Lupus Support Group
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donna martinez

Fresno, CA

#21 Jun 16, 2010
Laura Mahoney wrote:
I am the Facilitator for a Lupus Support Group here in the San Joaquin Valley in California. Please contact me if you have any interest or questions regarding our meetings. I have Lupus (SLE), Rheumatoid Arthritis, Vasculitis, Raynaud's and Ulcerative Colitis. Remicade, Methotrexate, Plaquinel, Prednisone, Toporal XL, Avapro, Asocal and some of the drugs I am taking. I would be happy to answer any of your questions.
Thank you and Happy Holidays
My name is Donna, I live in fresno, CA and have been diagnosed with Crohn's. If you could please contact me at [email protected]
Susan K

Reedley, CA

#22 Jul 15, 2011
Laura Mahoney wrote:
I am the Facilitator for a Lupus Support Group here in the San Joaquin Valley in California. Please contact me if you have any interest or questions regarding our meetings. I have Lupus (SLE), Rheumatoid Arthritis, Vasculitis, Raynaud's and Ulcerative Colitis. Remicade, Methotrexate, Plaquinel, Prednisone, Toporal XL, Avapro, Asocal and some of the drugs I am taking. I would be happy to answer any of your questions.
Thank you and Happy Holidays
Hi Just by chance checking if you happen to know of any Rhumetoid Arthritis support groups in Fresno County?
Thank you
a friend

Fairfield, CA

#23 Dec 18, 2011
lauren woolsey wrote:
I am looking for a lupus support group in Fresno, CA. I have been pregnant 7 weeks now and wondering how this will play out health wise. I haven't had a flare in a couple years.
-Lauren
<quoted text>
Sad to say that lauren woolsey passed away almost a year ago.she had her beautiful baby girl, but lupus took over and she passed away when her baby was 4 mos old. miss her so much.
Terry Haun

Fresno, CA

#24 Feb 29, 2012
Lauren Woolsey wrote:
I am 7 weeks pregnant with Lupus and wondering how this will play out? Are there any support groups in Fresno, CA?
Thanks,
-lauren
[email protected]
My name is Terry Haun and I am the father to Lauren "Lolly" Woolsey's child.....Adoline Sage. I am sorry to post that Lolly passed on 4 months after our daughters birth 3/4/10. Her death was caused by a major Lupus flair due to the strain of the birthing process. RIP Baby
Corina Fernandez

United States

#25 Sep 17, 2012
Hello I am a survivor of Lupus sle, for going on 18years now.At the age of 19yrs. I started noticing traumatic changes in my body shortly after the birth of my son. Finally after nine doctors my delusion was not anymore it was fact. Now I have an illness Lupus, I did not know what to expect.SLE the doctor stated.Now 18 yrs later, many triumps and many hospital beds and defeated death two times. Only by the grace of God,I am here.I am seeking a support group for myself and family support groups for Lupus. Anyone here in Fresno PLEASE contact [email protected] com. If we have to we can start our own here in town... Corina.Fresno,CA.
Tanya Anderson

San Jose, CA

#26 Dec 12, 2012
Hello Corina and others with Lupus. Although I was officially diagnosed with Lupus Anticoagulant in 2008, apparently I had in for many years (possibly since a teenager). I am 45 years old now and have dealt with much pain as all of you have I am sure. The type of Lupus I have causes my body to form Pulmonary Embolisms and therefore I must take Coumadin for the rest of my life. I am hoping to connect with others who also have Lupus and to share my Testimonies of survival as well as share the nutrition product I have been taking for the past couple of months that has worked well with my Coumadin as well as relieve the pain and stiffness that comes along with our condition. If you would like to contact me further, feel free to e-mail me at: [email protected]

God Bless you all for your courage!

Since: Feb 13

Oakland, MD

#27 Feb 12, 2013
I guess I'm a Lupus Veteran. I've had systmetic lupus since I was 16, so for 37 years. I tell people, "it's been an adventure, not a good one, but an adventure." I had two miscarriages, I've been hospitalized a lot, many surgeries (20+), I have developed Hashimoto disease, Fibromylia, CPDD disease, Degenerative Arthritis, Avascular Necrosis, and I suffered a stroke in 2010. I take Plaquenil, Gabapentin, Simvistatin, Lisinopril, Plavix, Synthroid, Tramadol and of course the frequent Steroid Medrol packs, and whatever antibiotic is necessary to get you through the latest infection. I'm sick and tired of being sick and tired!
jeffrey m smith

South San Francisco, CA

#30 Jun 1, 2013
justdafacts25 wrote:
Great lupus video
I found this site called realhealth.tv which has a great video. Even though I am a new member, I think everyone here would really like watching this film b/c it was really nice hearing and watching someone talk about their difficulties and how they cope. I wanted to share this with everyone here, hoping it would help you guys too. Here's the link http://www.realhealth.tv/site.html...
my name is Jeff Smith I have SLE, along with discord lupus, fibromyalgia, sjogrens, R.A , Raynauds, and colitis. I'm looking for a support group in Stanislaus County, I was diagnosed in the prime of my life, I was 38, Iam now 44, I have have been put on a drug called Benlysta and has changed my symptoms for the best by 80%. It's been so hard finding a support group in my area. Please let me know if there is a support group in Modesto area. My email is [email protected]
Christine

