RA and progesterone?

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Natascha Jadee

UK

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#1
Oct 16, 2007
 
Hello, I've been diagnosed with Rheumatoid Arthritis this year, although I had an attack several years ago. Just took them a long time to get it diagnosed. Well, both my attacks came on when i was off my progesterone injection, Depo Provera. I have gone onto the injection 2 months ago, and the symptoms just completely dissappeared in a matter of days. It was amazing and seemed to surprise the specialist. I'm hoping it has bought me some more years without heavy mediction. Has anyone had any similar experiences with Progesterone injections? We are toying with having a baby, but I am currently too terrified of the pain to come off the hormones. Any ideas? I ahve been reading about the hormone link and RA, does anyone have any other research on this topic. Thanks for reading all this, Natascha Oh, by the way im 34.
dan

Bristol, CT

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#2
Nov 12, 2007
 
my wife has the desease and told me that when your pregnant its like a natural cure for arthritus because of the change in hormone
Mary

Louisville, KY

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#3
Nov 30, 2007
 
I'm 30. I was diagnosed with RA after being on Depoprovera for six years. My symptoms started before I stopped taking the injections. I actually quit taking depoprovera because I thought it might be a contributing factor to how bad I felt. My symptoms did worsen after I missed my first injection. Shortly after I was diagnosed and began treatment for the RA.
Sherry

Irmo, SC

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#4
Mar 15, 2008
 
Depo Provera actually caused me to have Rheumatoid Arthitis. I took the shot in Sept. 97 and woke up the next morning in so much pain I couldn't walk or use my hands. It was like they were broken. After many, many trips to the doctor who couldn't figure out what was going on, they sent me to a Rheumatologist who told me that I had arthritis (tested positive 6 yrs later) and it was triggered by the shot & some sort of infection (a cut or something although I found nothing) and they thought it would go away once the shot wore off. It's been 10 yrs and I have it severe and am now disabled from it.

As for pregnancy, my doctor said that 75% of pregnant women w/arthritis will be relieved of their symptoms but not usually until the 4th month and it comes back a few weeks after pregnancy. I didn't fall into the 75% myself but after I gave birth, I did have no arthritis pain at all for 3 weeks, it was wonderful.
katie

Kamloops, Canada

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#5
Mar 18, 2008
 
Im 38 and been suffering with what they thought was low back problems now after 3 years they diagnosed me with RA I dont know much but Im really scared. What did they do for you after they told you??
Mary wrote:
I'm 30. I was diagnosed with RA after being on Depoprovera for six years. My symptoms started before I stopped taking the injections. I actually quit taking depoprovera because I thought it might be a contributing factor to how bad I felt. My symptoms did worsen after I missed my first injection. Shortly after I was diagnosed and began treatment for the RA.
Nikki

France

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#6
May 17, 2008
 
Hi, I was interested to read this posting. I've been suffering from arthritis symptoms on and off since my late 20's (I'm now 41), but over the past 6 months it's got much worse, particularly in my back. I've just started taking Cerazette pill for the first time which is progesterone based and my symptoms have suddenly significantly improved - I only started taking it a week ago. I'm hoping it's not just a fluke.
Nikki

France

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#7
May 17, 2008
 
By the way, forgot to mention, I have 5 children and during all 5 of my pregnancy's I never suffered from arthritis symptoms. In fact, come to think of it, between the 3rd and 5th child my symptoms disappeared. But after the birth of my 5th child they were back with a vengance.
catkin22

United States

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#8
Nov 24, 2008
 
Depo Provera is NOT progesterone. Natural progesterone is beneficial and benign; the phony progesterones are very bad because they bind up all the progesterone receptors, bringing your functional level down to zero. Natural progesterone is very, very high during pregnancy, and drops off to very little within a few weeks after birth (do you see a pattern here?). I started using it (transdermally, which is the best way to use hormones) when I was 44. It was like getting 5 years younger.
Sherry wrote:
Depo Provera actually caused me to have Rheumatoid Arthitis. I took the shot in Sept. 97 and woke up the next morning in so much pain I couldn't walk or use my hands. It was like they were broken. After many, many trips to the doctor who couldn't figure out what was going on, they sent me to a Rheumatologist who told me that I had arthritis (tested positive 6 yrs later) and it was triggered by the shot & some sort of infection (a cut or something although I found nothing) and they thought it would go away once the shot wore off. It's been 10 yrs and I have it severe and am now disabled from it.
As for pregnancy, my doctor said that 75% of pregnant women w/arthritis will be relieved of their symptoms but not usually until the 4th month and it comes back a few weeks after pregnancy. I didn't fall into the 75% myself but after I gave birth, I did have no arthritis pain at all for 3 weeks, it was wonderful.
Lisa_Houston_TX

