What do the real lung cancer symptoms feel like?!?

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Danny

Smyrna, GA

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#1
Oct 30, 2006
 

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I am a 57 (58 in Feb) male caucasion who was diagnosed with Prostate Cancer in Dec, 2005. My Prostate was successfully removed in March 2006. My post-surgery pathology indicated a Gleason 4+3=7 Prostate Cancer, with negative margins - e.g. reasonably certain that it was confined to my Prostate.

Lymphectomy was negative for cancer cells.

I often ache all over (flu-like), wheeze, I'm not really short of breath, just seems like a chore to breathe at times. I have a persistent cough, dry at times, clear wite phlegm at other times. I sometimes choke on 'nothing' and cough until I feel my head and abs will explode. I have no loss of appetite and have gained weight (from various meds).

I have a very hoarse voice at times - expecially when I'm tired and, while it's not difficult to swallow, it's a slight challenge.

I don't often sleep past 2am - when I wake, I find I can't lay down any longer, my hands and feet feel 'prickly' and I have a 'crawly' feeling all over.

While working (software developer), I find myself thoroughly into my work (e.g. not day dreaming) and yet I can hardly keep my eyes open.

Sometimes in the evening, I ache so badly that I can't sit still, I have to walk around.

My GP (of 10 years) recently quit and went to Bejing to be an Embassy Doctor.

I have seen a new Dr once and am not sure of our relationship or my trust in him. I will see him again on Oct 31st and plan to have a candid discussion with him. He asked me to quit taking Advil and use Tylenol instead and my aches are much worse without Advil.

In the meantime, I have run my symptoms thru various software and lung cancer seems to keep popping up.

I've read the lung cancer symptoms and, while my symptoms do present a similiarity to lung cancer symptoms, the lung cancer symptoms are fairly vague and my symptoms could also be associated with meds or other causes.

I recently (2 weeks ago) quit taking Citalopram because I read complaints that, among other things, it could cause insomnia at night and drowsiness in the daytime - I've also read that many people experience flu-like symptoms with Citalopram withdrawal - but I have had severe body ache going back at least a year prior to my Prostate Cancer diagnosis. I would always take Advil and lay down for a couple of hours and it would resolve.

Can any of you give me your personal insight into just what the Lung Cancer symptoms really feel like?

Also, what questions I should plan on asking my GP when I see him on Tuesday?

Also, what type of medical specialist should I see to rule out Lung Cancer, in the event I am thoroughly dissatisfied with my GP?

Thank you all for your time!
__________
Alle de beste!

Danny
Yasmeen

Sheffield, UK

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#2
Feb 8, 2007
 

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Hi Danny.My husband has Lung cancer and is at stage 4.His symptoms are wheezing, aches and pains all over,a persistant cough just like you said.His breathing is very bad and he gets breathless even with the slightest exertion.He brings up excessive amounts of bubbly pure white sputum.Mind you it wasn't as excessive 6 months ago.It has increased in time.The doctors said he had asthma when he wasn't diagnosed.If i were you i would get a thorough check up done as me and my husband have completely lost faith in these doctors.My husband was in and out of A+E saying that he's not well but he wasn't taken seriously.Wish you luck and hope it isn't what you think it might be.
Annie T

