Post Scabies Itch Syndrome
Sharon

Hollywood, FL

#89 Nov 12, 2013
Brando wrote:
What about a person that has been having post scabies breakouts for 8 months after treatment? Even went back to dermatologist and said I had no active mite. But I had scabies for an entire year to the point I was developing encrusted scabies on my hands.
How do you know its post scabies breakouts? Did the derm do any scrapings? Any tests on you? So, you are just going to take their word for it and go along your happy way that you "have no active mite?" Eight months is very long time after treating. And you had crusted scabies. YOU STILL HAVE SCABIES.
Stuart

Gainesville, FL

#90 Nov 14, 2013
I'm not sure if all these comments make me worried or satisfied. I've been dealing with this for about four months (and treating it for about a month.) The permethrin cream was certainly powerful (made me itch really, really bad) but I wasn't sure if it had worked (I still was itching, had bumps two weeks after treatment.) thankfully, my dad was able to prescribe me ivermectin. I'm just hoping it kills the last of these lil devils! And cleaning is so exhausting (especially as a college student.) Good luck everyone!
Gina

Marquette, MI

#91 Dec 7, 2013
My 2 year old daughter got scabies I thought it was some kind of dry skin form stuff but took her into the doctors and turns out she had scabies well she got priscribed permetherin cream 5% and he just priscribed her so I rubed her down with it did my son to just in case and did myself and my husband could only get certain spots on his body and then I thought maybe I had it so I went in and the docotor didn't test me for it but he did prescrib me the permetherin cream 5% with 1 refill so I dI'd me my husband and my daughter again my son was at grandmas and grandma thought she had it and got the ceeam for i t and did herself also rubed him down with jt to I have another bottle j can pick up when ever just feel lioe I should give some time for my skin to heal my daughters skin healed nice she don't really have any of the bumps that she did have she don't itch as much as j still do I get feelings like somethings poking/stinging me also still itch and get little dots then they go away is that active scabies or post scabies someone please let me know.....my husband aint dealing with any itchy at all lucky him I'm pretty much the only one that is
Broad

Portland, OR

#92 Dec 7, 2013
The worst feeling ever wrote:
My skin has to be very sensitive because its been about 4 months the bumps come and go all over my body. The itching on the scalp has calmed down tremendouslybut i still am very itchy on the inside of my thighs and my back is very itchy also. I went to a dermatologist and she told me to let my body heal because the cream is very strong and that is most likely the reason for this terrible itch. I just want to share because if I didnt go to the dermatologist I would be freaking out to this day about this defistating life crisis! I hope this helps but I'm still itchy after 4 months since the cream has been used. I have not found anything to help the itch except for ice baths.
I am having the same issue! It's been almost 3 months since I treated (twice) and I am still itching like crazy on my legs, thighs and stomach. It's so awful that it almost brings me to tears sometimes, just imagining what it could be... I just hope that it'll eventually subsides and that it's not a reinfestation! That was a nightmare that I never Want to live through again.
Jacks

Rhyl, UK

#93 Dec 8, 2013
It's now 1year since my last treatment and I think I overused permethrin and that's why it's gone on so long. I think most people are cured after 2 treatments but the permethrin ruins your skin and u think u are still infected, after 2 treatments hang
In and deal with the itching because u have probable killed the scabies but skin is reacting to permethrin
a long road

Ionia, MI

#94 Dec 9, 2013
Jacks wrote:
It's now 1year since my last treatment and I think I overused permethrin and that's why it's gone on so long. I think most people are cured after 2 treatments but the permethrin ruins your skin and u think u are still infected, after 2 treatments hang
In and deal with the itching because u have probable killed the scabies but skin is reacting to permethrin
What do you think about the pinprick bites after so long, like over a year? Just overused permathrin? I need help, I've tried everything, even neem oil.

