dad just diagnosed with Kidney Cancer
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“Of Course I Can”

Since: Sep 08

Santa Fe, NM

#43 Jul 29, 2012
ConcernedSon wrote:
July 23rd my father was said to have Kidney Cancer.
He just turned 48-years old. I am 26, sister is 23, and she has a child (his grandson) who is just five. It’s been a devastating week for our family, I know that my father is worried, but he rare shows emotion around us… probably for fear of worrying us. We try to have him talk about it, but he’s you’re typical 60’s child that doesn’t believe much on speaking ‘feelings’.
I as his son am terrified. I feel so helpless, been doing everything I possibly could to just make the situation slightly more comfortable for him, or any of us, occupying my mind. He goes this week to find out more. All we know is that the Mass is 13cm , he has two spots on his liver but they’ve said they were ‘simple cyst’. His kidney was also covered in hundreds of cysts, which is why the mass seemingly has went undetected for so long, as everyone thought his constant peeing in blood, kidney pains, and so forth was just kidney cyst and stones.
He also had a fractured bone earlier this year, didn’t seem to know how it occurred. I read that bone metastasis is very uncommon for kidney cancers, but I am reading more and more stories about it, wondering if we should order him a bone scan also? CT scans on lungs were done, no results yet. Gallbladder was clear. Not sure if the tumor is outside the kidney capsule, but at that size, I am terrified.
The doctors may yet order a bone scan, but you can certainly ask them to do one.

If it is caught early enough and hasn't metastisized, he should be fine.

I am a 4 year survivor. Very similar symptoms but I also had spots on my lungs and liver. Turns out they were okay, but they took out my kidney and I have lived a pretty normal life ever since.

Good luck!
claire

UK

#44 Jul 30, 2012
Hi iv just lost my nan only 2 week ago, she had cancer of the right kidney, diagnosed on the 14/6/2012, she had ct done and bloods etc, by the 21/6/2012 she was told it had spread to her lungs ant to the ivc! Her prognosis was 3-6 months, she ended up in a hospice for pain management just over a week later for 1 week 2 days, she got weaker and weaker, couldn't hold things, couldn't talk, couldn't comunicate in any way at the end, she passed away on 13/7/2012 at home with us all by her bedside, they said she was only in the 2nd to mabe 3rd stage with a tumor mabe only 7cm, my advice to anyone, is grab your loved ones hands and cherish every second you have, my nan lasted 4wk 1day from diagnosis and you can't get your head around it, it was her funeral 1 week today, rest in peace my flower, I love you and miss you every second, good luck and god bless to people in my position.xx
buy sutent

Haifa, Israel

#45 Aug 4, 2012
I need to buy Sutent 50mg 28 tabs. I compare sutent prices. I know there is a real threat of counterfiet medications coming from India China Russia. I buy sutent from IsraMeds.com I saved over $2000 off the retail price. When I purchase Sutent at discount I get the tabs in about 5 days with tracking. I recommend to buy sutent from this international pharmacy.
peggyRCC

Long Beach, CA

#46 Aug 4, 2012
Just to give a bigger perspective than these last few posts; I am a survivor of a Stage IV kidney cancer, with countless mets to my lungs. At that time there were none of the more recent drugs, the "targeted therapies", but I responded well and durably to the only FDA-approved med of that time. It essentially has cured me, and I have no side effects, and no medications which I must take.

In these past few years, I have been aware that there is too little information about this disease, and that too many doctors are not aware of the greater range of options. All patients should be learning about the disease, starting first with all the reports, including your CT scans, your blood reports, and pathology reports. No one will care as much as you do, and your doctor likely sees very few kidney cancer patients.

On my blog at www.peggyRCC.wordpress.com there are a series of lectures for patients which give you up-to-date information. You can read, print and share these with your doctors, and empower yourself in this fight.
Gale Hill

Bloomingdale, IL

#47 Dec 14, 2012
Maria wrote:
I found out I had Kidney cancer 09-2008. Had right kidney removed and found it spread to lymp nodes and lungs.I started on chemo with not much success. I began taking TF+ on my own and after taking it for 3 months the doctor said my scanns showed the tumors in my lungs were reduced to nothing with no signs of cancer anymore. It worked wonders for me. This supplement has no side effects and I feel it has saved my life.
What is TF+?
collette