Sacramento, CA

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#3
Jun 28, 2011
 
drink xangosteen (said like "mangosteen") and get acupuncture treatments. Danny, did you ever have a history of smoking or second hand smoke? I care about lung cancer patients and when I read that your GP left for another job I thought that is just all too common with GP or PCP. You are right to be careful when picking a GP or PCP because if you are in need of med check or change and referrals to check out your lungs or blood tests then it could be difficult depending on who you end up getting. My dad was 57 and had lung cancer in stage 4 and didn't know it until being admitted to the emergency dept for vomiting because the cancer had mets. to his brain and liver. Prior to the ER admission my dad was seeing his GP for about 2 years and getting everything checked like eyes, physical, and the GP even put him on the diabetes med do to blood tests revealing he had CBC lo/ highs. I feel like the GP really let him down by not looking into his total health! Also, once my dad was admitted to the ER your GP or PCP is supposed to keep in contact with the patient to keep up with the changes in progress notes and everything - but my dad's never did!!! So Danny you are correct in that you are scrutinizing doctors because they are very much about the paycheck and not us. Also, at the same time my dad was ill - I was working for the same health company and heard and knew much inside info on how doctor's' offices work and should and should not. Also, my grandfather was a real doctor and had his own practice for GP but also performed chiropractic and accupuncture and many worldly treatments. In my experience, radiation is a big no no for lung/ brain cancer it made it worse!! I suggest less aggressive treatment than radiaition for lung cancer. Also, don't go to a local hospital in your town - bottom line is they won't know what they are doing and you are worth so much more!!!! Don't give up the fight Danny! Oh, try this book, "Why People Don't Heal and How They Can" by Caroline Myss PH.D and "Foods That Heal" by Maureen Salaman! These books have the real deal not western pharmaceutical sales like GP! By the way, I think you are doing a great job researching all that you can. If you get really desperate for a GP try Dr. Maxine Barish Wreden - she is one of the docs that uses "integrative medicine and naturals but she would probably use radiation for cancer, too so maybe she isn't any better.
Just matt

Walnut Creek, CA

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#4
Aug 5, 2011
 

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I just wanted to say God bless all of u people. You all are very brave and courageous dealing with such things and I pray that u all get well again.
jello_lowe

Vancouver, Canada

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#5
Sep 6, 2011
 
At the age of 59,in March, 2006, due to excessive coughing, I had a chest xray done and a tumor was discovered in my left lung (I had smoked for 40 years but quit in 2002). I had no other symptoms and felt healthy otherwise. It was diagnosed as "undifferentiated small cell lymphoma) and I was immediately referred to a respirologist for follow up. He in turn referred me to a thoracic surgeon.
Due to the size of the tumor, I was first treated with 25 courses of radiation therapy as well as three sets of 3 day courses of chemotherapy. My tumor shrunk to a size that was operable and I then underwent an "upper left lobectomy". The surgery lasted 5 hours and the surgical recovery was very painful and slow, but I did heal.
I'm now approaching my 5th anniversary following surgery (September 22)and all appears to be fine. It is beatable! My GP at first told me my chances at survival were only 15% but I guess I was lucky enough to be one of the 15!
No two cancers are exactly alike and no two people are exactly alike, so have faith - you can survive!
jodie

Monomoy Island, MA

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#6
Oct 11, 2011
 

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I lived through the hell of lung cancer with my beautiful mom. My mom was diagnosed on March 20th or so 2010 and I'll never forget it. We were together 24/7 and I only left her to go to the doc myself or to the store. When it first started she had to wait 3 weeks before treatment and I thought things were going to be ok I really did. I brought her to acupuncture and reki and again I thought things were going to be okay. My mom had adencarcinom and it traveled into her spinal fluid which made things so much more of a nightmare. I get so terribly angry I can scream to think about what she endured with no complaints. Her first symptom was a slight bout of what we thought was belspalsy. The doctors were so wrong. I had to stay on top of them the whole step of the way. She list her vision ability to chew smile laugh cry and hearing. I was then told my moms eyes had to be taken out. All the surgeries she gadgets just to see my god why did this happen to her. Docs for so long really thought we were doing really good until it attacked all her facial muscles. We went back and south to the hospital and to be honest I don't think I would recommend anyone to go to faxton hospital. I sat there and watch chemotherapy go into her veins and when that was done I would watch chemotherapy go into her stent in her head. I cried constantly. I looked like a ghost. The dy my mom came home with hair in her hand was the beginning if the hell. As things progressed radiation was recommended. Big mistake.I saw her starting to leave me soviet went straight to the radiation appt screaming for someone to save her. They at that point dude the radiation and I really thought it worked. She was 100% better than right before she went in. All I can say to anyone us don't do it. From that point on I hardly saw my mom. She slept all day talked to me so strangly and stopped patting had seizers list bowel movements and I wanted to die.I'm suck everyday from all this thoughts. The following April 1st at 10 :27she died in my arms. No last words. I love her need her miss her everyday of my life. What helped my precious mom was eating drinking doing things that made her happy without smiling just by knowing her. Radiation on the brain is wrong and nobody and I mean nobody should do it ever. It is wrong and should be stopped. I pushed her but when she said no more it was done. I just didn't want her to leave me. She went to the doctor alkaline the time. I mean all the time I mean all the time I mean all the time. Get it. Ask questions. push. Me personally I don't want to know. I can't deal with the doctors coldness as if oh well. Don't ever let the doctors tell them or anything to scare them. I wish I could of spared her the first blow of you have a year. Its wrong.
seatyed