Since: Dec 13

Berlin, MD

#95 Dec 9, 2013
Here is my 2 cents worth, take it or leave it:

I was diagnosed with scabies with visible burrows in Sept. of 2013. I think I probably dosed myself with Permethrin at least 15 times. I also tried Stromectol and Lindane. What finally worked for me was the combo of Permethrin with Stromectol. I had been feeling the sensation of "bugs crawling" for some time but with the evidence of continued burrows (and by that I mean raised red itchy bumps in a curved lined)I felt I had not eradicated the problem.
Once I did the combination treatment of permethrin with stromectol (the permethrin was also applied to the hair and scalp just so you know) I fought the urge to retreat and just waited to see if new burrows appeared. They did not, but I continued to feel itchy and had the sensation of bugs crawling on my skin and hair.
The rash that appeared in the bend of my elbows, abdomen, armpits etc differed than that of scabies but itched just a badly and it was hard to differentiate. I went back to the doctor who explained that all of the excessive treatments I had been treating myself with (permethrin, lindane, stomectol) had altered the PH of my skin making it a perfect breeding ground for fungi.
I had a raging fungal infection (tinea corporis. Once I treated that with oral antifungals I was finally back to normal. FYI: Fungal infections will give you the sensation of bugs crawling on your skin ( including your hair and scalp!) whereas scabies will not, due to the fact that they are microscopic and are incapable of producing physical feelings of movement. I never had this sensation until I treated my skin with permethrin.
I recommend a full scalp to toe treatment of permethrin plus stromectol. Repeat the treatment within a week if you see brand new burrow marks, not to be mistaken with random pustules that form because of either the permethrin itself or the body trying to eradicate the feces/scabies foreign matter (you will know the difference because true scabies will keep you up at night and do not dissipate after a few hours!).
If you experience the sensation of bugs crawling on your skin and/or hair post-treatment with rashes then please consider the fact that you may have a secondary fungal infection due to all the poison you have subjected your skin to.
I hope this may be considered at least before you consider taking a bath in bleach!
Clarence

Hollywood, FL

#97 Dec 13, 2013
lorita wrote:
<quoted text>
Let's give it up for Ryan Your awesome man love YOU
Oh sure, Ryan posts a link to your website, which directs you to an online scam website that sells bogus scabies products which do not cure. You gotta LOVE IT. You people on this forum are ruthless pricks, preying on people who are suffering and taking their money when they need their money for real cures. Your homeopathic bullshit doesn't work and you guys should be hung by your fingernails.
JoelHatesScabies

United States

#98 Dec 26, 2013
Ok I got scabies from an ex... My 3 y/o son got it from me... Gave it to his mother, and her 7 mo old baby... I was itchy all over... Going crazy... No health insurance... Took my son to the doc and he told me to share a small tube of permethrin w my son... I don't think it worked because I was still itchy as hell but I'm always more paranoid than anyone I know... So I figured, I'm just going crazy... They said id still itch after treatment... So my sons mother ordered a bunch of permethrin online because after they treated they still felt itchy too... Waiting for more med to come in, I tried ALL the bs home remedies... Rubbed sulfur soap, lotion, etc on my body... Dry skin.... One website even said rub cayenne pepper on your body, and I tried that small piece of hell on earth... Borax baths every day, olive oil on my body to try to help the dry skin... After getting the box of permethrin we all treated at the same time two weeks in a row.... Everyone seemed fine but me... But I kept thinking, maybe I'm crazy and it just itches after treatment like they said it would.... I was itchy... But I started to realize I was itchy in certain spots and not all over like before... So I located every bump that was itching me on my upper body and popped the hell out of it like you're told not to do... And probably could rush infection but I popped it, alcohol and neosporin... Felt better... Maybe it was just something I was putting on my body during crazy home treatments that caused my body to break out in hardly noticeable pimples... And after popping them I didn't itch.... About a week later my legs started itching like my upper body was... I went to the feed store and took ivermectin, because I promised myself I'm not going through crazy treatments anymore... After one treatment my legs were itching... So I looked close... Small pimples... Popped them all... Don't itch... I know some of you still have scabies... But some of y'all might just be going crazy like I was...
jjohnson2468

