Post Scabies Itch Syndrome
Suffering

Phoenix, AZ

#110 Jan 11, 2014
Please help me!!! I am so tired of scabies! I just need any type of information as to whether or not this is post scabies. My boyfriend and I were diagnosed with scabies and have done the treatment. I have done it three times while he's done it twice. I have cleaned everything and continue to clean my bedding at least once a week and do not re-wear clothes, as well as taking hot showers twice a day. Yet, he on the other hand, has not cleaned his bedding other than the treatments and it's been at least two weeks. I am so paranoid and do not want these little mites anymore! Can he reinfect me? Today I woke up and I have little bumps on my arms and thighs again, meanwhile, he says he feels less itchy. Please help me? I just need to know if this is post scabies or am I reinfected? It's been at least 2 weeks since my last treatment and I plan to do another tomorrow, unless advised otherwise. Sorry for the cruddy structure. Please, any form of "post scabies" conformation would be greatly appreciated.
Tom1001

Green Bay, WI

#111 Jan 13, 2014
My brother-in-law is a retired scientist that did animal testing. He claims that there are 11 different types of mites that live only in your eyebrows/face/scalp. I took premithrin 5% for Scabie Mites. But after, noticed this started to appear. At times it feels like the mites move around under my skin and every once in a while surface to cause an itching sensation. Unfortunately, he doesn't know how to abate this problem
justshootmyass

Shasta Lake, CA

#112 Jan 16, 2014
For 3 months I dealt with this using 4 treatments of permethrin. After 6 weeks since my last treatment I had 2 flare ups. Now, this is the 2nd day of tickling/itching and little white balls and black specks coming out of my skin. Wth? Is this just a layer of post scabies coming off or reinfection? I've read that post scabies can take months and years to come up, but could the symptoms just now start like this? I sleep at night, I don't have any rashes or lines but everything else is driving me crazy.
justshootmyass

Shasta Lake, CA

#113 Jan 16, 2014
i found an answer. God bless.

Post scabies irritation is characterized by reddening of the skin on affected areas, followed by fluid-filled blisters. These dry up and flatten out in a day or two, then the dead skin may peel off. Itching seems most intense when the skin is beginning to turn red and when the blisters first appear, especially at night. The outbreaks occur in 3-4 week cycles, lessening in severity over time. Moisturizing lotions, hydrocortisone creams, olive oil, Benadryl, oatmeal baths, baking soda baths, and gently popping the blisters and applying Eucalyptus oil have all been suggested as ways to help stop or lessen the itching associated with scabies or post-scabies. If the product that you used to remove the scabies contained Lindane, you should look at the second link.
I add a link with some details of this subject and one containing details of side effects from Lindane,

http://www.nhsdirect.nhs.uk/
articles/article.aspx?articleI d=328

http://www.fda.gov/cder/
drug/infopage/lindane/
lindaneQA.htm
Stillllllllll itching

Boston, MA

#114 Jan 23, 2014
I just wanted to post my experience. Hoping to help the new comers who are frantically searching the web. I started experiencing symptoms right around Christmas. I had already been to my doctor a bunch of times and told and was told it was dermatitis. After a month of creams and benadryl that didn't help my itchy spots had spread from my hand to my entireeeeeeee body. Christmas Eve I finally got the right diagnosis. Great timing right? Let's not forget that the staff at my doctor office treated me horribley, and even the lady at the front desk wore gloves to touch my debit card, and basically announced I was a contagious mess to other patients. I used the cream twice. A week a part. Read all the horror stories. Convinced myself I was going to be like this forever. The cream made my itching worse, and I got bumps in places I never even had them before. It will eventually clear, give it time. A loooooooot of time. It's been 3 weeks since my second treatment and I'm still sooooooo itchy. But my spots are mostly healed. The cream really does a number on your skin. Just relax, the cream will work. But goood luck to everyone dealing with this I still don't see the light at the end of the itching tunnel....
Itching for a while