Brisbane, Australia

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#7
Oct 13, 2011
 

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Visit How to Heal Cancer http://www.healyourcancer.org
Marion

Windsor Mill, MD

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#8
Oct 27, 2011
 

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Yasmeen wrote:
Hi Danny.My husband has Lung cancer and is at stage 4.His symptoms are wheezing, aches and pains all over,a persistant cough just like you said.His breathing is very bad and he gets breathless even with the slightest exertion.He brings up excessive amounts of bubbly pure white sputum.Mind you it wasn't as excessive 6 months ago.It has increased in time.The doctors said he had asthma when he wasn't diagnosed.If i were you i would get a thorough check up done as me and my husband have completely lost faith in these doctors.My husband was in and out of A+E saying that he's not well but he wasn't taken seriously.Wish you luck and hope it isn't what you think it might be.
I totally agree with you when you say do not trust the doctors, I can't or don't seem to understand why they seem to not listen or don't take what we say to them as patients serious enough. It's as if they want to blame our symptoms on something we are doing instead of us actually having a disease. I have suffered from MS symptoms for over 10 years and only thru dogged persistance did I finally get the right test and diagnosis, what's wrong with Doctors in our health care system.
Marion

Windsor Mill, MD

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#9
Oct 27, 2011
 
Health care in our country needs to be revamped and something should be done when doctors miss or do not properly diagnose their patients.
Macky

Chandler, AZ

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#10
Dec 9, 2011
 
None... I went to get a phisical and the doctor told me I had a massive tummer on the right lining of my lung the size of a golf ball I'm 35 years old never smoked... I only went for a phisical I had no symphtoms I gues I'm lucky to still be a live the removed part of my right lung June 27, 2011 i had to take some chemo and I do confess the healing was a very tuff one but I'm glad it's over my last chemo was last Monday from this week ... I did not loss my hair ... I'm still not doing well ... I'm still weak and have other symptoms I just thank god he gave me the opportunity to find out of this cancer o time. I had my cat scan it came back clean i will need to check my self more often from now on ...
chelly

United States

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#11
Jan 7, 2012
 
So our doctor said there is a "thick white leathery looking substance covering the lung and chest cavity" on in my mom. Has anyone heard if this? Cancer? She is hospital after what was supposed to be simple video surgery to see what was going on and why her lung was filling up with fluid. If anyone has heard of this please let me know!
donna childress

Elizabethtown, KY

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#12
Feb 6, 2012
 
may husband was diganosed with squmaous cell lung cancer in Oct. He hasn't started any treatments as of yet. Tomorrow he see a radiologist, it is non opratable. Because of his heart. Just wanted to share. What to do next?
Aaron

Coleraine, UK

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#13
Feb 18, 2012
 
hi my mum has sclc and im looking for any information possible on cures and things that can help she is at stage 3. ive been looking at a site called cancerfightingstrategies.com has any any information on it?
george in georgia

