it will end. here's my success story.

it will end. here's my success story.

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Jessie

Ottawa, Canada

#1 Aug 31, 2012
i already talked a bit about this on here but i really want to share my story again because in the midst of my scabies infection i felt honestly depressed and hopeless and overwhelmed and i googled a lot. i frequently found myself on this forum reading the horror stories about all of you who "can't" get rid of the bugs.

i truly believed that i was one of those cases where the perm 5% did not work. i did the treatment once, and then again something like 12 days later. i itched like a maniac for months afterward and kept seeing the bites and feeling the creepy crawly sensation and pin-pricks. the whole time i had myself convinced i was still infected and that i would be in some life-long battle, trying out all of these crazy recipes that have been listed on the forums. my mom told me over and over "THEY ARE GONE" but i didn't believe her. i had weird cut-like marks show up and tons of itchy bumps so how could they be gone?

eventually these symptoms got slowly less and less. it took a LONG time. i think i was diagnosed early jan 2012 and i finished my treatments jan 9th and it took me until AT LEAST may 2012 to believe i was 100% cured. i even went to the doctors, and got her to refer me to a derm to make sure in that time frame because i still didn't believe. the derm said i had no scabies and the itching and bumps were just reactions. so that's at least 4-5 months of reactions.

i think what happens to a lot of people (disclaimer: NOT ALL OF YOU) after they do the perm treatments is that you might be cured but you think that the reactions are actual scabies so you do other things and other treatments that torment your skin, thinking they are curing you but you are probably causing your skin a lot of trauma and you wonder why you keep seeing more bumps. it's been 8 months since my treatment and i still occasionally have bumps that i am weirded out by or random itching but it is NOTHING like scabies was in full throttle. and i know for a fact they're gone.

i just wanted to share that story with you guys. i know that it might not apply to everyone. maybe you have some kind of different, or evolved mite that is unkillable, but for a majority of you, i truly think that all those treatments might just be making it worse. my best advice to you guys, especially if you're the anxious type like i am and can't leave it alone, is to just wait it out. treat your skin like it's your baby and moisturize like crazy. it takes TIME to stop seeing and feeling the allergic reactions and putting tons of weird shit on your skin will undoubtedly make them worse and take more time.

i don't want to sound like i know it all, cause i don't. i just want to reach out to other people like me who are surfing this forum and feeling totally hopeless and getting it in their head that they're incurable. don't believe that. i did and it only made the whole ordeal worse.

best of luck to EVERYONE. see the light at the end of the tunnel and have hope!

Since: Aug 11

Location hidden

#2 Aug 31, 2012
Jessie wrote:
i already talked a bit about this on here but i really want to share my story again because in the midst of my scabies infection i felt honestly depressed and hopeless and overwhelmed and i googled a lot. i frequently found myself on this forum reading the horror stories about all of you who "can't" get rid of the bugs.

i truly believed that i was one of those cases where the perm 5% did not work. i did the treatment once, and then again something like 12 days later. i itched like a maniac for months afterward and kept seeing the bites and feeling the creepy crawly sensation and pin-pricks. the whole time i had myself convinced i was still infected and that i would be in some life-long battle, trying out all of these crazy recipes that have been listed on the forums. my mom told me over and over "THEY ARE GONE" but i didn't believe her. i had weird cut-like marks show up and tons of itchy bumps so how could they be gone?

eventually these symptoms got slowly less and less. it took a LONG time. i think i was diagnosed early jan 2012 and i finished my treatments jan 9th and it took me until AT LEAST may 2012 to believe i was 100% cured. i even went to the doctors, and got her to refer me to a derm to make sure in that time frame because i still didn't believe. the derm said i had no scabies and the itching and bumps were just reactions. so that's at least 4-5 months of reactions.

i think what happens to a lot of people (disclaimer: NOT ALL OF YOU) after they do the perm treatments is that you might be cured but you think that the reactions are actual scabies so you do other things and other treatments that torment your skin, thinking they are curing you but you are probably causing your skin a lot of trauma and you wonder why you keep seeing more bumps. it's been 8 months since my treatment and i still occasionally have bumps that i am weirded out by or random itching but it is NOTHING like scabies was in full throttle. and i know for a fact they're gone.

