Rheumatic Fever
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Flachsbart

Lübbecke, Germany

#1 May 21, 2006
Rheumatic Fever is still with us.
Rheumatic Fever only changed its complexion.
Prof. Dr. Wolfgang H. Veil showed the ugly face of Rheumatic Fever in his book: Der Rheumatismus.
You may find it in an digitalized version in the University Library of Göttingen, Lower Saxony, Germany.
Search: SUB. Search: Veil Rheumatimus
So Christiansen's rheumatic fever theory could be right.
Try Penicillin to eradicate the antigen of vasculits - if it is streptococcus pyogenes Group A the symptoms will vanish.
Thats all.
Best wishes.
Sincerely Yours
Friedrich Flachsbart MD
Eisenacher Str. 6
37085 Göttingen
Dustin

Kyle, TX

#2 Oct 14, 2006
I have just been diagnosed with reumatic fever. I am 21 years old. Everytime I exercise I break out and get a fever. Doctor says I will have reaumatic fever my entire life. Will I ever be able to exercise again? Doctor also doesn't want to put be on an anti-biotic. I think that I will need to take a low dose anti-biotic the rest of my life.Should I get a second Doctors opinion?
Aline Parent

Vaudreuil, Canada

#3 Dec 18, 2007
Definately, I suffered from rheumatic fever at 14. The treatment is anti-biotics. At first you must have had an infection of the throat caused by strep throat and it spread to the blood. The rheumatic fever I was told is a type of auto immune response. I am now 47 years old so research has evolved, but rheumatic fever is still treated with antibiotics. I was prescribed anti-biotics till the age of 25. However, at the time I made a kind of deal with the doctor to visit him immidiately if and inflamation reoccured. I was a high caliber athelete. Luckily for me my heart valve was barely touched. I have ran marathons since. I would recomend however that you have an echography done on your heart, like I did, to ensure that your valves are ok. After seeing the valves the cardiologist is the only one who can tell you if you should exercise. My mitral valve was implicated however I was one of the lucky ones. Also the joint pain came and went till I was about 32. After that I have been mostly pain free. The trick is never to wear wet clothing and to always keep yourself warm. I know some people say this has nothing to do with it but they probably haven't had the disease. Your situation definately should be monitored closely till you are around 25 years old. Basically if your outcome is as good as mine and you take care of yourself you should be ok.
hope

United States

#4 Apr 29, 2008
Hi,

My mother is 50 years old. Recently,She is diagnosed with rheumatic fever. Doctor dint warn us anything about its seriousness. Recently we came to know it will affect kidney and heart. I am totally devastated. Please let me know whether its curable... What sort of precautions needs to be taken?

Why dint the doctors warn us about seriousness? Have they closed it as a hopeless case? Please reply.
Frances Donovan

Jamison, PA

#5 May 20, 2008
As a child I developed Rheumatic fever and back then there were no anti-biotics...Back then it was during the war and all the young doctors were in the service...The old Doctor who my family was able to contact prescribed a good laxative...I did have damage to my heart and until last January I had no problem. I am now 78 and had heart surgery and had a pigs valve put in and all went well except I developed arythmia that really made me go back to shorness of breath and all the syptoms I had before... My doctor was going to give me a TEE and when I had it done he could not continue because he found a blood clot in the atria of my heart. He said the body would have to absorb the blood clot and tha the coumadin will prevent more blood clots...I was so discouraged and my doctor also said there was so little to go by as I am almost unique in this.. Most yound doctors today don't recognize the heart murmur. Any help out there?
had it in 1960

Buffalo, MN

#6 Jun 21, 2008
Rheumatic fever was diagnosed when I was ten, anti-biotics and 10 months of bed rest. No surgery was performed on my dysfunctional heart valve. I finally was able to go back to school and was warned to limit my physical exertion.
Then in 1980 at a mental health conference on children’s mental health disorders - I discovered that Rheumatic fever is the body’s own way of turning on it self after the child has suffered years of child abuse/neglect.
I could not believe what I was hearing- it all made sense- for two years before I got sick I laid in my bed wishing that God had not let me be born. I was not supposed to be here. I filled my nightstand drawer with notes to no one.
All they said was 'I am sorry'
Concerned Mother

