Post Scabies Itch Syndrome
kari

Stantonsburg, NC

#45 Mar 24, 2013
i had a mysterious rash that attacked my body, i had my toddler sleeping in my bed and he never got the rash.. but 4-5 months later my inlaws who i lived with got the mysterious rash as well,the doctors i seen kept saying i had scabies.. they did a skin scrapping in 2 areas on my arm and it came back in conclusive.. im confused cause scabies is HIGHLY contagious so i dont understand how i had scabies if my child didnt catch it, after i had my seoond child i was able to take the ivermectin and i dont itch at all anymore but my legs itch like crazy, im convinced its dry skin, but my paranoid its still scabies and all i wanna do is cut every inch off my skin off, i am still confused on why my children never got the scabies rash, did anyone else have this same situation?
ScabiesHater220

Farmingdale, NY

#46 Mar 27, 2013
PostScabiesSufferer wrote:
Some people develop post scabies syndrome, which causes itching for up to 4 weeks, or even for months. The cause is an allergic response. Some people just have a more sensitive immune system than others, which is why some get the post scabies itch while others do not. Just like, I'm allergic to cats and my husband isn't.
There are 2 schools of thought for what causes this post scabies itch. There is the thought that it is a reaction to the remains left behind by the dead scabies and eggs. Another thought is that the permethrin cream causes an allergic reaction. Both probably contribute to the problem. I am a person who is allergic to many environmental agents, so I can certainly understand why I'd have a reaction to the dead scabies/eggs and/or the permethrin cream used to treat scabies. After all, permethrin cream is a pesticide! If you sprayed Raid bug killer on your skin, don't you think you'd get an allergic reaction? Though permethrin cream is safe for use on humans, it is still just bug killing pesticide!
My kids brought home scabies from school. My entire family was treated. Then, about 2 weeks later, we were all treated again because I suspected scabies reinfestation. I am the only one of us who got the post scabies itch. It is different from live scabies infection in a few ways. First of all, I am able to take benadryl and get some relief. Also I am able to sleep at night. Sleep was absolutely impossible while I had live mites. The itch was too intense. Another difference is that this itch/rash comes and goes. With the itchy rash, I have a feeling like I am being stung by something. Being a Registered Nurse, I read, in detail, the prescribing information for the permethrin and stinging is a listed side affect. My skin is also very dry.
If you suspect that you still have active mites living under the skin, your doctor can perform a test. It is simply a scraping of the skin to look for mites under a microscope. If no live mites are found, chances are you have post scabies syndrome. Also, contrary to what some people have posted, permethrin 5% cream DOES kill the mites and their eggs. This is also found in the prescribing literature for permethrin 5% cream. In some cases of poor immune system, improper treatment, or severe infestation, more than one application of the cream may be needed. However, if you keep treating and retreating yourself and it is post scabies syndrome, you will just make your misery last longer as your skin will become more and more irritated and your body will continue to make histamine, which is your immune response to anything that your body sees as a foreign substance that needs to be eliminated.
Thank you so much this is so calming I had scabies for 2 months before it was diagnosed and now I am so scared and paranoid and stressed its the worst feeling ever, you really gave me hope thank you.
D ee

Canada

#48 Apr 20, 2013
The thing that worked best for me was clove oil mixed with coconut oil head to toe for 3 weeks. It takes away the rashes and itch but must be used for a few weeks. 25 % clove to 75% coconut.After scrubbing in hot bleach baths, reapply. i found permethrin just scared them to my head but didn't kill them. that was the worst! I took ivermectin 4 times to kill adults.... It got me over a hump but didn't get the eggs. I have read clove breaks the cycle by getting eggs, but it takes time... Be patient and keep cleaning. I discarded all bedding and upholstered furniture and took time off work and walked around naked to not run off oils. I smeared 10 % sulphur cream on my head but it was too hard to deal with it on my body. Pomada dr azufre available over the counter at many wslmarts in the southern states. Paranoia remains after 2 months suffering and 2 months treating. Finally sleeping at night.... Still in spare room with plastic covers new mattress. Pets should get revolution and quarantined do not to pass back and forth. Car needs to be left for a few months and sprayed with pesticides .... Some bug fumigating bombs in states. It's a nightmare but it will end.... We will get our lives back... Stay strong and don't give up.
Mikey

