Morgellons not scabies

Morgellons not scabies

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misdiagnosis Attention

Franklinton, NC

#1 Jan 16, 2007
There is a new disease that doctors think is scabies, but it is not. there is a research foundation based in Maryland that is studying it.
The biologist is Mary Leitao. If you have symptoms that do not get healed with medication it would not hurt to research this more...Morgellons is the name it has been given.
Just a thought

Elm City, NC

#2 Jan 23, 2007
I have heard some about Morgellons, it says that doctors think it is Scabies but the medicines that help scabies do not help Morgellons. It makes you break out like scabies, and itch like scabies.
For the people on here that have tried everything, why not ask your doctor to do some research.
Also just a thought

Kailua Kona, HI

#3 Feb 20, 2007
Just a thought wrote:
I have heard some about Morgellons, it says that doctors think it is Scabies but the medicines that help scabies do not help Morgellons. It makes you break out like scabies, and itch like scabies.
For the people on here that have tried everything, why not ask your doctor to do some research.
Asking MOST of the Doctors these days to do some research on something like this is a waste of time!
I also have heard about this disease, but it got me wondering, I think Morgellons just might actually be scabies. Anyone that has suffered from Scabies, knows that the medications that the Doctors are prescribing do not work most of the time, as they say!!! The mites actually are getting resistant to these medicines. Also anyone that has suffered through this, has probably dealt with one or two of the VERY CLOSED MINDED Doctors that do not know squat about Scabies. They make you feel like you are crazy or just mistaken about what you actually have. But then they can not come up with an alternative diagnosis, so they give it another name, like Morgellons. Maybe they should be spending their time researching Scabies and informing these Doctors, so people are not made to feel like they have to resort to taking horse ivermectin paste, because no one will help them!!!!!!!!!!
Sorry, the anger is not directed at you. I have just been there and I am appauled to have been treated like a crazy person on drugs who was imagining bugs crawling on me. Because I had been treated a few times and it did not work, they told me I probably never even had Scabies and that they were not going to give me anymore medicine. Because they had no idea what was going on, they assumed it was all in my head!!!! I may never go to another Doctor as long as I live!!!!!!
Tall Cotton - Smileykins

Bridgeport, WV

#4 Feb 21, 2007
Practicing physicians don't do research. Patients go to them for diagnosis, treatment, and referral. It's everyone's prerogative to ignore a doctor and let their condition go, but going so very public with it, and alerting the CDC to do something about it, is unique.
Tall Cotton - Smileykins

Bridgeport, WV

#5 Feb 21, 2007
Correction: Practitioners involve themselves in research, sometimes, and they use research, all of the time. But, they know about this misnomer, "morgellons disease". Various underlying physical conditions trigger the state of DOP -- various underlying mental conditions trigger the state of DOP. Treat the underlying condition, and the state subsides. Don't treat it, and it remains.
Sam

United States

#6 Feb 21, 2007
Tall Cotton - Smileykins wrote:
Correction: Practitioners involve themselves in research, sometimes, and they use research, all of the time. But, they know about this misnomer, "morgellons disease". Various underlying physical conditions trigger the state of DOP -- various underlying mental conditions trigger the state of DOP. Treat the underlying condition, and the state subsides. Don't treat it, and it remains.
What exactly are you trying to say? Your posts don't make any sense. Are you saying that the doctors that diagnosed us with scabies are all dilusional?

There is such a disease called DOP. These people see large bugs that are not there going in and out of their bodies. The bugs change color and shape as in sci fi movies.

Smileykins, if you have these symptoms please see a doctor for your mental condition. If you don't have these symptoms, and you don't have scabies, please see a psycologist and ask him or her what is wrong with you that makes you feel the need to post on this board just to get attention? Maybe you just need some friends, or a job, or a life.
Tall Cotton

AOL

#7 Feb 22, 2007
Sam,

The people who believe that they have Morgellons Disease, are suffering from a wide variety of physical and mental disorders. Most of them also have a mental disorder in common. That disorder is Delusions of Parasitosis. They are psychotic, and their unfounded beliefs are unshakable. Morgellons Disease does not exist. It never has, and it never will. It wasn't a disease back in the 1600's, in Sir Thomas Browne's studies, and it isn't one now.

Most of the Morgies believe that they are infested with various parasites, but they aren't. Most of the registrants at the Morgellons Research Foundation have been diagnosed with Delusions of Parasitosis between 10 and 40 times each. They hop from doctor to doctor, trying to find one that will agree with them. But only a few quacks will, and they are exploiting these mentally ill people for their money, and to accomplish their personal agendas.

Many DOP sufferers do not see anything that is unreal, or not there. You are confusing delusions with illusions. Some hallucinate, but some don't. A delusion is an unshakable belief that isn't backed up by the evidence, and there is no evidence that Morgellons Disease exists

That was a pretty low thing that you said about Smileykins. Smileykins knows exactly what she is talking about. This isn't about people with scabies, and it isn't about people who think they have scabies. I suggest that until you learn something about Morgellons, you keep your comments the condition to yourself. You've made some seriously false accusations. Smileykins has been helping Morgies for a long time, and believe me, she does have friends, and a good life.

Tall Cotton
Smileykins

Bridgeport, WV

#8 Feb 22, 2007
Sam. Excuse me, for not articulating myself well enough for you. I don't know you, though, and I didn't address you. I would normally apologize for offending someone so badly, but I don't see that I've done anything wrong.

