Pain med. management 6 weeks post Bil...

Pain med. management 6 weeks post Bilateral TKR

Posted in the Knee Replacement Forum

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Raine

Great Barrington, MA

#1 Aug 18, 2012
Hi all,
I've been using OxyContin 20 mgs. Extended release twice daily, since surgery, starting in early July. also Oxycodone 5 mgs., every 4, then 6 hours. The OxyContin was cut to 10 mgs., extended release,(also twice a day), have only been taking 1 Oxycodone before PT. 3 days into the reduced OxyContin, I am tearful, anxious,and really sore in my legs. New aching, and incision pain and stiffness. Is this related to the reduced dose? Is it normal? Can I use the Oxycodone 5 more often as prescribed? I am using more Ibuprofen too.
I am worried! Is this withdrawl?
Any advice appreciated !
Best,
Raine
DeeDee

Dunkirk, NY

#2 Aug 19, 2012
Raine wrote:
Hi all,
I've been using OxyContin 20 mgs. Extended release twice daily, since surgery, starting in early July. also Oxycodone 5 mgs., every 4, then 6 hours. The OxyContin was cut to 10 mgs., extended release,(also twice a day), have only been taking 1 Oxycodone before PT. 3 days into the reduced OxyContin, I am tearful, anxious,and really sore in my legs. New aching, and incision pain and stiffness. Is this related to the reduced dose? Is it normal? Can I use the Oxycodone 5 more often as prescribed? I am using more Ibuprofen too.
I am worried! Is this withdrawl?
Any advice appreciated !
Best,
Raine
Hi Raine , I had both knees done 6/21/12 , I am off all meds. too easy to get addicted , I have pain , can't sleep all nite but the leg aches are gone , I hobble around and some days wish I had my old knees back . But I am determined to get through this , pain and whatever else happens . I wish we could talk on the phone and share our knee problems but we can't . Keep writing and take care , it does get better !
Raine

Great Barrington, MA

#3 Aug 19, 2012
Hi DeeDee,
Good to hear from someone who had the surgery so near to mine. I do want to be safe with the meds, and I'm trusting my MD on this.. How is your flexion? Mine is not great.
Right leg ismuchbetter, not even measuring it. Left leg,has barely touched 85, with effort, for a minute. I don't want to see my surgeon, he was very negative about me at 4 weeks! Even threatened the dreaded manipulation ( quite prematurely. Nothing nice to say though I felt like a hero! I am swimming in a neighbors pool when possible, it's the best workout.. And reassures me I can get the flex. Long flight in Sept. 7 hours, worried for the comfort with restricted mobility.
What are you doing DeeDee? Are you using Ibuprofen or TylenolL
sleep aides? This tearfulness is debilitating.
Write back please!
Best to you,
Raine
DeeDee

Dunkirk, NY

#4 Aug 20, 2012
Raine wrote:
Hi DeeDee,
Good to hear from someone who had the surgery so near to mine. I do want to be safe with the meds, and I'm trusting my MD on this.. How is your flexion? Mine is not great.
Right leg ismuchbetter, not even measuring it. Left leg,has barely touched 85, with effort, for a minute. I don't want to see my surgeon, he was very negative about me at 4 weeks! Even threatened the dreaded manipulation ( quite prematurely. Nothing nice to say though I felt like a hero! I am swimming in a neighbors pool when possible, it's the best workout.. And reassures me I can get the flex. Long flight in Sept. 7 hours, worried for the comfort with restricted mobility.
What are you doing DeeDee? Are you using Ibuprofen or TylenolL
sleep aides? This tearfulness is debilitating.
Write back please!
Best to you,
Raine
Hi Raine,you should ween off the meds. I know you have pain but they are so addictive.I stopped the hydros about 3 weeks ago,now I use shelf meds.My flexion is bad but working on it.I do the heat&ice often,ride the bike & walk,not too far but I try to stay active and of course with pain.When I would lay down to go to sleep my legs would ache so bad I wanted to die , that problem is behind me, now when I wake up in the middle of the nite I can't get back to sleep.I wouldn't go on any flight , I'd be afraid of blood clots but if your doc. says it's ok , he knows more them me.Keep in touch & take care ! DD
Raine

