Since: Feb 12

Chester, VA

#1 Feb 13, 2012
I am currently taking 50mcgs of Levothyroxine. I have been on this for almost 3 years (well I started at 25mcgs, but was quickly increased). Here is my question. My blood work comes back normal now, but I still have some medical things going on. What of these could still be Thyroid even if I am on medicine that brings my levels back to normal? I have never seen anyone other than my primary for this, and he has never made an attempt to find out why I became hypo. Just said, "eh, it happens." So I have no idea what causes this for me.

1) Very Dry skin on bottoms of feet.

2) Mild night sweats (not drenching)

3) Neurological stuff, like twitching, and numbness.

4) Fatigue.

5) weight gain (20lbs since this started 3 years ago)

Since: Feb 12

Phoenix, AZ

#2 Feb 13, 2012
MH,

Have you actually seen your labs? I only ask because many time the Doc's office will call and say "yer good." But it is possible you're technically in the right ranges but could be still suffering hypothyroidism symptoms.

Second question: Are you getting the right tests done? Are you asking for a Free T3, Free T4, and a TSH? you really need these three tests together to really paint a picture of what is going on with your thyroid hormone levels.

The things you describe do sound like Hypothyroid symptoms to me. I would venture a guess that you might still be a bit Hypo - maybe subclinical. The twitching and numbness doesn't fit the bill, but all the other ones do. I used to get mild night sweats when i was hypo. Fatigue, dry skin, weight gain... all classic.

If you can get these test you might see that you need to pop up to 75mcg or something. It is worth a look. Subclinical Hypothyroidism is a real problem. If the TSH acceptable range is )0.45 to 4.5 and you are sitting at 4.3 or something - yeah, that is no good. Doc might say you're good, but you're symptoms tell you otherwise. I believe strongly in having a TSH no higher than 2.

if you have already done that and you're zero'd in with a nice low TSH, and a middle range Free T3 and T4, I'm so sorry for yammering on here.

Good luck, I hope you get it sorted out. Keep us updated!!!

Nick / Sulkair

http://thyroid-hype.com "Where knowledge and community equal healing" a website by sulkair

Since: Feb 12

Chester, VA

#3 Feb 14, 2012
Thanks. I have never seen a lab report, and have no idea what my numbers are. Can you just request to see those things? I went to a neurologist almost 2 years ago for the twitching, and he called it benign twitching and sent me on my way. The actual term for it is Benign Fasciculation Syndrome. Annoying, but not a big deal. There are some the board for that syndrome that are also hypo, so not sure if there is a connection or not. Probably just coincidence. See I also sometimes get night time foot cramps. Not sure if that is a thyroid thing or not. I have always found it a little strange that my doc made no attempt to find out what was causing me to go hypo. Is that what usually happens?

Since: Feb 12

Phoenix, AZ

#4 Feb 14, 2012
MHSwarriors wrote:
Thanks. I have never seen a lab report, and have no idea what my numbers are. Can you just request to see those things? I went to a neurologist almost 2 years ago for the twitching, and he called it benign twitching and sent me on my way. The actual term for it is Benign Fasciculation Syndrome. Annoying, but not a big deal. There are some the board for that syndrome that are also hypo, so not sure if there is a connection or not. Probably just coincidence. See I also sometimes get night time foot cramps. Not sure if that is a thyroid thing or not. I have always found it a little strange that my doc made no attempt to find out what was causing me to go hypo. Is that what usually happens?
It is sounding more and more like you're probably still hypo. Muscle cramps can also be a symptom of hypothyroidism.

Yes, they are your lab results, they belong to you, you paid for them. All you have to do is ask for copies. You will do wonders for yourself if you learn how to read them. Remember you need to specifically ask for Free T4, Free T3, and TSH. i have a page on my website called Thyroid Test that explains it, and you can see a copy of my labs there. Not trying to promote my site - it may help you understand what you need to look is all. http://thyroid-hype.com/thyroid_test/

As far as what causes Hypothyroidism. It doesn't surprise me that your doc has never sought the cause of it. It is becomming so common now that it is almost normal :( It is often hereditary, and unless there is an underlying causal factor that is creating problems elsewhere then they are usually just going to treat it and move on. Pretty standard.