i just wanted to share that story with you guys. i know that it might not apply to everyone. maybe you have some kind of different, or evolved mite that is unkillable, but for a majority of you, i truly think that all those treatments might just be making it worse. my best advice to you guys, especially if you're the anxious type like i am and can't leave it alone, is to just wait it out. treat your skin like it's your baby and moisturize like crazy. it takes TIME to stop seeing and feeling the allergic reactions and putting tons of weird shit on your skin will undoubtedly make them worse and take more time.

i don't want to sound like i know it all, cause i don't. i just want to reach out to other people like me who are surfing this forum and feeling totally hopeless and getting it in their head that they're incurable. don't believe that. i did and it only made the whole ordeal worse.

best of luck to EVERYONE. see the light at the end of the tunnel and have hope!
You must be drunk or high! 5% Permethrin does cure Scabies! Yeah, everybody go moisturize and you'll be cured. Good grief! Another looney tune!
Mite Ummy

Yucca Valley, CA

#3 Aug 31, 2012
Did you do any other treatments? Surely you did nothing when you were convinced you still had an active case. Did you still change your bedding while you were thinking you still had it? Any chemical baths? Sulfur soap?

I just dont belive you did nothing but wait it out. It is possible what ever you may have done in the months you mentioned after treatment contributed to the cure. I really feel there is more to your story.

I do believe you are cured as I have read similar stories like yours however the ones that discontinued the cleaning too soon, found themselves re-infected in a matter of moths or close to a year. Wishing you the best of luck and looking forward to your reply.
Jessie

Ottawa, Canada

#4 Aug 31, 2012
okay mitewarrior made absolutely no sense at all. i never said moisturizer was the cure. i said perm 5% and giving yourself time was the cure.

mite ummy - i did two treatments of perm and washed all my bedding and clothes (and bagged whatever i couldn't wash) like they tell you to. but i only did the washing like that around the treatments... i didn't wash anymore often than normal when the treatments were done, even when i thought i still had it.

other than those two things, and the occasional tea tree oil soak.. that is the full story. i'm not sure why it's so hard to believe.

Since: Aug 11

Location hidden

#5 Aug 31, 2012
Jessie wrote:
okay mitewarrior made absolutely no sense at all. i never said moisturizer was the cure. i said perm 5% and giving yourself time was the cure.

mite ummy - i did two treatments of perm and washed all my bedding and clothes (and bagged whatever i couldn't wash) like they tell you to. but i only did the washing like that around the treatments... i didn't wash anymore often than normal when the treatments were done, even when i thought i still had it.

other than those two things, and the occasional tea tree oil soak.. that is the full story. i'm not sure why it's so hard to believe.
Because hundreds of people have tried 5% Permethrin and tea tree oil and were no better off for it. You obviously didn't have Scabies. Maybe you had bed bugs? Did your doctor scrape your skin and view the debris under a microscope? Your story is fantasy and of no help at all.
Jessie

Ottawa, Canada

#6 Aug 31, 2012
mitewarrior77 wrote:
<quoted text>
Because hundreds of people have tried 5% Permethrin and tea tree oil and were no better off for it. You obviously didn't have Scabies. Maybe you had bed bugs? Did your doctor scrape your skin and view the debris under a microscope? Your story is fantasy and of no help at all.
yes i was skin scraped and it was scabies. also the webbing in between my fingers was FULL of the burrows and literally days after the perm treatments that cleared up right away so there is absolutely no doubt in my mind that it was scabies. from then until now my skin is 100% different.

you are extremely ignorant, and do a good job of invalidating your own argument by telling a stranger that their real life is a fantasy and that it is IMPOSSIBLE that a treatment said to work 99% of the time NEVER WORKS EVER. you are the one who is clearly drunk or high and has a need to prove something to everyone. quite frankly i just don't think you want to find out you're wrong about what you've been preaching.

what could i possibly gain from lying about this? i only came on here to offer help and comfort to the same people that i was once.