Great Barrington, MA

#5 Aug 20, 2012
Hi DeeDee,
Tomorrow I will call my MD who prescribed these meds, and ask her about this.. This week has been awful, so much discomfort, pain, anxiety about the meds and tearfulness. I am certainly aware of the problems with the Oxy's , now more than ever, but I want to be able to do my exercises, sleep, and hopefully utilize these drugs without them utilizing me!
Your flexion must be better than mine if you are biking.. My left leg cannot make the full revolution necessary. Although in the pool, I can 'peddle' as if biking. I see a. Different PT tomorrow, maybe she'll offer some new advice.
Thanks for listening and sharing DD!
Keep in touch,
Jane
DeeDee

Dunkirk, NY

#6 Aug 21, 2012
Raine wrote:
Hi DeeDee,
Tomorrow I will call my MD who prescribed these meds, and ask her about this.. This week has been awful, so much discomfort, pain, anxiety about the meds and tearfulness. I am certainly aware of the problems with the Oxy's , now more than ever, but I want to be able to do my exercises, sleep, and hopefully utilize these drugs without them utilizing me!
Your flexion must be better than mine if you are biking.. My left leg cannot make the full revolution necessary. Although in the pool, I can 'peddle' as if biking. I see a. Different PT tomorrow, maybe she'll offer some new advice.
Thanks for listening and sharing DD!
Keep in touch,
Jane
Raine,You must ween off the meds.They will control your every move.It's hard but I did it and I'm a big baby.When I do my exercizes,walks & stairs, it hurts like heck.Just start cutting back everyday til your off them & you will feel better.Gotta go now but keep writing & do a little more everyday.STOP THEM MEDS ! DD
JRRIS

Santee, CA

#7 Aug 23, 2012
I had tkr on left leg aug 3 and I did'nt realize the length of time I would be in pain.I walk around with walker for 1 to 1 1/2 hrs and knee gets so swollen and sore it's almost unbearable. for meds I'm using 2 norco every 4 hrs but it just barely puts a dent in pain.haven't slept more than 3 hours at a time since surgery.Is this normal for 3 weeks post?Also some times when bending knee it feels like something inside pushing against rear of knee. any one else had that pain? I have 110 bend and 100% flex but still stiff as a board do my exercices 5 times per day and dosen't feel like there is an end to this recovery.Okay i'm done whining thanks for listening
Raine

Great Barrington, MA

#8 Aug 24, 2012
JRRS
Re-read those first few posts about the trauma of this major surgery, they are very reassurring. And, with such excellent flexion and extension, I think you should be resting, icing and elevating more, maybe "working" less.? I'm no PT, and my flexion after 6 weeks is NOT so good, but I am optimistic ( sometimes, when not fretting and worrying) The pain is the issue, I know. I am weaning off the Oxy's now, but will use one for severe discomfort, and for my PT sessions.
Ease up on yourself! You, like many of us TKRX2's are Hero's!
Medical miracles. Stand proud Comrade!
Best,
Raine
JRRIS

Santee, CA

#9 Aug 24, 2012
Thanks Raine for the boost I need that.today is my 3 week anniversary and this is the most fustrating thing I've ever done.I'm the guy you know who is always active even before surgery would push myself to do all the yard work until I had to stay in bed for 2 days to recuperate.At first my wife of 41 years would pamper me all day but I think she even thought after 2 weeks I would be walking around like this was a bad dream.I think that is from people you talk to that have done this don't tell you about the sleepless nights the horrible pain and the heplessness when you need something but it's in the other room and you just got in a comfort mode now you have to endure the pain for a bowl of cereal or what ever it is you're craving at 3am and don't want to bother anyone.So if anyone asks tell them about the begining part that everyone else leaves out.well good luck it's exercise time'
JRRIS
Nanny

