I am cured!!! it actually IS possible

I am cured!!! it actually IS possible

Posted in the Scabies Forum

Wonder

London, UK

#1 Jul 27, 2012
Okay I just thought I would come back to spread some love.

I had a three month long battle with scabies, got very depressed, barely left my house for those three months, gained a bunch of weight etc etc....however now I can happily say that they are GONE.(touch wood)

I had them really badly, all over my body, couldn't sleep at night and my skin got dry and flaky and patchy and sore with how much I was treating it.

I gave it to three of my friends in that time, although funnily enough NOT to my mum, who I live with. She did the treatment but never showed signs.

The doctors told me it was just excema and that there was no signs of scabies. All of my friends different doctors also told them it definitely wasnt scabies despite us being like 'err isn't it a bit of a coincidence that me and all my friends have developed scabies at the same time?'

I did a treatment of permethrin 5%. I did it three times.

Now the really important thing to stress is, when I did the treatment, the first time and then after a week later to 'catch any eggs' as advised....I got absolutely NO physical signs of getting better. None. In fact I got worse for a couple of weeks.

Even though I knew that the treatment can take a while to work as the dead mites are still in your skin...I just didnt believe that the treatment had worked. At all.

Then the doctor prescribed me some steroid cream. I put that all over my body for a while, and gradually started to see the rash clear up. I presumed it was just the cream...but then weaned myself off the cream...and found....that the rash was NOT returning.

But for about a month and a half after the second perm treatment i WAS still getting flare ups and bumps...however they were different. They were MUCH smaller, they were less red and seemed to be just a couple of little bumps in places, they itched a little, but they wernt unbearable. And gradually they just got less and less.

However this scared me no end, I was completely convinced that the little bumps, no matter how small meant I was still infected and meant that it might just come back all over my body again.

About 5 weeks ago, I stopped seeing signs of bumps at all. None. I did one last treatment of perm, just to be safe because A couple of my friends still had it and I wanted to be extra sure.

Now I get absolutely no bumps. None for a month. I still itch from time to time...however I think its completely normal...when we have scabies we get so paranoid that every itch is ...scabies! We forget that humans actually do itch all the time, absent mindedly in public etc. I notice everyone itching now, on the train or the bus!

So. Here are the things that I did to get cured. I can't say which thing was the most effective really, I reckon they all played a part in my recovery:

Put 1 tube of permethrin 5% cream all over my body all night. repeated this a week later. Then repeated the treatment a month or two later just to be sure.

For about a week when the scabies was really bad, I ran a bath every night and put about 15 drops of tea tree oil in the bath. I would immerse myself in that for about 30 mins. Then before I went to bed, I would get some olive oil and drop tea tree oil into that, and apply it all over my body.

For about 4 days when I could be bothered to do it, I covered myself in coconut and neem oil every morning from head to toe.

I used steroid cream and anti itch cream the doctor prescribed me.

I went round my room and sprayed stuff with water with a bit of tea tree oil, I tidied and cleaned everything.

Almost every day for about 5 weeks, I washed my bedding in a hot, hot, HOT wash. I would also dry it on a really hot radiator.

I bagged up all my clothes and ended up throwing them away, as I didnt want to risk re-infection.(um...expensive.. .but still YAY excuse for new wardrobe)

cont. below.
Wonder

London, UK

#2 Jul 27, 2012
I think one of the best things I actually did was, just get off the internet and stop reading scabies forums and horror stories...and just get on with my life.

My doctor told me I should just stop worrying and get on with my life...and I know he was USELESS in many respects but really. Its true.

get on with your life...go and socialise. Dont shake peoples hands and touch them...make an excuse as to why you cant...but don't shut yourself away, reading scabies stories online.

Do you know how harmful it is, to sit and read stories online like 'My 5 year long battle with scabies that NEVER GOES AWAY'

I know that some people really have had a skin disorder for years...and thats awful and obviously those people should have a place to talk to each other about this...but as someone who has only had it for a week or two...they should NOT be sitting around reading that.

Funnily enough, all of my friends who got it all got cured after just one treatment of permethrin...and the symptoms went away almost instantly, after a few days.

They washed their clothes and bedding like...once or twice.

You could say it might be because they caught it early, however I don't necessarily believe that as they all got told it WASN'T scabies, and they all let it go on about a month before actually doing perm...or even telling me they had symptoms.

However they all lead quite active lifestyles where they are very busy....and they definitely didnt go on the internet reading stories about scabies.
They all just assumed it wasnt a big deal.

We must not under estimate how powerful the mind is.

