peripheral neuropathy after knee repl...

peripheral neuropathy after knee replacement

Posted in the Knee Replacement Forum

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shirley

White Haven, PA

#1 Dec 4, 2011
Has anyone out there run into neuropathy in feet after knee replacement, ie. numbness, tingling, burning? I had bilateral knee replacement 7 years ago, the first tingle started in toes immediately after and has now spread to entire foot, making balance a challenge. Neurologist in the Scranton PA area have no clue and have no fix. One said the 'long nerves are dying' and shrugged his shoulders. anyone???
Brenda

AOL

#2 Dec 5, 2011
shirley wrote:
Has anyone out there run into neuropathy in feet after knee replacement, ie. numbness, tingling, burning? I had bilateral knee replacement 7 years ago, the first tingle started in toes immediately after and has now spread to entire foot, making balance a challenge. Neurologist in the Scranton PA area have no clue and have no fix. One said the 'long nerves are dying' and shrugged his shoulders. anyone???
It has been 17 months for me and I am expercing the tingling all over my body. My Internest is been trying to find something to help me. I cant take just any kind of medication. I am about to go nuts. The doctor that done mine told me lies before and after the surgery. I am so sick of him.
Nutrition Doc

Vacaville, CA

#3 Jan 19, 2012
shirley wrote:
Has anyone out there run into neuropathy in feet after knee replacement, ie. numbness, tingling, burning? I had bilateral knee replacement 7 years ago, the first tingle started in toes immediately after and has now spread to entire foot, making balance a challenge. Neurologist in the Scranton PA area have no clue and have no fix. One said the 'long nerves are dying' and shrugged his shoulders. anyone???
Long nerves are covered in myelin and, simply put, myelin requires vitamin B12. Get your physician to give you B12 shots and see what happens - they won't hurt and they might help.
Nutrition Doc

Vacaville, CA

#4 Jan 19, 2012
Long nerves are covered in myelin and vitamin B12 is necessary for myelin formation. One reason long nerves "die" is loss of myelin. See if you can get your doc to give you B12 shots - they won't hurt and they might help. If you can't get your doc to Rx injections then try large oral doses of methylcobalamin (methy-B12) 5,000 - 10,000 mcg (ug) per day. Good Luck!
Nina

Jacksonville, FL

#5 Mar 19, 2012
Brenda wrote:
<quoted text>It has been 17 months for me and I am expercing the tingling all over my body. My Internest is been trying to find something to help me. I cant take just any kind of medication. I am about to go nuts. The doctor that done mine told me lies before and after the surgery. I am so sick of him.
OMG, I am suffering so badly.
Imkeep asking the knee surgeon and feel like I'm totally along. I've been to endocrinologist,GYN,knee surgeon and getting no answers for this. I can't take morin,the only thing that takes it away is still codeine,I wait till the end of day.
the neuropathy pain is in the ankles, in the groin where Ingot the nerve block and giving me panic attack feelings.I asked the PA today on phone just what they domto the ankles in surgery,mshe said they are in a tourniquet .
well, it must have damaged my nerves my ankles hurt so badly after surgery, and maybe this is it. My surgeon is very well known in my area,a nd can't believe he would not come forward with more information.
PJf

Tualatin, OR

#7 Mar 31, 2012
It started about 10 months after knee replacement with swelling in the ankle and foot of the replaced knee . Then the numbness in the toes that at times can go as high as the ankle. I actually have to buy shoes 1 size larger due to that ankle I was wondering about acupuncture, has anyone had these symptoms?

