Maureen Walney Cumbria

Maryport, UK

#142 Jul 21, 2012
Hi
I am still on Protelos, and continuing to improve.
I also have been prescribed a calcium tablet, and all together my arthritis is very much better.
My right knee replacement still bothers me, but it is definately much better, since I have taken Protelos.
Thanks to all for their prayers and good wishes
Maureen
JoLovesMom

Chehalis, WA

#143 Jul 25, 2012
My 72 yr old mom is 13 months post TKR. She has been MISERABLE. Her quality of life sucks. She had her knee surgery in Athens, Ohio (small town). Frustrating b/c at her last appt w/ her surgeon a month ago she told him about the constant pain. He spent two min. w/ her and said it's "common bursitis" but offered no solution. She's in Seattle visiting me for the summer & I took her to a specialist at Sweedish. This doctor was very compassionate and interested in finding solution. He said by one year you should be "singing your doctor's praises", so definately thinks something is wrong. He has ordered a bone scan and suspects micro movement with the new knee. Upon looking at the x-ray, he said the glue should be visible. He saw hardly no glue on the image. He believes this may be the problem but will know for sure after the bone scan. I trust this dr. He has been doing this since early 80's and used to do 25 knee replacements a week...Now only does six by choice. Hopefully he will find what the issue is and help her. Her surgeon that did the surgery certainly has no interest in helping her.
Chris gunn

Hobart, Australia

#144 Jul 25, 2012
Beverly Cambre wrote:
I had total knee replacement Aug 2008. I have always had some pain on the inside of the knee but it has now worsened and feels warm to the touch. Xrays show all is fine, blood test showed infection somewhere in my body, of couse due to the pain and warmth thought surely it was the knee. My Dr. drew fluid from the knee and tested it. Results came back clear???? I have been told to repeat the bloodwork in 4/6 weeks to see if it still show I have infection somewhere. In the mean time, it hurts to walk, wakes me up at night, is still warm to the touch and I am really ticked off!!
Well i am at home here my TKR is just about to hit 3 years i cannot sleep most nights i am on the lounge as the pain will not let me rest the knee cap on the inside is sore to touch the back of my knee just aches 24/7 and i can shake my leg and it rattles my surgeon retired 3 weeks after my op and left me to fend for my self i am on about 3 different pain killers plus a nor span patch i have seen another surgeon he will not touch it.
And has told me i should not have had a TKR my damage was the knee cap and all the meniscus was torn apart causing a continuos crunch bone on bone now my doctor wants to try acupuncture So i am hearing you all we are not told enough before we get chopped well i have had my say and assume i just have to live with it
Joann from Philadelphia

Philadelphia, PA

#145 Jul 28, 2012
So sorry Arlene that you are having these same issues. I understand about not taking narcotic drugs, don't like it either and I am allergic to most of them. I am on Tramadol which barely takes the edge off.
I saw the rheumatologist last week and he said the surgery caused the fibromyalgia to flare up terribly. I didn't even know I had it. Now I have pain in 16 of the 18 pressure points they test for. The pain is excruciating and it really causes me to feel so depressed. I never had feelings like this before. He put me on Neurontin which is really a drug for epilepsy or convulsions but now they say it is good for pain management. I've been on a week and feel worse than before. Most people take Cymbalta for fibromyalgia so I don't know if I am taking the right drug for this problem. He is the top rheumatologist at the hospital so I guess I need to put some faith in him. Hopefully the next week will show improvement.
I think that's a terrible statement your second opinion doctor made, "suck it up"really!!!!! What kind of person let alone a doctor says something like that. I am always thinking I know there are a lot people worse off than me and many are in my own family too but our pain is just as real and debilitating, and I went through the surgery to make the pain better!!
Sorry I guess I went off on a tangent, but we really need more professional medical doctors who care about their patients.
Arlene from NH wrote:
I am sure glad that I found this forum. I had a TKR in May of 2010 and it went great. I had my recent right TKR March 1 of this year. I now live with constant pain and increasing immobility. I retired in 2010 and moved to the country to garden, raise chicken and goats ans walk my dog. Now I just stare out the window and cry. I have had all the tests for infection, xrays and bone scan and even went to get a second opinion. The second opinion doctor told me to "suck it up, you could have cancer" and for my quality of life issues, I "should see a psychiatrist". I go for my third opinion the end of this month. I feel bad for all of you that are posting because I am walking in your shoes. Does anyone have any ideas for coping with the pain that doesn't involve narcotics (I am presently on Vicodin)? I wish all the best and remember that good knees go to heaven and bad knees go to hell!
Aloha Girl

