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1 - 18 of 18 Comments Last updated May 12, 2014
brenda

United States

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#1
Apr 11, 2010
 
Does anyone have muscle pain and weakness with swelling...from hypothyroid? If so...how long did it take for these symptoms to improve after starting medicine?
Ruth

Montenegro

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#2
May 9, 2010
 
brenda wrote:
Does anyone have muscle pain and weakness with swelling...from hypothyroid? If so...how long did it take for these symptoms to improve after starting medicine?
I am having lots of muscle pains. My TSH is down to 2.98 and I am having these pains. They are in my arms, neck, and legs along with joint pain in my elbows and knees. I did not have these symptoms when my TSH was up at 5.1. I had other symptoms that went away as my TSH gradually lowered. However, at 2.98 I am having lots of muscle pains. I am guessing that I need to get my TSH even lower, but my doc. seems to think that my level is fine now. Hope your muscle pains are better by now.
Christine

Astoria, NY

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#3
Jun 13, 2010
 
Hi brenda, I had very bad back pain prior to beign diagnosed as hypo. It would keep me up at night, I was unable to sit at my desk at work, and sometimes it was so bad, all I could do was cry. I thought it was the result of a car accident I was in the year prior, but after going on Synthroid the pain went away completely. Now, due to a loss of health insurance, I have been without medication for six months. All of my symptoms have come back, including the back pain. I'm convinced it is directly related to the hypo, but not sure how. I hope you are feeling better these days.
Jen

United States

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#4
Jun 13, 2010
 

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Do you realize "hypo" is also short for hypochrondriac??!!?!???! Symptoms? How were you before the meds, during??? I'm over the while synthroid/levo bs. I feel much better off the meds
Sharon

Bray, Ireland

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#5
Jun 14, 2010
 

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Jen, if you are implying that this person is imagining their symptoms then I find that comment very offensive.

There is definately a link with muscle pain and hypothyroidism. Some (including Dr. John Lowe) even claim its the cause of almost all fibromyalgia. I know very very little on the subject so didn't feel the need to post a reply.

I'm glad you feel better without synthroid, I really am, but quitting meds would make most people feel worse (at least in the long run) and any newbie could read your comments and think they should quit the meds. I just don't know how after knowing about most peoples continuing hypo symptoms despite meds on these boards you can call the person above a hypocondriac? I don't get it.
Jen

Honolulu, HI

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#6
Jun 14, 2010
 

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Oh Sharon give me BREAK!! I wasn't referring to her as being a "hypochondriac"- I was referring to the fact that so many of us have the same symptoms and the doctors do nothing about it, act like we are "hypochrondriacs".I would never be blantly rude and insensitive to another person's pain or issues with hypthyroidism. Really! Take a step back beforing making an assumption.
Sharon

Bray, Ireland

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#7
Jun 14, 2010
 

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Ok well I'm sorry that I picked you up wrong but your comment wasn't very clear which is why I began with "if you are implying..."
Christine

Astoria, NY

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#8
Jun 14, 2010
 

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Jen, maybe it was just the way you worded it, but I did take it the same way Sharon did at first. Thank you for clearing that up. To answer your questions, I felt much better on medication, actually, I felt great! I have been on a slow decline over the last six months with the last two getting increasingly worse. I'm having blood work done on Wednesday to get back on meds. You asked what my sypmtoms were.....extreme fatigue, increased menstral problems, dry skin/hair, no libido, low body temp, weight gain, and lately...some very annoying emotional probs...I feel "PMSy" all month. I'm very excited to get to the dr and start feeling like myself again.

Sharon, thank you for the support and response. I've been so emotional lately that if I had read Jens comment without seeing her clarification, it would have been enough to send me into tears. Stupid, I know...but I'm definately not myself these days. I wish you the best with your health and journey.
Jen

Honolulu, HI

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#9
Jun 14, 2010
 

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Oh I'm done.!!! I've never been more disgusted at how women can't be "an individual".'I'd be sad,''Jen made me feel'.. bad, blah, blah, blah get real. Wish all of you the very BEST!!!! It's not a pill that will make you feel better or less symptomatic. GB

Since: May 10

York, UK

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#10
Jun 15, 2010
 

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Hmm seems to me that coming off the meds hasn't improved your mood any Jen! You should read your posts a few times and see just how rude and offensive you come across.
Jen