Arlington, TX

#10 Aug 26, 2012
My bilateral was June 22,2012. I am off of all pain meds but still can't sleep all night still have stiffness but my range of motion is around 106.
I still have pain but due to having ibs I am restricted to not taking Tylenol or Advil.
Some days I wonder if this was the right thing to do because I still have a lot of numbness in both of my legs and I also have restless leg syndrome.
My emotions are always changing and I'm depressed also.
JRRIS

Santee, CA

#12 Aug 28, 2012
nanny what is a bilateral? what is ibs? what is restless pain syndrome?Sorry about all the questions but thats how you learn new things.Have you been doing your flex and bending exersices.I have found sleeping wih my leg on three pillows at night makes it easier the next day.I think we all get some sort of depression from this surgery we just have to channel that energy to the exercises and I write down all my feelings and pains or lack of during the day so I can compare my daily so I can figure whats working and what dosen't.Hope your days get brighter and your pains fewer.Maybe you should ask your dr for more pain meds to help you thru this.good luck jrris.
Raine

Great Barrington, MA

#13 Aug 29, 2012
OK DeeDee,
I'm down to 1, 5mg. Oxycodone before PT. hopefully, I 'll give that up next week.
More PT, made my first full revolution on the gym bike today!! 95 degree flexion! It was a thrill. The constant pain and tightness and restriction is wearing me down tonight. A well meaning friend suggested that the bones could be healing at 12 weeks... Which might mean less pain?
I think a lot of my current frustration is that I've resumed my life; cooking shopping, tending to others... And it is tiring, painful and exhausting. Luckily I sleep well , with an ambien( which I do use sporadically,and wjphen traveling.
Feels like a new chapter is beginning. I must move this leg to 110 degrees before
My flight to France is sept.20.. And I intend to do it.
Anyone? Can you advise? 9 weeks. Will more comfort be coming with less pain?

Thanks for listening
Raine
I,
DeeDee

Horseheads, NY

#14 Aug 30, 2012
Raine wrote:
OK DeeDee,
I'm down to 1, 5mg. Oxycodone before PT. hopefully, I 'll give that up next week.
More PT, made my first full revolution on the gym bike today!! 95 degree flexion! It was a thrill. The constant pain and tightness and restriction is wearing me down tonight. A well meaning friend suggested that the bones could be healing at 12 weeks... Which might mean less pain?
I think a lot of my current frustration is that I've resumed my life; cooking shopping, tending to others... And it is tiring, painful and exhausting. Luckily I sleep well , with an ambien( which I do use sporadically,and wjphen traveling.
Feels like a new chapter is beginning. I must move this leg to 110 degrees before
My flight to France is sept.20.. And I intend to do it.
Anyone? Can you advise? 9 weeks. Will more comfort be coming with less pain?
Thanks for listening
Raine
I,
RAINE , Your doing great,before you know it you will be off them.I too tend to family & some days are really hard for me and I ask myself why I did this . Too early for results though.I go next week to my doc. and I'm sure he will yell at me for not being farther along but it's hard.I wish you the best and we have a long way to go.Keep in touch & keep posting !!! DD
Raine

Great Barrington, MA

#15 Aug 30, 2012
Thanks DeeDee,
I've had it with my doc. I saw his PA this week, he had nothing good to say. Just a smarmy smile and slogans like " there's no easy way...., if I had a magic wand...."
He knows nothing about medication, had. No idea what I was using or had been prescribed, didn't touch my knee. Such a waste of time.
But, it makes clear that this is MY knee (s), and this is MY recovery, and with the surgery over they aren't much interested. I did tell him how disappointed I was that my one month check up was all negative, threatening; drug addiction/withdrawn, the dreaded MANIPULATION! No support or guidance offered, just criticism.
Jerks.
So, I've got a great caring PT, and she will help me get to 110 flexion on that left leg.l
The joint is strong and secure.
I am fit and healthy at 56.
I am newly slim ( lost 20 lbs!)
I don't smoke or drink and eat well.
I can do this.