UK

#48 Jan 9, 2013
My dad has just told us he has kidney cancer and as i type this he is having surgery im terrifed after reading everyones stories about it spreading. Ive already lost my grandad to lung prostate cancer. I cant lose my dad too.
peggyRCC

Long Beach, CA

#49 Jan 9, 2013
collette wrote:
My dad has just told us he has kidney cancer and as i type this he is having surgery im terrifed after reading everyones stories about it spreading. Ive already lost my grandad to lung prostate cancer. I cant lose my dad too.
Since you are in the UK, you may well wish to reach out to more local resources. Do look up Rose Woodward, who will be a great resource for you. Her efforts brought about access to Sutent to all parts of England, and which may be prescribed for your father.

I am a survivor of stage IV kidney cancer, which is now eight years ago. My blog at www.peggyRCC.wordpress.com tells my story, and more importantly, has a series of lectures by kidney cancer experts. You can print these out, really study them and help form your questions for your doctors. Best of luck
collette

UK

#50 Jan 30, 2013
Thank you for your reply he came out of surgery ok they said everything looked ok and it hasnt spread but hes going back in about a month for another mri scan and bloods to check its not spread. I dont know what stage he is/was buts its comforting to hear from someone who has been through it and is still here xx thanks again for replying :)
Erin

Perrysburg, OH

#53 Jul 1, 2013
Need some help.. My dad had one of his kidneys removed about 10 years ago due to RCC. It was encapsulated. After having a dizzy spell, his lungs were xrayed, and he had a tumor. The RCC is back, and it has spread from his remaining kidney, to his lungs, and liver. He is 75, but up until 3 months ago was walking a mile a day. What I don't understand is how can he is going downhill so fast. He is having trouble with numbness in his feet, digestive issues, sleep disturbances, and he is hardly able to walk. I'm concerned that a lot of this is from depression too. He has tried 3 30 day cycles of sutent, but can not finish each one, and was switched to a lower dosage. He feels that he has no hope.
Erin

Lausanne, Switzerland

#54 Jul 1, 2013
Can I ask how old your Nan, was? So sorry for your loss.
claire wrote:
Hi iv just lost my nan only 2 week ago, she had cancer of the right kidney, diagnosed on the 14/6/2012, she had ct done and bloods etc, by the 21/6/2012 she was told it had spread to her lungs ant to the ivc! Her prognosis was 3-6 months, she ended up in a hospice for pain management just over a week later for 1 week 2 days, she got weaker and weaker, couldn't hold things, couldn't talk, couldn't comunicate in any way at the end, she passed away on 13/7/2012 at home with us all by her bedside, they said she was only in the 2nd to mabe 3rd stage with a tumor mabe only 7cm, my advice to anyone, is grab your loved ones hands and cherish every second you have, my nan lasted 4wk 1day from diagnosis and you can't get your head around it, it was her funeral 1 week today, rest in peace my flower, I love you and miss you every second, good luck and god bless to people in my position.xx
Erin

Lausanne, Switzerland

#55 Jul 1, 2013
Peggy - I'm looking for information on what to expect as my dads illness progresses, he is 75, Stage 4, his remaining kidney is eaten up with cancer, as well as lungs and liver. A few months ago he was fine, just had some dizziness which led to the diagnosis, but he is rapidily going downhill.. I don't know if this is normal, and or if some of it is brought on by depression. I want him to fight, but I don't want to be unrealistic if he is suffering. I would also like to fine some information on demographics of RCC for the US. Any help would be appreciated. Thanks,
peggyRCC wrote:
<quoted text>
Since you are in the UK, you may well wish to reach out to more local resources. Do look up Rose Woodward, who will be a great resource for you. Her efforts brought about access to Sutent to all parts of England, and which may be prescribed for your father.
I am a survivor of stage IV kidney cancer, which is now eight years ago. My blog at www.peggyRCC.wordpress.com tells my story, and more importantly, has a series of lectures by kidney cancer experts. You can print these out, really study them and help form your questions for your doctors. Best of luck
PeggyRCC

Long Beach, CA

#56 Jul 1, 2013
Erin,(are there two Erins or am I confused?) I am sorry to hear that this has recurred with your father, which is one of the unfortunate characteristics of kidney cancer--it can come back, and even if the tumor seemed to have been removed properly. I assume that there was no attempt to remove any of the tumor in the remaining kidney, or in the other organs. If I understand correctly, he was given Sutent, but needed a lower dose.