Even now, just writing this I am feeling a bit itchy. It's nothing at all, and I know it is nothing...I have also been bitten a few times last night at a bbq by mosquitos...but writing about all this, seems to trigger a reaction in my body and I start itching and staring at my body in a paranoid fashion, terrified of seeing bumps.

I know that everyone reacts differently to this sort of thing, but I truely think that the fact that I shut myself in for so long and read so much about scabies and felt so hopeless and got so depressed about it was one of the reasons I had it for such a long time.

Anyway! Just thought id post my story to show that you ACTUALLY CAN GET CURED! FOR REAL! I'm not even trying to sell you some miracle scabies cure!

Love to all of you, I know its difficult. But it can and WILL get better.

x
Nan

San Francisco, CA

#3 Jul 27, 2012
I'm so glad you posted your experience. I completely agree with you about the need to stop reading the horror stories. I've had the exact same experience as you. My friend has had a much quicker recovery than I and he never once got online to read any forums.

This may just be because I have more sensitive skin or it may be I was so focused on this one issue or I should say consumed by it.

Once I let it go, I started to see the recovery taking place.

I came back on this forum today to give a little hope if I can.
Shellys Welltsies

Banning, CA

#4 Jul 27, 2012
Lucky you. People here (who are good honest people) some of us are unfortunate to have a variety of mites that are drug resistant.

I must admit in the beginning, I was itchy but had no rash. I bathed in all that stuff recommended here. Doctors would not prescribe a thing. Lucky you a doctor gave you stuff in the beginning. When I left my skin alone it healed and the itch went away but not the crawling. Its going away very slowly but I have to keep up with having a new towel to use each night a pillow, new sheets and use sulfur soap in my hair and face.

Those of us who were not aware it was scabies or told it was contact dermatitis by a doctor, just went on about our day treating with the steroids and sleeping in the same sheets each week.

Over time, we became infested. It takes months to get rid of it then, perhaps even longer depending how long you carried these mites around thinking it was allergies.

Our clothing became infested with such a large population that the chances of survival after a hot wash increased and maintained re-infection un knowingly.

Them we are told “Post Scabies” you are still itchy and should expect crawling sensations. Many find them selves back here 3, 6 months, a year later.

Crawling IS NOT “Post Scabies!!

ITS SCABIES!

Thank you both for posting your situations all of us posting our views are a help to that poor future soul who wakes up in the middle of the night with a terrible itch, looking for answers online!

Since: Jul 12

Location hidden

#5 Jul 28, 2012
Shellys Welltsies wrote:
Crawling IS NOT “Post Scabies!!
ITS SCABIES!
This is not accurate information. This is the kind of thing that can freak people out that read this forum.

Sure crawling COULD be scabies but it isn't difinitively scabies by any means. In fact, many here have reported they don't even get the crawling sensation until after they've done the permethrin treatment.

One can have crawling sensations simply from dry winter skin from having irritated skin from a wool outfit, from a food sensitivity etc.
m_austin

Austin, TX

#6 Jul 28, 2012
Wonder wrote:
I think one of the best things I actually did was, just get off the internet and stop reading scabies forums and horror stories...and just get on with my life.
My doctor told me I should just stop worrying and get on with my life...and I know he was USELESS in many respects but really. Its true.
get on with your life...go and socialise. Dont shake peoples hands and touch them...make an excuse as to why you cant...but don't shut yourself away, reading scabies stories online.
Do you know how harmful it is, to sit and read stories online like 'My 5 year long battle with scabies that NEVER GOES AWAY'
I know that some people really have had a skin disorder for years...and thats awful and obviously those people should have a place to talk to each other about this...but as someone who has only had it for a week or two...they should NOT be sitting around reading that.
Funnily enough, all of my friends who got it all got cured after just one treatment of permethrin...and the symptoms went away almost instantly, after a few days.
They washed their clothes and bedding like...once or twice.
You could say it might be because they caught it early, however I don't necessarily believe that as they all got told it WASN'T scabies, and they all let it go on about a month before actually doing perm...or even telling me they had symptoms.
However they all lead quite active lifestyles where they are very busy....and they definitely didnt go on the internet reading stories about scabies.
They all just assumed it wasnt a big deal.
We must not under estimate how powerful the mind is.
Even now, just writing this I am feeling a bit itchy. It's nothing at all, and I know it is nothing...I have also been bitten a few times last night at a bbq by mosquitos...but writing about all this, seems to trigger a reaction in my body and I start itching and staring at my body in a paranoid fashion, terrified of seeing bumps.
I know that everyone reacts differently to this sort of thing, but I truely think that the fact that I shut myself in for so long and read so much about scabies and felt so hopeless and got so depressed about it was one of the reasons I had it for such a long time.
Anyway! Just thought id post my story to show that you ACTUALLY CAN GET CURED! FOR REAL! I'm not even trying to sell you some miracle scabies cure!
Love to all of you, I know its difficult. But it can and WILL get better.
x
I actually just posted an hour ago, because I have been worried that I had a reinfestation, but this actually calmed me down quite a bit. I had the itch and bumps go completely away and a month later they returned, albeit way less severe. I got frustrated and freaked out about reinfestation (Just started using sulfur soap, tea tree, clove, neem, and coconut oils... as well as an ozone generator to sterilize my house)... and I will probably keep using them, but this made me teeter back to the thought that I am still just dealing with an allergic reaction to the original infestation/treatment.