Kailua Kona, HI

#146 Jul 28, 2012
Pat wrote:
<quoted text>
What a great description of the same sensations in my feet. I had TKR May 2011 and have told doctors about this. Of course they have no answers. I blamed it on arthritis. I am taking 2000 mg. of B-12 tabs with no improvement in the neuropathy. Interesting that someone else has this also.
I am seven months post TKR and have th same sensations in my foot. I have to wriggle and scrunch my foot around in circles constantly to reduce the tension that these sensations seem to produce. Very frustrating!!
Chris gunn

Hobart, Australia

#147 Jul 28, 2012
Alohaleslie wrote:
<quoted text>
Aloha Jimmy,
Quick question...have you had any xrays or MRI's taken to rule out prosthesis problems?
Let us know how you continue to do.
Leslie
Hi Jimy yes i have this any time day or night plus i awake sreamming as my knee locks my surgeon retired 3 weeks after he did my TKR and yhr one i am seeing now told me he will not touch it until my leg is falling off so i have lost my faith in doctors.
Diane Clement

Wooster, OH

#148 Aug 9, 2012
Nov 2011, I had a right TK and the surgery went well. I started PT one week later, 3 times a week. I felt as if I was doing quite well. Nine months later I am having problems. First of all I am Experiencing swelling of the right leg. The left side of the knee cap is hurting and standing for any period of time the pain becomes more and more intense. My knee feels as if it has duct tape wrapped around it,very tight. I am disappointed and feel as if the doctor is just blowing me off.
Julie

UK

#149 Aug 15, 2012
I had TKR on 15th June 2012i had trouble bending it from the start I'm in my 10th week now I have a lump appeared on the outside of my knee and it feels very stiff again I also have sharp pains from my knee down and pains in my calf at night mainly and don't get a full nights sleep . I have had blood tests and X-rays they say there is nothing wrong any one else with these problems
Michael Moe

Columbia, MO

#150 Aug 20, 2012
I had bi-lateral TKR January, 2012, I'm 51. I after about 6 weeks, I had full range of motion on both knees. I was told that after about a year, my knees would be as good as they would get. I still have great pain trying to use stairs. When I walk more than about 1/4 mile, I spend hours after with ice and pain meds. The pain is centered right around the knee cap area on both knees, just above and just below. I've talked to the surgeon and he says I need to walk more. I saw a second surgeon in a different hospital and he says the same, I just need to wait and it will all get better. We bought a wheelchair that I use for long distance 'walking' (like the mall or large buildings). This is so frustrating. The surgeon makes me feel like a 'cry baby', he expects me to be doing 'river dance' by now and says it is my fault I'm not...
Mare

Buffalo Grove, IL

#151 Aug 20, 2012
Better ger more therapy and if that doesn't help and you have pain and swelling, something is not right and you need to show Dr ortho and hope he checks the knee and not blame the nerve in your hip. I just finished hip replacement. Went well and knee is less painful. Now but my walking is definitely not normal, but Dr Ortho says it will get better with time
Hope u don't need a revision!!! Good luckx4436
ken

New Orleans, LA

#152 Aug 24, 2012
it,s been 2 months since i had tkr still can't walk without a cane. is this normal iam 70 years old
bridget

Orland Park, IL

#153 Aug 26, 2012
i had tkr in feb 12 in april i had a minor stroke they checked for clots negative the pain and swelling got worse i have had a few x-rays all fine i then noticed a lump on my knee i went to the surgion he said the cement is seperating from the bone and joint ran test all fine why is this happening did he do something wrong now they have to go back in any advice
Arlene from NH