United States

#99 Dec 31, 2013
In aug 2013 I got hives and I thought it was stress because i was leaving for college. This went on for months and realized I wasnt stressed anymore but still getting bumps then they itched then turned into dry patches like excema. I thought I was allergic to something and thought I'd wait until I got home for for Christmas to see my doctor. I found out a week ago this guy I dated had scabies. We only ever cuddled. Ive had scabies for 5 months with no insurance so he got me the cream. Ive used it and still itch amd get get bumps but not as bad. Im waiting another week to apply one more time but does it get worse over time?? Cause i waited 5 months...Should it be gone? I can go to a clinic to check but just wondering before I spend money.
Text Book

Hollywood, FL

#100 Dec 31, 2013
PostScabiesSufferer wrote:
Some people develop post scabies syndrome, which causes itching for up to 4 weeks, or even for months. The cause is an allergic response. Some people just have a more sensitive immune system than others, which is why some get the post scabies itch while others do not. Just like, I'm allergic to cats and my husband isn't.
There is the thought that it is a reaction to the remains left behind by the dead scabies and eggs. Another thought is that the permethrin cream causes an allergic reaction. Both probably contribute to the problem.s, so I can certainly understand why I'd have a reaction to the dead scabies/eggs and/or the permethrin cream used to treat scabies. After all, permethrin cream is a pesticide! If you sprayed Raid bug killer on your skin, don't you think you'd get an allergic reaction? Though permethrin cream is safe for use on humans, it is still just bug killing pesticide!
am being stung by something. Being a Registered Nurse, I read, in detail, the prescribing information for the permethrin and stinging is a listed side affect. My skin is also very dry.
If you suspect that you still have active mites living under the skin, your doctor can perform a test. It is simply a scraping of the skin to look for mites under a microscope. If no live mites are found, chances are you have post scabies syndrome. Also, contrary to what some people have posted, permethrin 5% cream DOES kill the mites and their eggs. This is also found in the prescribing literature for permethrin 5% cream. In some cases of poor immune system, improper treatment, or severe infestation, more than one application of the cream may be needed. However, if you keep treating and retreating yourself and it is post scabies eliminated.
One more thing that I have seen over and over is the fear of passing, or getting, scabies from or to your dog or cat. This is NOT possible because there are different sub-species of mites that affect humans versus animals. Even if a human mite gets on your animal and bites it, it will die on its own without completing it's life cycle because it can only survive on it's natural host, which is the human. The same is true for mites which use your dog as it's natural host, it can not survive or reproduce on a human. If you don't believe this, call your local vet. He or she will tell you the same.
If you do suspect, or have some very understandable post scabies paranoia about still have these nasty little creatures living in your skin, have your doctor perform the scraping test. Please don't continue treating yourself with all these creams and medications if you don't have active live mites. cations have potential adverse affects, some can be life threatening!
Some things that are helping my post scabies syndrome are Benadryl oral caplets, Benadryl cream or hydrocortisone cream, keeping skin moist with hydrating lotion (I use Eucerin Cream), Aveeno Oatmeal Bath, and calamine lotion.
The literature states that the sarcoptic mite canis cannot live and breed on humans, but this is NOT true. They can live and breed on humans and vice versa. Also, there is nothing that kills the eggs. Elimite permethrin does NOT kill the eggs. This is why you need at least 3 treatments of permethrin cream. I personally don't think there is much to the post scabies syndrome. Had a hard time responding here because her post was so lengthy.
My response didn't even fit. Also, if your scraping test comes back negative, this DOES NOT mean you are not infested. Many times, when a vet does a scraping, it does not always come back positive, even through it's clear that the pet has sarcoptic mange based on what the vet sees, from experience. What they do is go ahead and treat the mange, rather than relying on one scraping test. Your post here reeks of the "all natural" approach and this does not always cure. The more conversative approach does not cure resistant scabies on people who have poor immunities.
Text Book