Since: Aug 11

Location hidden

#7 Aug 31, 2012
Jessie wrote:
<quoted text>yes i was skin scraped and it was scabies. also the webbing in between my fingers was FULL of the burrows and literally days after the perm treatments that cleared up right away so there is absolutely no doubt in my mind that it was scabies. from then until now my skin is 100% different.

you are extremely ignorant, and do a good job of invalidating your own argument by telling a stranger that their real life is a fantasy and that it is IMPOSSIBLE that a treatment said to work 99% of the time NEVER WORKS EVER. you are the one who is clearly drunk or high and has a need to prove something to everyone. quite frankly i just don't think you want to find out you're wrong about what you've been preaching.

what could i possibly gain from lying about this? i only came on here to offer help and comfort to the same people that i was once.
Obviously after one glass of wine too many.
Jessie

Ottawa, Canada

#8 Aug 31, 2012
mitewarrior77 wrote:
<quoted text>
Obviously after one glass of wine too many.
wow your intellect astounds me.

i am also no longer going to reply to you or anyone else who wishes to argue on this forum. i haven't had to google the word "scabies" in months and the ONLY reason i did today was to come here and try to help people.

i have no use for this thread anymore and nothing to prove to you so enjoy basking in your own delusions if that's what you want to do. i'm going to go enjoy my scabies free life.:)

Since: Aug 11

Location hidden

#9 Aug 31, 2012
Jessie wrote:
<quoted text>wow your intellect astounds me.

i am also no longer going to reply to you or anyone else who wishes to argue on this forum. i haven't had to google the word "scabies" in months and the ONLY reason i did today was to come here and try to help people.

i have no use for this thread anymore and nothing to prove to you so enjoy basking in your own delusions if that's what you want to do. i'm going to go enjoy my scabies free life.:)
Thank God! Good riddens Missy miss perfect do gooder. You helped no one. Pour yourself another!
ichyfamily

Dallas, GA

#10 Sep 1, 2012
Jessie,
I appreciate you're telling us about how you were healed. I can see how you would think that you weren't, when you still felt the crawling and saw stuff and all.
I hope and pray that we will(family of four) get to that point ourselves.
I don't mean any ill will to you mitewarrior77, but you just seem so spiteful. You are cured, right?
It's like you only want people that are like-minded as you to post on here.
Please let people say what they want to say. Jessie's not hurting you, or anyone, in sharing her experience.
Canada aka MiteMiner

Montréal, Canada

#11 Sep 1, 2012
Congratulations on your cure, Jessie.

I have a few questions.

1. How long was it between the onset of your symptoms and your diagnosis (or first treatment)?

2. Do you have any idea of where you picked up the infection? Was it in the Ottawa region?

3. Before your initial treatment, did you suffer from the sharp stinging itch that can cause one to wake up (I describe this feeling like being stuck with a needle dipped in hotsauce, then moved around under the skin)? How about after your treatments, did this feeling ever return?

4. Did you take any oral medication to help recovery or sleep, if so for how long?

5. Finally, I'm curious, where did you go in Ottawa to get diagnosed with a scraping and how long did you have to wait for the appointment and the results?

Thanks for all your info.
Canada aka MiteMiner

Montréal, Canada

#12 Sep 1, 2012
p.s. Although Topix identifies me as being in Beaconsfield, I am actually in Gatineau, Qc (across the river from Ottawa, for those who aren't familiar with Canada's capital region.)
Jessie

Ottawa, Canada

#13 Sep 1, 2012
Canada aka MiteMiner wrote:
Congratulations on your cure, Jessie.
I have a few questions.
1. How long was it between the onset of your symptoms and your diagnosis (or first treatment)?
2. Do you have any idea of where you picked up the infection? Was it in the Ottawa region?
3. Before your initial treatment, did you suffer from the sharp stinging itch that can cause one to wake up (I describe this feeling like being stuck with a needle dipped in hotsauce, then moved around under the skin)? How about after your treatments, did this feeling ever return?
4. Did you take any oral medication to help recovery or sleep, if so for how long?
5. Finally, I'm curious, where did you go in Ottawa to get diagnosed with a scraping and how long did you have to wait for the appointment and the results?
Thanks for all your info.
hello, thanks for the questions. i will do my best to answer them for you:

1) i first remember noticing symptoms in mid-october and my first treatment was early january so that's 2.5 months of really intense symptoms.