Since: Jul 12

Lisle, IL

#8 Jul 6, 2012
Hello All,

It sounds like I am better than some but worse than others. I had complete knee replacement surgery in March. My knee is terrific but soon after surgery, still in hospital, my heal went numb and the ball of my foot felt like I was standing on a thousand hot nails. Needless to say the pain was excruciating. Since then the pain has subsided but the numbness persists. My foot feels like I am walking on stones all the time. Ten doctors cannot tell me what happened. Two doctors have said it could be tibial nerve damage. Most say it might go away but others say it could take as long as two years. I don't want to live like this and I want it fixed. Has anyone had any kind of relief and what did you do?
Don Rice

League City, TX

#9 Aug 6, 2012
I finally found someone else that is suffering with the same thing I am. I have had left and right TKR over the past 4 years and the pain in both feet is to the point that I am desperate for relief. I have been to several doctors and get the same shoulder shrug, and told I have Neuropathy in both feet and a Rx for pain pills and sent on my way. I am currently getting minimal relief from Lyrica, but not even close to comfortable at anytime. I am going to have to leave my job of 25yrs if some kind of miracle doesnt happen soon. anyone have any suggestions?
shirley wrote:
Has anyone out there run into neuropathy in feet after knee replacement, ie. numbness, tingling, burning? I had bilateral knee replacement 7 years ago, the first tingle started in toes immediately after and has now spread to entire foot, making balance a challenge. Neurologist in the Scranton PA area have no clue and have no fix. One said the 'long nerves are dying' and shrugged his shoulders. anyone???
Concerned Kid

Garland, TX

#10 Aug 22, 2012
My dad (81 years old) had a knee replacement done and was recovering with Physical Therapy. His progress was slow because of his age and the pain he suffered when attempting the physical therapy exercises.
However after a couple of falls, the physiotherapist asked him to see a neurologist who found after a few tests that he had CIDP ( http://en.wikipedia.org/wiki/Chronic_inflamma... ). This is the chronic form of Guillain Barre syndrome which fixes itself.

Everyone we met seemed to blame the CIDP on the Diabetes he had prior to going into surgery (which was borderline at worst). The timing of the CIDP showing up as he was recovering from knee surgery however bothers me.

After being in ICU for low sugar, low sodium for reasons likely related to his refusing food, he took Immunoglobulin ( http://en.wikipedia.org/wiki/Intravenous_immu... ) which seemed to help him for some time.
His condition has gone from bad to worse over time and various complications (including urinary tract infection) later, he's still not in good shape.

In general he seems to have given up the desire to fight any more and I hope nobody else has to go through what he is going through.
kelly77

Davenport, IA

#11 Sep 1, 2012
Please let me know if this is normal! My mom just had a total knee replacement 5 days ago and every time she falls asleep and even while she has been asleep for awhile her body jerks. Also her leg just operated on will jerk. This happen every time and very painful she is getting no rest. Any suggestion solution please help
Jackieeyerly

Santa Monica, CA

#12 Sep 22, 2012
I am post surgery 6 years after bi-lateral total knee replacement. I too started having extreme sensitivity in both feet, later felt like the toes were freezing and hurt with the cold. Now I have numbness in both feet, I can feel pressure when I stand (a good thing) so I can walk, but the numbness drives me crazy when Ilay still or try to go to sleep. I used to take Vistaril (anti anxiety) and Restoril 30mg. (sleeping pill) and they helped relax me enough so I could sleep. But i was so groggy the next day that I had trouble staying awake at work the next day. So, I started taking 2 30mg. Benedryl and now drink a cup of hot Ovaltine. Most days I can go to sleep and wake up normally. I too take Synthroid for Thyroid (hypothyroid) and noted that it can cause B-12 defiency. I take 3000mcg now so plan to increase it if my doctor won't give me the shot. I am sorry that there are so many of us suffering through this. At least there is some comfort in knowing we are not alone.
Indycatmom

United States

#13 Oct 15, 2012
kelly77 wrote:
Please let me know if this is normal! My mom just had a total knee replacement 5 days ago and every time she falls asleep and even while she has been asleep for awhile her body jerks. Also her leg just operated on will jerk. This happen every time and very painful she is getting no rest. Any suggestion solution please help
Don't worry, it is the pain medication making her do that. As she tapers off, it will happen less frequently.
cox

