Morgellons not scabies
Scared Single Mother

Edmonton, Canada

#21 May 13, 2007
Both my little girl and I have this terrifying disease. I have lost 4 teeth from this and my daughter has lost 2. I have tremendous pain in joints and daily activities are becoming a challenge. There are no Dr.'s in Canada treating this and we are despeate. Can anyone reccomend a treatment? I'm too young to die and I have to be here for my little girl.
Been There

United States

#22 May 13, 2007
Scared Single Mother wrote:
Both my little girl and I have this terrifying disease. I have lost 4 teeth from this and my daughter has lost 2. I have tremendous pain in joints and daily activities are becoming a challenge. There are no Dr.'s in Canada treating this and we are despeate. Can anyone reccomend a treatment? I'm too young to die and I have to be here for my little girl.
what caused the tooth loss? are you on a medication?
Sam

United States

#23 May 13, 2007
Hi Scared, I know there are message boards for people with morgellons, I don't have the links, but google should find them.

As far as I know, only a couple of people on this board have any info about this, but we know a lot about scabies.

I saw a website about people who had skin lesions all over their face that was caused by mercury dental work. Probably not related to what you have though. All the best to you and your daughter. Hope you find a cure.
Liatris

AOL

#24 May 20, 2007
OK - Please, everyone - do lots of research on Morgellons before coming to any conclusions about it. I have. There was a study done with real scientists who seriously looked into it. All the people in the study who thought they did not have skin parasites, did not and 18-19 of the 20 who thought they did have skin parasites DID ! They had skin samples taken by an MD and parasitologist who knew a bit about how to look for parasites and what to look for. This was written up in a an entomology journal. The problem is that CDC and doctors can barely identify a scabies mite from a demodex mite, are afraid to come near enough to even take samples (not that they know what they are looking at). ALSO, all Morgellons patients who have been tested have an infection with agrobacteria - a bacteria that used to only infect plants ! People without Morgellons do NOT have it. These Smileykins and tall cotton are on a mission to undo all that is really known about Morgellons - they deny what the true scientists and doctors and researches have found. They need to get a life. They cause trouble where ever they go. What a weird mission. They have their own twisted reasons for doing it that I will not get into. There TONS of parasites beyond scabies and those infesting Morgellons patients. They just do not know what to look for, what stains to use to make parasites even show up to be seen under microscopes. BTW, Collembola is the critter that was found on those skin samples taken from the Morg patients. I am SURE that not everyone here has scabies.
ilovebutterflies

Newnan, GA

#26 May 30, 2007
She had been treating herself with antibiotics on a regular basis for approx 6 months. When she went to see an Infectious disease specialist here, he told her that it was finished, i.e. that all of these things had left her body.
The specialist did not define the nature of her infection, however he saw the specimens she took in to be examined.
I don't know what causes this, however I do know that it is real, and that long term ABX seem to drive it out.

what kind of antibiotics were prescribed to your sister? i think my mom may have morgellons. she has lesions that wont heal and crawling, stinging, and biting sensations on her body. she stays up all night complaining about these symptoms. it's weird cause my entire family has itching and only itching but she has all the other symtoms. her doctor gave her scabies medicine for the entire family and they've done three treatments and the itching doesn't seem to go away.
Danser

Incline Village, NV

#27 Jun 8, 2007
Dr. James Matthews, MD Endorses NutraSilver as an “Effective Therapy” for Some Morgellons Symptoms
Written by James Matthews, M.D.
Wednesday, 18 April 2007
Disclaimer: This information is being shared for educational purposes only, and is not intended to replace a proper consult with your physician for healthcare. No one should practice medicine on themselves or others without a license.
Dear Morgellons Community Members,
I have some preliminary data indicating that NutraSilver is an effective therapy for some of the symptoms, in some of the patients, suffering with Morgellons Syndrome, and after new drug applications have been filed, endorse trials of its use for this mysterious condition.
About 2.5 years ago, I met my first Morgellons patient and three months later, I became a patient myself.
Then, about four weeks ago, I heard about NutraSilver and chose to try some personally.
Now, most people recognize that precipitation of a Herxheimer Reaction is a good indicator that your therapy is effective. In my case, I had precipitated these gently, and detoxified many, many times, and believed there was very little infection left in my body to cause a Herx. This turned out not to be the case. A unique, deep tissue Herx occurred which gave way to greater feelings of well being and physical health than I had previously experienced with any other method.
I recognized the potential value of this new therapy and immediately gave my two sickest patients my remaining samples.
In the second patient, who had only just begun my protocol, and had been suffering with multiple bodily and facial lesions, the results were dramatic. Within days his skin started clearing. He declared he felt "very good", with improved mental processes and mood, and increased energy.