La Vergne, TN

#115 Feb 5, 2014
I started itching in July of 2013 and didn't get treated until October. I've taken permethrin at least 4 times since October. The last time I took it maybe a month later, I started to itch on my legs, mostly on my inner thighs. At first I thought I had scabies again, but noticed I wasn't itching anywhere else on my body.? This continued to go on for about 5 days, then the itching stopped. Last Friday I spent the night with a few friends. One of them were treated for scabies as well at the same time I did. But one of her friends had spent the night with her when she wasn't treated yet and they slept in the same bed. We all slept in the same bed that night and made a little skin contact. 3 days later, I started itching a little, the day after that I noticed my inner thighs start to itch again but tried to not put much attention to it. The next day I saw little reddish bumps on my inner thighs, and they were itching. The rest of my legs have gotten itchy too but not as much as my thighs, other than that I have not been itching anywhere else. I don't know if I have been reinfested again or what is going on. Any help?
bran0406

London, KY

#116 Feb 5, 2014
Lee wrote:
<quoted text>
I just looked it up. Permethrin cream costs anywhere between $43 and $67 in the U.S. It doesn't matter where you live in the U.S.
I saw you post a couple of posts yesterday linking to a UK website, selling Lyclear and Cetaphil. You are a troll here FOR SURE. So, stop pretending you are someone who is actually suffering here. You are not.
generic costs 100 here in ky without insurance too.. imagine the 300 is right figure for name brand, at least from pharmacy.. are u looking online, or actually calling ur local pharmacy.. many online offer meds at discounted prices, either outdated medicine, or out side of US, n just saying they r located in us, or they are getting their supplies from another country.. call ur local pharmacy n check..

permethrin script doesn't kill them tho.. much cheaper n safer ways...

Since: Feb 14

Spring Valley, CA

#117 Feb 6, 2014
Stillllllllll itching wrote:
I just wanted to post my experience. Hoping to help the new comers who are frantically searching the web. I started experiencing symptoms right around Christmas. I had already been to my doctor a bunch of times and told and was told it was dermatitis. After a month of creams and benadryl that didn't help my itchy spots had spread from my hand to my entireeeeeeee body. Christmas Eve I finally got the right diagnosis. Great timing right? Let's not forget that the staff at my doctor office treated me horribley, and even the lady at the front desk wore gloves to touch my debit card, and basically announced I was a contagious mess to other patients. I used the cream twice. A week a part. Read all the horror stories. Convinced myself I was going to be like this forever. The cream made my itching worse, and I got bumps in places I never even had them before. It will eventually clear, give it time. A loooooooot of time. It's been 3 weeks since my second treatment and I'm still sooooooo itchy. But my spots are mostly healed. The cream really does a number on your skin. Just relax, the cream will work. But goood luck to everyone dealing with this I still don't see the light at the end of the itching tunnel....
Try using a cutting from an Aloe Vera Plant leaf. Rub the juicy inside of the leaf to your bites. On the old bites you may need to rub for about 20 min and for the new bites, if you do it as soon as you feel the bite, then just a min or 2 should work to stop the itches. On me only the itches from the old bites came back a 2nd time, but I used a leaf cutting on those too and then the itches did not come back again.
cjo