Since: May 12

Location hidden

#7 Jul 28, 2012
Its been exactly a month since my last treatment at which time I stopped boiling everything I wore or slept with and slowly gave up wearing disposable vinyl gloves all day. I probably should add that during the month of June I took IverCare horse paste at 1.25X recomended dose 10 times and used permethrin cream three times. That is not to even begin to mention the sulfur cream or clakia or anything else that is just a blur now. I broke out in bumps all over my arms, buttocks and thighs but they didn't itch. I'm going to guess that all of that poison is escaping my body. I still have bumps after a month. I suffered with scabies for four months and the bumps produced an insatiable itch so I am pretty sure these bumps, however plentiful they may be are not scabies. I'm probably lucky I can still complete a sentence after all the poison I took and used (I only told you about June) but I would do it again to be able to paint my kitchen as I did today instead of boil clothes and bedding all day and clean and vacuum eveything ...again. I have my life back!

Since: Jul 12

New York, NY

#8 Aug 1, 2012
Shellys Welltsies wrote:
Lucky you. People here (who are good honest people) some of us are unfortunate to have a variety of mites that are drug resistant.
I must admit in the beginning, I was itchy but had no rash. I bathed in all that stuff recommended here. Doctors would not prescribe a thing. Lucky you a doctor gave you stuff in the beginning. When I left my skin alone it healed and the itch went away but not the crawling. Its going away very slowly but I have to keep up with having a new towel to use each night a pillow, new sheets and use sulfur soap in my hair and face.
Those of us who were not aware it was scabies or told it was contact dermatitis by a doctor, just went on about our day treating with the steroids and sleeping in the same sheets each week.
Over time, we became infested. It takes months to get rid of it then, perhaps even longer depending how long you carried these mites around thinking it was allergies.
Our clothing became infested with such a large population that the chances of survival after a hot wash increased and maintained re-infection un knowingly.
Them we are told “Post Scabies” you are still itchy and should expect crawling sensations. Many find them selves back here 3, 6 months, a year later.
Crawling IS NOT “Post Scabies!!
ITS SCABIES!
Thank you both for posting your situations all of us posting our views are a help to that poor future soul who wakes up in the middle of the night with a terrible itch, looking for answers online!
I totally agree with this. I know I was one and I am one looking for answers. Crawling and pinprick may not be a post symptom. I myself still treating after 4 months bc of these sensations. But I do confirm it by doing a castor oil all over or a Vaseline all over. That would pretty much confirm you u still just a little infested. So do this before stopping treatment. In 20 minutes of rubbing castor oil in you u will have an answer and have a pocket microscope handy and u will see them. I see less and less now so I know I am progressing. I had hundreds I am sure as it took me so many treatments just to be able to sleep at night. Like two months or so. And then in the process of learning what to do with shoes and bags and car and laundry well I am sure it extended the process too. I wish I could have known better. When I am done with this I will write my story and what I did right. Prayer also helps.

Since: Jul 12

New York, NY

#9 Aug 1, 2012
Do castor oil and u will confirm this for God sake. I am not saying for you guys to use chemicals until the end. I heard a girl having no itching at all and no bumps and doing this test on her hands even w clove oil and something that suffocate them and voila she still had it on her hands. She said that once the numbers are down like that is important to continue to do things maybe in a more relax way. I say the secret ( when numbers are down) to keep a cream like msm or grapeseed oil w clove or DE or something for next 2 months just in case until the last female is dead. That is just my thinking. If you have something 24/7 skin u kill the generations that are coming. But I think this is only possible when generations are very low like 50 mites or so.
Mindy