Tavernier, FL

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#10
Jan 7, 2010
 
Depo Provera also started my RA, my mother's RA and my cousin's RA. My case, I got the shot and 2 weeks after could not move my arm, then my feet and other parts. After a year I got diagnosed with RA. My mom's case, she had been divorsed for 15 years and re-married, didn't want any more kids so she got the shot, after a month or so, she got swollen fingers and so on, she than got diagnosed with RA. My cousin was 29 when she got married, got the shot and she said the next morning she could not move her arm, same story, after months of swelling and pain, finally got diagnosed with RA.. Too much coincidence, specially since I already had a child, had taken the pill and it was not until I had the injection that sympthoms started (I was only 22 :(
I wish they had warned me..:(
Janie Day

Burleson, TX

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#11
Jan 11, 2010
 
Natascha Jadee wrote:
Hello, I've been diagnosed with Rheumatoid Arthritis this year, although I had an attack several years ago. Just took them a long time to get it diagnosed. Well, both my attacks came on when i was off my progesterone injection, Depo Provera. I have gone onto the injection 2 months ago, and the symptoms just completely dissappeared in a matter of days. It was amazing and seemed to surprise the specialist. I'm hoping it has bought me some more years without heavy mediction. Has anyone had any similar experiences with Progesterone injections? We are toying with having a baby, but I am currently too terrified of the pain to come off the hormones. Any ideas? I ahve been reading about the hormone link and RA, does anyone have any other research on this topic. Thanks for reading all this, Natascha Oh, by the way im 34.


Hi Natascha,

My 26 year old daughter was diagnosed with JRA at the age of six but recently has been re-diagnosed with RA. She had a terrible bout during college and could barely get out of bed. Anyways, shortly after that period she started taking the pill and after being on the pill for about six months she went into remission. Only recently have we come to the conclusion that being on the pill may have triggered something to put her in remission, and I really think that it is due to the increase in progesterone. I don't know for sure, but I just have this gut feeling that there is a correlation. I found your comments very intriguing. Thanks for posting!
Jackie

United States

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#12
Jan 14, 2010
 
I am really glad that I stumbled on this post. I chose depo because of my high risk for uterine cancer. I got my first shot almost two weeks ago, and within a couple of days it felt like my limbs were being pried off. The pain is seriously excruciating, to where it is hard to even lift anything. I called my doctor, and she said there is no way that it could be related to the depo. Years ago, I was tested for RA, and everything came back negative - although they said that there was an inactive gene there. I'm seriously wondering if the shot activated that gene. One of the side effects does say severe joint pain, but no one could give me a definition of what that actually entailed. So, I am wondering if this is happening to other people, and what they are doing to relieve these symptoms. I am going to see another doctor tomorrow - more tests, and probably no answers.
Jackie
Dania

UAE

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#13
Nov 24, 2010
 
Your post made me cry! Why wouldn't the doctors warn us? I had my baby on the 23rd of june, and on the 25th of august i got my depo shot, on the 29th of the same month, I woke up from severe pain in all of my joints, that same week I was diagnosed with RA, no one in my family has RA, yet no one used depo provera for birth control, actually, i never thought about the link since yesterday, i went to take my 2nd shot and after i took it i felt really bad and started to wonder why, then i researched it and found out that it could cause joint pain-- They should say that it may cause RA!!!
I'm turning 26 in a couple of days, apart from having my baby, this was my worst year ever!
Lisa_Houston_TX wrote:
Depo Provera also started my RA, my mother's RA and my cousin's RA. My case, I got the shot and 2 weeks after could not move my arm, then my feet and other parts. After a year I got diagnosed with RA. My mom's case, she had been divorsed for 15 years and re-married, didn't want any more kids so she got the shot, after a month or so, she got swollen fingers and so on, she than got diagnosed with RA. My cousin was 29 when she got married, got the shot and she said the next morning she could not move her arm, same story, after months of swelling and pain, finally got diagnosed with RA.. Too much coincidence, specially since I already had a child, had taken the pill and it was not until I had the injection that sympthoms started (I was only 22 :(
I wish they had warned me..:(
Victoria