After consulting with their own personal physician, if anyone does choose to use NutraSilver for Morgellons, please let us know how it goes. We hope to compile data about any possible risks, and benefits, and use this information in a "New drug" application to the FDA for clinical trials.
Standing together now, we will find answers, and we will begin to offer more relief for those suffering.
Conflicts of Interest: A small percentage from the sales of NutraSilver is paid to Advanced Medicine, L.L.C., a new nonprofit company that I direct. 100% of the monies received go directly back into the support of clinical and scientific research in Morgellons. Using this method of funding, I hope to raise more money for Morgellons research within the next year, than all of the other organizations, in all of the previous years put together.
I will be available to answer some questions on the Morgellons Hope Community Forum.
Sincerely,
James Matthews, M.D.
Mary

Vero Beach, FL

#28 Jun 9, 2007
please post a link to NutraSilver. thank you.
Danser wrote:
Dr. James Matthews, MD Endorses NutraSilver as an “Effective Therapy” for Some Morgellons Symptoms
Written by James Matthews, M.D.
Wednesday, 18 April 2007
Disclaimer: This information is being shared for educational purposes only, and is not intended to replace a proper consult with your physician for healthcare. No one should practice medicine on themselves or others without a license.
Dear Morgellons Community Members,
I have some preliminary data indicating that NutraSilver is an effective therapy for some of the symptoms, in some of the patients, suffering with Morgellons Syndrome, and after new drug applications have been filed, endorse trials of its use for this mysterious condition.
About 2.5 years ago, I met my first Morgellons patient and three months later, I became a patient myself.
Then, about four weeks ago, I heard about NutraSilver and chose to try some personally.
Now, most people recognize that precipitation of a Herxheimer Reaction is a good indicator that your therapy is effective. In my case, I had precipitated these gently, and detoxified many, many times, and believed there was very little infection left in my body to cause a Herx. This turned out not to be the case. A unique, deep tissue Herx occurred which gave way to greater feelings of well being and physical health than I had previously experienced with any other method.
I recognized the potential value of this new therapy and immediately gave my two sickest patients my remaining samples.
In the second patient, who had only just begun my protocol, and had been suffering with multiple bodily and facial lesions, the results were dramatic. Within days his skin started clearing. He declared he felt "very good", with improved mental processes and mood, and increased energy.
After consulting with their own personal physician, if anyone does choose to use NutraSilver for Morgellons, please let us know how it goes. We hope to compile data about any possible risks, and benefits, and use this information in a "New drug" application to the FDA for clinical trials.
Standing together now, we will find answers, and we will begin to offer more relief for those suffering.
Conflicts of Interest: A small percentage from the sales of NutraSilver is paid to Advanced Medicine, L.L.C., a new nonprofit company that I direct. 100% of the monies received go directly back into the support of clinical and scientific research in Morgellons. Using this method of funding, I hope to raise more money for Morgellons research within the next year, than all of the other organizations, in all of the previous years put together.
I will be available to answer some questions on the Morgellons Hope Community Forum.
Sincerely,
James Matthews, M.D.
sach

Virden, Canada

#29 Jun 10, 2007
I went to see a doctor and he told me that i had scabies and told me to use nix cream i used it more then once.It kinda dissapered but stayed red. Now have little spots between fingers and little palm that look like little water blister. I used a pin and pricked one and clear liquied came out. I've been to two doctors. one said i had scabies so i used nix cream .It did't really work. I've tried it 3 times. The second doctor told me i didn't have scabies and just gave me some cream but that did't seem to work. Any one can help me?
Mary

Vero Beach, FL

#30 Jun 10, 2007
I don't think Nix cream is strong enough. I think it is 1% permethrin. You need Elimite 5% permethrin. Try to get two doses of ivermectin (stromectol). Try to go to a dermatologist, to confirm the diagnosis of scabies. Look on all the threads of this forum and educate yourself, about doing laundry and cleaning, etc. Here is a link to order meds.
http://www.topix.com/forum/health/scabies/TQ1...
hopeful

San Francisco, CA

#31 Jun 10, 2007
Hi Mary,

I think that in Canada, the 5% permethrin cream is branded with a different name and is called Nix. It's confusing and they probably did this a while ago or before thinking that english speakers would be chatting across borders via internet.
hopeful

San Francisco, CA

#32 Jun 10, 2007
Sach,

You may need to add ivermectin to your treatment routine. The US CDC just endorsed it as front line treatment. You may be able to get a prescription from your MD or order online.