North Shields, UK

#7 Jul 20, 2008
Is there any reason why a Doctor would not confirm Rheumatic Fever? My 16yr old daughter was ill with sore throat, joint pain, exhaustion, headaches and sweats Feb but we were constantly told viral (!) and blood test and throat swab did not show anything. She eventually had severe earache twice and ended up in hospital in June given antibiotics for a severe group a strep infection. We have been told she has post strep glomerulonephtitis and the palpitations and high heart rate she has had is caused by tricuspid valve leak. Because there is no mitral valve involvement they will not diagnose RF. I KNOW she has had RF and concerned that she is not receiving correct care.
She also had severe nose bleeds and pain in abdomen.
She still tires easily and has joint pain, mainly legs and shoulders.
One Doctor confirmed RF but later denied it. WHY!? I only want correct diagnosis.
shons mum

North Shore, New Zealand

#8 Sep 16, 2008
My daughter (12) was diagnosed at the end of may with rheumatic fever, first we were told she had tonsillitis she was prescribed antibiotics (amoxcillin) she was not getting any better after a week so i took her back to the doctor and she said she had glandular fever and needed to rest for 2 weeks no medication required, she did rest for 2 weeks and seemed a lot better, she was about to start back at school when she told me she had a rash all over her arms, so back to the doctor we went he gave her a antihistamine for her rash and did blood test which showed she had strep throat and he gave her penicillin tablets for a week, she did not seem to be getting any better was always tired not eating, sore tummy so back again to the doctors we went i demanded an answer "why is her rash not going away" she changed her antibiotic, I decided to go get a second opinion the next day and this was when she was diagnosed rheumatic fever and was sent straight to the hospital. we saw a cardiologist and had a scan done i thank god her heart was not affected, how ever she does have to have penicillin shots once a month for the next ten years, but it was not until after she got out of the hospital her joint pain started in her knees, hands, elbows the bottom of her feet she still has her rash it has been 3 months so far, i was wondering when this will go away she also has been getting bubble blisters on her face hands and feet which have been scabbing (the doctor is unsure if this is related to rheumatic fever) i was wondering if anyone else has had bubble blisters aswell?
Pam Johnson

United States

#9 Feb 26, 2009
I AM 55 YRS. OLD.
I HAD RHEUMATIC FEVER AS A BABY. I DON'T REMEMBER ANYTHING ABOUT IT & NEVER HAD ANY FOLLOW-UP.
IN A FEW DAYS I AM SCEDULED FOR A STRESS TEST DUE TO A RECENT E.R. VISIT. I THOUGHT I HAD ASTHMA & BRONCITIS. MY EKG SHOWED SOME ABNORMALITIES. I AM CONCERNED.
CAN YOU ADVISE ME?
Pam

Saint Louis, MO

#10 Mar 12, 2009
HOw did you find the doctor? What type of specialist did you see? I believe my daughter has RF, but I cannot find anyone to help.
Thank you so much.
Pam
shons mum wrote:
My daughter (12) was diagnosed at the end of may with rheumatic fever, first we were told she had tonsillitis she was prescribed antibiotics (amoxcillin) she was not getting any better after a week so i took her back to the doctor and she said she had glandular fever and needed to rest for 2 weeks no medication required, she did rest for 2 weeks and seemed a lot better, she was about to start back at school when she told me she had a rash all over her arms, so back to the doctor we went he gave her a antihistamine for her rash and did blood test which showed she had strep throat and he gave her penicillin tablets for a week, she did not seem to be getting any better was always tired not eating, sore tummy so back again to the doctors we went i demanded an answer "why is her rash not going away" she changed her antibiotic, I decided to go get a second opinion the next day and this was when she was diagnosed rheumatic fever and was sent straight to the hospital. we saw a cardiologist and had a scan done i thank god her heart was not affected, how ever she does have to have penicillin shots once a month for the next ten years, but it was not until after she got out of the hospital her joint pain started in her knees, hands, elbows the bottom of her feet she still has her rash it has been 3 months so far, i was wondering when this will go away she also has been getting bubble blisters on her face hands and feet which have been scabbing (the doctor is unsure if this is related to rheumatic fever) i was wondering if anyone else has had bubble blisters aswell?
anna alddridge