Statesboro, GA

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#14
Mar 7, 2012
 

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Marion wrote:
<quoted text>
I totally agree with you when you say do not trust the doctors, I can't or don't seem to understand why they seem to not listen or don't take what we say to them as patients serious enough. It's as if they want to blame our symptoms on something we are doing instead of us actually having a disease. I have suffered from MS symptoms for over 10 years and only thru dogged persistance did I finally get the right test and diagnosis, what's wrong with Doctors in our health care system.
my father died a sickining death doctors are paid off to let you die by the government and when you do start dieing from cancer dont ever come to georgia. they talked dad into taking hospice witch kept him drugged and probably killed hionsim. trust me when it comes to cancer you want atleast 100 opinons and when one denies you go to the next one. whats made me furious is i heard of assasin cells that can actually kill cancer. come on americans and tax dollars let my voice be heard in my loving fathers i call pappy who i miss love you pappy you was as gentle and killed by the government do something people demand to live lets quit being a number we pay taxes and then they let you die like that. if you give up on cancer you are not a doctor and should be barred as a doctor and forced to live like my father did .and all the so called friends you dont have any when you havee up on everything but life with cancer you better give the government and tell them hell no you wont go. and dont come to georgia the doctors cant do nothing but deliver babies. georgia is so far behind its stupid and sorry of our state we are in bad times,(georgia) the sick state our doctors belong in a clinic,talking bout generation seems like we gonna all die here but they dont care
ginny

Osceola, WI

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#15
Jun 4, 2012
 
chelly wrote:
So our doctor said there is a "thick white leathery looking substance covering the lung and chest cavity" on in my mom. Has anyone heard if this? Cancer? She is hospital after what was supposed to be simple video surgery to see what was going on and why her lung was filling up with fluid. If anyone has heard of this please let me know!
Check out empanea. My husband had this. Still does I guess. He has to be checked once a year. Just a thought.
Frustrated

Niceville, FL

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#16
Jul 5, 2012
 

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I read this thread because the poster who started it ask what real symptoms were.

That was the answer she was looking for. WHAT ARE THE REAL SYMPTOMS

What she got was a handful of horror stories.. I looked here for symptoms as well.

The LAST THING someone asking that question is to read about everyones mishaps. Shame on you.

And to top it off, NO ONE ANSWERED THE QUESTION!
Matt

Fitzroy, Australia

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#17
Jul 9, 2012
 
I am also looking for the symptoms.

Does lung cancer bring about night time asthma or general breathing difficulties during sleep?

Also a list of other symptoms would be great.

Thanks and God bless.
AGREE WITH FRUSTRATED

Humble, TX

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#18
Jul 13, 2012
 
As I was reading the responses, I was thinking the exact same thing posted by Frustrated above, who captured my thoughts precisely. The OP asked a question. If you want to talk about yourself go start your own thread.
Russ

Pioneer, CA

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#19
Sep 28, 2012
 
Matt wrote:
I am also looking for the symptoms.
Does lung cancer bring about night time asthma or general breathing difficulties during sleep?
Also a list of other symptoms would be great.
Thanks and God bless.
Just go to a web site that states, "process of dying from lung cancer", or "final stage symptoms of lung cancer". I just looked at one and there are several. You cough, sometimes with blood, become weaker, transition from walking to a chair, to a couch, to a bed at the end. Your appetite goes away as your body switches to try and keep the more important functions going like the brain and breathing. 40% of people experience severe pain, especially towards the last days, and have confusion delirium, etc.. Most die, in the end, peacefully.
It's a bad way to go. But everybody's going sometime. Get your finances in order and make your wishes known. Make it easier on your family.. Good luck to you all...
john macdougall

Old Orchard Beach, ME

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#20
Oct 22, 2012
 
ive been uncomfortable for about two years now,everytime i go to the er i get a chest x-ray they say pnemonia or bronchitis. ive had this problem twice this month, im having burning sometimes sharp wierd pains in my throat and lungs, the pain causes coughing and im spitting up alot of thick white stuff, im very short of breath, i have pain running down my back but most of the pain is in the chest area, its gotten worse this time around compared too last month. i see my dr. tommorow to hear my results of chest xray and bloodwork. ill be sure too post whatever he finds good or bad. thank you.

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