Since: Jun 07

San Diego, CA

#33 Jun 21, 2007
I was diagnosed by a professional nurse at a local health clinic with a moderate case of scabies in October, 2006. I had developed an outbreak of numerous itchy red bumps, some with small whiteheads, across my groin area and inner thighs. I was prescribed Elimite to treat the outbreak, and it seemed to work, however a few bumps remained and I treated again a week later. I was not able to get rid of all of the bumps, and they spread to my legs and abdomen. I bagged up all of my clothing, and laundered the rest, drying everything at a laundromat on high heat. I went to a second nurse, who rediagnosed me with scabies event though she had never seen scabies before, basing her decisions upon my original diagnosis and treatment. I was never able to get rid of all the bumps however with Elimite no matter how hard I cleaned. I bought the purple Extreem Clean off the DermatechRX website and the Mitactin salve and spray and that seemed to work better. I threw out a couch, and a rug, and a set of sheets, and began cleaning everything on a daily basis. I mopped my floor, did laundry, covered my mattress with a mattress cover, and wiped it down everyday. I also cleaned my entire truck, and did my seats and office chair with an Extreem Clean spray mixture, everyday and wiped down all surfaces. I still could not get rid of the bumps completely. For eight months I endured this cleaning process and sequestered myself from others. My girlfriend and best friend eventually got it too. My friend went to see a third nurse who told him he had Folliculitis, which is basically a bacterial staph infection of the hair follicles on the skin. Well I laughed at first not believing that two previous medical professionals could have been wrong, but I researched it online and sure enough, the symptoms and bumps looked exactly like what we had. We immediately stopped using the mitactin, and permethrin on the skin, and stopped cleaning with the extreem clean. Instead we bought antibacterial soap and over the counter antibiotic cream. My girlfriend and I began scrubbing our entire bodies daily with the soap and an exfoliating sponge, and put cream on the red spots. It worked like a charm. It is June, 2007 now and it has been a month since we rediagnosed ourselves. I have not cleaned anything, or used Mitactin or permethrin in that time. Folliculitis was the correct diagnosis, and is highly contagious. It can be transferred through contact with infected clothing, or skin, but is easily treatable. Scabies is a mental affliction just as much as a physical one. We never had the symptoms of scabies described online like burrow marks, pin prick biting, bumps between the fingers, little black spots etc, but the doctors we saw did not take that into account. I hope that my story and the story of my friends can help someone avoid the financial loss, depression, and waste of time we endured by alerting them to first treat themselves for folliculitis before thinking they have scabies. It is worth a shot and will only set you back about a week if you are wrong. It’s better than the 8 month odyssey we endured after being misdiagnosed.
Smileykins - Tall Cotton

Bridgeport, WV

#34 Jul 8, 2007
Liatris? I had asked you, recently, for a link to whatever scabies forum you had bragged to patients on lymebusters' message board about running us off from. Of course, you didn't answer me.

You are making things up to get other "morgellons disease" patients to believe you, and there are also other "morgellons disease" patients/believers who are doing the very same as you.

What would "morgellons disease" BE if any of you got honest?

Mwatch people getting creamed by non-Morgellon
Excerpt from Reply #8 - June 3, 2007

<blockquote>I am happy to say that I was able to shut up the dasterdly duo at a scabies site - with much less work, actually. All I had to do is mention that a real study had been done in which 18 of 20 people with Morgellons dxed as delusional were found to have parasites under their skin simply because a couple of doctors who had a clue decided to have a look. The duo was "educating" those who knew nothing really about Morgellons and were starting to sway them into feeling foolish for considering the possibility that it may be real. I guess there are always those who are prone to being swayed without discerning anything for themselves.</blockquote>

Refer back to page one, here. You're confused, and you like confusing others. Go look at the dates. We had commented back in February, and we were done. You commented in May. You are mixed up. Go to a specialist about your liver.
2ScratchOrNot2Sc ratch

Sanford, NC

#35 Jul 8, 2007
My derm said that Morgellans is a complete fabrication. I'm not agreeing with him, as I don't suffer from it, that was just his opinion. He said to absolutely ignore anyone who claims to have it.
music

AOL

#36 Aug 4, 2007
Can someone please recommend a reputable Physician in the Los Angeles area who treats this condition?
Smileykins -Tall Cotton

Bridgeport, WV

#37 Sep 19, 2007
music, I don't think there is such thing as a "reputable physician", anywhere, who would dare take money from, and endanger a patient, by pretending to go along with their belief that they have something called "morgellons disease". Each real condition, though,(that anyone who is ill enough to have been deceptively coerced into thinking they share "morgellons disease" with countless others), can be diagnosed and treated by a licensed general practitioner, or a licensed internal medicine specialist. Either doctor will make the appropriate referrals, when necessary. Check with your state medical board when choosing that initial physician, to be sure they're licensed members of the American Medical Association. Trust the doctor's diagnosis and plan of treatment, follow up with them, and you'll be sure to be on the way to better health.
darcey

