will the cured please stand up and te...

will the cured please stand up and tell us if they are cured or relapsed back

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cured _not_cured_almos t

Saint Albans, VT

#1 Dec 13, 2012
Times within this 18 months of thinking I may be cured from this hell, only to find it coming back in a severe way, leads me to think, that these things really may be able to go dormant inside of us for at least a month.
That is how long I've been able to go without symptoms. 1st with Kleen Green and then 2 times with ivermectin pills and prem creme. I too have used bleach, sulfur, oils, paste, even straight peroxide, and my favorite thing was Windex, they are quieted quick with that stuff. I did the borax and peroxide and quit, but I am back to it. Gave up my Windex, as the b/p was pulling out blue globs. But maybe the Windex causes them to be sterile. Kleen Green worked well I think, but the cost, too much.
Growth regulator seems to help too. Neem oil too helps. I've been to doctor's and sent in samples to USDA, all showed a mite but unable to I'D because mouth piece missing.
So I'm hoping this borax, peroxide, and internal peroxide and borax with Epsom and sea salts works. That seems to be leading the way as to a cure without harsh poisons. I used to spray all my clothes with home defense, let set in bags and then wash twice with the favorite wash duo of borax and A&H powder.
I have been here waiting and wondering if I switch off to the new cure before I know something is working.
Oh, I must yell and scream and then I just want to die, till I get a little peace from God and read some of your success stories, because even one day or night is good news and helps me stay in the fight. It's a sad thing we are forced to be experimental subjects with no guidance from the medical community, and the worst to be thought of
As crazy. It is a lonely burden we all share. I'm thankful for this place to come, where someone understands and acknowledge you are suffering from something real. We all are warriors here, some will make it, some may not. I'm still in the fight. And that is because when I'm tired and can't go on, I come here. I'm always looking and you all are too. We will find a cure.

Since: Dec 12

West Plains, MO

#2 Dec 14, 2012
I have been dealing with this for five years. The longest I have gone without a breakout is 18 months. It started for us with a cat we got at a local shelter. We were hoping we wouldn't get it any more after we got rid of her, but that wasn't the case. I had to quit my job at the daycare because I was getting exposed to it too much. I have no idea where it comes from it just seems to come out of nowhere. I always get it the worst this time of year, and this is when I have the most trouble getting rid of it. My husband has never broken out but my daughter has. She had it on her face this time. We treat with permethrin cattle spray and ivermectin injectable for cattle orally. Both have been keeping it in control but it isn't gone yet. We have been fighting this for almost 2 months now. We thought it was gone, I hadn't broke out in almost 3 weeks, but a few days ago I got a pimple on my leg that swelled up and looked like a big white head. ALL of my old spots turned red and I started breaking out again. My husband thought it might not be it so I waited a day and the next night I started to break out on my face again. I knew it was back so I treated with the permethrin all over and got instant relief. I have had to spot treat a few times since because I am in the process of still breaking out with new spots. My husband doesn't yet know if he will let us all take the iver again soon because I have taken it so many times already. It has taken us as long as four months to get rid of it this time of year. I hope it doesn't take that long. I'm sick of breaking out I'm sick of itching all night and I'm sick of worrying about if it will come back. I cry a lot, it drives my husband nuts but I can't help it. I've been coming here for five years and just now started to post. A lot of the posts here have helped me a lot in fighting this. I've cried and laughed and then cried again reading all of them, It helps to know I'm not the only person who has gone through this. It helps to know I'm not alone. It is a lonely burden, and yes WE ARE WARRIORS. We are going to do a big house cleaning this weekend, hopefully that will help.Just like always we have to wait and see. GOD BLESS YOU AND STAY STRONG!!!!
jayney

Newcastle Upon Tyne, UK

#3 Dec 14, 2012
I used lyclear 4 times each time new bites appeared doctor said allergic reaction. used 2 weeks ago and used one full tube on my scalp hair and face and inside my ears and another tube on my body. I had no reaction afterwards bites got smaller and dried up. i believe you need to treat ypur face and head to clear this up.
cured _not_cured_almos t