Honolulu, HI

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#11
Jun 15, 2010
 

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MrsHoney I think your comment is funny. Good bye
Cat

Richmond Hill, Canada

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#12
Oct 28, 2011
 
Hi, does anyone know how long it takes before meds start working. I've only been on my meds for 2 weeks. First week I wasn't miss "doom and gloom" but this week I'm getting more symptoms then before (I've gotten these symptoms before just didn't associate them with hypo-t; puffy eyes, body aches). My TSH was 7.09 (I believe I've had hypo-t for 19 years when I got total body hair loss after having my daughter but TSH was always within doc's idea of normal so stress was what I was told). Finally, got diagnosed and Doctor put me on Desiccated Thyroid Hormone 30mg, which I know is low but he's scheduled blood work after a month, to ensure my body gets used to the increase. I guess after all this time I just wanted to start feeling like myself again (almost forgot who that was)
Nicole

Bethlehem, PA

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#13
Jan 26, 2013
 
Ive had hypothyroidism my whole life, as I was born with it. I felt "normal" for the most part until I was 25 or so when I began getting muscle aches, twitching, cramping in my legs, poor concentration, poor memory, and awful anxiety. I went to doctors and had my levels tested a few times to have them tell me that my levels were "normal" and eventually I was convinced that I had MS or ALS. I lived a life of worry and hell until I found a doctor who wanted to try upping my medication levels from 100 mcg to 112 and eventually 125 mcg. Im happy to say that I am feeling much better than I was previously. I do not feel 100%, but I feel about 80% better and it took about 8 months to get to this point. It took about 4 months before I saw a significant improvement at all. Hope this helps.
frank

Cumming, GA

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#14
Nov 22, 2013
 
Jen wrote:
Oh I'm done.!!! I've never been more disgusted at how women can't be "an individual".'I'd be sad,''Jen made me feel'.. bad, blah, blah, blah get real. Wish all of you the very BEST!!!! It's not a pill that will make you feel better or less symptomatic. GB
Jen, are you mentally stable? A pill for my hypothyroidism will not make me feel better? I have almost died twice due to being in a thyroid storm from hyperthyroidism and then passing out because I went severely hypo. If I did not take my pills, I would not feel better like I do now. In fact, I would be dead! You are so dumb.
Ian Probert

London, UK

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#15
Nov 30, 2013
 
Hi Brenda,

I know the feeling very well. I, too, had muscle pain for a very long time. It's very unpleasant. I thought it was down to ageing, or bad luck, or bad posture. The pills helped me get rid of it and I hope they do for you, too.

In my case it was my back that caused me the most problems. I also experienced tremendous weakness in my arms. My wife was much better at lifting things than I.

Thankfully, I don't get these symptoms anywhere near as much as I used to.

Jen, we're all hypochondriacs one way or another. I recently went to my first thyroid 'meeting'. Never heard so many people moan with so much voracity. Made me feel quite ill.
BBC

Quesnel, Canada

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#16
Dec 2, 2013
 
Jen wrote:
Oh Sharon give me BREAK!! I wasn't referring to her as being a "hypochondriac"- I was referring to the fact that so many of us have the same symptoms and the doctors do nothing about it, act like we are "hypochrondriacs".I would never be blantly rude and insensitive to another person's pain or issues with hypthyroidism. Really! Take a step back beforing making an assumption.
Well, I thought you were being a bitch ,
BBC

Quesnel, Canada

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#17
Dec 2, 2013
 
Jen wrote:
Oh I'm done.!!! I've never been more disgusted at how women can't be "an individual".'I'd be sad,''Jen made me feel'.. bad, blah, blah, blah get real. Wish all of you the very BEST!!!! It's not a pill that will make you feel better or less symptomatic. GB
I guess I was right, you were being a bitch
andrea

Calgary, Canada

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#18
May 12, 2014
 
I just got diagnosed with hypothyroid. I was started on 0.75mg of synthroid that dosage worked for a week, then noticed last week I was getting tired again, muscle weakness, and pain was coming back.
I am now on 0.88mg, and am hoping the pain goes away. Im not feeling tired witch is a good thing. The hardest part of it all is getting out of my old ways of im exhausted to do anything. But now find my self being in pain.
To all you woman that are just being diagnosed and treated like me, hang in there. I do hope the pain subsides.

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