United States

#38 Oct 19, 2007
This is a response to the post on 8/04/07 by "music, AOL, requesting referral to a knowledgable physician. There is a web site who compiles such a list, it helped my brother get treatment. I'll get the name of site and post it in 1-2 days.
FrancesFinallyCu red

Corpus Christi, TX

#39 Nov 6, 2007
Tall Cotton wrote:
Sam,
The people who believe that they have Morgellons Disease, are suffering from a wide variety of physical and mental disorders. Most of them also have a mental disorder in common. That disorder is Delusions of Parasitosis. They are psychotic, and their unfounded beliefs are unshakable. Morgellons Disease does not exist. It never has, and it never will. It wasn't a disease back in the 1600's, in Sir Thomas Browne's studies, and it isn't one now.
Most of the Morgies believe that they are infested with various parasites, but they aren't. Most of the registrants at the Morgellons Research Foundation have been diagnosed with Delusions of Parasitosis between 10 and 40 times each. They hop from doctor to doctor, trying to find one that will agree with them. But only a few quacks will, and they are exploiting these mentally ill people for their money, and to accomplish their personal agendas.
Many DOP sufferers do not see anything that is unreal, or not there. You are confusing delusions with illusions. Some hallucinate, but some don't. A delusion is an unshakable belief that isn't backed up by the evidence, and there is no evidence that Morgellons Disease exists
That was a pretty low thing that you said about Smileykins. Smileykins knows exactly what she is talking about. This isn't about people with scabies, and it isn't about people who think they have scabies. I suggest that until you learn something about Morgellons, you keep your comments the condition to yourself. You've made some seriously false accusations. Smileykins has been helping Morgies for a long time, and believe me, she does have friends, and a good life.
Tall Cotton
this post is so not right and totally BUNK.morgellons is REAL and for those who suffer from it well i feel so bad for it is much worse imo anyday than having scabies ever will be.

i am from south texas and the most/highest concentration of it is here in fact, which was so scary to me since i seem to be so susceptible toi bugs as it was.

anyway it is recognized and thankfully there are people who are doing studies on it and trying to help the folks who have it.

now what i would like to know is where it came from and how they actually contracted it, thats the bigger (and scary) mystery (conspiracy theory, lol) to me.

.
FrancesFinallyCu red

Corpus Christi, TX

#40 Nov 6, 2007
ACK :/ susceptible TO (- i) bugs

(also have a mild case of OCD too, lol.)
FrancesFinallyCu red

Corpus Christi, TX

#41 Nov 6, 2007
Liatris wrote:
OK - Please, everyone - do lots of research on Morgellons before coming to any conclusions about it. I have. There was a study done with real scientists who seriously looked into it. All the people in the study who thought they did not have skin parasites, did not and 18-19 of the 20 who thought they did have skin parasites DID ! They had skin samples taken by an MD and parasitologist who knew a bit about how to look for parasites and what to look for. This was written up in a an entomology journal. The problem is that CDC and doctors can barely identify a scabies mite from a demodex mite, are afraid to come near enough to even take samples (not that they know what they are looking at). ALSO, all Morgellons patients who have been tested have an infection with agrobacteria - a bacteria that used to only infect plants ! People without Morgellons do NOT have it. These Smileykins and tall cotton are on a mission to undo all that is really known about Morgellons - they deny what the true scientists and doctors and researches have found. They need to get a life. They cause trouble where ever they go. What a weird mission. They have their own twisted reasons for doing it that I will not get into. There TONS of parasites beyond scabies and those infesting Morgellons patients. They just do not know what to look for, what stains to use to make parasites even show up to be seen under microscopes. BTW, Collembola is the critter that was found on those skin samples taken from the Morg patients. I am SURE that not everyone here has scabies.
also i have heard that this "bacteria" being found in morgellons patients is also the same as that found in folks with lyme disease so there is possible link between the 2 they think.anyway, it must be awfully scary having those fake looking blue fibers coming out of ones skin.

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Scabies Discussions

Title Updated Last By Comments
invisable bug biting me all over my body. (Oct '15) 2 hr Nallah 7
IMPORTANT: Ivermectin Dosage (Feb '08) 6 hr Martin 229
Baking Soda / Glass of Water a Day 12 hr Smitty 1
Scabies on face and scalp? (Aug '07) 12 hr reallyroxanne 1,004
Has anyone used Benzoyl Peroxide Wash "Before" ... 17 hr smitty 4
Mix your own Sulfur cream! (Feb '10) 19 hr Willow wonder 94
Last night was rough (Oct '15) Wed Cfowler 7
More from around the web