Saint Albans, VT

#4 Dec 15, 2012
ItchyKay wrote:
I have been dealing with this for five years. The longest I have gone without a breakout is 18 months. It started for us with a cat we got at a local shelter. We were hoping we wouldn't get it any more after we got rid of her, but that wasn't the case. I had to quit my job at the daycare because I was getting exposed to it too much. I have no idea where it comes from it just seems to come out of nowhere. I always get it the worst this time of year, and this is when I have the most trouble getting rid of it. My husband has never broken out but my daughter has. She had it on her face this time. We treat with permethrin cattle spray and ivermectin injectable for cattle orally. Both have been keeping it in control but it isn't gone yet. We have been fighting this for almost 2 months now. We thought it was gone, I hadn't broke out in almost 3 weeks, but a few days ago I got a pimple on my leg that swelled up and looked like a big white head. ALL of my old spots turned red and I started breaking out again. My husband thought it might not be it so I waited a day and the next night I started to break out on my face again. I knew it was back so I treated with the permethrin all over and got instant relief. I have had to spot treat a few times since because I am in the process of still breaking out with new spots. My husband doesn't yet know if he will let us all take the iver again soon because I have taken it so many times already. It has taken us as long as four months to get rid of it this time of year. I hope it doesn't take that long. I'm sick of breaking out I'm sick of itching all night and I'm sick of worrying about if it will come back. I cry a lot, it drives my husband nuts but I can't help it. I've been coming here for five years and just now started to post. A lot of the posts here have helped me a lot in fighting this. I've cried and laughed and then cried again reading all of them, It helps to know I'm not the only person who has gone through this. It helps to know I'm not alone. It is a lonely burden, and yes WE ARE WARRIORS. We are going to do a big house cleaning this weekend, hopefully that will help.Just like always we have to wait and see. GOD BLESS YOU AND STAY STRONG!!!!
Wow, my heart goes out to you and your daughter, especially you. I think going 18 months without it is great. These things get resistant so quick.
I've done 12 tubes perm cream and total of 90 over pills. Worked at first, like everything else, than quits. I'm looking for something that makes them sterile. Clorox does something but I can't do anymore.
No matter what I use, I itch.
Stuff is always coming out, but I have to work and try to rest, unlike the bloodsucking mite.
I will pray for you and all of us.
God Bless
cured _not_cured_almos t

Saint Albans, VT

#5 Dec 15, 2012
jayney wrote:
I used lyclear 4 times each time new bites appeared doctor said allergic reaction. used 2 weeks ago and used one full tube on my scalp hair and face and inside my ears and another tube on my body. I had no reaction afterwards bites got smaller and dried up. i believe you need to treat ypur face and head to clear this up.
I believe that too. Face is bad, especially eyes. I hope we figure this out soon. I'm so tired. My husband does what he can, but so tired of me being sick with this craziness We deal with,day and night.
I have so much Info on this stuff. Just not a cure that has lasted over a month. I figure we are getting closer. I see number of us growing, someone will find a cure soon.
We can't give up.

Since: Dec 12

West Plains, MO

#6 Dec 15, 2012
cured _not_cured_almost wrote:
<quoted text>
Wow, my heart goes out to you and your daughter, especially you. I think going 18 months without it is great. These things get resistant so quick.
I've done 12 tubes perm cream and total of 90 over pills. Worked at first, like everything else, than quits. I'm looking for something that makes them sterile. Clorox does something but I can't do anymore.
No matter what I use, I itch.
Stuff is always coming out, but I have to work and try to rest, unlike the bloodsucking mite.
I will pray for you and all of us.
God Bless
Thank you for the reply. It makes me feel better having someone to talk to who is going through this too. I have heard Clorox helps too, but I don't know if it's a cure. You can spray yourself from the neck down with a mix of 4 parts water to one part bleach at night. It helped my back not be so itchy. I guess we can just try different things until we find something that works. I have them on my face pretty bad. I've been using sulfur cream on my face but after 2 nights it burnt my face really bad. I think I'm putting them there from my hands. I've been spraying the house with bleach and water, it helps. I've been doing the dishes with a capful of bleach to try and get them out of my hands. I will pray for you and your husband, hang in there, you WILL beat this.
cured _not_cured_almos t