Woburn, MA

#118 Feb 9, 2014
PostScabiesSufferer wrote:
Some people develop post scabies syndrome, which causes itching for up to 4 weeks, or even for months. The cause is an allergic response. Some people just have a more sensitive immune system than others, which is why some get the post scabies itch while others do not. Just like, I'm allergic to cats and my husband isn't.
There are 2 schools of thought for what causes this post scabies itch. There is the thought that it is a reaction to the remains left behind by the dead scabies and eggs. Another thought is that the permethrin cream causes an allergic reaction. Both probably contribute to the problem. I am a person who is allergic to many environmental agents, so I can certainly understand why I'd have a reaction to the dead scabies/eggs and/or the permethrin cream used to treat scabies. After all, permethrin cream is a pesticide! Though permethrin cream is safe for use on humans, it is still just bug killing pesticide!
My kids brought home scabies from school. My entire family was treated. Then, about 2 weeks later, we were all treated again because I suspected scabies reinfestation. I am the only one of us who got the post scabies itch. It is different from live scabies infection in a few ways. First of all, I am able to take benadryl and get some relief. Also I am able to sleep at night. Sleep was absolutely impossible while I had live mites. The itch was too intense. Another difference is that this itch/rash comes and goes. With the itchy rash, I have a feeling like I am being stung by something. Being a Registered Nurse, I read, in detail, the prescribing information for the permethrin and stinging is a listed side affect. My skin is also very dry.
If you suspect that you still have active mites living under the skin, your doctor can perform a test. It is simply a scraping of the skin to look for mites under a microscope. If no live mites are found, chances are you have post scabies syndrome. Also, contrary to what some people have posted, permethrin 5% cream DOES kill the mites and their eggs. This is also found in the prescribing literature for permethrin 5% cream. In some cases of poor immune system, improper treatment, or severe infestation, more than one application of the cream may be needed. However, if you keep treating and retreating yourself and it is post scabies syndrome, you will just make your misery last longer as your skin will become more and more irritated and your body will continue to make histamine, which is your immune response to anything that your body sees as a foreign substance that needs to be eliminated.
One more thing that I have seen over and over is the fear of passing, or getting, scabies from or to your dog or cat. This is NOT possible because there are different sub-species of mites that affect humans versus animals. Even if a human mite gets on your animal and bites it, it will die on its own without completing it's life cycle because it can only survive on it's natural host, which is the human. The same is true for mites which use your dog as it's natural host, it can not survive or reproduce on a human. If you don't believe this, call your local vet. He or she will tell you the same.
If you do suspect, or have some very understandable post scabies paranoia about still have these nasty little creatures living in your skin, have your doctor perform the scraping test. Please don't continue treating yourself with all these creams and medications if you don't have active live mites. Remember, though considered safe, all medications have potential adverse affects, some can be life threatening!
Some things that are helping my post scabies syndrome are Benadryl oral caplets, Benadryl cream or hydrocortisone cream, keeping skin moist with hydrating lotion (I use Eucerin Cream), Aveeno Oatmeal Bath, and calamine lotion.
FINALLY - some excellent accurate advice! Thank you.
Help me PLEASE

Brandon, MS

#119 Feb 11, 2014
Hey everyone .. In fighting scabies right now and I treated myself with prescription cream from my doctor, I also did everything I was supposed to do as like washing everything ect ... But the next day after 12 hrs I was suppose to wash off the cream which I did and then the very same night I woke up to itching and have new bumps showing up on my hand. Does this mean I still have scabies? Please help
Peta

Hazelwood, MO

#120 Feb 11, 2014
justshootmyass wrote:
For 3 months I dealt with this using 4 treatments of permethrin. After 6 weeks since my last treatment I had 2 flare ups. Now, this is the 2nd day of tickling/itching and little white balls and black specks coming out of my skin. Wth? Is this just a layer of post scabies coming off or reinfection? I've read that post scabies can take months and years to come up, but could the symptoms just now start like this? I sleep at night, I don't have any rashes or lines but everything else is driving me crazy.
A bath soak will help. You can use Epson salt or Dead See salt add peroxide and if the mites are dead that should be enough. If they are hatching you need to keep treating.
ash

Aurora, CO

#121 Feb 11, 2014
I had scabies and was treated three months ago was give the lotion and the pill....went for another scraping and said it was gone....why am I still itchy and getting bumps where I scratch....then the bumps go away within an hour.