2) i honestly don't know where i picked them up but i have two ideas. i have a lot of parties where my friends sleep over at my house. i thought maybe one of my friends had it who slept in my bed. also i was sexually intimate with another friend around the same time and i remember him telling me how he had such "dry itchy skin" the next morning so that definitely leads me to believe it was him. though i have no proof and didn't see any bites on him but i also didn't know to look at the time. a 3rd idea would be.. i go to the gym a lot so i have heard it's possible to get it there (yoga mats, etc)

3) i don't think i had the exact same sensation as you (the sharp stinging hotsauce feeling) but i definitely woke up in the middle of the night many times, unable to rip myself away from the scratching. it was way worse at night.

4) i took benedryl to help the itch and to help me sleep after i was diagnosed. probably every night for a few weeks after treatment.

5) i would rather not share names of doctors because even though it's probably impossible, i don't want to hint at my identity at all. basically i went to my family doctor right away, and she referred me to a derm in the west end. i had to wait for a few months to get in, but got an appointment earlier than what i initially booked because there was a cancellation. i did the perm treatment before i had the skin scraping results though because me and 3 doctors were pretty certain already it was scabies.

anyway, i hope that helped! good luck in your struggle, if you are still infected.
Canada aka MiteMiner

Montréal, Canada

#14 Sep 1, 2012
Thank you, Jessie. From all the information you have provided, I think most important factor involved in the speed and effectiveness of your treatment (quick and highly effective eradication compared to other posters on this forum, albeit with a long period of side effects) was as a direct result of the short period of time between your initial symptoms and when you started treatment.

I've had a much more difficult time getting to the point where, after 5 months of various progressive treatments, I can safely claim a full and complete recovery. I was misdiagnosed and treated unsuccessfully for pruritus and sleep disturbance with various drugs, hydrocortisone and OTC antihistamines for a year and a half before I started treating for scabies.

It cannot be stressed enough to those who come to this forum with the most important symptom—progressive intense itching that eventually wakes you up at night making your life miserable (regardless of the presence/absence of any other visible symptoms, intimate partners without symptoms, other skin conditions especially without successful treatment, etc.)—early treatment after the first symptoms can save you months or potentially years of misery, thousands of dollars in treatments, furnishings, supplies, time and lost wages, and, from the accounts and behaviour of some on this forum, relationships, common courtesy and decency(and for a select few their sanity. Perhaps understandable, but inexcusable.)

If no successful medical diagnosis can be obtained quickly (again, the most important symptom to consider is the intense itching that wakes you up at night), one should treat right away for scabies. Those who have had symptoms only a few week (perhaps up to 5-6 months, depending on one's immune system) should start with one of the readily available conventional medical treatments.

If you go undiagnosed and untreated any longer, successful treatment will be exponentially more difficult (not just 2x or 3x more difficult and more misery, but think factors of 10x and potentially 100x the number of treatments, days to recovery, itchy sores, nights without sleep, sick days, negative feelings and desperation!)

Wait too long now and conventional treatments will all eventually fail, the consequences of which can actually make things much worse not just with regard to the infection, but also when people stop believing it could be anything but scabies, including medical professionals, infected family members, etc. This effect is perverse and can cause some to become fixed in their perspective (or without intended malice lose perspective completely).

No one should risk it. Just like with tetanus shots and other vaccines, treat for scabies right away without question if you suspect it because the consequences of letting a scabies infection go undiagnosed are so terrible and make eventual treatment very difficult (for some in 2012, nearly impossible.)

The minimal side effects experienced from conventional medical scabies treatments (except for lindane) do not even come close in comparison to the miserable experiences of many posters trying to cure a six+ months undiagnosed conditions.