Westminster, CO

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#14
Apr 19, 2011
 
I had the Nuvaring (that has a certain type of synthetic progestin) start all my symptoms. In my case they came on gradually basically starting at my feet and working it's way up. Almost a year of taking it I was waking in horrible pain in all my joints and even my ribs hurt. When I made the connection that maybe it was the Nuvaring (it had come on so slowly I didn't realize) and stopped it, most of my symptoms started diapering in reverse order. I am not back to normal though and can't function without taking anti-inflamatories. The exhaustion, though better than before by far, is a big struggle and more noticeable when I miss my anti-inflamatories. I have no doubt in my mind that the Nuvaring triggered my symptoms. I am being tested for Rhuematoid arthritis, have many of the common and less known symptoms.

Alternately, I discovered natural progesterone (the lady above knows what she is talking about) and that has actually helped my symptoms. I am definately worse without it.
Victoria

Westminster, CO

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#15
Apr 19, 2011
 
Not "diapering" but disappearing, lol.(nice spell check changes my words)
louise

Dunedin, New Zealand

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#16
Jul 28, 2011
 
I had the depo provera injections for some months while breastfeeding my now adult daughter and had no side effects. My daughter developed JRA at the age of 11 but has been pretty good since being in remission from age 13. Only recently have I wondered about any links. She also has endometriosis, diagnosed at age 18. Any links here? I did once read about JRA and endometriosis links.
Tasha

United States

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#17
Oct 16, 2011
 
I started having symptoms of RA about 10 years ago after I had an ovary removed. I felt like my hands and feet were broken as well. I didn't put it together with hormones. I exercised a lot relieving the pain in most ways. I noticed also when I would have an alcoholic drink of any kind it brought on this pain too.
I had a surprise pregnancy a couple years ago. I was warned that my RA would flare up after he was born. It didn't happen until I stopped breast feeding and the most pain was in my back. It's been 28 months now. I've seen every doctor, and been tested for RA which came back negative. I got the depo prevera shot to help with the back pain since they think it's endometriosis and now I'm back to the feeling of broken hands and feet. The doctors laugh at me now and it is completely frustrating. I really wish I didn't get the shot. It breaks my heart when I sit and cry cuz I have to change a diaper or do up a car seat. I can't do the things I was doing with him just months ago. I want this to end. I truly think it's a hormonal thing but dont' know how to present this to my doctor.
Gemma

Wellington, New Zealand

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#18
Oct 23, 2011
 
Im so glad that I found this site, Ok so 2 years ago I had the operation for endometriosis and the Mirena fitted. 4 weeks after, My joints started to really hurt and got to the point where I could not walk. I went to the doctor and was put on some hardcore anti inflamatries aswell as steroids (which kept me awake for days) I was referred to a rheaumatolagist hu did some tests and told me that I carry the arthritis gene and that something had triggered it and caused me to get reactive arthritis. He seems to think it was food poisoning, at first tried to tell me it wos clamnydia even tho I was tested for it and did not have it...(wierdo) anyway I have also been suffering from extreme bloatedness and have to take 2 omepralol a day and I am 22. Before this I was fit and healthy and now I feel like a fat puffy old woman, It sux man. None of this started untill I had the Mirena inserted which seems very suspicious to me. I think that healthcare ppl are trying to cover it up sum how, I mean dont get me wrong I hope it isnt the Mirena becos it did solve my heavy periods by stopping them all together, but insted has caused me numerous bad side effects thease are:
Bloated
Nausea
Arthitis
Back pain
Weakness
Lathargic
sore breasts
smells making me vomit
picky eater
head aches

Some people have had no side effects like on of my friends, so if you are thinking of having it I still would give it a go, but the doctors I talk to are reluctant to take mine out and keep denying the so called coinsidence of the timing. I have read hundreds of comments and blogs about it and so many people have the same symtoms as me but yet doctors seem to still denying it, is there sum kind of profit to them? does anyone know? Good luck everyone
Rene