If he is taking Sutent, he should also be getting scans to see if it is having affect. If not, he should be switched to another drug of its type, as no one can predict which of the several drugs may be helpful. Inlyta is often thought to have lesser side effects for some patients. Also, has you doctor discussed the use of ablation or directed radiation--stereotactic, focused on the tumors--which is quite different than a general radiation. This can kill some tumors without an operation, and may be helpful in relieving some symptoms. Even with the serious problems with the cancer, having some help with the depression--pretty natural response to this illness!--might improve his daily quality of life, and willingness to eat and so on. Do get some help with this.

As to the demographics of RCC in the US vs the UK, I offer the following. We have approx. 60,000 cases annually, increasing from about 10 years ago, probably since it is found sooner with more use of CT and MRIs. The death rate is unchanged, still about 13,000 a year, a dramatic improvement when only 38,000 cases were diagnosed. I believe that this is better than in the UK, probably because we have more approved therapies than are available. Also in the UK, the availability of the meds differs in the regional NHS areas.

In any circumstances, he should be seen quickly by someone who is experienced with RCC. He should have been closely followed with annual CT scans after his first surgery, and if not, that may indicate that his doctor did not fully understand kidney cancer. This is typical in the US as well, and especially when patients are assured by a surgeon that he "got it all". You just cannot see everything, and the tumor could have metastasized without being detected for a number of years.

If you can tell me more specifics, I can comment further, but would urge you to get him to a specialist and on some meds, should he be in a depression. Sincerely, Peggyzuckerman@gmail.com
Yanyan

Tel Aviv, Israel

#58 Nov 4, 2013
Hello friends
My name is Yanyan.
I am chinese, my mother suffering from Kidney cancer. I went to Israel to buy the madication Inlyta . here there is a very cheap Pharmacy called Isrameds / Onconsule .
They service is very good , they have a staff that can speak Chinese and they are the only company who can receive proscription from Chinese doctors and send to mainland china.

here is there number 97 544597708
Isrameds2@gmail.com

hope is going to help who ever needs help
Alayah

Sherwood Park, Canada

#61 Apr 15, 2014
Aches, pains and health concerns.
Can anyone help? Referral?? Doctors won't take me seriously! They say it's either in my head or that it's just anxiety. I'm in so much pain now and no one believes me enough to even run the tests!! I'm so scared and don't want to wait just to die!
Below are my symptoms and most set on fast. Also I dropped 80 pounds in 6 months.
Lymph nodes under armpits keep swelling, as well in my neck. and pain in armpits by breasts and back below shoulder blades radiating to center on back. Constant pain deep dull ache in back right side. As well as left. have numerous lumps all across my Lower rib cage, very tender to touch.
I feel like I can't regulate my body temperature anymore.Newer mole on my foot that has been changing as well. Now it's raised and triangular. I have had it 2 years maybe. The mole is now changing colors and I took a picture and when I looked at it close I noticed a blue lump in it as well.
Moles on my calf and arm are showing up in symmetrical groups of four with one in the group changing shape, size and color. Bad joint pains especially in fingers, elbows and knees. Pinky on right hand is painful swelling up too, red, Pain in shin bones and tendons when I walk. Baby Toes are deformed and pain in my right one comes and goes as a constant ache, pain in the top my top of my shoulders radiating into neck and center back.
Pain in abdomen. Somedays I have to pee urgently every 10 - 20 minitues. Sometimes I leak from my bladder. Have to wake up 2-3 times to go pee at night. Urine is always cloudy with tiny bubbles.
Burp a lot after eating or drinking but find it difficult to pass gas through bum. Swelling up really bad. Retain water and it actually hurts to wear socks even my loose ones when this happens. My clothing leaves big indents in my skin. I get extremely itchy from this.
Hair has become thin and dry and brittle. It has been falling out and thin on top of my head now. I'm growing strange very course thick black hairs on my head.
Feel tired drained all the time. Like I could sleep all day. Frequent headaches sometimes daily. A lot of headaches lately. Noticed a few lumps on my right forearm pea sized and a couple hurt if I touch them. Noticing sensitive lumps all over my body. It hurts to wear a bra, or pants or socks.
I keep getting Sores in my mouth. Where gums and cheeks join, under tongue. My vision changes. Somedays it's good other days things appear blurry. A lot of floaters in vision and ghost images from tv or looking at something then looking elsewhere I see same image still for a few seconds until it fades away.
My lungs have been tight feeling, short breathed, I have been waking up from sleep with a feeling like a dry choking in my throat. I have had a cough since December of last year. I wheeze at times.
CMJ