It's too bad this forum is not better administered. Specific sub-forums (e.g., over/under 6 month infections, conventional/non conventional treatments, ongoing stories/success stories, sticky locked messages, etc.) might bring a little more order. A moderator would be great too. There are always at least 150+ people on this forum at any one time, and if one percent of them are...[fill in the rest based on your personal experience], unfortunately it can and will get ugly.

To those who try to be helpful but are often described as offering negative commentary, please do consider that your words have very real living world effect on those to whom they are directed and that scabies takes a heavy toll on the mental health of sufferers. Only support and advice are helpful. Primum non nocere.

Since: Aug 12

Philadelphia, PA

#15 Sep 1, 2012
Jessie, I hope you did not leave this thread. I needed to hear someone say that this WILL go away. I have only had it for a month and sometimes feel like I cannot handle this any more. My entire life has been interrupted-- I'm broke from all the laundry and cleaning supplies and essential oils, etc.; exhausted from staying awake much of the night from the itching and all the time spent on laundry and disinfecting things; losing weight; might lose the guy I had been dating as I've not seen him for a month now (he has no symptoms). So I really need to believe this will stop and I can live like a normal person again.

How far apart where your Permethrin treatments? The standard 1 week apart? I have done that twice so far and am planning to do a third.

Did you apply the Perm neck down, or also to face and/or scalp? It is very difficult trying to cover every area, my back, since I have no one to help me apply it. So I took Ivermectin twice, a week apart, too. This should be more than enough, I hope.

I agree that we end up irritating our skin when we keep putting treatments on it, prescription or natural. On the other hand, I'll take irritated skin over mites. I guess it's about knowing when to stop, and I'm not sure when-- I tried the sulfur ointment 10% for 24 hours yesterday, planning to do it for 3 days, and when I got in the shower to wash it off today, suddenly I was wayyyy itchier than normal and got a rash all over my arms and chest.:( The rash has faded but the itching is worse than my usual itching was.:(
Jessie

Ottawa, Canada

#16 Sep 2, 2012
DesperateInPA wrote:
Jessie, I hope you did not leave this thread. I needed to hear someone say that this WILL go away. I have only had it for a month and sometimes feel like I cannot handle this any more. My entire life has been interrupted-- I'm broke from all the laundry and cleaning supplies and essential oils, etc.; exhausted from staying awake much of the night from the itching and all the time spent on laundry and disinfecting things; losing weight; might lose the guy I had been dating as I've not seen him for a month now (he has no symptoms). So I really need to believe this will stop and I can live like a normal person again.
How far apart where your Permethrin treatments? The standard 1 week apart? I have done that twice so far and am planning to do a third.
Did you apply the Perm neck down, or also to face and/or scalp? It is very difficult trying to cover every area, my back, since I have no one to help me apply it. So I took Ivermectin twice, a week apart, too. This should be more than enough, I hope. I agree that we end up irritating our skin when we keep putting treatments on it, prescription or natural. On the other hand, I'll take irritated skin over mites. I guess it's about knowing when to stop, and I'm not sure when-- I tried the sulfur ointment 10% for 24 hours yesterday, planning to do it for 3 days, and when I got in the shower to wash it off today, suddenly I was wayyyy itchier than normal and got a rash all over my arms and chest.:( The rash has faded but the itching is worse than my usual itching was.:(
if you've only had it for a month i would definitely think there's hope for you. as the commenter above you said, part of the reason i got over scabies so easily was probably because i was fairly quick to treat it (i had it for about 2-3 months).

i took my first perm treatment on dec 29 and applied it from my neck down and a little bit on my face because i had a patch of dry skin and i was paranoid it was scabies (perm does NOT make your face feel good, ugh). the second time was 11 days later on jan 9th and i only put it from my neck down. i was VERY thorough. i covered every square inch. i know it's hard to get it on your back yourself though. you might want to buy yourself one of those moisturizer applicators or just use a mirror and wiggle around a lot haha.
i never did ivermectin. i just took tea tree oil baths which i felt healed my sores faster. you need to realize that the itching will NOT go away after your treatments. i itched obsessively after the treatments, probably more than when i had scabies. i couldn't stop. it also continued to be worse at night. but it gradually lessened and i moisturized a lot so that probably helped.