Saint Albans, VT

#7 Dec 17, 2012
ItchyKay wrote:
<quoted text> Thank you for the reply. It makes me feel better having someone to talk to who is going through this too. I have heard Clorox helps too, but I don't know if it's a cure. You can spray yourself from the neck down with a mix of 4 parts water to one part bleach at night. It helped my back not be so itchy. I guess we can just try different things until we find something that works. I have them on my face pretty bad. I've been using sulfur cream on my face but after 2 nights it burnt my face really bad. I think I'm putting them there from my hands. I've been spraying the house with bleach and water, it helps. I've been doing the dishes with a capful of bleach to try and get them out of my hands. I will pray for you and your husband, hang in there, you WILL beat this.
I wanted to get back sooner but I work 10 hrs. Fri and Sat and then Sunday, I'd normally go to church, but now I clean and do laundry, and really go to town on my face, eye area, with peroxide, to get the bastards to move, and kill some.
So the premethrin still works for you?
I'm hoping this peroxide and borax works. It sucks cause it keeps them pissed off and biting and the stuff drys your skin so much its so itchy.
And my forever Hero, Jesus birthday. Is around the corner and its hard to want to celebrate with this crap. I am pso tired. I really wish we could work together, us long sufferers, and spend directed time emailing, and looking for maybe something make these things sterile. I do think this borax, may work but I'm taking Epsom salt baths too.
What's up with you?
cured _not_cured_almos t

Saint Albans, VT

#8 Dec 17, 2012
So I I dabbed my eyes with peroxide last night til the places were white, burned, and red and raw, which causes the other places where they are at begins to feel like bites so I dab those places too till white, talk about burn, but I had to get them to move away from eyes.
I then took a bath in Epsom, bath salt, and a&h, showered rinse with borax and peroxide and in bed at 3:30, bout normal time. When I shower, I have myfeet in a plastic dish pan. And I first step in dishpan with my clogs and slosh around and take them off, and leave in shower with me, but I never stand in shower barefoot.
Anyway today Monday, I took a shower, and scrubbed with borax, sea salt and peroxide.
I quit putting peroxide/borax on my hair, makes it fall out and too dry. Ok, after zi got out air dried, dabbed my places in face again with straight peroxide, less places turned white. Then I mix some peroxide and borax and paper towel dab on my face.
I haven't used a real towel since I decided they HUD in them more easy. Also I wear polyester. My sheets and light weight comforters from jcpenny are all poly too.
Winter time I where small trashbags or cut ones betweenmy socks and boots.
I wear latax gloves under gloves. I can't put oils and lotion on, I go nuts, in the bathroom non stop looking.
They bastards love my face .
I'm headed over to a couple other topics to hopefully puss them off so I can get times of treatments and measurements It is hard for me to understand how you hoo on here and say you are cured, and then give your list, and leave. I need to know details. You know?
I guess I drank my peroxide too use to time of borax drink. That almost sent me too hospital, so I haven't had borax Fri.k for three days. I want to make it to a cure without killing myself accidentally.
cured _not_cured_almos t

Saint Albans, VT

#9 Dec 17, 2012
jayney wrote:
I used lyclear 4 times each time new bites appeared doctor said allergic reaction. used 2 weeks ago and used one full tube on my scalp hair and face and inside my ears and another tube on my body. I had no reaction afterwards bites got smaller and dried up. i believe you need to treat ypur face and head to clear this up.
What is lyclear? Are you cured or how are you maintaining.
What else do you use?
cured _not_cured_almos t