Pamplona, Spain

#51 Apr 29, 2013
Hi, I've had scabies for about 2 and a half months now and after wrong diagnosis, I did research myself and got my doctor to prescribe permethrin. The 24 hours after applying it I felt very little difference but the couple of days after I have felt good, only small and infrequent itching sensations but not very strong. I have done the bed washing and clothes washing for three days since applying it but thought that should be enough and last night slept in the same bed clothes and bed linen as the night before. During the night I was getting itchy sensations on my neck and shoulders, an area previously relatively unaffected by the problem and it persists this morning spreading down my body. Could this be still post scabies but if so why am I getting it now and not the past couple of days, or have I been unfortunate and most likely reinvested? Either way, I am likely to apply the cream again tonight (it has been 4 days since the first application), would anyone strongly suggest against this?
Mites

New York, NY

#52 Apr 29, 2013
Mikey wrote:
Hi, I've had scabies for about 2 and a half months now and after wrong diagnosis, I did research myself and got my doctor to prescribe permethrin. The 24 hours after applying it I felt very little difference but the couple of days after I have felt good, only small and infrequent itching sensations but not very strong. I have done the bed washing and clothes washing for three days since applying it but thought that should be enough and last night slept in the same bed clothes and bed linen as the night before. During the night I was getting itchy sensations on my neck and shoulders, an area previously relatively unaffected by the problem and it persists this morning spreading down my body. Could this be still post scabies but if so why am I getting it now and not the past couple of days, or have I been unfortunate and most likely reinvested? Either way, I am likely to apply the cream again tonight (it has been 4 days since the first application), would anyone strongly suggest against this?
Usually it's 7 days after the initial treatment. The perm does not kill the eggs so they hatch and you
Will have a whole new group of them. The perm does itch. Epsom salt does helps the skin. Take a bath in two cups of Epsom salt, but put Vaseline on your neck and ears do the mites don't run to your scalp. If you feel the need to retreat then I would. Keep clean and changing sheets for at least a month. Good luck
Mikey

Pamplona, Spain

#53 Apr 29, 2013
Okay since that post and having a shower today has been relatively okay, it has been itching a little more than the past couple of days but not really on my neck. I am going to presume this is just down to post scabies right? Also finally the rashes and bumps are turning to scabs which look more healthy than previous and this should then turn into new skin correct? I have just washed clothes and sheets from yesterday and will continue to do so.
Mitey-sad

New York, NY

#54 Apr 29, 2013
Mikey wrote:
Okay since that post and having a shower today has been relatively okay, it has been itching a little more than the past couple of days but not really on my neck. I am going to presume this is just down to post scabies right? Also finally the rashes and bumps are turning to scabs which look more healthy than previous and this should then turn into new skin correct? I have just washed clothes and sheets from yesterday and will continue to do so.
Have you done 2 treatments? If not you have to. It's good that the rash is turning into scabs but you need to treat at least 2x, 7 days apart.
Mikey

Pamplona, Spain

#55 Apr 29, 2013
Yeah as posted before I'm only into day 4 of the original treatment. So in three more days I will commence with the second batch. Does it matter all that much if I do it 6 days later as opposed to 7 as I have an exam early the morning after the 7th day so wouldn't be able to stay in bed allowing 12-14 hours for the cream to settle without showering (or putting it on earlier in the evening without wearing clothes on top)??
Deb

Glendale, AZ

#56 May 9, 2013
Mites wrote:
<quoted text>
Usually it's 7 days after the initial treatment. The perm does not kill the eggs so they hatch and you
Will have a whole new group of them. The perm does itch. Epsom salt does helps the skin. Take a bath in two cups of Epsom salt, but put Vaseline on your neck and ears do the mites don't run to your scalp. If you feel the need to retreat then I would. Keep clean and changing sheets for at least a month. Good luck
Yes, the perm does kill the eggs.
http://www.cdc.gov/parasites/scabies/health_p...
Still itching

Redlands, CA

#57 May 13, 2013
I got the terrible itchy news on Friday when I was diagnosed with scabies. Though my doc said it was mild, scabies are scabies. I received the 5% perm and applied it that night. It's now Monday and I'm still itching. I see new bumps that weren't previously there. I took a hot bath with borax and hydrogen peroxide. I hope that helps. I am debating doing the treatment with perm again as I know I may just feel more itchy afterward due to the harmful effects it can cause. Not sure if I should wait it out. Guess I'll see how I feel on Friday again.
Worn Out and Weary