Kilkenny, NH

#154 Aug 26, 2012
Well, I went for my THIRD opinion! It has been almost 7 months since the TKR and I am no better than I was prior to surgery. My pain and instabilty is now causing my hips to hurts as well as my ankles from the awkward gait. The last doctor put me on Lyrica and Celebrex. Isn't Celebrex for osteoarthritis?? I don't have it anymore since the knee was replaced, I think. Nothing, nothing helps the pain. Do these doctors really understand the issues of chronic pain and the quality of life. I even contacted the replacement parts manufacturer, but I won't mention the name (Zimmer) and asked for help. They were all concerned until I ask about any recalls on the parts. The concern shut right down. I even sent them my medical records to see if they could help. Thank whoever that I have a wonderful, understanding husband to lean on, both literally and figuratively. But I beginning to feel a burden. And I am only 59!! What's left?
Pam H

Kyle, TX

#155 Aug 26, 2012
Arlene from NH wrote:
Well, I went for my THIRD opinion! It has been almost 7 months since the TKR and I am no better than I was prior to surgery. My pain and instabilty is now causing my hips to hurts as well as my ankles from the awkward gait. The last doctor put me on Lyrica and Celebrex. Isn't Celebrex for osteoarthritis?? I don't have it anymore since the knee was replaced, I think. Nothing, nothing helps the pain. Do these doctors really understand the issues of chronic pain and the quality of life. I even contacted the replacement parts manufacturer, but I won't mention the name (Zimmer) and asked for help. They were all concerned until I ask about any recalls on the parts. The concern shut right down. I even sent them my medical records to see if they could help. Thank whoever that I have a wonderful, understanding husband to lean on, both literally and figuratively. But I beginning to feel a burden. And I am only 59!! What's left?
Get an attorney. That's what I have done. I know that I will NEVER be free from pain.
Michaelle

Colorado Springs, CO

#156 Sep 1, 2012
I am one year post op from a TKR following one year of a partial on the same knee. I am only 47 I was 41 when I twisted my knee. It has been a nightmare for the past six years and it is still ongoing. 5 operations total and now I am having pain from the calf down on the same leg even in the foot. Not a little pain either, a lot of it. I am deeply depressed at this time. It seems when things cannnot get any worse..... somehow they do. My leg aches and I can barely walk because of foot pain. I have ALWAYS been active and independent. With 6 years of pain and fighting work comp to get what I need... I am still in pain from the lower back down. I now have SI Joint dysfunction, bursa's in both hips, and the foot has decided to join in. Not to mention the other knee, which they claim has nothing to do with my antalgic gait for the last 6 years.
Chris gunn

Hobart, Australia

#157 Sep 1, 2012
Well 3 years this month and no changes if any thing it it worse the inside of my knee is sore to touch i have shooting pain down my leg tingles in my foot no sleep my knee like a ball in a bucket so loose it rattles now my hip is giving me hell because the way i walk and the surgeon i am seeing now told me my leg will have to be falling off before he touches it.
Because he told me i should not have had a TKR done as it was the miniscus that was torn to pieces and a crack in my knee cap but the one that did the TKR retired 3 weeks after doing me and left me with this mess.
I am so pissed off i feel like a piece of meat five operations including the TKR and i am worse than i was back in 2007 when i injured my knee.some days i am in tears and get so angry with myself i was a hard worker and so active now my whole life is a mess i am seeing a phycologist because the way i feel gets me so depressed and angry my wife is the only thing that is keeping me above ground thats how bad it got to.
Well thats my life.
Maureen

Aberdeen, UK

#158 Sep 1, 2012
I am so sorry to hear of your peoblems.
I am 27months post TKR,and I have big problems rising from a chair.I was a wonderful long distance walker,but now, I am not so fit.
Nevertheless, I am so lucky compared to you.
Every good wish
Maureen
Maureen