Meridian, ID

#11 Mar 16, 2009
Pam wrote:
HOw did you find the doctor? What type of specialist did you see? I believe my daughter has RF, but I cannot find anyone to help.
Thank you so much.
Pam
<quoted text>
I was diagnosed with RF last year I have been very sick. I am 36 years old ended up having a heart attack to. it affects the heart to.
Barbara

Portland, OR

#12 Jan 7, 2010
Dustin wrote:
I have just been diagnosed with reumatic fever. I am 21 years old. Everytime I exercise I break out and get a fever. Doctor says I will have reaumatic fever my entire life. Will I ever be able to exercise again? Doctor also doesn't want to put be on an anti-biotic. I think that I will need to take a low dose anti-biotic the rest of my life.Should I get a second Doctors opinion?
Immediately find a doctor who is experience with treating rheumatic fever. You will need a minimum of 5 years treatment. I had rheumatic fever when I was 8 years old. It has been 50 years and I am doing fine.
Stop any unnecessary exercise. You do NOT want to over work your heart while you are being treated. You can start your exercise after you have completed your treatments. Stressing your heart will be a life time of problems if you do not get proper treatment. Rheumatic fever will attack the heart and cause permanent problems.
Barbara

Portland, OR

#13 Jan 7, 2010
Sorry for not posting correctly.
I was diagnosed with Rheumatic fever when I was 8 years old. That was 50 years ago.
I do not know what drugs where used. I am fine and have no serious after effect. My doctor was a GP. We lived in a small country town.
Find a doctor who has success in treating rheumatic fever. They are out there.
Start by eliminating all unnecessary physical exercise. The heart can not stand the stress. You will be on drugs for at least 5 years miniumum.
There are many signs you have rheumatic fever. Getting strep throat is not the only warning sigh. I never had strep throat. I had some other symptoms. I found out about the other symptoms just a few years ago.
Farid

Jeddah, Saudi Arabia

#14 May 5, 2010
Hello all,
Last week my 8-years old son diagnosed with acute Rheumatic Fever. The strange thing here is that he didn’t suffer any fever. He was complaining of his stomach and got treated, but he was complaining of pain on the bottom of his feet. After an ESR(115), ASO (1305), and throat culture (streptococci group A) tests, doctor confirmed his infection with Rheumatic Fever. They gave him a long acting penicillin and a huge dose of aspirin. No affect to the heart as eco showed. Now he started to get better but I am still afraid of what would happen to him. And how can I treat him and prevent the sore throat again. And would it be necessary to have this painful penicillin injection every month? His morale is very bad and afraid of having more medications specially injections. I need your recommendations please. Thanks
lily

Swift Current, Canada

#15 Jul 8, 2010
I had rheumatic fever at 7. I took anti-biotics for 10 yrs and had complete bed rest for 3 months. I now suffer from foot pain in my right foot. Seems to have started in the back of my knee years ago, and is now in my foot. Any connection to RF?
slada

Burlington, Canada

#16 Jul 21, 2010
Hi to everybody!
I have 41 years and nobody know what is worng wih me but I think I found last night.I have high ESR,hs CRP-22.1 and ASO titre-199 and I have muscle and legs pain.I do not feel well for long time and I do not have strep throat.I was very,very sick 4 years ago with pain in my head,face,ears,sinuses with very high fever.I was thinking I will die because of so much pain.I am very tired all the time and have very low energy even I got B12 injection.Is it really possible that I have RHEUMATIC FEVER?
No doctor wont to help me and NOBODY know what is wrong with me even with all results from blood test.Can you please tell me if you know?
I went to see rheumatologist and she told me I am NOT IN HER FIELD because I have strep throat.
I told her:NO I WAS NOT SICK FOR LONG TIME but she DOES NOT trust me.She want me to see ENT specialist.
Did I found my own diagnosis?
Thank you so much!
barb