Since: Feb 14

Spring Valley, CA

#122 Feb 12, 2014
JoelHatesScabies wrote:
Ok I got scabies from........ I located every bump that was itching me on my upper body and popped the hell out of it like you're told not to do... And probably could rush infection but I popped it, alcohol and neosporin... Felt better.......... After one treatment my legs were itching... So I looked close... Small pimples... Popped them all... Don't itch..........
From what I've read the reaction you got, or I should say lack of reaction to popping the white pimples, is just like what I've read has happened to people who have had the Herpes virus and popped those pimples and their itching and pain went away too. That makes me wonder if there is any kind of connection between the Herpes virus and the scabies...or maybe the connection is the mites. By any chance have you read or looked at anything that also talked about Herpes Virus and Scabies? Please don't get me wrong, I'm not at all implying that you may have Herpes, I'm just observing that are there cetina common symptoms and reactions to the pimples that appear with the same type of itching and same results when they popped their Herpes pimples as you had when you popped your Scabies pimples. So I'm wondering if there is a possible common source of contamination between Herpes and Scabies as my reading has found there are a number of common symptoms between Lupus and Scabies that are also alike. What I'm thinking at this point is maybe the mites are at the source of all of these diseases. Also from my and others reading it appears that the original contact with scabies, may have been long long before anyone felt or recognized symptoms. I've heard of cases where a mother may have accidentally infected her child and the child did not come down with scabies until adulthood! Now that case is only suspect, but more and more cases like that are suspect to original contact being even years before any real symptoms of the scabies showed up. This has been showing up more and more all over the US & the world.

BTW try cutting a leaf from an Aloe Vera plant and rubbing the juicy inside of the leaf on your bites, continuously for 5-20 min until the itch disappears. That worked for me and after that I never got the itches like I originally got in late Dec. 2013. IF I did get any new bites after that, they hardly itches at all. I know it's odd, but that is what happened with me. Also I only had to do that 1x on new bites but on some of the older bites, they only itched 1more time.

Since: Feb 14

Spring Valley, CA

#123 Feb 12, 2014
pauls crawling wrote:
Hi just thought I'd say I get the crawling feeling after being treated am pretty sure its just the nerves and its a waiting game for the dead mites to be cleared from the body it does feel lik the mites are crawling but for me the tingling sensation is just part of the allergic reaction my suggestion would be to let the body clear of the dead mites itching and tingling can occur for three weeks after treatment so don't keep retreating unless your doctor can confirm that the itch IS the mite if not let it run its course and take comfort in the knowledge that the mite has more than likely died off and its the allergic reaction that persists!!
From what I read yesterday in a dermatology study on scabies you are right, it's just the reaction to the eggs hatching out & debrid coming out of your skin and it does last for 3 weeks. I put the link to that study up last night on a new thread I posted..I think the thread title is something like...I'm 95% cured. The study reads like a pretty good study and I really think people will get a lot out of reading it. I've read quite a few medical studies and research over the last 20 years and this one seems pretty good. Also one thing I wanted to add to your comments is that I think it's really important for people, when they get a tingly or crawlie feeling to realize that it's an egg hatching or the debris (to put it nicely) coming out of the skin, so I feel it's really important to wipe that area with a clean tissue that is covered with 91% alcohol or hand sanitizer that is at least 62% alcohol. Here's why I think this.....1st it's well known that alcohol will kill these scabies and mites on contact, but it wont' kill the eggs. So you want to kill the new hatchlings so they don't lay more eggs on you and prolong your suffering . So you want to wipe off any eggs and throw that tissue down the toilet ASAP ( if you get a crawlie, eve in the middle of a restaurant, get out your hand sanitizer and slather it on the spot..ASAP..DO NOT WAIT! Hope that helps.

This is what I've been doing for 4 weeks now and I do feel I'm much much better than I was when I have my originally outbreak of the itches the last week of December 2013.(BTW I carry with me at all times a small 10 oz bottle of hand sanitizer (that's 62% alcohol), which I believe is killing off any hatchlings and of course, I also carry generic klenex to wipe these nasties off my skin and when I carry a generic ziploc plastic bag in my purse in case I can't get to a toilet to dispose of that klenex ASAP, I have a safe place to put that klenex and not expose myself to the nasties I cleaned off with that klenex. BTW I get my hand sanitizer at the 99 cent store(for $.99) and I also get Swan brand hand sanitizer at Walmart for $.88, but you have to look around the pharmacy for it as they keep a lot of their pharmacy items in 2 different locations. The hand sanitizer at the 99 cent store has more conditioners in it, but the one at Wal-Mart has a tiny bit higher % of alcohol and it dry quite fast. Hope that helps you itch less!