AOL

#62 Jul 23, 2014
I hope you were able to find a doctor to help you.
Alayah wrote:
Aches, pains and health concerns.
Can anyone help? Referral?? Doctors won't take me seriously! They say it's either in my head or that it's just anxiety. I'm in so much pain now and no one believes me enough to even run the tests!! I'm so scared and don't want to wait just to die!
Below are my symptoms and most set on fast. Also I dropped 80 pounds in 6 months.
Lymph nodes under armpits keep swelling, as well in my neck. and pain in armpits by breasts and back below shoulder blades radiating to center on back. Constant pain deep dull ache in back right side. As well as left. have numerous lumps all across my Lower rib cage, very tender to touch.
I feel like I can't regulate my body temperature anymore.Newer mole on my foot that has been changing as well. Now it's raised and triangular. I have had it 2 years maybe. The mole is now changing colors and I took a picture and when I looked at it close I noticed a blue lump in it as well.
Moles on my calf and arm are showing up in symmetrical groups of four with one in the group changing shape, size and color. Bad joint pains especially in fingers, elbows and knees. Pinky on right hand is painful swelling up too, red, Pain in shin bones and tendons when I walk. Baby Toes are deformed and pain in my right one comes and goes as a constant ache, pain in the top my top of my shoulders radiating into neck and center back.
Pain in abdomen. Somedays I have to pee urgently every 10 - 20 minitues. Sometimes I leak from my bladder. Have to wake up 2-3 times to go pee at night. Urine is always cloudy with tiny bubbles.
Burp a lot after eating or drinking but find it difficult to pass gas through bum. Swelling up really bad. Retain water and it actually hurts to wear socks even my loose ones when this happens. My clothing leaves big indents in my skin. I get extremely itchy from this.
Hair has become thin and dry and brittle. It has been falling out and thin on top of my head now. I'm growing strange very course thick black hairs on my head.
Feel tired drained all the time. Like I could sleep all day. Frequent headaches sometimes daily. A lot of headaches lately. Noticed a few lumps on my right forearm pea sized and a couple hurt if I touch them. Noticing sensitive lumps all over my body. It hurts to wear a bra, or pants or socks.
I keep getting Sores in my mouth. Where gums and cheeks join, under tongue. My vision changes. Somedays it's good other days things appear blurry. A lot of floaters in vision and ghost images from tv or looking at something then looking elsewhere I see same image still for a few seconds until it fades away.
My lungs have been tight feeling, short breathed, I have been waking up from sleep with a feeling like a dry choking in my throat. I have had a cough since December of last year. I wheeze at times.
emily

Frisco, TX

#65 Apr 17, 2015
Katie wrote:
We just found out that my dad has RCC. I am so scared. He was fine two months ago but now can barley walk! He has a 10x11cm mass on his right kidney, slighty enlarged adrenal glands, a few nodes on his lungs... and they are doing a bone scan and ct scan to see if it has spread to his bones and brains. He had 30oz of fluid drained from around his lung (pleurisy) and has suffered hypoxic brain injury (possibly because of not oxygen getting to his brain from the pleurisy). His short term memory is not too great and he can't do many things that he was once able to do. I am so worried that the cancer has spread to his brain and that it wasn't caused by the pleurisy. He also can't use his right hand... drops things can't open and close is properly... I am wondering if those are signs of bone cancer or if maybe that too was caused from the pleurisy... he walks into things and will stare at things for ages trying to figure out what they are. My father in law was also just diagnosed with lung cancer and there is nothing they can do for him. From the tests he has had done and the results he has gotten I am so worried that my dad has the same fate. Can any one please give me some advice... some hope... I feel so lost. Thank you
Katie
I know how you feel my dad just had surgery cause he had kidney cancer and now he's blood is abnormal... so something's not right and he I struggling and so is our family i will pray for you

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