Saint Albans, VT

#10 Dec 19, 2012
Guess all the cured or long gone, or back.on here with aliases, haha
Still hoping the borax/peroxide works.
jayney

Hartlepool, UK

#11 Dec 19, 2012
Lyclear is only english version of permethrin. Also using sulphur soap. One or two small bumps keep appearing but dont itch too much. Gonna give it another week before I apply any more but will definately do my scalp again wish I could get ivermectin tablets here but doctors wont prescribe it
Missing my family

Ardsley, NY

#12 Dec 19, 2012
cured _not_cured_almost wrote:
Guess all the cured or long gone, or back.on here with aliases, haha

Still hoping the borax/peroxide works.
One thing that helps me on my face is acne medicine. I'm not sure if the acid that kills them, but I noticed that when I use it I don't get bites on my face. Have you tired the liquid iver? I just started Sunday. I have 1 more perm treatment to to tomorrow. I've had this to long. No itch, but annoying crawling on face, scalp oh and I get random cuts pop up on my hand. 7 months of tourtue
figuredout

Nigeria

#13 Dec 19, 2012
I was cured when i simply used castor oil and salt bath , followed by zinc diaper rash cream and bought new tights. But, that was just the beginning. After monthes passed , i travelled leaving my clean clothes packed away, came back and wore some coodie jeans(washed in hot water and tea tree and dry cleaned. i still got it, first i feel a hard pinch , then i see a small bruise and then nodule like a pimple, i squeeze it and put peroxide but they are crazy flesh eating monsters that you cant see and they are real. Then you cant have sex or socialize for fear of spreading it. I know began the same long road of every treatment known to man, nothing. So i heard alfalfa tabs in bath work so i studied , what is in alfalfa that kills them, i found out alfalfa and potatoes suffer from a form a scabies and they treat it with penicillin(scary) well i thought maybe its the alfalfa medicine curing people. i bought penicillin cream and stopped using bleach and all antibacterial soap(because zinc, alcohol, bleach, tea tree, it will kill the penicillin,ok so bath with salt and a few alfa tabs only and rinse covered my body in the cream (you can mix with vaseline to make more. I saw some healing in one day although it still itches take pain meds, but the medicine will smell a bit when it works so put it at night and use medicated powder to stop itch in day time.I took bactrin ten days and put peniccillin cream on skin ten days im good again and throw away your underwear. If you cant find the cream(i got it in african store) take penicillan pills and empty them into vaseline. your skin may get bumbs but they go way.Use a new bath sponge when you start.If you try it 5 days and see a difference,you shoyld stick to it.
hells critters

Minneapolis, MN

#14 Dec 20, 2012
cured _not_cured_almost wrote:
Times within this 18 months of thinking I may be cured from this hell, only to find it coming back in a severe way, leads me to think, that these things really may be able to go dormant inside of us for at least a month.
That is how long I've been able to go without symptoms. 1st with Kleen Green and then 2 times with ivermectin pills and prem creme. I too have used bleach, sulfur, oils, paste, even straight peroxide, and my favorite thing was Windex, they are quieted quick with that stuff. I did the borax and peroxide and quit, but I am back to it. Gave up my Windex, as the b/p was pulling out blue globs. But maybe the Windex causes them to be sterile. Kleen Green worked well I think, but the cost, too much.
Growth regulator seems to help too. Neem oil too helps. I've been to doctor's and sent in samples to USDA, all showed a mite but unable to I'D because mouth piece missing.
So I'm hoping this borax, peroxide, and internal peroxide and borax with Epsom and sea salts works. That seems to be leading the way as to a cure without harsh poisons. I used to spray all my clothes with home defense, let set in bags and then wash twice with the favorite wash duo of borax and A&H powder.
I have been here waiting and wondering if I switch off to the new cure before I know something is working.
Oh, I must yell and scream and then I just want to die, till I get a little peace from God and read some of your success stories, because even one day or night is good news and helps me stay in the fight. It's a sad thing we are forced to be experimental subjects with no guidance from the medical community, and the worst to be thought of
As crazy. It is a lonely burden we all share. I'm thankful for this place to come, where someone understands and acknowledge you are suffering from something real. We all are warriors here, some will make it, some may not. I'm still in the fight. And that is because when I'm tired and can't go on, I come here. I'm always looking and you all are too. We will find a cure.
Thank you for that, and summing it up so nicely. I read these posts and do find some strength in it. It chaps me that such a little, insignificant creature can cause people so much misery.
I'm in the same boat, I feel like i've tried everything and they seems to be gone for a few days and they re-appear. You hit the nail on the head when you talk about us being guinea pigs..I used to scoff at the posts here and now find myself bathing in scalding and caustic bleach baths and covering myself and house in poisinous chemicals and it's really not fair. I went to my doctor and paid him 190 dollars to diagnose myself...so yes, the medical community has to pay more attention and not dismiss this.
I hope that you find peace in this as well and if you do come clean, share your secrets. Thanks for posting!
Missing my family