United States

#10 Aug 1, 2012
Scabiegirl wrote:
Do castor oil and u will confirm this for God sake. I am not saying for you guys to use chemicals until the end. I heard a girl having no itching at all and no bumps and doing this test on her hands even w clove oil and something that suffocate them and voila she still had it on her hands. She said that once the numbers are down like that is important to continue to do things maybe in a more relax way. I say the secret ( when numbers are down) to keep a cream like msm or grapeseed oil w clove or DE or something for next 2 months just in case until the last female is dead. That is just my thinking. If you have something 24/7 skin u kill the generations that are coming. But I think this is only possible when generations are very low like 50 mites or so.
I agree. Doing something "in a more relax way" is for me very helpful. I described my long story in the thread - sulfer soap stopped the bites and crawlies so I will spare you that now. But just to update, after using the (10%) sulfer soap twice a day, the crawlies and bites stopped on my body but continued on my head. I then decided to use the sulfer soap to wash my hair and scrub my head and it worked! But after a week or so, I noticed my hair was becoming very dry, so decided just to use the soap on my body, rationalizing that I would not have any more problems. Wrong. Two days later the crawling sensation came back to my head! What is that then? So it cant be the imagination. So back to the sulfer soap on body and head/hair, and I feel completely normal. I will continue to use the soap indefinately, since it doesnt smell bad at all, and you have to use some soap anyway, and it doesnt dry my skin. The hair however is getting pretty dried out, so am trying to condition it a lot, and its ok. Better than feeling things crawling in my hair. I think the sulfer soap is a easy way to kill off any straglers and give peace of mind. Might be a good way to get some relief while waiting for the first doctors appointment for the prescription stuff - take the numbers down a notch. One more thing that I found very helpful - Benadryl spray and Cortaid spray. Very cooling and calms the itch without having to touch the skin when you are in the miserable stage. Havent had to use it in a long time now, thank God, but it was very helpful at the time.

Since: Jul 12

Ireland

#11 Aug 2, 2012
Exact same experience! You post gave me hope :) youre a star

Since: Apr 12

Location hidden

#12 Aug 4, 2012
I had scabies for six months. Did the three back to back permithrin treatments and that didn't help. For me, the breakthrough came with ivermectin, but I did follow up with permitherin. Also, make sure you take a hot shower and wait 20 minutes for the skin to cool down before applying the perm. And rub it in well. treatment failure happens a lot by avoiding this step. Don't just appy the cream on top of skin, but rub it in so it penetrates to where the mites are. I've been cured now for three months. I just posted this on another thread. But here it is again. Hope it helps:

I've been cured of scabies for three months now. I did it by taking two doses of ivermectin (12mg and 15mg) one week apart, and then followed up with a permitherin treatment after my last dose and again a week after that. So I basically treated every week for a month. I also left my home and did not drive my car for five days, starting with the first dose of Ivermectin.

After that, I spot treated with permitherin, which may or may not have been a good idea. I may have cause dermatitis, and I knew that there was potential for that, but wanted to make sure I got rid of the scabies for sure, so I pulled out all the stops. I continued to have symptoms for a while after that. I went on homeopathy, which I thought helped, but now that I think about it, it probably helped because it forced me to stop putting stuff on my skin.

Even with the homeopathy, I still got what felt like a return of the scabies, so I started taking lime sulfur baths (buy on amazon--it's for dogs, cats, and horses, but works great for people.) And I used Humco powdered sulfur all over my body. Also ate 2-3 cloves of raw garlic and took oil of oregano and vitamin B. Eventually everything calmed down. My skin is completely healed now and I sleep well. Be careful of using the permitherin too much. I think it can make your skin feel like you are still infected.

Also be careful of some of the wacky ideas on this forum. Some of the early suggestions on this "I Am Cured," thread, may be more helpful to you than some of the more current postings. But if you just leave your environment for a while, and take the ivermectin and permitherin, you should be on your way to a cure. Also wash everything everyday in HOT water, detergent, and Borax or Oxyclean for at least a month after you think you are cured. Reinfection is very real. It happened to me several times before I was eventually cured. Please see this link, which is the protocol I followed: http://www.ncbi.nlm.nih.gov/pubmed/22385121

If you're still battling with this problem for many months on end, 6 months or more, and the behavior of the disease defies all logic, do educate yourself on Morgellons. It's a very real disease despite what the CDC says. A good place to start is here: http://www.thecehf.org/

