Lyme disease? From the UK, where it i...

Lyme disease? From the UK, where it is hard to get diagnosed.....

Posted in the Lyme Disease Forum

Anonymous

UK

#1 Jan 14, 2012
Ok so here's my story. Last year in February I suffered from an extremely stressful day when me and my pregnant wife had to shoot over to London after an echo scan revealed a measurement in our baby's brain that the local hospital wasn't happy with. This brought back a lot of feelings of 6 years earlier when our little girl died suddenly at 27 weeks pregnant. Luckily this time things turned out to be ok, the specialists in London were happy with the way things were with our baby.
Driving home that night I started to notice more and more that my shoulder and chest pain were worsening - a pain I had previously had after a stressful work trip to Romania, the previous November.
The next morning I ended up in hospital as I could hardly breathe by now, and laying back was extremely painful. After being seen by many doctors I was finally diagnosed with pericarditis and a pericardial effusion, along with a pleural effusion (inflammation and fluid on the heart and lungs). My treatment was various anti inflammatory drugs, steroids, etc but the inflammation kept recurring and putting me back in hospital all summer. Inbetween the attacks I was suffering from various symptoms - such as unrefreshed sleep, muscle and joint pains, tinnitus, hyperacusis, chest pains, alcohol intolerance, sensitivity to sunlight (to name a few).
The hospital diagnosed the original attack as viral, as blood cultures were coming back negative. Now every doctor I saw (which was many) I explained about how I hadn't been feeling right for a few years now. It seemed like every time I got I'll, my legs would be killing me from right inside the bones. I also found myself very tired and fatigued in the afternoons and after big meals. I explained to them that this had all started after I was out walking the dog in September 2007, when I got bitten on my ankle, walking through the local woods (Langdon hills, Basildon). At first I thought 'what was that', scratched the area, noticed a bit of blood and thought nothing of it. About a week later the area was swollen, was red, and was painful to put my foot down (raising the leg eased the pain). The local GP diagnosed this as cellulitis, and gave me a 5 day course of anti biotics. I should point out that it seemed like every time I got bitten by a gnat or something, the area seemed to swell up after that episode.
Now it's almost a year later from the pericarditis, and I am still managing my fatigue, I have various brain fog issues, short term memory, trouble with cognitive thought and problem solving, and hyperacusis when I get stressed, or 'over do it'.
At first I thought that the illness last year may have triggered Chronic Fatigue Syndrome, but that was until I read about Chronic Lymes Disease - for which I seem to tick all the boxes.

I know this has been an extremely long note, but I would like to know you thoughts:

Does this sound like Lymes?

What treatment/prognosis can I expect?

I'm currently trying to get a positive diagnosis. My GP isn't convinced, but I have been referred to a Rheumatologist who is an auto immune expert (on the NHS). I've explored the private option, but there is a long wait to get into the nearest specialised place near here.

PS, I'm sure I've missed some other important info here
Linda

Paris, France

#2 Feb 2, 2012
Dear Bassman73,
Looks like Lyme to me and I've had it since a tick bite in 2006. Only became chronic when I had a big stress. No one got it right because I had a false negative test for 6 months and various suggestions from doctors! However when I realised it was Lyme I followed the 72 hours sodium chloride treatment from internet and extra vitamin C. Felt much better and also took saunas to sweat out the toxins created by the Lyme bacteria. Recently I have been taking 2 Pukka Tumeric & Boswelia pills a day to kill off bacteria and prevent swelling. Plus B complex to repair the damage on nerves caused by bacteria. I try to eat well and include home made fresh fruit and veg juices plus minimum coffee and alcohol. You can heal yourself & change your lifestyle for the better for all your family.
Linda

Paris, France

#3 Feb 2, 2012
A message to you Lymies in USA,
Lyme bacteria was discovered and perhaps accidentally enhanced on Plum Island's Animal Experimental Research Centre in the 60's or 70's. Plum Island is a short swim; for deer carrying infected ticks, from the mainland where Lyme was first located in humans......
Maybe that is why the patients in USA are not being helped....
By the way common salt kills any bacteria. The lack of salt can weaken humans and animals, as they are attacked by bacteria and moulds. That is why in many regions salt was highly taxed by the rulers to control the poor masses. That is why certain medications contain sodium chloride which destroy Lyme. Evident my dear Watson!
pAnonymous

Lipno, Poland

#4 Feb 26, 2015
#3.1/#3.95B in book. The.Luciferian.Doctrine (i.e. The.Most.Important.Knowledge.Y ou.would.Ever.Read.Implement.a nd.Live.up.to.Forever) might be the answer to your problems [100% Lyme annihilation, confirmed].ddsa1

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