Phoenix, AZ

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#19
Nov 5, 2011
 
Tasha wrote:
I started having symptoms of RA about 10 years ago after I had an ovary removed. I felt like my hands and feet were broken as well. I didn't put it together with hormones. I exercised a lot relieving the pain in most ways. I noticed also when I would have an alcoholic drink of any kind it brought on this pain too.
I had a surprise pregnancy a couple years ago. I was warned that my RA would flare up after he was born. It didn't happen until I stopped breast feeding and the most pain was in my back. It's been 28 months now. I've seen every doctor, and been tested for RA which came back negative. I got the depo prevera shot to help with the back pain since they think it's endometriosis and now I'm back to the feeling of broken hands and feet. The doctors laugh at me now and it is completely frustrating. I really wish I didn't get the shot. It breaks my heart when I sit and cry cuz I have to change a diaper or do up a car seat. I can't do the things I was doing with him just months ago. I want this to end. I truly think it's a hormonal thing but dont' know how to present this to my doctor.
Tasha, I've had RA for several years and take Humira shots and Methatrexate to control. But those have there own side effects. I recently started used Natural Progesterone Cream (not orally) and its made a huge difference in my pain and flare ups. So huge I'm considering stopping the other drugs I've been taking for years. Please try Progesterone for a month and I hope you experience the life improvement that I have. Don't give up, I understand the pain and frustration. P.S. I grew up in Bridgeview IL
Tracie

Brisbane, Australia

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#20
Nov 13, 2011
 
There could be a possible link, I am 48 & was diagnosed last year in August (2010). I am in throws of perimenapause, which I would have been last year as well. Progesterone declines with perimenapuase. I think you are on to something. I hope you get your baby.

Tracie
Natascha Jadee wrote:
Hello, I've been diagnosed with Rheumatoid Arthritis this year, although I had an attack several years ago. Just took them a long time to get it diagnosed. Well, both my attacks came on when i was off my progesterone injection, Depo Provera. I have gone onto the injection 2 months ago, and the symptoms just completely dissappeared in a matter of days. It was amazing and seemed to surprise the specialist. I'm hoping it has bought me some more years without heavy mediction. Has anyone had any similar experiences with Progesterone injections? We are toying with having a baby, but I am currently too terrified of the pain to come off the hormones. Any ideas? I ahve been reading about the hormone link and RA, does anyone have any other research on this topic. Thanks for reading all this, Natascha Oh, by the way im 34.
gael

UK

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#21
Feb 9, 2012
 
gemma am glad i read your post thank you i have had ra since i was 15 but only diagnosed a few years age! It has been mild and affected wrists mainly and one knuckle dont know what started it off although was put on the mini pill due to very heavy periods at ayoung age !! My point is tho i have had the merena coil inserted in Nov 2011 and now my shoulder aches all night and my hip too i wake up from the pain and have to take a lot of antinflammatories to get a good nights sleep am going to get it out ASAP esp after reading your post. Very much appreciated!! Oh and if any one doesnt know the coil releases progesterone (synthetic) slowly into your system and after a few months you have no periods and it helped me as i am anemic too so stops me loosing blood.
Just a thought too anyone looked at food as some foods make ra worse with me try a few days no wheat or dairy and yes i know not easy as wheat is in everything !!!
Gemma wrote:
Im so glad that I found this site, Ok so 2 years ago I had the operation for endometriosis and the Mirena fitted. 4 weeks after, My joints started to really hurt and got to the point where I could not walk. I went to the doctor and was put on some hardcore anti inflamatries aswell as steroids (which kept me awake for days) I was referred to a rheaumatolagist hu did some tests and told me that I carry the arthritis gene and that something had triggered it and caused me to get reactive arthritis. He seems to think it was food poisoning, at first tried to tell me it wos clamnydia even tho I was tested for it and did not have it...(wierdo) anyway I have also been suffering from extreme bloatedness and have to take 2 omepralol a day and I am 22. Before this I was fit and healthy and now I feel like a fat puffy old woman, It sux man. None of this started untill I had the Mirena inserted which seems very suspicious to me. I think that healthcare ppl are trying to cover it up sum how, I mean dont get me wrong I hope it isnt the Mirena becos it did solve my heavy periods by stopping them all together, but insted has caused me numerous bad side effects thease are:
Bloated
Nausea
Arthitis
Back pain
Weakness
Lathargic
sore breasts
smells making me vomit
picky eater
head aches
Some people have had no side effects like on of my friends, so if you are thinking of having it I still would give it a go, but the doctors I talk to are reluctant to take mine out and keep denying the so called coinsidence of the timing. I have read hundreds of comments and blogs about it and so many people have the same symtoms as me but yet doctors seem to still denying it, is there sum kind of profit to them? does anyone know? Good luck everyone

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