Aberdeen, UK

#159 Sep 1, 2012
I am so sorry to hear of your problems.
I am 27months post TKR,and I have big problems rising from a chair.I was a wonderful long distance walker,but now, I am not so fit.
Nevertheless, I am so lucky compared to you.
Every good wish
Maureen
Martin

Swindon, UK

#160 Sep 4, 2012
Chris gunn wrote:
Well 3 years this month and no changes if any thing it it worse the inside of my knee is sore to touch i have shooting pain down my leg tingles in my foot no sleep my knee like a ball in a bucket so loose it rattles now my hip is giving me hell because the way i walk and the surgeon i am seeing now told me my leg will have to be falling off before he touches it.
Because he told me i should not have had a TKR done as it was the miniscus that was torn to pieces and a crack in my knee cap but the one that did the TKR retired 3 weeks after doing me and left me with this mess.
I am so pissed off i feel like a piece of meat five operations including the TKR and i am worse than i was back in 2007 when i injured my knee.some days i am in tears and get so angry with myself i was a hard worker and so active now my whole life is a mess i am seeing a phycologist because the way i feel gets me so depressed and angry my wife is the only thing that is keeping me above ground thats how bad it got to.
Well thats my life.
Hi Chris,
I have been reading through your posts and your recovery (Or non-recovery) sounds very similar to mine.
After 3 years of tests (Bone scans, blood tests for infection, x-rays etc) and asking my OS why I have this continual pain, I decided to change my OS. The new OS looked at all the test results and said that it all looks good but will do an arthroscopy and have a closer look just in case, he was very surprised to find that my patellar had grade 3 arthritis, whilst he was doing the arthroscopy he did a chondroplasty which exacerbated the problem and that told me that we were on the right track.
So 5 weeks ago I had a ‘patellar button insertion’ basically a resurfacing of the patellar. As of today it feels a lot better, nowhere near the pain I had pre-op but it is still early days so keeping my fingers crossed.
The arthritis did not show up on the x-rays so you might want to ask your OS to do an arthroscopy for you it is quick and easy and will either find or eliminate some things.
I can understand your desperation and depression (Especially the way your rugby team are playing, Sorry couldn’t resist that) the constant pain and lack of sleep wears you down.
My knee also rattles, when I shake my leg it sounds like I have a pair of castanet’s in there, great party trick though.
Good luck I hope you get it sorted.
Cheers, Martin
Joann

Jersey City, NJ

#161 Sep 7, 2012
So sorry Chris to hear of your situation. It seems many of us who have had knee surgery have many different issues but all involve a great deal of pain. I am 13 months out from bilateral TKR and now they are telling me that the knees are fine but nerve damaged occured during the surgery and caused a major fibromyalgia flare up. I needed two people to help me get up after sitting through a movie the other evening, very embarrasing! We are trying different meds to ease the pain. They also told me to try water therapy and while that's not for me(scared to death of water) it may be helpful to some of you if that's an option. Now the surgeon said they are going to do a study of peoply who get fibromyalgia after total knee replacements! I find this very interesting. So maybe there are more people like me out there. I keep each and every one of you in my thoughts and prayers and hope we can all walk pain free on our new knees someday.
Joann
Chris gunn wrote:
Well 3 years this month and no changes if any thing it it worse the inside of my knee is sore to touch i have shooting pain down my leg tingles in my foot no sleep my knee like a ball in a bucket so loose it rattles now my hip is giving me hell because the way i walk and the surgeon i am seeing now told me my leg will have to be falling off before he touches it.
Because he told me i should not have had a TKR done as it was the miniscus that was torn to pieces and a crack in my knee cap but the one that did the TKR retired 3 weeks after doing me and left me with this mess.
I am so pissed off i feel like a piece of meat five operations including the TKR and i am worse than i was back in 2007 when i injured my knee.some days i am in tears and get so angry with myself i was a hard worker and so active now my whole life is a mess i am seeing a phycologist because the way i feel gets me so depressed and angry my wife is the only thing that is keeping me above ground thats how bad it got to.
Well thats my life.

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