Hollywood, FL

#101 Dec 31, 2013
Here is her post that I was responding to. Her post is so full of misleading information.
It's post number 1 on this thread.
ome people develop post scabies syndrome, which causes itching for up to 4 weeks, or even for months. The cause is an allergic response. Some people just have a more sensitive immune system than others, which is why some get the post scabies itch while others do not. Just like, I'm allergic to cats and my husband isn't.
There are 2 schools of thought for what causes this post scabies itch. tion to the remains left behind by the dead scabies and eggs. Another thought is that the permethrin cream causes an allergic reaction. Both probably contribute to the problem. I am a person who is allergic to many environmental agents, so I can certainly understand why I'd have a reaction to the dead scabies/eggs and/or the permethrin cream used to treat scabies. After all, permethrin cream is a pesticide! If you sprayed Raid bug killer on your skin, don't you think you'd get an allergic reaction? Though permethrin cream is safe for use on humans, it is still just bug killing pesticide!
My kids brought home scabies from school. My entire family was treated. Then, about 2 weeks later, we were all treated again because I suspected scabies reinfestation. I am the only one of us who got the post scabies itch. It is different from live scabies infection in a few ways. First of all, I am able to take benadryl and get some relief. Also I am able to sleep at night. Sleep was absolutely impossible while I had live mites. The itch was too intense. Another difference is that this itch/rash comes and goes. With the itchy rash, I have a feeling like I am being stung by something. Being a Registered Nurse, I read, in detail, the prescribing information for the permethrin and stinging is a listed side affect. My skin is also very dry.
If you suspect that you still have active mites living under the skin, your doctor can perform a test. It is simply a scraping of the skin to look for mites under a microscope. If no live mites are found, chances are you have post scabies syndrome. Also, contrary to what some people have posted, permethrin 5% cream DOES kill the mites and their eggs. This is also found in the prescribing literature for permethrin 5% cream. In some cases of poor immune system, improper treatment, or severe infestation, more than one application of the cream may be needed. However, if you keep treating and retreating yourself and it is post scabies syndrome, you will just make your misery last longer as your skin will become more and more irritated and your body will continue to make histamine, which is your immune response to anything that your body sees as a foreign substance that needs to be eliminated.
One more thing that I have seen over and over is the fear of passing, or getting, scabies from or to your dog or cat. This is NOT possible because there are different sub-species of mites that affect humans versus animals. Even if a human mite gets on your animal and bites it, it will die on its own without completing it's life cycle because it can only survive on it's natural host, which is the human. The same is true for mites which use your dog as it's natural host, it can not survive or reproduce on a human. If you don't believe this, call your local vet. He or she will tell you the same.
If you do suspect, or have some very understandable post scabies paranoia about still have these nasty little creatures living in your skin, have your doctor perform the scraping test. Please don't continue treating yourself with all these creams and medications if you don't have active live mites. Remember, though considered safe, all medications have potential adverse affects, some can be life threatening!
Some things that are helping my post scabies syndrome are Benadryl oral caplets, Benadryl cream or hydrocortisone cream, keeping skin moist with hydrating lotion (I use Eucerin Cream), Aveeno Oatmeal Bath, and calamine lotion.
Text Book