Ardsley, NY

#15 Dec 20, 2012
My question is when do you know your cured? Is it when you stop having the itchies, the crawling? When do you know? I know people say post scabies are like having regular scabies but not as intense.

Since: Dec 12

West Plains, MO

#16 Dec 26, 2012
cured _not_cured_almost wrote:
<quoted text>
I wanted to get back sooner but I work 10 hrs. Fri and Sat and then Sunday, I'd normally go to church, but now I clean and do laundry, and really go to town on my face, eye area, with peroxide, to get the bastards to move, and kill some.
So the premethrin still works for you?
I'm hoping this peroxide and borax works. It sucks cause it keeps them pissed off and biting and the stuff drys your skin so much its so itchy.
And my forever Hero, Jesus birthday. Is around the corner and its hard to want to celebrate with this crap. I am pso tired. I really wish we could work together, us long sufferers, and spend directed time emailing, and looking for maybe something make these things sterile. I do think this borax, may work but I'm taking Epsom salt baths too.
What's up with you?
I'm sorry I've been gone, my husband told me to stay off the forum for a while because I was really depressed. I have been having some luck with the iver and permethrin I have been using, but they always come back. I have started doing the permethrin and then iver three days later and then three days do permethrin again. I'll try that for a while and see if that helps. I was doing better for a few days since I permethrined but last night I found new spots and a track mark on my knee. It was time again to use the iver last night so I used it. I was starting to get it on my face again last night, too. My husband and daughter have been using the permethrin and iver, too. I burned my back really bad with bleach. I had my husband rub out one of the pimples on my back. The iver and per. have been keeping it kind of in control but It hasn't gotten rid of it yet. I stayed home yesterday on Christmas day so I wouldn't expose our family to it. It was a really lonely day. I feel so alone in this. We told everyone in the family that I was just sick. I don't think they would understand. I stopped using the bleach after what happened to my back. I feel better after using the iver last night, but It will only last a few days. I hope we can all get rid of this soon. I'll try not to abandon you,it's just been really hard though. I stopped using the permethrin for about three weeks. I was only using iver. It came back so I'm going to try the iver and permethrin every three days thing and see if that is better. Iver then three days later permethrin then three days later iver again and so on... I'll let you know how its going. My husband doesn't want me to come here so I may take a break over the weekend and new years, ok? I'll talk to you soon, I haven't forgotten about you, I won't I promise. You guys are all that I have that understand. God bless you, talk to you later.
Missing my family