Royal Oak, MI

#58 May 14, 2013
Yes; do the perm treatment again, probably Wednesday instead of waiting until Friday. These things have a life cycle that you have to attack at every stage. Ask your doc about oral Stromectol, too (ivermectin is generic name). Read up on other threads about treating this thing. I'm sure you're NOT in post-scabies itchy condition yet. Good luck.
losing my sanity

Portland, OR

#59 May 14, 2013
Can someone please tell me if this is scabies? The doc doesn't know. I itch, feel crawling, prickly tingling sensations and feel biting all over my body 24/7!!! This has been going on since January!!!!! I keep getting new bumps. Pleaae Please please take a look at my pics and tell me if this looks similar to any of yours. http://m1364.photobucket.com/albumlist/losing...

I'm giving up hope. Tried perm 5% 4x already and keep getting new bumps ect.

:(
losing my sanity

Portland, OR

#60 May 14, 2013
And it's contagious ... I've given it to 3 other people :(
Worn Out and Weary

Royal Oak, MI

#61 May 15, 2013
Go see an infectious diseases specialist right away. Google "infectious diseases specialist" in your area, and call and make an appointment. Tell them it's urgent, so they'll get you in sooner. Skip going to a dermatologist or GP. I.F. specialist will probably know a lot more than the others.
Worn Out and Weary

Royal Oak, MI

#62 May 15, 2013
When you call them, ask if they have someone who has dealt with scabies before, just to make sure.
Still itching

Redlands, CA

#63 May 19, 2013
Worn Out and Weary wrote:
Yes; do the perm treatment again, probably Wednesday instead of waiting until Friday. These things have a life cycle that you have to attack at every stage. Ask your doc about oral Stromectol, too (ivermectin is generic name). Read up on other threads about treating this thing. I'm sure you're NOT in post-scabies itchy condition yet. Good luck.
so I did do the treatment again. I'm still itchy and still finding new bumps. I read this is normal but I think I'm going to go get checked by a dermatologist just to be sure.
post scab

Baton Rouge, LA

#64 May 21, 2013
Last treated in March sometime. Treated three times. Got paranoid and did the bleach baths also and tto.
Slept in the garage in a different sleeping bag for a week.
I have no itching any more but am still getting red bumps on my forearms on occasion, for awhile under my pecs but that seems to have gone away now, and still get some bumps on the side of my ribs. The bumps hang around for a week or so. Not many bumps but see many small marks pop up and go away. HOW long will this go on? Cured but still have bumps I believe. Did not even have that many I dont think to start with.
FRED

Golden, CO

#65 May 22, 2013
post scab wrote:
Last treated in March sometime. Treated three times. Got paranoid and did the bleach baths also and tto.
Slept in the garage in a different sleeping bag for a week.
I have no itching any more but am still getting red bumps on my forearms on occasion, for awhile under my pecs but that seems to have gone away now, and still get some bumps on the side of my ribs. The bumps hang around for a week or so. Not many bumps but see many small marks pop up and go away. HOW long will this go on? Cured but still have bumps I believe. Did not even have that many I dont think to start with.
The mites carry infections that they pass on to you and you end up with those after the mites are gone. These might be borriella, bartonella, babesia, etc. You need to go to an infectious disease specialist, regular doctors and dermatologists are worthless.
canucker

Scarborough, Canada

#66 Jun 8, 2013
Confused one wrote:
Ok I had scabies, I never saw a dr but I had the same symptoms I saw and read online. I took the 5% cream and the next days my bites seemed to be gone, I had it bad on my abs and hands. It's been about a month n half I still itch bad at night and have minor bumps on arms and thighs. Is this normal? Also I had scabies for 3 months before getting treated, no one caught it. I thought its, highly contagious?
self diagnosis is dangerous. I am awaiting biopsy. I may have caused irreparable damage to my skin thinking i had scabies. There are many skin conditions thar look like scabies. One of which is lichen planus which my derm thinks i have. Of course waiting on biopsy result.

Since: May 12

Location hidden

#67 Jun 8, 2013
Dermatologists are one of the most unqualified to diagnose medical conditions. This is because their focus is on the skin. The skin symptoms are always the result of some kind of systemic problem. The better choice is an infectious disease specialist.

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