Oakvale, WV

#14 Nov 19, 2012
My husband had total knee replacement about eight years ago. About a month later he started to get up and felt something in his back pull. After that he begin losing control of his foot and a feeling of burning. Now he has been diagnosed with periipheral neuropathy amd inclusion body myositis. Has anyone else had something like this happen to them. I am wondering if a nerve may have been damaged during knee surgery.
Maureen

UK

#15 Nov 25, 2012
kelly77 wrote:
Please let me know if this is normal! My mom just had a total knee replacement 5 days ago and every time she falls asleep and even while she has been asleep for awhile her body jerks. Also her leg just operated on will jerk. This happen every time and very painful she is getting no rest. Any suggestion solution please help
WOW!...I thought i was going crackers. I had a part knee replacement 2 and half years ago and from then i have had the same jerking as your mum. I haven't told the doctor about it as i didn't want him to think i was crackers. I have been told that i have nerve damage arond the knee by my Physio Therapist...A simple test that my surgeon never bothered to do. I am fed up with telling the surgeon abot the terrible burning, tingling, leg and body jerking symptoms i am experiencing. No-one seems to listen. When you start telling them they dismiss it instantly which makes yo feel that you must be imagining it. I hope your mum improves. God Bless.
Nita

Glenwood, IA

#16 Dec 2, 2012
shirley wrote:
Has anyone out there run into neuropathy in feet after knee replacement, ie. numbness, tingling, burning? I had bilateral knee replacement 7 years ago, the first tingle started in toes immediately after and has now spread to entire foot, making balance a challenge. Neurologist in the Scranton PA area have no clue and have no fix. One said the 'long nerves are dying' and shrugged his shoulders. anyone???
I have neuropathy form my knees on down. VERY SURGERY SPECIFIC....but no doctor will admit the knee replacement caused any damage.
both of my legs and feet are numb, but not the skin, just the underlying muscles. Crazy.
hokiebay

Crofton, MD

#17 Dec 4, 2012
I had authroscopic knee surgery 2 years ago and have had numbness and tingling in my foot ever since. Doctor said he never knew of a case where it hasn't gone away. Said it was nerve damage due to the tight bandage, but that was better than having me bleed out! No sense going back to him, but really want a non-drug solution...
Alton in Georgia

Dahlonega, GA

#18 Dec 4, 2012
shirley wrote:
Has anyone out there run into neuropathy in feet after knee replacement, ie. numbness, tingling, burning? I had bilateral knee replacement 7 years ago, the first tingle started in toes immediately after and has now spread to entire foot, making balance a challenge. Neurologist in the Scranton PA area have no clue and have no fix. One said the 'long nerves are dying' and shrugged his shoulders. anyone???
Shirley, I've had EXACTLY the same results (from dual knee replacements, using Zimmer Titanium parts), 8 years ago! Numbness and tingling in the feet, 24/7 knee pain. I've been to countless "specialists" in three states, NONE can find anything wrong. I've tried every drug in the book, acupuncture, nerve stimulator implants, the works, even had multiple sessions with a Neurologist specialist, but NONE help!Have to use a cane or walker but even then, can't stand or walk for more than a few minutes! I did post all the details on MY experience on 12-4-12.
Tom in Milwaukee

United States

#19 Dec 13, 2012
Same problem after bi lateral knee replacements 2 yrs ago. Thought it would eventually go away. It is getting worse and severely limits my ability in walking safely. also have suffered severe kneecap pain on both knees where I cannot knell or put any weight on them.
Olivia

Soddy Daisy, TN

#20 Dec 26, 2012
I had bilateral knee replacement 2 mo. ago. My left knee did not do as well as the right one. My left foot is numb and extremely painful. I feel like a can being kicked down the road by the doctors. I got on this website to see if anyone else has experienced this. I cried for the first time.
Caron

Consett, UK

#21 Dec 28, 2012
My father in law is 6 weeks post TKR He has been back and forward to the hospital in a lot if pain His right foot is badly swollen and bright red and burning His vein over his ankle is very swollen The burning is so intense he is unable to touch his foot The consultant does not feel this is anything to worry about but I think a nerve has been damaged Please help

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