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Mullens Native Daughter

Cary, NC

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#1
Apr 28, 2008
 
Hello, I am new to this board, and just wanted to know if any one has been diagnosed with ITP along with their Lupus?
jan carr

Sharon, PA

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#2
May 22, 2008
 
My father was diagnosed with Lupus about 8 years ago. Most recently (just a week ago) he was diagnosed with ITP. He is getting transfusions every day now and his platlet count is coming up. Hopefully no more complications will arise.
Shana

South Hadley, MA

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#3
Mar 2, 2009
 
I was diagnosed with ITP at age 12. I am not 29 and was diagnosed in January with lupus.
kat

Vancouver, WA

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#4
May 2, 2009
 
Shana wrote:
I was diagnosed with ITP at age 12. I am not 29 and was diagnosed in January with lupus.
I was diagnosed with ITP when i was 12. im 23. i had 3 specialists during high school and forgot what they were "observing" me for ..now im experiencing symptoms of lupus ..i think. what did you go through before the diagnosis of lupus...i have a high tolerance for pain and love working but noticed lately that my body is dragging me down...i have ignored my ITP but is still chronic..

“I LOVE CLOWNS”

Since: Mar 09

MORRISTOWN, TN

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#5
May 18, 2009
 
I went through 2 years of being treated for stress and hives. I finally had biopisies of the skin and found lupus, then blood test said lupus, and sjogren's syndrome. Now have fibromyalgia too. Last blood test they said my platelets were low and we would keep an eye on them. I take plaquenil for the lupus and it did help the fatigue but still really tired. But I try to keep my sense of humor that helps alot.
Debbie

Montclair, NJ

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#6
Mar 15, 2010
 
I am currently conducting marketing research with patients diagnosed with ITP, a low blood platelet count of an unknown origin - not related to any other conditions. The research is happening on Thursday 3/18 in a research facility in Manhattan - each patient with ITP will speak with a researcher for 50 minutes about educational material related to a medication for ITP. If anyone is interested, please call 800-836-1684 and ask for Angela. You will be paid for your time, and all information discussed will be completely confidential.

Thank you!
deb

Marlinton, WV

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#8
Mar 30, 2010
 
i am very new to the lupus carnival. i do not know what ITP is. could someone help me understand it? please. i am in the midst of putting a doc team together and often unsure of questions i should be answering. is there a list of questions for the docs? any help would be greatly appreciated. thank you for your time and help!!:)
vampchick

Corona Del Mar, CA

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#9
Apr 29, 2010
 
I'm new. Diagnosed with SLE 2 years ago. I was recently put on Cellcept due to nephritis being tossed into the mix. I had a severe migraine that sent me to the ER. Felt like a stake was driven into the left side of my head. I thought I was stroking out. Has anyone experienced this? My docs keep shrugging at me. I don't want them to put this under the "it's part of lupus" umbrella, when I should look into it further. I've never had a migraine like that before.
Confused and Scared

Redondo Beach, CA

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#10
Jun 2, 2010
 
I had ITP when I was 18 and I was experimented on and finally found a treatment that worked which was the cemo for a type of cancer... Last resort was going to be to take out my spleen but didn't have to do that... I have had normal platelet count for the last 6 years... About 4 weeks ago I started having severe joint pain and got blood tests... They don't know what it is yet but Lupus is a possiblility... Is there a connection between the two??? Does anyone know??? Please let me know!!! Thanks
Mullens Native Daughter

Greensboro, NC

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#11
Jun 20, 2010
 
ITP can be a symptom of Lupus. I had it for 8 years before my Lupus diagnosis. So far, my ITP is in remission, but unfortunately my Lupus is not.
My name is Heather

Ashburn, VA

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#12
Mar 28, 2011
 
i am in my 30 s i have itp for 15 years and now i am sure i have lupus . Thank you for posting these bloggs i have felt alone and scared . After resurcheing this, i feel better and more informed.
Rene