Since: Feb 14

Spring Valley, CA

#124 Feb 12, 2014
OPPS....sorry I have no idea why that posted 2 times

Since: Feb 14

Spring Valley, CA

#125 Feb 12, 2014
justshootmyass wrote:
i found an answer. God bless.
Post scabies irritation is characterized by reddening of the skin on affected areas, followed by fluid-filled blisters. These dry up and flatten out in a day or two, then the dead skin may peel off. Itching seems most intense when the skin is beginning to turn red and when the blisters first appear, especially at night. The outbreaks occur in 3-4 week cycles, lessening in severity over time. Moisturizing lotions, hydrocortisone creams, olive oil, Benadryl, oatmeal baths, baking soda baths, and gently popping the blisters and applying Eucalyptus oil have all been suggested as ways to help stop or lessen the itching associated with scabies or post-scabies. If the product that you used to remove the scabies contained Lindane, you should look at the second link.
I add a link with some details of this subject and one containing details of side effects from Lindane,
http://www.nhsdirect.nhs.uk/
articles/article.aspx?articleI d=328
http://www.fda.gov/cder/
drug/infopage/lindane/
lindaneQA.htm
Hi, I'd really like to read what you are talking about, but I went to both of those sites and they are very large, so will you please tell us in detail what to click on and where to click in what part of the page? That would be most helpful, other wise, I like I'm sure many on here, simply don't have the time it will take to read that whole site to hopefully find this info you felt was so useful.

Since: Feb 14

Spring Valley, CA

#126 Feb 12, 2014
Text Book wrote:
<quoted text>
The literature states that the sarcoptic mite canis cannot live and breed on humans, but this is NOT true. They can live and breed on humans and vice versa. Also, there is nothing that kills the eggs. Elimite permethrin does NOT kill the eggs. This is why you need at least 3 treatments of permethrin cream. I personally don't think there is much to the post scabies syndrome. Had a hard time responding here because her post was so lengthy.
My response didn't even fit. Also, if your scraping test comes back negative, this DOES NOT mean you are not infested. Many times, when a vet does a scraping, it does not always come back positive, even through it's clear that the pet has sarcoptic mange based on what the vet sees, from experience. What they do is go ahead and treat the mange, rather than relying on one scraping test. Your post here reeks of the "all natural" approach and this does not always cure. The more conversative approach does not cure resistant scabies on people who have poor immunities.
Let me start by saying at this moment I've not read the post you are commenting on, but I will as soon as I've posed this. What I do want to point out is that sometimes alternative methods are the only things that work for some people. For me, with my numerous allergies and for one RN I know of who had these, alternative "all natural" medicine was all that did worked. So as much as you were cautioning the other person's you were replying to, I'll also caution you to be aware that for a good number of people on this forum, RXs have not worked and they are here looking for other potential answers, so please do not discourage them from trying "all natural methods" I'm now in what I feel are the end stages and I feel I'm getting " cured" at least I'm 95% better than I was the last week of December 2013 and it's all my treatments are natural or OTC, but none of them have been an RX. So people can get control and even over this with using RX. There are plenty of posts on this forum and other forums that tell how people accomplished this without RXs. Please don' t get me wrong, I'm not at all against Dr.s, I just think for the most part when it comes to Scabies, the medical community, although well meaning, for the most part, they are still in the dark ages in regard to scabies & mite infestation. It appears that in general they really don' t know how to help many of us and in turn end up giving us Rxs that often prove useless and they don't know what else to to tell us to do...so we end up just suffering, until we come here and hopefully find some solution that works for us. For many this forum has been their salvation, if for nothing else, a place to talk to others who understand their suffering.
itchy 4 ever T-T

Queen Creek, AZ

#127 Feb 12, 2014
Yeah i am also worried because I had the symptoms of scabies for more than half a year and have seen many doctors until finally one of them told me. I was given the pill treatment but the itchiness went all into my hands then returned about two weeks later. I don't know if I still have it or if its paranoia or post scabies so it definitely concerns me.
Kipper

