Sammie

Chesterfield, UK

#1 Oct 10, 2006
Hi, I have a daughter who is nearly two. A few weeks ago I noticed her right eye appeared to have a slight squint. I mentioned this to her optician and she is now waiting to see the opthamologist which is a 3 month + wait. I just watched an article on tv where a child was diagnosed with retinoblastoma and they mentioned the first sign is red eye only in one eye when a photo was taken. So out of curiosity i decided to take a pic of her as I haven't taken one recently and to my shock she only had red eye in her right eye and her left eye was almost black with just a slight touch of white from the flash, I took other photos and they are all the same.
I am so scared now, I will take her to the doctors tomorrow with the pics and I just hope they refer her a bit quicker.

Has anybody else have a similar story or any advice please.

Thanks
Sammie
Karina

United States

#2 Oct 11, 2006
Sammie,
Please DO NOT wait. Please ask your pediatrician to refer you to an opthalmologist right away. You need to be for sure that what you see is nothing serious. Three months wait time IF it's something serious it may be too late to treat. My daughter was diagnosed with Retinoblastoma (eye cancer). at a stage 5. Please do not wait. Follow your instance as a mother to protect your child. If you would like to speak with me directly please email me at mail@retinoblastomafriends.org . I can give you my phone number once I touch base with you via email first. Best of luck. I hope and pray that it's not serious.

Karina Beltran Romero
mail@retinoblastomafriends.org
www.retinoblastomafriends.org
Sarah

Millbrook, Canada

#3 Jan 17, 2008
Hello everyone just wanted to inform you all know that there is a plant sale in Keene Ontario every mothers day weekend to raise money for retinoblastoma research at Hospital for sick children in Toronto! I have started up a group on facebook the link is http://www.facebook.com/group.php... ! All the best in 2008!
Kelly

New Zealand

#4 Feb 13, 2008
I there i am from Nelson New Zealand. My girl Mckenzie was diagnosed 31st Jan 07. I was 5 months pregnant. she has the hereditary type and is exceptionally lucky to only have one eye affected. she underwent eye removal and 6 months chemo. she was grade E at diagnosis. our second daughter is clear of the gene. Kenzie is the first one to produce the defective gene. anyone interested in communicating, email me at kelly_neil@xtra.co.nz its always good talking to others. by the way Kenzie is now a happy healthy 3 1/2 year old!!
Sammie

Lake Mary, FL

#5 Aug 22, 2008
I was born with Retinoblastoma, I lost my left eye due to it. I was 4 weeks when the caught it. I'm now 18. Retinoblastoma is something you want to get any baby checked for even if you don't have family history. Sometimes its hard to catch and some Dr.'s miss it. Forida and Washington are great places that have highly skilled dr.'s that deal with Retinoblastoma each day. I prey, hope and wish that your baby is alright Sammie. I notie this was a few years ago, but I'm sure that treatment is done, but make sure your baby is checked atleast once a year for her life, and has his her children checked ASAP. Feel free to e-mail me Sassy_Penguin@hotmail.com. My heart is with you and your little girl

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