actually the thing that's kind of funny about my case is i have extremely sensitive skin and am prone to eczema and stuff so i'm really surprised my skin recovered so well. anyway, it was, like i said, like 4 months before the itching was totally gone. i had literal breakouts of bumps on my stomach and stuff during that healing time where i thought FOR SURE that was reinvestation. but the itching has lessened so much and the burrows had disappeared from my hands so the only explanation, which the dermatologist confirmed, was that it was just an allergic reaction.

that is the entire point of my post. just because you are still itchy and still have bumps after your treatment doesn't mean it's NECESSARILY scabies. yes - absolutely there is a chance it didn't work or you've reinfested yourself, but if you keep on doing treatments and never give your skin the chance to heal itself, you'll never know and you'll probably think you have scabies forever. see my point? i thought about doing so many other treatments after the perm because i was CONVINCED i still have it. like i was in tear convinced. and if i did those treatments i might never have realized i was already healed.

my best advice is go see a dermatologist if you need proof. good luck.
Jessie

Ottawa, Canada

#17 Sep 2, 2012
if you've only had it for a month i would definitely think there's hope for you. as the commenter above you said, part of the reason i got over scabies so easily was probably because i was fairly quick to treat it (i had it for about 2-3 months).

i took my first perm treatment on dec 29 and applied it from my neck down and a little bit on my face because i had a patch of dry skin and i was paranoid it was scabies (perm does NOT make your face feel good, ugh). the second time was 11 days later on jan 9th and i only put it from my neck down. i was VERY thorough. i covered every square inch. i know it's hard to get it on your back yourself though. you might want to buy yourself one of those moisturizer applicators or just use a mirror and wiggle around a lot haha.
i never did ivermectin. i just took tea tree oil baths which i felt healed my sores faster. you need to realize that the itching will NOT go away after your treatments. i itched obsessively after the treatments, probably more than when i had scabies. i couldn't stop. it also continued to be worse at night. but it gradually lessened and i moisturized a lot so that probably helped.

actually the thing that's kind of funny about my case is i have extremely sensitive skin and am prone to eczema and stuff so i'm really surprised my skin recovered so well. anyway, it was, like i said, like 4 months before the itching was totally gone. i had literal breakouts of bumps on my stomach and stuff during that healing time where i thought FOR SURE that was reinvestation. but the itching has lessened so much and the burrows had disappeared from my hands so the only explanation, which the dermatologist confirmed, was that it was just an allergic reaction.

that is the entire point of my post. just because you are still itchy and still have bumps after your treatment doesn't mean it's NECESSARILY scabies. yes - absolutely there is a chance it didn't work or you've reinfested yourself, but if you keep on doing treatments and never give your skin the chance to heal itself, you'll never know and you'll probably think you have scabies forever. see my point? i thought about doing so many other treatments after the perm because i was CONVINCED i still have it. like i was in tear convinced. and if i did those treatments i might never have realized i was already healed.

my best advice is go see a dermatologist if you need proof. good luck.
Jessie

Ottawa, Canada

#18 Sep 2, 2012
bad typing..

*i thought about doing so many other treatments after the perm because i was CONVINCED i still had scabies. like i was in-tears-convinced.

Since: May 10

Location hidden

#19 Sep 2, 2012
Jessie, what did you do? Did you type yourself to sleep? lol...

Since: Dec 11

Location hidden

#20 Sep 2, 2012
Jessie wrote:
okay mitewarrior made absolutely no sense at all. i never said moisturizer was the cure. i said perm 5% and giving yourself time was the cure.
mite ummy - i did two treatments of perm and washed all my bedding and clothes (and bagged whatever i couldn't wash) like they tell you to. but i only did the washing like that around the treatments... i didn't wash anymore often than normal when the treatments were done, even when i thought i still had it.
other than those two things, and the occasional tea tree oil soak.. that is the full story. i'm not sure why it's so hard to believe.
I wouldn't pay too much attention to anything that comes out of mite warrior/RK/Jodyy/Faerie etc. He/she is pretty much the forum a**hole. You can go to a dozen other threads and he/she is in there bashing people.

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