Springfield, NJ

#17 Dec 26, 2012
ItchyKay wrote:
<quoted text>
I'm sorry I've been gone, my husband told me to stay off the forum for a while because I was really depressed. I have been having some luck with the iver and permethrin I have been using, but they always come back. I have started doing the permethrin and then iver three days later and then three days do permethrin again. I'll try that for a while and see if that helps. I was doing better for a few days since I permethrined but last night I found new spots and a track mark on my knee. It was time again to use the iver last night so I used it. I was starting to get it on my face again last night, too. My husband and daughter have been using the permethrin and iver, too. I burned my back really bad with bleach. I had my husband rub out one of the pimples on my back. The iver and per. have been keeping it kind of in control but It hasn't gotten rid of it yet. I stayed home yesterday on Christmas day so I wouldn't expose our family to it. It was a really lonely day. I feel so alone in this. We told everyone in the family that I was just sick. I don't think they would understand. I stopped using the bleach after what happened to my back. I feel better after using the iver last night, but It will only last a few days. I hope we can all get rid of this soon. I'll try not to abandon you,it's just been really hard though. I stopped using the permethrin for about three weeks. I was only using iver. It came back so I'm going to try the iver and permethrin every three days thing and see if that is better. Iver then three days later permethrin then three days later iver again and so on... I'll let you know how its going. My husband doesn't want me to come here so I may take a break over the weekend and new years, ok? I'll talk to you soon, I haven't forgotten about you, I won't I promise. You guys are all that I have that understand. God bless you, talk to you later.
So sorry to hear about your Christmas. I know how depressing this is. I pray you and your family get better soon. My husband told me the same thing. He asked me to stop reading the forums because I could be here reading for hours.(Tearing up just writing this) are you using the cattle/swine iver? I am also. I did my 5th prem last Thursday, and I will be doing the iver for the next 4 weeks. It's so scary not knowing if your ok, and if you can be around people. I hope the new year will be a better one.
cured _not_cured_amost

Arlington, VA

#18 Jan 2, 2013
This I know..... Not one of our loved ones wants us on these forums, why???? Glad you asked.
Because we cry, and get depressed, and who wants that, no one !!! But as we all know here, hiding doesn't make it better . Sure we all need breaks, as I just took one too. This crisp sucks the sir of humanity right out of us. My husband gets the sick look if he thinks Im even gonna mention anything about this plague. He's tired of it too.
But come on already. We have to get pissed off and work together to fight this crap!!!!
Surely I'm not the only one that gets low on creepy crawler funds, and then I have to coast.
I'm there now, but I'm using Peroxide/borax in day, Epsom salt/sea salt at night. Clear globs are coming out of face, and my face and eye area is my most " hate area" for the bastards to hang out.
I am drinking 10 drops food grade peroxide twice a day. No more drinking borax right now, gags me
But lots black dots and clear globs coming out. How can I tell....... I see them with my 15 mag mirror on my face and qtip and look. I know I have mites because at doctor under 400 mags, my doc, husband and I saw and took a picture. Mites !!!'
Yikes!!! I expelled a huge laugh with spray when I saw my docs and husbands face, then I cried and thanked the Lord, cause none of us could say I was crazy. But the medical field doesn't know how to treat it, and they are not gonna give you poisons for a long amount of time, cause they would be liable. So we will have to form a team to send out emails and specimens to the right places saying these are on our animals otherwise you will hear that what we have isn't possible, but it is and the new mite strains, unless you get them early are resistant. So how do we start???!
We must get pissed off and move in our anger.
I have started last year and I will try to pick and send an email once a week to specialist saying I found this on my dog. Yes I will lie. I sure will.
I will keep coming back here, tears or not, still hoping one of us have been cured or even close.
I'm not ready to give up. I get sick and tired and cry and pray but I'm moving forward ......
Please don't give up.
misery_in_au

Sydney, Australia

#19 Jan 2, 2013
ItchyKay wrote:
<quoted text>
I stayed home yesterday on Christmas day so I wouldn't expose our family to it. It was a really lonely day. I feel so alone in this.
Same here, alone for Xmas and NYE. Doctors don't want to know, just want you out of their office asap. They will NOT treat to the end, ie- a cure.

I also agree with that idea of sending specimens to vet doctors ;)
Missing my family

Medford, MA

#20 Jan 2, 2013
cured _not_cured_amost
What do you mean you have clear globs coming out of your face? You sure you have scabies? I pray for you and your family to find comfort and be done with these things!

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