Canada

#17 Dec 18, 2010
I had rheumatic fever when I was 7 years old. I continue to experience pain in my legs. It usually starts behind the knee and travels down to the feet and up to the groin area. When it gets really bad, I can feel it go across to the other side and start travelling down the other leg. I am now in my 40's and have had different doctors tell me things like you just need to exercise more and make my leg muscles stronger, it's just in your head and maybe you are going to have arthritis when you are older. I start getting the pain when I am cold, tired, damp weather and ironically just before and during my period. So I beleive it might also be hormonal related. During my last checkup with the doctor I brought it up again and she checked out the legs and had a EKG and ultrasound done. No discoveries found. My problem is that it is becoming more consistant and happens most nights. I go to 2 exercise classes that consists of strengthening, aerobic and stretching. I also attend chi kung and yoga every week. I usually take excedrin and apply A535. Use a heating pad. Is there anything I can do to put a stop to this???? I am so tired. Your help and assistance is greatly appreciated. Thank you. I look forward to hearing your response.
Stacy

Dallas, TX

#18 Dec 28, 2010
Can you have RF for years and not know it? I often get fever with rash. Dr.s not sure why. Have said it is some kind of immune response. Recently have been having joint pain and fatigue. Recent blood test was positive for RA and strep. Could all of my symptoms be from untreated strep infection? Thanks for any answers!
danii

United States

#19 Jun 6, 2011
Hi im 18 years old. I avent been diagniosed with it yet but i believe i have had it for about a week now. I grew up with never getting strep but once it was always scarlet. The rash as gone. But joint pain and heart pain are increaseing. I am looking fo help and advice because i was also diagniosed 3 months ago with mild cervical dysplagiea. Im not sure what to do. Im haveing alot of trouble with my doctors at the moment.
Ria

Cheshunt, UK

#20 Jul 5, 2011
People tell me Rheumatic Fever is not around anymore in developed countries due to the use of antibiotics... But I feel I am being fobbed off.

I was ill with what I thought was a virus for around a week. I had a fever, sore throat, swollen glands, fatigue, and could really do nothing other than sleep. It was quite self limiting (I thought!) and I felt better after a few days.

Then a few days later one by one I began to get inflammation and stiffness in my joints, particularly one ankle. I went straight to the doctor who suggested that it was probably viral arthritis. That seemed reasonable - if I had had a virus.

Throat culture was done, along with ESR, CRP, full blood count, and test for glandular fever. Havent got all the results back yet - but the throat culture came back as I had had a Strep Throat infection. The ESR and CRP showed inflamation.

The joint swelling and pain got worse and worse and worse. I lost my appetite, began to get stomach ache, a slight fever came and went, and I became increasingly immobile. The mornings were the worse. I would try to move to get up to my son and all I could do was scream out in agony. I could stand, walk, crawl, move. It was pure agony and I wouldnt wish it on my worse enemy. I spent a week a complete mess. Not being able to do anything for myself.

When the throat culture came back (a week after the joint pain first began) I was prescribed antibiotics and told to make an appointment with my doctor for a few days time. I have now also developed 2 small nodules under my skin which arent painful, but are slightly tender to the touch. One on my shin over the bone, and one on my knee.

I have looked at the criteria for diagnosis criteria for rheumatic fever and I more than fit the criteria for a confident diagnosis. I mentioned on the phone to the doctor that my chest was also feeling uncomfortable - she didnt respond. Just said she was giving me antibiotics.

I am concerned that I am not being taken seriously. I firmly believe that I have been suffering rheumatic fever, and though I am slowly improving, I feel it would be a reasonable request to have my heart tested. My antibiotics are only a 5 day cause.

Am I being silly?

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