So can you DeeDee. don't let your doctor deflate you. Keep in touch!
Best to you all,
Raine
Bruce

Mcminnville, OR

#16 Oct 6, 2012
I had TKR of my right knee April 2011 and the left knee August 2011. I am 78 yrs old.
I also had issues with pain meds including withdrawal and constipation. It was a struggle that I had to manage myself.
Key to your recovery is finding a skilled and aggressive therapist. Caring in this therapy entails a willingness to inflict pain, as it seems there is no other way.
My surgeon correctly stated up front that it takes about 1 year to achieve what will be considered normal for your implant.
This was a most awful struggle for me and my poor wife.
Notably, there were good days and some really bad days.
That said, I now have no pain, flexion in the 140s, I can kneel, and in general act like a normal 78 year old. It was worth it!
You folks can do it. Accept the bad days and revel in the good ones.
Bruce
Bruce

Mcminnville, OR

#17 Oct 7, 2012
One additional comment: I did not ever use a motion device. My surgeon stated that successful recovery was no faster or easier using the CPM.
Also, get your own goniometer. Amazon has them for under $10 and there is an iPhone app that does the job very nicely. You then get to manage your own progress.
Lucy

Whistler, Canada

#18 Oct 9, 2012
Oxycontin and oxydodone wreak havoc on your body. So highly addictive for patients who've had TKR! It took me a week to free myself from the withdrawal symptoms. I was angry that my ortho prescribed them. After four weeks I was on coated ibuprofen only, for another two months.
It's now been eight months since my TKR and I still ice my knee every evening for about two hours. If I don't, then my knee aches at night.
I can cycle/hike for up to four hours. Cycling causes a crunching sound that is audible and annoying, hiking is easy, but I do have to be careful on the downhill.
DeeDee, I hope that you are doing well. It is one tough surgery and we are not adequately prepared for the pain. Wish I'd read some forums!
DeeDee 6-21-12

Dunkirk, NY

#19 Oct 9, 2012
Lucy wrote:
Oxycontin and oxydodone wreak havoc on your body. So highly addictive for patients who've had TKR! It took me a week to free myself from the withdrawal symptoms. I was angry that my ortho prescribed them. After four weeks I was on coated ibuprofen only, for another two months.
It's now been eight months since my TKR and I still ice my knee every evening for about two hours. If I don't, then my knee aches at night.
I can cycle/hike for up to four hours. Cycling causes a crunching sound that is audible and annoying, hiking is easy, but I do have to be careful on the downhill.
DeeDee, I hope that you are doing well. It is one tough surgery and we are not adequately prepared for the pain. Wish I'd read some forums!
Hi Lucy , I'm doing ok ,could be better, my knees are a bit swollen & sore,I walk & bike e/day & ice them e/day ,just wish the healing process was a little faster,but soon I will be good as new...
Mario

United States

#20 Aug 17, 2013
Just had bilateral tkr on Aug 12. In hospital. Getting impression that I should be off IV pain meds. I plan to be here for 6 more days. Pain worse at night. Any ideas?
Raine

Great Barrington, MA

#21 Sep 5, 2013
Hello TKRX2 folk,
I am now 14 months out from my double knee replacements. Great mobility, excellent walking, but continued pain on rising from seated position, and sitting through a movie, a car ride ( over 20 mins.). This worries me..
Will this pain diminish in time? I thought after a year it would be gone!
I practice yoga and stretch and squat daily, still using at least 1200 mg. Ibuprofen daily,
And wonder if and when I won't need it.
Any advice?
Ricki? Dee Dee?
I think of you both, often.
Best,
Raine

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