The bottom line, was that I'd meant that people who think that they have "morgellons disease" need health care advocates or proxies to assist them.
Smileykins

Bridgeport, WV

#9 Feb 22, 2007
http://psy.psychiatryonline.org/cgi/content/f...

I don't think that link will help you to understand anything any better, Sam, but it will help someone. Patients have something very wrong when they put extraordinary demands on doctors, expecting them to conform to them. You, and many other people who feel that they have "morgellons disease", often place rather extraordinary demands on me, as well. I implore that you please try considering if bossing others around ever brings you desirable results.
Smileykins

Bridgeport, WV

#10 Feb 22, 2007
I have tried my level best to see just exactly what happened, here, and how I unwittingly caused such upset. The topic IS: "Morgellons Not Scabies". Right? Well, scabies is most definitely not the same condition as "morgellons disease".
Sam

United States

#11 Feb 22, 2007
Smileykins wrote:
http://psy.psychiatryonline.or g/cgi/content/full/39/6/491
I don't think that link will help you to understand anything any better, Sam, but it will help someone. Patients have something very wrong when they put extraordinary demands on doctors, expecting them to conform to them. You, and many other people who feel that they have "morgellons disease", often place rather extraordinary demands on me, as well. I implore that you please try considering if bossing others around ever brings you desirable results.
It looks as if you are posting on the wrong board. I have stated I don't believe Morgellons exists. I don't think anyone on this board has even suggested that they have morgellons. This is a scabies forum.
Scarecrow

Livingston, CA

#12 Mar 11, 2007
Hi Ladybug - I'm interested in hearing your story. Like how long you've been affected, symptoms, treatments, etc. Did you start with scabies? Were you diagnosed with scabies? thanks.
Crawling in AZ

United States

#13 Mar 11, 2007
FYI - I think "Morgellons Disease" is a VERY REAL THING.
My sister had it and I could see these things appearing as 2 dots (like eyes) just under the skin surface, then long thread-like things would start erupting from her skin in the same place.
It was the most astounding thing I have ever seen -also the most gross...
Crawling in AZ

United States

#14 Mar 11, 2007
Perhaps this forum should be changed to just "Morgellons"
Crawling in AZ

United States

#15 Mar 11, 2007
Tall Cotton wrote:
Sam,
The people who believe that they have Morgellons Disease, are suffering from a wide variety of physical and mental disorders. Most of them also have a mental disorder in common. That disorder is Delusions of Parasitosis. They are psychotic, and their unfounded beliefs are unshakable. Morgellons Disease does not exist. It never has, and it never will. It wasn't a disease back in the 1600's, in Sir Thomas Browne's studies, and it isn't one now.
Most of the Morgies believe that they are infested with various parasites, but they aren't. Most of the registrants at the Morgellons Research Foundation have been diagnosed with Delusions of Parasitosis between 10 and 40 times each. They hop from doctor to doctor, trying to find one that will agree with them. But only a few quacks will, and they are exploiting these mentally ill people for their money, and to accomplish their personal agendas.
Many DOP sufferers do not see anything that is unreal, or not there. You are confusing delusions with illusions. Some hallucinate, but some don't. A delusion is an unshakable belief that isn't backed up by the evidence, and there is no evidence that Morgellons Disease exists
That was a pretty low thing that you said about Smileykins. Smileykins knows exactly what she is talking about. This isn't about people with scabies, and it isn't about people who think they have scabies. I suggest that until you learn something about Morgellons, you keep your comments the condition to yourself. You've made some seriously false accusations. Smileykins has been helping Morgies for a long time, and believe me, she does have friends, and a good life.
Tall Cotton
I absolutely do not agree, I have witnessed this in another person.
Crawling in AZ

United States

#16 Mar 11, 2007
My sister had Morgellons years ago, now I have scabies, and believe me, I CAN TELL THE DIFFERENCE!
Scarecrow

Livingston, CA

#17 Mar 11, 2007
Crawling in AZ wrote:
FYI - I think "Morgellons Disease" is a VERY REAL THING.
My sister had it and I could see these things appearing as 2 dots (like eyes) just under the skin surface, then long thread-like things would start erupting from her skin in the same place.
It was the most astounding thing I have ever seen -also the most gross...
Wow! I'm interested in this Morgellons thing, is she cured? and how? and what exactly is it? Do doctors treat it? What kind of a disease is it?

Crawling, your short posts are not really helpful. If you have something to say, just spit it out. People will read it, don't wait for someone to have to answer to drag it out of you.
Crawling in AZ

United States

#18 Mar 12, 2007
Scarecrow wrote:
<quoted text>
Wow! I'm interested in this Morgellons thing, is she cured? and how? and what exactly is it? Do doctors treat it? What kind of a disease is it?
Crawling, your short posts are not really helpful. If you have something to say, just spit it out. People will read it, don't wait for someone to have to answer to drag it out of you.
She had been treating herself with antibiotics on a regular basis for approx 6 months. When she went to see an Infectious disease specialist here, he told her that it was finished, i.e. that all of these things had left her body.
The specialist did not define the nature of her infection, however he saw the specimens she took in to be examined.
I don't know what causes this, however I do know that it is real, and that long term ABX seem to drive it out.
Crawling in AZ

United States

#19 Mar 12, 2007
I am also wondering if this is the long term effect of an undiagnosed "Trichomoniasis" infection which has just come to the attention of the American medical community - maybe, maybe not.
I just know that it is a real, entirely observable thing.
Possible Ref: InPouchTV
PS These are my observations/opinions only - I am not an MD
Sam

Livingston, CA

#20 Mar 12, 2007
Thank you Crawl, I appreciate your answer.

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