Sulkair

PS, I often get a twitching lower eyelid that goes for days on end. wonder if it is related to my hypothyroidism???

Since: Feb 12

Chester, VA

#5 Feb 14, 2012
Twitching would seem to be a byproduct of Stress. Especially in the eye lids. For me, it was a very prolonged period of intense stress (involving an episode of Bell's Palsy), which has now "stuck" my whole body in the pattern of having nerve endings that are over sensitive. So thus my twitching is all over my body. Even though the stress is gone, I am stuck with the result. Doesnt' bother me much anymore. The dry skin, fatigue, and the occasional night time cramps do bother me. The bottoms of my feet are so dry they are cracking. And it is not the weather as it has been very mild here, and it goes on year round.
Tired

Glasgow, KY

#6 Feb 16, 2012
I have all those same symptoms too, including the twitching, mostly in my legs , Dr. said it was restless leg syndrome, but I also have it all over my body at times, and also the feeling of falling when going to sleep. My Dr has not helped me out much either , everything I've learned about hypothroidism , I have learned over the internet and still learning more all the time,

Since: Feb 12

Chesterfield, VA

#7 Feb 17, 2012
I have also had the falling feeling when going to sleep. It doesn't happen often though, and mostly when I am stressed. I have heard a lot of people who also have twitching. Who knows if it is related or not, but the good news is that it isn't going to hurt you. I really wish I could get rid of the fatigue, and the dry skin (especially on my feet). I also cracked 2 nails this week, which is not typical for me. Part of me hates to go back to the doctor because I don't want to seem like a hypochondriac.

Since: Feb 12

Phoenix, AZ

#8 Feb 17, 2012
MHSwarriors wrote:
I have also had the falling feeling when going to sleep. It doesn't happen often though, and mostly when I am stressed. I have heard a lot of people who also have twitching. Who knows if it is related or not, but the good news is that it isn't going to hurt you. I really wish I could get rid of the fatigue, and the dry skin (especially on my feet). I also cracked 2 nails this week, which is not typical for me. Part of me hates to go back to the doctor because I don't want to seem like a hypochondriac.
You gotta go back and take a look at those 3 labs yourself Free T3 Free T4 and TSH. You've got to do your own detective work on that one. These guys aren't looking out for us MH. They are just too busy with a million patients with a million different problems. This is 2012 now and we are our own best advocates, and the only one who is a specialist of you. The cracked feet and fatigue may not be hypothyroidism, but if I had to put my money on any one thing, it would be that. It's virtually epidemic. Rule it out anyway. You're TSH could be in limits but high end. This means you could be sub clinically hypothyroid which for many people feels like crap. The doc however would likely say you're fine with TSH in range.

sulkair
http://thyroid-hype.com
Tara

Branson, MO

#9 Feb 21, 2012
I have been diagnosised Hypothyroid in 2003 but probably had it since 1997. I have had various changes to my medicines and then back tracked due to stress and depression. What I found helped the most with the depression was acupuncture. I didn't have to be on any of the bad medicine. Just herbs and acupuncture and it helped so much. I thank my mom for taking me. Now I am more balanced but have had "normal" blood tests but I didn't feel right. I felt disconnected, lack of concentration, etc. I convinced my doctor to put me on Cytomel. So far, emotionally, it has worked. Cytomel isn't commonly used but it may work for you even though it is more expensive. I have also started seeing a new acupuncturist where i live now and hope to naturally help my thyroid. He had me do an underarm temperature check. The average temperature should be between 98.2 and 98.7.....i was 96.5. Still not right even with years of medicine. I go to the doctor tomorrow, so we will see. I have also found the book "Thyroid Solution" helpful.

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Hypothyroidism Discussions

Title Updated Last By Comments
i have hypothyroidism Apr 13 hellokittyfreak86 1
TSH levels, what is normal range? (Oct '08) Mar 30 Sivaranjani 178
Hypothyroidism symptoms Mar 19 Jessica0004 1
High cholesterol and only 18 years old. (Jul '07) Mar '15 Chloe 16
Book results!! Please help. Mar '15 Kaciiiii 2
Levothyroxine & Weight Loss (Jul '07) Jan '15 miriam 3,254
Hypothyroidism mentally & emotionally suffering? (Jan '11) Jan '15 Ana 48
More from around the web