London, UK

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#13
Apr 18, 2012
 
My daughter was diagnosed with ITP 3 & half years ago, mainly had a platlet count of between 5 & 0 for sevral months nothing was working for her so the disition was made by her 18 months ago to have her spleen removed, operation went well then a week later delevloped a large clot in the portal vain going to her liver, after 3 weeks in high dependency unit she came home injecting herself with clexaine daily for 9 months! after that she was well stil with the clot but alot smaller, now after 18 months she has developed very bad case of lupus, she had a biopsy last wednesday just waiting for te resualts! is this commom for this to happen & what happens next?
Debra

Gadsden, AL

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#14
May 8, 2012
 
I was diagnosed Lupus when I was 32 and am now 55. I have had some setbacks with my kidneys but continued to work. In the last 2 and 1/2 wks I have been diagnosed with ITP. I was told it was managable but a long road to get there. I am not able to work and it is a big adjustment but won't give up. I did not know ITP exsisted but I am finding out its not good to have both. My prayers are with you all. As I learn more I will try to pass it on to you.
Debra

Gadsden, AL

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#15
May 8, 2012
 
i love clowns wrote:
I went through 2 years of being treated for stress and hives. I finally had biopisies of the skin and found lupus, then blood test said lupus, and sjogren's syndrome. Now have fibromyalgia too. Last blood test they said my platelets were low and we would keep an eye on them. I take plaquenil for the lupus and it did help the fatigue but still really tired. But I try to keep my sense of humor that helps alot.
It has been awhile since you posted. I hope all is well. I am new to this.
I too keep a good and positive attitute, it keeps me going. I also take plaquenil for 24 years now and I feel it has been a miracle drug for me. I now have a new challenge "ITP" which I hope to get better. My prayers are with you.
Ltinny

Catskill, NY

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#16
Aug 9, 2012
 
jan carr wrote:
My father was diagnosed with Lupus about 8 years ago. Most recently (just a week ago) he was diagnosed with ITP. He is getting transfusions every day now and his platlet count is coming up. Hopefully no more complications will arise.
I have had lupus for 14 years, and just in the past year have been diagnosed with platelets dropping into the 40s, from the 110s, over a period of about a little over a year. I have seen a hematologist and will have a followup visit in a few weeks. I am functional, and not symptomatic, so I am not sure if they will just monitor it.
ace

Washington, DC

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#17
Nov 30, 2012
 
I was diagnosed with ITP in 1980 (15 yrs.)and had a splenectomy. I have not had any problems until about 11 years ago when I was diagnosed with Lupus. It's a mild case so I do pretty well. I am currently taking Plaquenil daily. But, in early June my left eye began to swell. It's due to inflammation behind the eye. No tumors thank GOD. I am starting to take methotrexate for the inflammation. Hopefully, that works.
Faatimah

Cape Town, South Africa

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#18
Mar 15, 2013
 
Mullens Native Daughter wrote:
Hello, I am new to this board, and just wanted to know if any one has been diagnosed with ITP along with their Lupus?
Hey.. Yes I was diagnosed with ITP 3 years before being diagnosed with Lupus.. They treated me with cortizone.
briana

Altona, IL

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#19
Nov 7, 2013
 
im only 14, and i have had ITP for about 5 years now. i now have lupus. my question is, is having two auto immune disorder bad? is it a more risk of dieing? please reply.
Ellie

London, UK

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#20
Nov 20, 2013
 
briana wrote:
im only 14, and i have had ITP for about 5 years now. i now have lupus. my question is, is having two auto immune disorder bad? is it a more risk of dieing? please reply.
Hey, Briana. I'm 19, I was diagnosed with ITP 2 years ago, and recently diagnosed with lupus/SLE. My mother, auntie and grandmother have lupus/SLE. You need to know that Their are lots of us out there and people are living full and long lives.
Take care
Ellie
Ryan

Thunder Bay, Canada

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#21
Mar 19, 2014
 
Has anyone seen the lupus bible... http://remedieshealth.com/lupus what did you think?

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