San Antonio, TX

#128 Feb 14, 2014
Yes, I went five months, and through four doctors, before it was even brought up. I had the pill treatment three times, and once with the lotion. The last doctor never found any, when scraping my skin, but it does seem to be slowly improving. The itching has been bad, but I do not think that I have been reinfested. I stopped with the stupid steroids, as the docs just kept pumping me full of them, and it was obviously irritating my skin. It has been a nightmare, but don't let everyone in here scare you to death. There is a TON of misinformation in here, and some people are describing bed bugs, NOT scabies.

I have been careful about washing clothing, not using my mattress, etc. after every treatment. I don't have much cloth material in furniture, etc., so I am lucky.

Just stick with a doctor you trust. I went through three TERRIBLE ones, before coming across one who took me seriously. Most everyday dermatologists are clueless. They're too busy pushing botox.
cured12

Wichita Falls, TX

#129 Feb 15, 2014
Over-treating is the main cause of people swearing they still have scabies. The medicine will cause redness, crawling sensation, itching and even swelling and bumps on the skin.

My only disagreement is about the pets. I realize that while it is true that animal scabies is not the same form as human scabies, leaving your dogs untreated is no different than leaving your laundry untreated. Scabies gets on the dog, then when it realizes it isn't on a human, it goes searching for one. The pet sleeps on your furniture, and possibly even with you, then the scabies crawls back onto you. And make no mistake, human scabies WILL get on an animal. Yes, it won't live on the animal, but all it takes is hitching a temporary ride right back into your bed. Treat the pets, treat yourselves, scrub your house, do your laundry and then, wait.

No doubt the waiting is the hard part, especially when you are developing new inflammation and itching and you are physically exhausted from doing laundry and cleaning or the panic you get when you see your dog bite at himself. But the truth is, no matter how it seems, these are just mites! They don't have super powers and can tolerate extreme conditions and can live through the atomic bomb. They are just mites. You can't "feel" them crawling on you no differently than you can "feel" the dust mite that has been on you since the day you were born. Scabies don't jump or fly, they can only crawl, and since they are microscopic, they don't crawl fast. There is no reason to feel like everything you touch is infected and that merely brushing against something infected is going to automatically infect you.

Just remember that by following the doctors orders, treating LITERALLY from your head to the soles of your feet, dipping your pets and washing their bedding as well as your own, vacuuming, lysoling, and doing all laundry,(and I mean normal laundering, not pouring crazy poisons in and boiling and steaming and ironing) is GOING to kill the mites. Then, just wait for the medicine's effects to leave your system which takes time.

If you truly continue to get burrows, either you aren't treating yourself right or cleaning right, or you are coming into contact with someone who has scabies still. These aren't impossible to get rid of, it just takes a little diligence. But the more you convince yourself you still have them, despite a lack of new burrows forming, the worse you are going to feel. No new burrows, no more mites. Period.

And remember, while all the home remedy stuff might help ease the itch, the only thing that is actually going to kill the mite is the prescription. Don't waste time and money just to find out that all you are really accomplishing is annoying the mite and making it search for new areas on your body to burrow.

Just remember this: If you are involved in a conversation with someone about lice, you will find yourself scratching your head. The longer you think about it, the more your head itches. Next thing you know, you are running to the mirror to search your scalp for lice. The psychosis is real. Now top the knowledge that there have indeed been live bugs digging into your skin with a poisonous medicine that dries out your skin horribly and causes inflammation of the hair follicles, and then combine on top of that fungal infections caused from your dirty nails scratching yourself. That's a recipe for extreme itching! It's not that scabies are somehow surviving every single thing you throw at them, it is that you aren't trusting your treatment. You are dwelling on it and searching yourself in great detail, panicking over every bump or red splotch you see, even though they were there before your scabies, and will be there long after.

Follow the doctors orders, treat and clean thoroughly and then RELAX. Believe it or not, scabies can't survive insecticide any more than you can survive drinking rat poison.

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