Remember, this is not advise...only a few observations that I have had with my own disease.
Do talk this over with your doctors.
You sound lost in the maze of the Lyme cycle. I have had it for more than twenty years, and although my symptoms seem to have fades in time, it might be that I have adjusted my whole life around them. I can say that when the fog spell begins with a type of aura, I have to take to my bed with a benadryl before it fully hits me. In my case, if I take half of a child's benadryl and lay down for an hour or so, I avoid the worst part of the fog. The headache that goes with the herx fog has been treated with success with a nurontin compound. However, even though the headache is not present, I still have the herx from time to time.
Remember that Lyme disease presents itself differently in different people depending on where the litte critter decides to take residence in the body. There does appear to be a pattern to the movement in many people that I have read about over many years. After entering the blood system from the bite site, the liver seems to be first, then it travels into the gall bladder where it causes some people to get gall stones and possibly the removal of the gall bladder. It enters into the gastic area from the gall bladder and then moves freely through-out the gut. Symptoms of a severe bout with stomach flu exist at this time.
Each time I have felt that I needed to get a job, a flare up would cause me to lose focus and then I could not think, much less drive.
Holding down a job is impossible for me, but some people have understanding ob situations that allow them to work and take care of their situation on the job. However, one still has the serious problem of getting to and from work, because many accidents can occur when a fog is present. I would not take a chance with my life or the lives of other in this dangerous senenerio.
Stress seems to be the one thing that can actually bring on the lyme fog or a herx reaction.
I do think that some doctors are getting good at controlling symptoms of lyme disease. What you are describing sounds like it includes the herx reaction the antibiotics. There is some indication that there is a type of toxin that builds up, either from the lyme critter itself or the mass of lyme critters dying of and being cast off into the blood stream. No real proof exist for this, but many Lyme'e patients have the same symptoms.
Good luck with your disease. Although it seems to be the enemy, it is simply a tiny critter trying to survive in a human body. The real enemy are the lack of qualified doctors and an acceptance in the medical and political world that must do more to isolate and destroy this little critter as quickly as possible.
hi my name is will and i live in nyc and was diagnosed with lyme in feb 06, since then ive been on doxycylcine,biaxin clarithromycin, amoxicillan and tindamax.
in the beginning i had severe dizziness with panic attacks and "brain fog".
has anyone else had these symptoms and got rid of them? im going on 11 months of off and on being sick but the brain fog almost never went fully away.
what can i take that would help me? i havent even been able to go to work in 2 months.