load, as well as Arm and Hammer launder powder and borax. I bag items that I can't wash overnight with a No Pest Strip.
I am 95% there. I think that the key for me is keeping my dogs from getting reinfested. I am hoping that the Promeris will work for that, otherwise I think I will have to keep them on iver for life.
I do not recommend any of my procedures. I throw up a post every now and then for informational purposes. You have to find what works for you. Sorry for the long post.
itchygirl

Youngstown, OH

#7 Jan 21, 2010
Some mite links:

http://veterinarynews.dvm360.com/dvm/Medicine...

http://mitescentral.blogspot.com/2008/02/new-...

The 2009 blogs on the mites central site are especially interesting. But the insecticide mentioned in some spots in the blog doesn't seem to be available any longer. All references to it that I have found are from no later than the '70s.
Pokadot Patty

United States

#8 Jan 21, 2010
itchygirl wrote:
Some mite links:
http://veterinarynews.dvm360.com/dvm/Medicine...
http://mitescentral.blogspot.com/2008/02/new-...
The 2009 blogs on the mites central site are especially interesting. But the insecticide mentioned in some spots in the blog doesn't seem to be available any longer. All references to it that I have found are from no later than the '70s.
Hi Itchygirl,

Did you have bird/rodent mites? If so, How did you treat the ceilings, walls,...etc.

Thanks in advance,
Patty
itchygirl

Youngstown, OH

#9 Jan 21, 2010
Patty,
Do you suspect that you have animal mites? I have some kind of animal mite. Uncertain as to which kind, but it seems to be stronger than the scabies mite, and able to live off of a host for quite some time. I post on the scabies forum because I thought it was scabies for so long, and I'm sure there are others in the same boat. Plus, animal mites are not supposed to breed on humans, but I believe that this does. This forum has been invaluable to me over the last year, along with the birdmitesorg yahoo group. That forum seems to be stuck on a product called MMS right now, and this one seems focused on DE. For anyone who is looking for other methods of treatment, I advise searching old threads on this forum.

Initially I treated the walls and ceilings with cyonara + IGR in a garden sprayer. I was careful to cover up completely, use safety glasses and walk backwards as I sprayed. It has been my experience that my mites move up when I treat the floors without treating the walls. I have also noticed that they really seem to like cardboard as well as cloth, and the wood joists in my basement laundry room. Roach prufe tossed through a fan works well in unused areas, and it its cheap. I put it in my attic, which had become infested. Roach prufe can also be puffed onto walls, etc. with a cheap rose duster. I have used all of these treatments in a house with 4 kids and 6 animals with no problems so far, but please use your discretion when treating with chemicals.
Vann from Tennessee

Jackson, TN

#10 Jan 21, 2010
ItchyGirl,

I am curious, why isn't DE killing your bird mites?
Bird mites are killed by DE just as well as Scabies, roaches, bed bugs & other mites. Have you tried it? What was your problems in using it?

DE did a fantastic job curing my scabies using these procedures:
http://www.topix.com/forum/health/scabies/T47...

Vann
itchygirl

Youngstown, OH

#11 Jan 21, 2010
Van,
Different things work for different people. I have no idea why. Some posters have been cured with sulfur. For some, arm and hammer laundry detergent was the key. Others have had luck with cedarcide in their environment. I think you are the second one in the past year that has had luck with DE. Many more have tried it. I tried DE 6 or 8 months ago. My house looked like a snowstorm hit it. I burned up some electronics, and I wound up with a chronic hacking cough after using it on my skin and in my bed, though I tried very hard to keep it away from my face and not to breathe it. I have used it with and without lotion, and my DE is food grade. The cough ceased after I quit the DE. I do still occasionally use it on my cats, but that's it. It's too dangerous for my lungs. It did knock them back some, but in the 6 or 8 weeks I used it it did not clear them, and in fact doesn't work nearly as well for me as my current regimen. I have about 8 pounds of DE in my closet that I plan to use in my vegetable garden this summer.....

Since: Aug 09

Location hidden

#12 Jan 21, 2010
Vann,please don't reply to Itchygirl and just go away for a while..' My house looked like a snowstorm hit it. I burned up some electronics, and I wound up with a chronic hacking cough after using it on my skin and in my bed, though I tried very hard to keep it away from my face and not to breathe it. I have used it with and without lotion, and my DE is food grade. The cough ceased after I quit the DE'
It is NOT the magic cure....and in fact can be downright dangerous .DO NOT REPLY !
Vann from Tennessee

Jackson, TN

#13 Jan 22, 2010
Itchy Girl,
Thanks so much for your answer. I'll repost my rebuttal on the correct thread dedicated to DE. For those of us using the DE approach, it is vital to find out why it didn't work out for others.

Sorry Ben, but problem determination is a vital component in problem solving. Please continue your thread and best of luck to you. May God Speed your cure.

Vann

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