Hollywood, FL

#102 Dec 31, 2013
jjohnson2468 wrote:
In aug 2013 I got hives and I thought it was stress because i was leaving for college. This went on for months and realized I wasnt stressed anymore but still getting bumps then they itched then turned into dry patches like excema. I thought I was allergic to something and thought I'd wait until I got home for for Christmas to see my doctor. I found out a week ago this guy I dated had scabies. We only ever cuddled. Ive had scabies for 5 months with no insurance so he got me the cream. Ive used it and still itch amd get get bumps but not as bad. Im waiting another week to apply one more time but does it get worse over time?? Cause i waited 5 months...Should it be gone? I can go to a clinic to check but just wondering before I spend money.
You can't sit around and wait for others to help you get the treatment you need. Read more on this forum. You need at least 3 treatments of permethrin. Ivermectin might help you get a cure faster. I am wondering how you weren't stressed anymore, because being in college and dating around with guys who have scabies sounds pretty damn stressful.
jjohnson2468

United States

#103 Dec 31, 2013
Text Book wrote:
<quoted text>
You can't sit around and wait for others to help you get the treatment you need. Read more on this forum. You need at least 3 treatments of permethrin. Ivermectin might help you get a cure faster. I am wondering how you weren't stressed anymore, because being in college and dating around with guys who have scabies sounds pretty damn stressful.
Haha I was stressed but not in the sense of getting hives anymore but found out it wasnt hives and was scabies. Thanks for the info though! Do i get that stuff from a dr or over the counter? So after the third time I should be good hopefully? Even if I itch? I've read people's comments about post itching and bumps but its so nerve racking. If have anymore questions I will ask away!(: thank you!
jjohnson2468

United States

#104 Dec 31, 2013
Text Book wrote:
<quoted text>
You can't sit around and wait for others to help you get the treatment you need. Read more on this forum. You need at least 3 treatments of permethrin. Ivermectin might help you get a cure faster. I am wondering how you weren't stressed anymore, because being in college and dating around with guys who have scabies sounds pretty damn stressful.
Also the creme without insurance is like over 300 bucks and generic is 100 or more so I had to have him get it because he had insurance! That's too much for my budget haha (for future readers who do not have insurance)
charlie

Hollywood, FL

#105 Jan 1, 2014
jjohnson2468 wrote:
<quoted text>
Also the creme without insurance is like over 300 bucks and generic is 100 or more so I had to have him get it because he had insurance! That's too much for my budget haha (for future readers who do not have insurance)
Permethrin cream doesn't cost $300. Far from it.
Do you like playing around on the net?
Need some advice

Martinez, CA

#106 Jan 1, 2014
Has anybody used clobetasol propionate for their scabies? Used it last year and it took care of the problem. I got it again now and I just used the same stuff but am itching like crazy the following day. Should I give my skin more time to calm down or what's the deal?
jjohnson2468

South El Monte, CA

#107 Jan 6, 2014
charlie wrote:
<quoted text>
Permethrin cream doesn't cost $300. Far from it.
Do you like playing around on the net?
Who goes on a scabies website to play around? You're dumb. And yes it does cost that much. I went to 3 pharmacies to check. At least in washington those are the prices.
Lee

Hollywood, FL

#108 Jan 6, 2014
jjohnson2468 wrote:
<quoted text>
Also the creme without insurance is like over 300 bucks and generic is 100 or more so I had to have him get it because he had insurance! That's too much for my budget haha (for future readers who do not have insurance)
I just looked it up. Permethrin cream costs anywhere between $43 and $67 in the U.S. It doesn't matter where you live in the U.S.
I saw you post a couple of posts yesterday linking to a UK website, selling Lyclear and Cetaphil. You are a troll here FOR SURE. So, stop pretending you are someone who is actually suffering here. You are not.
pauls crawling

UK

#109 Jan 8, 2014
Hi just thought I'd say I get the crawling feeling after being treated am pretty sure its just the nerves and its a waiting game for the dead mites to be cleared from the body it does feel lik the mites are crawling but for me the tingling sensation is just part of the allergic reaction my suggestion would be to let the body clear of the dead mites itching and tingling can occur for three weeks after treatment so don't keep retreating unless your doctor can confirm that the itch IS the mite if not let it run its course and take comfort in the knowledge that the mite has more than likely died off and its the allergic reaction that persists!!

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