Lodi, CA

#31 Jul 7, 2013
Is it possible there are others to relate to here in Lodi?
I live here and have been diagnosed with Lupus. Very difficult and nobody understands what it is. Why in always sick. When I'm good I hide it well but more down days then up and no one understands it. Need friends like self to get out and do things with!! Help?
Kathy wrote:
Hello San Joaquin Valley residents, I'm a Stanislaus Country lupus resident and owner/founder of www.LupusMCTD.org as well as www.MixedConnectiveTissueDisorders.com
I wished I had seen this post before this past weekend, as we just held our fist annual Patients in the Park picnic up in Lodi, CA (I'm in Modesto)
Perhaps we can work together towards our second annual to beheld down south so you can attend.
I'd love to hear from you,
Kathy Walters
[email protected]
Maryanne

Fresno, CA

#32 Aug 13, 2013
Ginny Taylor wrote:
<quoted text>
Hi Laura-
I am a resident of the San Joaquin Valley, Fresno, and I am also an eight year survivor with Lupus. I am curious if you still have meetings, and where are they held? I would love to join you all.
Hi

Hi Laura,
I saw your post to Ginny Taylor. This is my first time on this site. I am a long time survivor with Lupus. I too am curious if there is a support group here in the Fresno area. If not I would be interested in starting
a group. Forgive me for budding in your conversation with Ginny. This is such a lonely disease it would be wonderful to be around others with the same understanding.

Sincerely,
Maryanne
carla

Fresno, CA

#33 Aug 24, 2013

Hi, my name is Carla. I live in Fresno california, and i've been looking for an SLE support group. How can I get in contact with the group?
Laura Mahoney wrote:
I am the Facilitator for a Lupus Support Group here in the San Joaquin Valley in California. Please contact me if you have any interest or questions regarding our meetings. I have Lupus (SLE), Rheumatoid Arthritis, Vasculitis, Raynaud's and Ulcerative Colitis. Remicade, Methotrexate, Plaquinel, Prednisone, Toporal XL, Avapro, Asocal and some of the drugs I am taking. I would be happy to answer any of your questions.
Thank you and Happy Holidays
carla

Fresno, CA

#34 Aug 24, 2013
Hi, ive had SLE for 16 years and I wanted to know how I can get in contact with a lupus support group here in Fresno california. My email add is jesu[email protected]
dr fungus says

Baulkham Hills, Australia

#35 Sep 23, 2013
dear all lupus believers lupus and myriad of other fancy diagnostic diseases do not exist it is academic invention for what they don't know or understand or it is not generating $$$, what exist is goog old and conveniently overlooked CANDIDA google YEAST CONTAINING FOODS/ALLERGY read my comments carefully it will save you life and it is free.even your doctor suffers from it.
brenda

San Leandro, CA

#36 Oct 5, 2013
Laura Mahoney wrote:
I am the Facilitator for a Lupus Support Group here in the San Joaquin Valley in California. Please contact me if you have any interest or questions regarding our meetings. I have Lupus (SLE), Rheumatoid Arthritis, Vasculitis, Raynaud's and Ulcerative Colitis. Remicade, Methotrexate, Plaquinel, Prednisone, Toporal XL, Avapro, Asocal and some of the drugs I am taking. I would be happy to answer any of your questions.
Thank you and Happy Holidays
Hi. r there any groups in san jose?
brenda

San Leandro, CA

#37 Oct 5, 2013
Looking for san jose support groups....
Ryan

Thunder Bay, Canada

#38 Mar 19, 2014
Has anyone read the lupus bible treatment site... http://remedieshealth.com/lupus What did you think?
Alejandra831

Hayward, CA

#39 May 7, 2014
Laura Mahoney wrote:
I am the Facilitator for a Lupus Support Group here in the San Joaquin Valley in California. Please contact me if you have any interest or questions regarding our meetings. I have Lupus (SLE), Rheumatoid Arthritis, Vasculitis, Raynaud's and Ulcerative Colitis. Remicade, Methotrexate, Plaquinel, Prednisone, Toporal XL, Avapro, Asocal and some of the drugs I am taking. I would be happy to answer any of your questions.
Thank you and Happy Holidays
Hi...I have been with lupus for 2 years going to 3. But 2 of them weren't treated because I never thought I was that sick. I would take over the counter meds and would help me. But it wasn't until I started having anemia and losing weight and arthritis and had joint pain and couldn't walk or do anything. All I did was sleep a lot and rest. Until last year that I was diagnosed. And I would like to know when are the support groups and where. I live in the Turlock and Modesto area. Please let me know. I would like to attend. I also have two children with autism and will like to learn how to deal with lupus and also to take care of them.

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