Good luck. It does get better!
mitynutty

Canton, OH

#13 Aug 28, 2012
manx88 wrote:
I had scabies for six months. Did the three back to back permithrin treatments and that didn't help. For me, the breakthrough came with ivermectin, but I did follow up with permitherin. Also, make sure you take a hot shower and wait 20 minutes for the skin to cool down before applying the perm. And rub it in well. treatment failure happens a lot by avoiding this step. Don't just appy the cream on top of skin, but rub it in so it penetrates to where the mites are. I've been cured now for three months. I just posted this on another thread. But here it is again. Hope it helps:
I've been cured of scabies for three months now. I did it by taking two doses of ivermectin (12mg and 15mg) one week apart, and then followed up with a permitherin treatment after my last dose and again a week after that. So I basically treated every week for a month. I also left my home and did not drive my car for five days, starting with the first dose of Ivermectin.
After that, I spot treated with permitherin, which may or may not have been a good idea. I may have cause dermatitis, and I knew that there was potential for that, but wanted to make sure I got rid of the scabies for sure, so I pulled out all the stops. I continued to have symptoms for a while after that. I went on homeopathy, which I thought helped, but now that I think about it, it probably helped because it forced me to stop putting stuff on my skin.
Even with the homeopathy, I still got what felt like a return of the scabies, so I started taking lime sulfur baths (buy on amazon--it's for dogs, cats, and horses, but works great for people.) And I used Humco powdered sulfur all over my body. Also ate 2-3 cloves of raw garlic and took oil of oregano and vitamin B. Eventually everything calmed down. My skin is completely healed now and I sleep well. Be careful of using the permitherin too much. I think it can make your skin feel like you are still infected.
Also be careful of some of the wacky ideas on this forum. Some of the early suggestions on this "I Am Cured," thread, may be more helpful to you than some of the more current postings. But if you just leave your environment for a while, and take the ivermectin and permitherin, you should be on your way to a cure. Also wash everything everyday in HOT water, detergent, and Borax or Oxyclean for at least a month after you think you are cured. Reinfection is very real. It happened to me several times before I was eventually cured. Please see this link, which is the protocol I followed: http://www.ncbi.nlm.nih.gov/pubmed/22385121
If you're still battling with this problem for many months on end, 6 months or more, and the behavior of the disease defies all logic, do educate yourself on Morgellons. It's a very real disease despite what the CDC says. A good place to start is here: http://www.thecehf.org/
Good luck. It does get better!
wondering if u r still cured?? i believe i finally am...& its only been 10 days, but i feel different this time. Being armed w/ knowledge of what all these chemicals & oils can do to your skin helps to understand whats going on w/ it also! You are right..permethrin can make u feel like u still have symptoms. Lindane did me in...but i did become aware that alot of this crawling & pin prick sensations were "post-scabies" or plainly..my skin healing itself. scabies can play w/ youre mind & the mind is powerful. I hope people will stop & think about what exactly is going on w/ their skin & dont assume its reinfestation, bc treating unnessarily will make it all worse!!

Since: Jul 12

Ireland

#14 Nov 16, 2012
I was diagnosed (by a retarded doctor) in July with Scabies. MY LIFE WAS ABSOLUTE HELL!!! I gave up on all treatments early September and everything calmed down, i still had it though, but a lighter and somewhat different way. As my family GP wasn't available i seen her sub (or whatever they would be called) and she told me it definitely not scabies and said it might be Urticaria Pigmentosa. I visited a Dermatologist and it was confirmed!!! I AM SO RELIEVED... GUYS PLEASE GET OFF THESE FORUMS.. they will destroy your hope AND sanity!! Best of luck everyone!x
Anxious

Brooklyn, NY

#15 Dec 25, 2012
Thank you so much for your post! I was diagnosed about 3 days ago. I've suspected I had it since October but just kept hoping it would get better and not be scabies. I have been on google and forums constantly and have barely left my room. You have given me hope that I will be cured soon! I am now less nervous to enjoy Christmas with my family tomorrow. Thanks again!:)
Heather

Dubuque, IA

#16 Mar 23, 2013
I am so glad I found your story. We have no idea where we got scabies from but for 3 months I itched like crazy. Went to derm and multiple doctors and they only said it was dried exima sorry spelling and they didn't do anything. My son started itching and I took him to his doctor and bam it took a pedz doctor to diagnose us. We did the cream and washed everything and bagged all my son's stuffed animals and did everything and anything. It's been about a month and my son doesn't itch at all anymore. I still itch but not as bad but it still tears my skin open when I itch. I find that when I wear jeans I don't itch but if I wear sweat pants ot my skin touches any fabric as sweat pants it sets it right off. Did anyone else experience this?

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